Priscilla, thankyou for allowing us into your world. It is an honour to have met you. It also helps to dispel the myths and fears around your condition. I send you love and light from Ireland. 💞💫💞💫💞💫💞💫
@julianastratton1790
4 ай бұрын
Priscilla is a superhero, and so are her mother and Rachel. Just the thought that many many many many others around the world have to struggle in similar ways, but don't have the same apparatuses or loved ones who care, profoundly breaks my heart.
@marleenninaka1303
3 жыл бұрын
Hi everyone: It's nice to see you all. I hope to meet you all one day. Nice to see you on KZitem again. Take care and stay safe.
@brookebixler1040
2 жыл бұрын
I enjoyed your interview! I hope you’re doing well! I LOVE your tattoos! I have two but would like to get more!
@priscillawong1474
2 жыл бұрын
@@brookebixler1040 I'm doing well! How about you? Thanks for the compliment on my tattoos!
@brookebixler1040
2 жыл бұрын
@@priscillawong1474 I’m doing well besides some health stuff. Thank you for replying, I appreciate it!
@trml3805
2 жыл бұрын
I love you I’ll see you on KZitem again
@trml3805
2 жыл бұрын
Oop
@steveadams6595
2 жыл бұрын
Lovely to hear about you Priscilla, and you are right: ‘staying encouraged’ is really a challenge for everyone day in and day out, acknowledging and confronting the difficulties in an honest way I think cultivates great character and allows you to grow. Have a great week.
@Hedwig-gj2di
3 жыл бұрын
You are very wise and definitely someone I think I would like to have a conversation with. Thank you for telling us a little about you and your life. I hope you are doing well and content and I wish you many blessings and joy.
@Syrupsssss
29 күн бұрын
Many conversations and on going friendship would be nice too.
@Missy-vm8fr
Жыл бұрын
Girl, you are not just “smart” …you are very wise beyond your years!!! You need to write a book or do a TED talk. Beautiful inside as well as out!!!
@freedomofspeech766
2 жыл бұрын
Dear Priscilla ... you are a lovely person inside and out. The eyes are the mirror of the soul and your eyes are all soul. I pray with each day you feel better and lots of love to you and your very loving mother and little doggy ... I wish I could hug you and visit you in real life but unfortunately I live on the opposite side of the planet. Hugs and kisses to you xxx
@brunahamabata1
3 жыл бұрын
Lots of love to both of you, Priscilla and mum.
@Tranquility32
2 жыл бұрын
It’s easy to see she’s a wonderful person and friend. Much love to her and her dear mom and family. ♥️
@savannahbosworth2900
2 жыл бұрын
Beautiful video! Nice to meet you Priscilla ❤️ My son also has Nemaline myopathy ❤️
@meme-ug8oh
3 жыл бұрын
I wanted to thank you for your video. I learned a lot from you. I think you are super special and I wish I could give you a big hug.
@shellyannlewis2595
2 жыл бұрын
Rachel you're a blessing, God 🙏 bless you for doing such a wonderful job.
@noname-pz7qr
2 жыл бұрын
You know what makes her especial? No, it's not her disability.but it is all the efford that she and her family makes to live a good life❤
@lorricivalier4604
3 жыл бұрын
You are truly amazing❣️I can see the love from your mother for you ❣️
@priscillawong1474
2 жыл бұрын
Thank you!!
@m.carmendiaz913
2 жыл бұрын
I’m spanish. I loved to hear about you and I liked your tattoo a lot. You said you love reading. Could you recommend me a book? I love reading too.
@sherryd.3425
3 жыл бұрын
Hi, Priscilla. I hope you're still doing well after all this time. I wish that I could have commented right after I viewed your interview because you were so candid and personable. Is your dog a miniture poodle? My first pet was just by chance. He was smart and loyal and just such a rare, unexpected gift. He saved my life from age 15 to 28 years. I was in emotional turmoil, bullied, tormented, and just stretched to the max trying to put on a happy face for my siblings. Bottom line: We are here in all our "glory" to initiate change in society. We humans are all very much the same, but often only notice and accentuate our tiny, tiny differences. I am many years older than you are, and yet, you have independently discovered and articulated that same message in your own original, empowered way. Why are we not uniting ourselves with one strong voice?
@ceciliafernandez2468
2 жыл бұрын
Thank you, Priscilla- BRILLIANT!!! Your mom had the perfect word ♥️
@gieljanstouten
3 жыл бұрын
U are a great person, thanks for making this video alot of good wishes from The Netherlands.
@brendaberkelback2660
3 жыл бұрын
GOD BLESS YOU ALL AND EVERYTHING YOU GUYS DO TO HELP.❤😇🙏🏻
@DAVEJJR
2 жыл бұрын
You are a beautiful young woman! An inspiration to us all!
@angiesands2175
2 жыл бұрын
You are an absolute warrior. ❤️💯❤️💯❤️💯
@toomuchtotype6079
3 жыл бұрын
Sending lots of love and positive vibes friend. Hope you are happy and doing well. Take it all a day at a time. 💚💚💚Also hope your fur baby is doing well as well.
@ShaniaNicole
3 жыл бұрын
I enjoyed watching this! Great to meet you Priscilla!!
@jetsparks17
3 жыл бұрын
Thank you bro for doing this and showing the world that different is normal. thank you
@bible_verses_to_add8337
2 жыл бұрын
God bless you sister. Truly you are more than everything you are going through. YOU ARE PRECIOUS TO GOD.
@jochhejaam
2 жыл бұрын
And thank God for these awesome caregivers!
@RinokuMotahi
3 жыл бұрын
I recently finished my first bachelors and I got so happy when you talked about your degrees! Women and gender studies have a sound amazing.
@Totalchaos0228
3 жыл бұрын
Priscilla, your appearance is not intimidating. I was happy to be able to see your lovely face.
@mandybear7063
3 жыл бұрын
I love her tattoos. She has so many pretty tattoos!
@monaminchau4798
Жыл бұрын
Amazing to see how the wheelchair can be operated with such minimal movement! I hope technology will grow fast to provide yet more independence!
@bellejourneelibre47
Жыл бұрын
She's amazing and have she is beautiful inside and out. I wish her all the happiness 💕 💕 💕 💕 💕 💕
@rhiannonm8132
10 ай бұрын
priscilla, i also have depression and struggle with suicidal ideation. people like us are always fighting just to stay, and you have some additional/different challenges than some people do. but it makes me feel better to think we are all fighting together. it’s easy to feel guilty about having depression or to feel like a burden, but you’re worth so much, and everyone deserves to honor all of our feelings and the struggles we face. i absolutely love your tattoo and the beautiful frida kahlo quote - it’s perfect! i’m glad to hear you like to paint like her, that’s really cool. i also love art. hope you can find peace and (sorry to say it!) can stay encouraged! i’ll try my best too, and i’ll keep you in my thoughts! ps. another frida quote: “Al final del día, podemos soportar mas de lo que creemos que podemos.”
@spanishtranslator1668
3 жыл бұрын
Courageous! 💕
@dreamwalker3698
Жыл бұрын
You are such a doll❤️ Love the tattoo! Thanks for sharing your life with us😊
@kristinamastroianni1930
3 жыл бұрын
Peanut butter & Jelly! I 💜 that! Great tattoo!
@sheenagriffith2635
Жыл бұрын
Its sad that in this world, there are people who would bully soneone so much going on already.I wish for you good health and long life, and lots of love and happiness. Just keep being the sweet you that you are.❤❤❤
@jochhejaam
2 жыл бұрын
God Bless this beautiful lady! We love you!
@tracychen4122
3 ай бұрын
Omg I have something very similar to this. It’s called Nemaline Rod Myopathy which makes all my muscles weak throughout my body and I also have a trach and ventilator. Seeing this video is so inspiring 😊
@m3kbeatz
2 ай бұрын
I am disabled. How do u manage of anxiety and fear of getting old and maybe being alone.
@tracychen4122
2 ай бұрын
@@m3kbeatz I just don’t think about it and you’re never gonna be alone. I bet you have a bunch of people who love you and as long you have them, you’re gonna be fine and enjoy life. That’s the most important part
@kristinialyons5230
2 жыл бұрын
I have bipolar so I know with me it helps to be pushed. I have kids, which I never wanted to have, but because of them I HAVE to get up. I have to perform. I HAVE to, especially since I have little family help. Having a job part time helps. You HAVE to go, especially if you're poor!! If people come over regularly you will HAVE to most likely rise to the occasion and be social. Routine that PUSHES you really helps, and always get the proper emotional breaks in that you need as well!!
@kellymichelley
Жыл бұрын
I know exactly what you mean and agree with you 100%. I'm also diagnosed as bipolar, by the way. Not sure I concur with the diagnosis, but the meds help, so they can label it whatever they want.
@TheEmj1986
Жыл бұрын
Such a wonderful & smart woman, God bless! ❤❤❤
@larrylim3571
3 жыл бұрын
I'm inspired a lot and thankful for God's grace in sustaining all who are physically and mentally affected. I see God more in your presence.
@noname-pz7qr
2 жыл бұрын
She is so kind❤
@qammararshad6891
3 жыл бұрын
God bless you. Amen
@cherylolsen7811
Жыл бұрын
Thank you for sharing your story with us ❤ It is very interesting to see the ways different people succeed in life with different challenges. I am disabled too.
@punkyduck28
3 жыл бұрын
Beautiful ❤️
@NorthwestCatch
2 жыл бұрын
You are amazing. Thank you for letting us in
@mikecampos5123
3 ай бұрын
Priscilla you're amazing I love this video ❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏
@cynthiasuri9191
2 жыл бұрын
They said that the vent has to be turned off, so Priscilla is not breathing while her caregiver transfers her from the chair to the bed, so they have to be fast. How could she stay alive without breathing for long minutes? I can't hold my breath even for 20 seconds.
@Pit_Lord
2 жыл бұрын
She can breathe, just not enough to stay alive for long durations. Or, in other words, she isn’t able to take in enough oxygen to satisfy her bodies requirements on her own, so assistance is needed to keep her O2 levels stable.
@ronanevans3661
Жыл бұрын
I love you beautiful person inside and out I live you all guys 🙏🙏🙏🙏❤️❤️❤️❤️💯💯💯💯
@kathrynoneill5862
3 жыл бұрын
You are so awesome.
@thomasnadeau2583
3 жыл бұрын
She's my best friend 💓.
@enrisaher
3 жыл бұрын
Hola, soy de México y me gusta mucho tu trabajo porque me hace reflexionar sobre lo que tengo. El tatuaje en español es de la artista Frida Kalo, que también sufrió de muchas penurias en su cuerpo. Hay que ver sus obras de arte para darse cuenta de sus aflicciones. Saludos
@emco5243
3 жыл бұрын
Yes, for English speakers , her Spanish tattoo is a quote from Freida Kahlo! A little known fact, like Priscilla, Freida Kahlo was an artist who was also a member of the disabled community !
@welcomwelcom9882
Жыл бұрын
😮
@nikkoleadams4677
2 жыл бұрын
This woman is an intellect and an icon. I’d love to meet her.
@ericcartman9042
2 жыл бұрын
No!!!!
@nikkoleadams4677
2 жыл бұрын
@@ericcartman9042 I'd still like to.
@ericcartman9042
2 жыл бұрын
She's my girlfriend and nobody sees her without getting permission from me first
@nikkoleadams4677
2 жыл бұрын
@@ericcartman9042 In that case, may I have your permission? lol
@priscillawong1474
2 жыл бұрын
@@ericcartman9042 Who are you?? I'm very sure that I never accepted you as my "boyfriend" ever, as I don't even know you. Please stop posting outlandish statements that aren't true.
@pmfmpls
Жыл бұрын
The oxygen looks uncomfortable. I hope it's not.
@Mr_Gray_1995
3 жыл бұрын
God. Bless. You.
@tyrellwilliams2914
2 жыл бұрын
Bless you and in Prayers daily 🙏 and Love and Care and Concern always ❤️❤️❤️❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ Wishing Well and Health and Prosperity ❤️❤️❤️❤️❤️❤️❤️❤️❤️ Mother and daughter are Super Strong and Blessed. Blessed you all❤️❤️❤️❤️❤️❤️❤️
@danyabraun9472
Жыл бұрын
I know this is a bit of an old video, but Priscilla your tattoos are sick! I love the colour choices
@stacyberlfein4724
2 жыл бұрын
I love your life philosophy and totally agree. People need to be more open, accepting, and loving of others and people who are different from them. Thanks for speaking out about that because just like negativity can be contagious, caring can be as well.
@chronically_bqueenb
Жыл бұрын
I have a physical disability myself and wheelchair ♿️ bound
@notmarkeza7937
Жыл бұрын
Support!
@FullTimePatient37
Жыл бұрын
Thanks for sharing 💛💛💛
@menrbuiltnotborn6241
Жыл бұрын
Very charming girl and other then Her disability , very normal to me 😊
@kantnergirl08
11 ай бұрын
She is brilliant
@itsmeagain9253
3 жыл бұрын
💖🌺💖🌺💖🌺💖
@unknownytaus
Жыл бұрын
She would be so happy with how much everything has changed but how is she now days
@frasersgirl4383
3 жыл бұрын
I love your tattoos!!
@priscillawong1474
2 жыл бұрын
Thanks!
@frasersgirl4383
2 жыл бұрын
@@priscillawong1474 I love your pup too! I have four dogs of my own! What is his name? I didn’t catch it……
@priscillawong1474
2 жыл бұрын
@@frasersgirl4383 His name is Babee!
@frasersgirl4383
2 жыл бұрын
@@priscillawong1474 my little ones name is Bear!
@AngelicaCline-i6d
5 ай бұрын
I appreciate my bady functionality I do have because it could be this. Man talk about strength.
@jameslind2764
Жыл бұрын
Can we get an update on Priscilla?
@lindawagar-zl8ik
Жыл бұрын
I question the kindness of the caretaker. She seems unhappy.
@johnjobin7694
Жыл бұрын
Sending love❤️
@vanessakrugman2781
3 жыл бұрын
People accept physical disabilities with no problem if the person is intelligent..We have so far to go still..Society still does not accept people like my son with a severe mental impairment...He is severe autism and because he is not considered intelligent he is the most discriminated disability ..He is human still and has feelings ..He just cant verbalize it ..We have a very long way to go still
@aronlelenora9572
2 жыл бұрын
❤❤❤❤
@imveryboredeee6588
3 жыл бұрын
👍
@edolson9661
Жыл бұрын
You're gorgeous!
@leovanrossen6331
Жыл бұрын
💕
@kantnergirl08
11 ай бұрын
How is Priscilla in 2023?
@Galvatar100
9 ай бұрын
Not really an answer, but she hasn't posted on her blog for a while but she did post a picture of her dog on facebook a few months ago.
@Bimboslayer
Ай бұрын
Can we see her art sometime? I’d love to see what a painted by tongue picture looks like.
@traciemarsh1611
6 ай бұрын
beautiful lady
@meganchristian7085
3 жыл бұрын
Interesting how peoples live their lives
@turionb1408
2 жыл бұрын
wish you all the best
@BullShark-i2z
Жыл бұрын
Her caregiver seems to be a good caregiver. She seems to get the point of being a caregiver. Not all caregiver actually care.
@shelleysmith6342
5 ай бұрын
Whom ever bullied you has no sense of being a human being it’s a shame there are ignorant people who haven’t been educated by their parent about differences in people whether it color ethnicity or differently able people
@lauanagirard5195
2 жыл бұрын
I can't imagine not being able to do anything at all the boredom would be insane. I hope she can get over this low point and keep her eye on God. Does anyone know what happened to her?
@priscillawong1474
2 жыл бұрын
Hi. I'm very much still here and am doing pretty well. I also want to clarify for you that even though I can't physically move my body independently, there are still many things that I can do to make sure I'm not just a 'bored' statue helplessly waiting for minutes to pass by, i.e. I can read, watch series or films, play games, further my education, visit various places through travel, go to events and whatnot in the community, and much more. I hope that this corrects your impression that I can't 'do anything' and that I am bored. Take care.
@FullTimePatient37
Жыл бұрын
@@priscillawong1474 your confidence is striking Priscilla 💕 I'm still trying to accept my disabilities, it's been a very rapid decline from being healthy to disabled... I'm not yet in that position of being able to (enjoy) anything life is offering 😔
@meganchristian7085
Жыл бұрын
I want to be his next Interviewee
@Syrupsssss
8 ай бұрын
❤❤❤❤❤❤❤❤❤
@itsmelive
3 жыл бұрын
First question: what were the 2 minors?
@akinolaopeyemiodunayo9871
7 ай бұрын
Does every life worthh living?
@benmoore4529
3 жыл бұрын
♥️🌹🌹♥️
@arsalanabolfathi552
Жыл бұрын
❤❤❤❤❤❤❤❤❤❤👏👏👏❤❤
@albertoponcemusic
9 ай бұрын
Priscilla is awesome 😎 pies para que los quiero si puedo volar
@juriaanoussoren
2 жыл бұрын
She don't need air?for minutes
@adamisaac4685
2 жыл бұрын
Hi beautiful
@shelleysmith6342
5 ай бұрын
I would not be intimidated I would come right up to you and say hey what’s up and whatever way you could communicate it would be fine hello friend and I love your tats
@alfredcodl5400
Жыл бұрын
I think she is very wise, but she's never seen people without their mask off. Your tune changes when that happens.
@priscillawong1474
Жыл бұрын
Can you explain what you mean? Seeing people without their masks on?? I don't get what you're insinuating...
@kellymichelley
Жыл бұрын
@@priscillawong1474 I'm guessing he assumes that you can't "go out and socialize", and therfore haven't been around the average person enough to see beyond the image they portray to others. He might be bitter about people because the type he gravitates to or has ended up with in his life tend to put so much effort into portraying a certain image that they don't end up developing any kind of true character, or understanding and acceptance and love of others, and are therefore shallow and self-centered. Maybe he's tired of being deceived, and he's come to the conclusion that all people are like that. Alfred, that isn't true! You just haven't met the right people. Maybe you gravitate towards a certain image, and it turns out that, yes, that type of image is just a facade. Try to avoid that image and get to know people you wouldn't naturally be drawn to. I have the feeling that Priscilla doesn't gravitate to shallow, self-centered people, and that the people in her life truly love and care about her. Sorry Priscilla; at this point, I'm apparently a little mixed up about whether this message is directed at you or Alfred...
@murshidanajnin3694
2 жыл бұрын
Vvvvvvvv
@frankiehummus
2 жыл бұрын
отличное шоу уродов,спс за подборку ютаб.
@qammararshad6891
3 жыл бұрын
God bless you. Amen
@stanleygarlick3034
2 жыл бұрын
You are brave and beautiful. Thank you for helping us understand that you are smart and a wonderful human being! 💕
@melanietoth1376
3 жыл бұрын
She is definitely brilliant. I'd love to talk about her studies, I've taught in women and gender studies.
@melanietoth1376
3 жыл бұрын
I hope she continues in her work because she would be a great professor. Not many people are so mindful and concious. ♡
@toniabrown4376
Жыл бұрын
Can you wear an oxygen tube that goes like a scuba diver wears
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