Hey Deon, it's good to see an update from you, and I'm glad you seem to be doing better! You look healthier and happier compared to the last video. The Q&A was very informative. Thanks for being so open and sharing so many personal details. It's important for people to understand what epilepsy is all about. Your mom seems like such a caring person, I'm sure it's been a comfort to have her around as you've battled the ups and downs over the years. All the best for a great 2017, dude!
@deonswain3976
7 жыл бұрын
DanNJ316 Thankyou so much. That's such a kind message. I never thought people would be interested in me as I've never known any thing different from epilepsy. I am feeling more with it and hope that this is my year to say goodbye to seizures forever. I live in hope. Have a fab year too dude
@rowanthorn2240
7 жыл бұрын
Hey bro thanks for doing an info video. Watched your other video and wondered how you've been doing. Cool your family is so supportive, hope you find something that works better for you soon man. I have temporal lobe epilepsy (mainly complex partials with secondary tonic clonics and also have SPD and co-ordination issues) and struggling to find the right med balance too, it's so frustrating. Anyway man take care
@deonswain3976
7 жыл бұрын
Thank you for the wonderful comment, I hope your doing well mate and that one day you will be seizure free. I will be making another video some point this year but it all depends when i'm free. Take care mate.
@hannahlamb7315
7 жыл бұрын
You're an inspiration :)
@deonswain3976
7 жыл бұрын
Hannah Lamb Thankyou but I think all of you are fo even watching me and commenting. X
@April-sn1wf
6 жыл бұрын
Sending my love and prayers your amazing man I'd love to see more videos stay strong 💪 💛💛🙏🏻🙏🏻😇😇🙏🏻💛🙏🏻😇😇🙏🏻💛🙏🏻😇 Deon
@luckygal12
7 жыл бұрын
Hi there folks. My tonic Clonic began after in my early 20's. believed to b stress related. I had two after loosing my grandparents and a failed IVF treatment. I'm lucky not had any since then 2 half yrs ago xx
@deonswain3976
7 жыл бұрын
Naomi Sturgeon Beauty Make-up I'm sorry to hear about your struggles. I hope you are feeling better now :)
@luckygal12
7 жыл бұрын
Yes,I may feel fine but inside my head can't cope. Guess it's my coping mechanism now.
@punisherooo7
7 жыл бұрын
Hang on there buddy.. you will be great in d end... Iam valparol cr 500 twice and levitracitam xr 1000 and 750 per day .. thats make up 1000 mg ... Never give up buddy... God give his hardest battles to his strongest soldiers and we are one of them.. dont worry my bro... Lots of positivity you are spreading...
@sophiepalmer-doran344
7 жыл бұрын
please read entire story before replying: I have Epilepsy absence seizure with that comes with a lot of stereotyping; the first thing that comes to mind is a person who is fitting on the ground. i have absence seizures. I was diagnosed at the age of five but have been seizure free since the age of thirteen and so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point an then it becomes a pill no pun intended. After my father died, it seems I have had a relapse if that is possible. i still have my absence seizure but it is not enough to put me on meds . my triggers are flashing lights, spacificly the transition from the out doors to inside a classroom getting too hot and reasently sleep deprivition. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors though I did hope for a regents diploma but after taking the algebra common core regent seven times starting out with a 40 and ending up with a 57 . I started collage on August 29th as you can infer I was not expected to do much of what I just mentioned
@koranaashleigh5913
7 жыл бұрын
Dear Deon, you are very handsome and cool, and you family seem lovely people. Have you all considered the paleo diet?. My husband is epileptic and he does very well on it, it is a bit like healthier ketogenic diet, with a bit more freedom as to what you can eat. It's great for everyone and not just people with epilepsy. Paleo eating would make your gym results even better, it's a great way of eating if you want to build muscle. Cheers.
@deonswain3976
7 жыл бұрын
Eve Jepsen thank you, for your advice I'll look into it :)
@MiracleRenee
7 жыл бұрын
How Does It Feel During Your Seizures? Does It Hurt?, How Does Your Skin Feel?, How Do You Feel Afterwards? And I Love You Soooo Much Deon Your An Inspiration Like Really!
@deonswain3976
7 жыл бұрын
ItsMirz hey! It doesn't hurt, tbh I hear things around me whispering. Like a sensory thing. My eyes are wide but I see normally. My skin feels normal. It's weird because I never get a headache or weird after, just tired. I hope that helps. And Thankyou I really didn't think this would be very interesting for people as I don't remember being anything different. But I appreciate you commenting and Thankyou again.
@MiracleRenee
7 жыл бұрын
Your Welcome Love You
@TheJedman
7 жыл бұрын
Well l can see how some of the medication doses can make you tired, l am 55 l take keppra plus toprimate together plus a good dose of blood thinners as well some other stuff. These do screw up the old noodle from time to time especially for me even after almost 30 plus years of taking them. Hopefully in your generation they will have a sure fire remedy or cure for this problem l see some very promising research providing there is a will as well companies that invest into these new idea's
@SiiLENTxSCREAMz
7 жыл бұрын
anime
@hannahlamb7315
7 жыл бұрын
Was it hard coping with seizures?
@deonswain3976
7 жыл бұрын
Hannah Lamb it is frustrating as it takes away my independence.
@sidnifields8214
7 жыл бұрын
I have epilepsy to it sucks
@sidnifields8214
7 жыл бұрын
I'm sorry epilepsy really sucks
@victoriabarnes1730
7 жыл бұрын
hello how are you
@deonswain3976
7 жыл бұрын
Victoria Barnes I'm good thanks. How are you?
@victoriabarnes1730
7 жыл бұрын
i am good thank you do you have fcebook
@deonswain3976
7 жыл бұрын
Victoria Barnes yes my name is Deon swain on it :)
@deonswain3976
7 жыл бұрын
Victoria Barnes I didn't get a friend request on Facebook so I could add you if you wanted. I have searched Victoria Barnes and I don't know which one you are.
@MiracleRenee
7 жыл бұрын
What Girls Are You Into?
@deonswain3976
7 жыл бұрын
ItsMirz hey ahah I'm happy with its someone who is understanding and wouldn't be freaked out by my epilepsy. Someone who wouldn't mind me messaging when I needed someone to talk to. Someone kind and maybe a nurse! Lol
@MiracleRenee
7 жыл бұрын
Hahhha, I Think It's Inspiring Knowing Someone Who Has Epilepsy Because It's Inspirational To Know How They Deal With It And How Long They Can Deal With It, You Know?
@deonswain3976
7 жыл бұрын
ItsMirz I do know yes. Thankyou for your messages x
@MiracleRenee
7 жыл бұрын
Np...And I can't believe I didn't ask you this before but do you have a snapchat?
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