Nothing upsets me more than doctors who don't believe you're in pain!!! I wish someone would be brilliant enough to invent something to prove pain. Just because others can't feel your pain doesn't mean you're not in pain. I finally have a doctor who believes me, and I am so grateful for her.
@MedicalSecrets
11 ай бұрын
I cannot agree more with you. I'm so happy that you were able to find a trusted doctor. Unfortunately, it is incredibly difficult, if not impossible, to quantify pain. Fortunately, there are many intelligent minds working on this problem 🙏
@Rebeccasrealityy
11 ай бұрын
I agree 100%. My psychiatrist and FPN are working together to try to manage my pain from my fibromyalgia. At least I have people willing to listen (and parents willing to listen too!), and I feel so blessed to have that in my life!!!
@annakarenina3188
11 ай бұрын
@@Rebeccasrealityysupportive family can make the world of difference. There is so much that medical science is still finding out... A few years ago, they discovered a whole new "organ" which is a type of tissue surrounding all internal organs and all internal surfaces. This was only discovered in the last decade. It's innervated, so pain signals can arise from this new organ no one knew existed. The most dangerous thing in medical practice is arrogance of practitioners -- that leads to mistakes, or to actions based on hubris, or failing to admit that actually medicine is still a developing field (positioned between an art and a science). Fellow fibromyalgia patient, I was offered lidocaine infusions, that same week diagnosed with a fast growing stage 3A breast cancer...... Have to say, all the meds I'm on for the nettles & knives mastectomy pain, has done wonders for the fibromyalgia!! Topical lidocaine-benzocaine (over a whole upper quadrant of my torso & arm) has actually helped systemically, as has morphine, melatonin, and others. (Gabapentin is paradoxical for me, nsaids cause vomiting, anti-depressants send me full on loopy with serotonin syndrome even in small doses (meaning tramadol is also a no-go as it has that SSRI/SNRI component).) But yes, supportive family is a life changer. We're so lucky to have this.... Know so many fibromyalgia/ME people who aren't believed by anyone (then the ME patients have autopsies, and found to have extensive ganglionitis causing all the neurological symptoms that were dismissed). (None of this is medical advice, just saying what has worked for me personally!)
@kathycuster1714
11 ай бұрын
I have invisible illness. I have fibromyalgia. You cannot see how much I hurt. Fortunately after I was diagnosed I asked my family doctor (who I worked with when he opened his practice) who knows me. Nless his heart, My life is a bit more liveable!.
@peachxtaehyung
11 ай бұрын
Same here
@schwubs
11 ай бұрын
In the Maya case, the hospital didn't like Beata. They found her pushy and uncooperative. They took Maya away from HER. Within days of her suicide, Maya was released from state custody reunited with her family. After Beata's suicide the hospital STILL was disparaging Beata in their emails as though they were glad she was dead. The way the hospital behaved in this case, and it turns out other cases as well, was utterly sadistic. Beata was RIGHT. She knew Maya would be released from state custody if she was dead.
@sarashepard7504
11 ай бұрын
All it was was a power tripping tyrant who’s ego was hurt.
@EmiliaZochowska
11 ай бұрын
The mother was actually the most reasonable person of them all.
@melissaowens6031
11 ай бұрын
I believe this also. I believe that they didn’t understand her behavior, she was from a different culture and she had knowledge of medical practice. I think they didn’t like that she knew what she wanted for her child and she adamantly asked for what she believed would help her daughter immediately. And that is ALL she did
@EmiliaZochowska
11 ай бұрын
@@melissaowens6031 Yes, exactly! (I’m also Polish, like her). I believe she gave them quite a cognitive dissonance, being both a nurse (medical professional, respected, high in hierarchy) and an immigrant with an accent (white trash, not respected, low in hierarchy).
@TehKaiser
11 ай бұрын
There is a profit motive for both hospital and state if they take custody.
@living_redefined
11 ай бұрын
Retired RN here-I was blown off and labeled FOR 20 YEARS as depressed, anorexic, anxious, lazy, drug-seeking etc until I finally collapsed. Turns out I have a confluence of autoimmune illnesses which presented in my teens. Not one of the bastards apologized.
@anubisdo7493
11 ай бұрын
‘Bastards’ is a PERFECT word! When specialists ask “do you trust me?” .. I look like this 😳 Nope! Earn it. Sorry you had to go through this for so long !!
@debras3806
11 ай бұрын
Oh my goodness that’s awful
@maryannemckay3606
11 ай бұрын
I hear you!
@savannahgary6351
10 ай бұрын
So sorry to hear what happened to you! And, different, yet similar story. I'd had a neck injury that MRI showed as herniated discs. Since I was in my mid-20's docs told me this condition would heal on it's own in time. 22 years later when I was falling due to legs giving out (and had actually broken bones in these falls), difficulty using my arms due to numbness, weakness, etc. MRI showed either "within normal limits" or disc herniation (guess it depends on who reads the MRI), 3 neurosurgeon consults later....scared as I was due to 22 years of being told in many occasions the pain/symptoms were all in my head, had a 2-level neck fusion (in a cast left arm due to broken wrist from a fall prior to surgery). Surgery time was double the estimate as there was spinal cord compression (surprise to surgeon since it hadn't shown up in diagnostic tests), one vertebrae was "crumbled," and several other issues unseen on their "tests!" Sadly, I woke up unable to use my right arm which the surgeon told me wasn't his fault...it was the result of the spinal cord compression (after spending 2 months of sending me for consults to prove I was faking it), and living in HEL# on earth of pain, fear, confusion, doubt, anger, grief, all while unable to care for myself! Broken left wrist and paralyzed right arm which meant I could not wipe my own self, feed myself, dress myself, etc. Finally, testing revealed severed nerves (considered a risk of surgery) and 15 years later, daily physical therapy (done at home for years now), in chronic pain, I have partial use of the right arm. This is one of many experiences with doctors not believing me about pain (as it turns out also have psoriatic arthritis.... undiagnosed for years), several other autoimmune conditions, and a primary care doctor of 22 years that got a special license to RX pain medication due to his belief in the pain I experience and the belief in the "horrific" way he's seen me treated by specialists in various areas of medicine. I've watched the Maya case from the beginning and am confident this jury sees the truth of what happened to her and her family. I really want them to find intent and break through mandatory caps on punitive damages to send a message loudly and clearly to the medical community at large to stop using the excuses of illegal drugs, etc. to punish people in pain!!! #Mayaforthewin💜
@kjn3005
10 ай бұрын
So sorry you’ve lived in hel# for decades🙏🏼
@dianna1979
11 ай бұрын
This trial has really triggered me. I have been through so much with my daughter the last 14 yrs. At age 15, she woke up with her leg purple and swollen. I knew it was a blood clot. I rushed her to ER and it was very lg, from her hip to her knee. She was hospitalized for 2 wks and DX with APS. She’s has several PEs, and an HVT. She is now 29 and has primary Sclerosing Cholangitis in her liver (diagnosed at the Mayo Clinic), and IGA Nephropathy. This past June, she had a biopsy on her kidney and when she got home she experienced increasing pain so I took her to the emergency room since she’s on blood thinners I believed she was hemorrhaging after the surgery. The ER triage nurse ignored my pleas that she was bleeding internally after giving her all the evidence: surgery earlier in the day, blood disorder, on blood thinners, increasing pain in the area of biopsy. They didn’t call her back until hours had passed and by the time they did the CT scan and got the results, the hematoma was pushing on her kidney. They had to transfer her to another hospital. They next day she went into renal failure and then respiratory failure and had to be intubated and put in a coma. They didn’t know if she was goin to make it. I was so traumatized by the whole experience I fainted in the hallway. It was a nightmare. I was so angry because it was unnecessary had they just listened to me at the ER.
@investigator77
10 ай бұрын
I'm so sorry you had to go thru that with your daughter.
@jacksprat429
10 ай бұрын
@dianna1979 - The problem with all these people who have a god complex, is the fact that they automatically ‘know’, that you as a mother, are being hysterical, and over inflating the symptoms. I am sick to death of the medical profession, with whom I have had several terrible experiences over the years. I am in total sympathy with you over this, and all of it was so unnecessary, if they had just listened to you in the first place. The medical profession is not taught to listen, but to make a diagnosis, regardless!
@Keeponsmiling60
10 ай бұрын
That’s awful that y’all had to be traumatized like that. I’m so sorry I know how it is to be in pain
@donnaneeley9920
10 ай бұрын
That nurse needs to be fired!!
@lindam9618
10 ай бұрын
I hope you will hire a good personal injury and negligence lawyer. Although it doesn't change your daughter's situation, a good lawyer can also help find the appropriate medical treatment/medical facility.
@vevalackey7046
10 ай бұрын
Thank you for validating that doctors do gaslight. I almost died from diverticulitis and my intestines burst. I drove myself to the hospital. My doctor said I was drug seeking. He kept me in his office from 7:30 until 5:30. I drove myself to the hospital, where I passed out and a nurse found me. I ended up with a colostomy and was in the hospital for a month.
@ADHDGG
11 ай бұрын
Been an RN for over 30 years and the medical industry has definitely changed, and not for the better. I’m ashamed that those so called nurses did not stand up for her, instead talked about her at the nursing station where, she obviously, heard them talking about her. BTW, pain is subjective.
@chesneymigl4538
11 ай бұрын
That's the truth! Being pushed to work faster and in the constraint of insurance has caused so many people to fall through the cracks.
@rusedorange
11 ай бұрын
I do remember years ago some doctors would tell the nurse to go in and push a couple ml of ns and tell the patient it was a pain med.
@Flufferz626
11 ай бұрын
I remember recently after having a seizure I was still cognitive enough to inform them my dad was allergic to phenobarbital and I wasn't sure I was or not. They pumped me full of it via IV anyway. Luckily I wasn't allergic but I still felt very uncomfortable they ignored me. There was no room for me to have a room overnight I stayed in the ER. Thankful that worked out with insurance coverage. The physicians didn't discuss my health with anyone and right before I was discharged the PA was like "we're so sorry you didn't get a room and you had to spend 5 hours on a gurney in the hallway" and I told them "I'm about to be discharged" and they were like "oh cool!"
@horacethecheese
11 ай бұрын
@@Flufferz626they never look at your records in er they never contact next of kin...my friend was hauled away with psychosis after giving birth and they never called her parents took them two weeks to find her. Didn't tell anyone.
@Ladie_Paige
11 ай бұрын
I have kidney stones very frequently and every time I go to the ER I hear the nurses talking about me negatively. They seem to forget that the curtain around the bed isn't a door and that I can hear everything they say. Kidney stones are extremely painful but I'm always seen as a drug seeker even though I never ask for narcotic pain meds.
@___bianca___
11 ай бұрын
It is so refreshing to hear a genuine trauma-informed medical doctor speak about this and validate the lived experiences of peole who haven't been believed or mistreated within medical establishments.
@lindabaker667
11 ай бұрын
I have been following this trial since the beginning. I am also a Critical Care RN of 40 years. What these physicians, nurses, and especially the social worker did to this family is abusive and criminal. I hope they get every cent they are asking for. This family has been destroyed because of Johns Hopkins and their agents.
@Mv-Wildchild
11 ай бұрын
I was court order for ten years to take medication I was order by a judge tn order to keep my children my ex husband harmed my daughter while I was work as soon I I was kde aware of of what happened I had him arrested can't say I handled it perfectly but as a mother my only goal was to protect me kids any how I was ordered to take psych meds with Dr claiming I had bipolar no test just his opinion funny I never was bipolar test have been don finally I have Cptsd and dissociative amnesia with fugue I guess they dont know everything funny now they want me to try ketamine treatment no thank you i cant take anything mood altering with out loosing 5 days with no memory drs need to listen to the patient we know our bodies more than do I know after ten years of saying something is off medication makes me worse ... Lesson learned don't go to the Drs unless ur dying . I live in coastal NC and I'm personally tired off being a science project.
@terrilynn1110
11 ай бұрын
I've had CRPS for 20yrs and have worked in healthcare as well. I can not believe how a physician w/out privileges , Sally S. and social worker could label a pt w/o corroborating findings. The physician "retired" and SW resigned. The things they did to Maya and family are so egregious it physically and emotionally stripped her primary care giver - mother to suicide. The hospital in a nutshell kidnapped this girl, accused the mother of abusing her daughter, the mother's suicide was the last effort to free her daughter. If there is any justice for the family is bringing CRPS to millions of watchers.
@mollycote1021
11 ай бұрын
Nice to have a professional opinion. Thank you!
@klio1212
11 ай бұрын
There is a huge scandal in PA right now, many families are coming forward. It looks like Beata's death was not in vain.
@lornaduwn
11 ай бұрын
@@terrilynn1110 It is obvious that they knew nothing about CRPS. I couldn't believe the unprofessionalism of the doctor who said he researched it by watching you tube videos! For example; they seemed to think it caused paralysis. They have repeatedly claimed that they could see that Maya was able to move her legs. Yes, she could do so, with pain. She was used to a level of pain that most of us would be in agony with, but for her it was a good level. Putting weight on her legs would raise that level to unbearable. To them, if she could move them then there was no reason that she couldn't stand and walk. That is so contradictory to any level of responsible medicine that it boggles my mind. I work in healthcare and have cared for people who were partially paralyzed. They could move their extremities, but could not fully control them or have enough strength to stand and walk. That situation is fully known by medical professionals. Why they equated the ability to move her legs with the ability to stand and walk is totally beyond me.
@disqusmacabre6246
11 ай бұрын
I've been a chronic pain patient for 16 years and I now find myself able to educate 80-90% of most doctors. I can tell you there is still a huge stigma coupled with a willful ignorance on the part of medical professionals. About 10 years ago, I had a psychologist recommended to me and this person made a huge difference in how I cope. I also started attending the support group he hosted. Knowing I'm not the only one struggling is important too - though we never wish others to have chronic pain
@SusanBryantInsomniacBookworm
10 ай бұрын
Mindset actually is so important when treating chronic pain; I wish doctors could say this in a way that doesn't seem like they don't believe us. Fear and stress increases inflammation/cortisol etc definitely increase pain. It made such a difference to me to be able to do that (although I still need opiates and feel dreadful those in the US aren't able to access the same standard of care.
@nunnaurbiznez8815
10 ай бұрын
At this point I am so defeated by the CONTANT medical gaslighting and under treatment of my pain. In the last 4 months I have literally had a 23 year old NA at my pain management tell me that because my steroid shots in my knees were only 30% effective that my insurance would no longer pay for them. This is after they scheduled each knee and each shoulder, 4 shots, 1 shot per appointment in a surgical theater 2 weeks apart. That is one shot every two weeks and I have to wait 6 months to get it again. But since the results weren't good enough they won't pay. I went to my rheumatologist, he gave me all the shots in his office no surgical theater without 3 people in scrubs. We agreed that was BS and probably insurance fraud but he also told me THERE ARE NO OTHER CHOICES in my town.
@karynstouffer3562
11 ай бұрын
Wowsers. You just explained my life, without help, counseling, or being able to completely trust anyone. But, I think that if I had a chance to have a week, month, months, without pain, I would jump right in with both feet. I used to ask for a pain-free day, just one day, when anyone asked what I wanted as a gift. I am heartbroken for this family. All they were doing was trying to help this child. It really is a shame that they made this mother feel so guilty that she felt that there was no way out. 😢😢😢
@aunt_b3365
11 ай бұрын
😢😢😢😢
@Houseitch
11 ай бұрын
When it may have been simple parasites all along!
@Houseitch
11 ай бұрын
Then they’ll put “pseudo” in front of everything they don’t have a diagnosis for, but guess when they look up symptoms.
@tehilliym1195
11 ай бұрын
We need a WHOLE LOT MORE docs like you🙏🙏
@ldolan4051
11 ай бұрын
but would you kill for one day of no pain?
@marypike8149
11 ай бұрын
Medical PTSD, glad we're talking about this being a reality.
@KathyHussey063
10 ай бұрын
I've got it so bad now at age 62 that I've not seen a doctor in over 12 years & can't MAKE myself go to 1, no matter how sick I get, spleen's blown up like a football, gallstones blocking up bile tubes, bleeding internally, high fever, bad pain ? Nope, I'll just wait for it to get better or to croak, can't make myself go, for years now I've tried to make myself & won't go. I explained it to my 4 grown kids & 2 of my 6 sisters, told them I CAN'T make myself go & don't know why, asked them toplease help me by fussing at me togetme togo, or just take me there so I can't back out of another appointment. It took a lot of abusive, cold treatment by a lotof drs and nurses for me to finally giveup on getting better,a lot. But I always could havebeen helped if they'd bothered to look withMRI's or anyother tests..Now it'stoo late. The spine collapsed so much, by age 47 I lost 7 inchesin height as it curved, twisted & collapsed. Now it CAN'T be fixed cause no type of devices will fuse with what bone is left in my spine now if they tried any surgery to repairthe 8 ruptured/hernated discs, the spondylosis,spondylitis, ankylosing & osteoarthritis devouring my spine. Theres so much more wrong too...I've just had to suffer. Now I'm realizing THIS, PTSD from abusive callous treatment, this is why I got where I can't make myself go & deal with even 1 more jerk dr or nurse, from so much pain I've been through paying my hard earned money to seek help from so called 'medical professionals' who then used me for years, prescribing highly addictive meds to ensure I'd HAVE to return every 30 days & pay their reoccurring high office VISIT FEE every monthly visit; so they could count on making money off of me & all those they failed to treat too, using them the same way, knowing there were MOST likely REAL injuries & other issues that needed to be treated or surgery done on to fix the problems; yet NO dr ever ran a MRI or xray even to see what was wrong until : I INSISTED they do some tests to find out what was CAUSING the pain.we had nointernet, we relied on doctors knowing what to do. This is what they did to us with insurance. Instead of actually trying to help me get better. All they did was belittle me, look down on me & not believe what I said, or the symptoms any idiot could see that they should've seen & recognized & then did the appropriate tests to find out what was wrong..... My belly swelled up & looked 9 months pregnant when I'd never had a big lump on my belly like that, it was ignored by drs who acted like all I was there for was pain pills & like they had more important things to do like play another round of golf. ALL I WANTED was to find out what was wrong & answers so I could find some relief from the constant pain.) I'd actually rather just go ahead and be unalive than to be hurt , unbelieved, mistreated, disregarded, receive their disdain and looks of superiority that I've had to put up with from jerks, total unfeeling, unempathetic, cruel doctors and nurses over the years. My spine collapsed starting at age 37 & by 47 I'd lost 7 inches in height until I went from 5'9" to 5'2", when FINALLY they could SEE that it was EVIDENT I was in real pain.I'll never go to another dr and there are millions they've done like me it is a crime.
@julianokleby1448
10 ай бұрын
@@KathyHussey063 Bless your heart!! I feel your pain (a lot of it anyway)! I had back surgery at 19 because the doctor told me if I didn't let him operate, I would be wheelchair bound by 20. They tried to get an IV in which took 14 tries! I was begging them to just give me the solution and let me drink it. They kept saying "You wouldn't like the taste of it." I said "I would like it more than I like being stuck with more needles!" The lady who finally got the IV in was totally blind and the head of the pediatrics and NICU dept. She got it on the first try. After all that, I found I had a heart problem, misdiagnosed as mitral valve prolapse, but actually it was a large tumor growing on my valve. He did the surgery, I woke up during it to hear him say "Man, this chick is really hot! I wish I could **** her in her *** (you can probably guess what the blanks are). Later the next day, his assistant came by and asked me the last thing I remembered. I said it was the doctor saying what he wanted to do to me. He turned about 30 shades of red and white, then told me that was a dream. Been in constant pain since then, after 22 surgeries I find out I have cancer. 40 years of constant pain and pain meds, I finally found something that helped and then the doctor went to jail. No others can give me what he did because supposedly it needs a special license to prescribe it. Now the lovely gov't. cuts doses so that nothing works. I love the gov't. haha
@theJenhha99
11 ай бұрын
God I wish I could get lucky enough to get a dr like you. Thank you for being such a caring and amazing dr to your patients.
@annakarenina3188
11 ай бұрын
He really is a lovely, genuine, caring person. That makes the world of difference to patients. Am lucky, my GP is immensely understanding. I know this is like gold dust.
@CatalinaFOIA
11 ай бұрын
Go review his video on his stance on the use of opioids... you may have a change of heart. As a CPP I was dismayed by his responses.
@mkirwan7165
11 ай бұрын
Me too , what a lovely Dr,
@Straightupone
11 ай бұрын
I have chronic pain everyday. I am on low dose pain management. My doctor is outstanding. I am so thankful for him.
@PollyT.Pocket22
11 ай бұрын
LOL, he is gaslighting you!
@nataliemcmanus113
11 ай бұрын
They took the child away from the parents for a very long time and the mom couldn’t even visit her daughter it was heartbreaking in so many ways❤
@mollycote1021
11 ай бұрын
Just because they didn’t understand the treatment for her crippling painful CRPS. I hope they win the lawsuit!💕🙏🏼‼️
@ldolan4051
11 ай бұрын
Killing herself was cruel to her whole family.
@nataliemcmanus113
11 ай бұрын
@@ldolan4051 yes the medical professionals gaslit her to the point where she felt the only way out was killing herself, so sad. She thought if she was out of the way now they’d take her daughters condition would be taken seriously. She obviously thought this was the only way out to help her family & especially her daughter. At this point she wasn’t thinking rational at all because her daughters pain was the only thing she was thinking about unfortunately . It’s a tragic outcome to a tragic story where the medical staff weren’t helping the family as a whole unit
@ldolan4051
11 ай бұрын
@@nataliemcmanus113 nope. She used her son for her own sympathy
@nataliemcmanus113
11 ай бұрын
@@ldolan4051 daughter not son. Watch the documentary and the trial coverage at @lawandlumber they break it down piece by piece to understand both sides better
@Katie2986
11 ай бұрын
My heart hurts for the unimaginable pain the family will live with forever.
@justjosie8963
11 ай бұрын
The unfortunate daughter will likely carry blame and guilt that she doesn't deserve. Only the medical community deserves that guilt.
@mervyngreene6687
10 ай бұрын
@@justjosie8963I disagree. In my opinion, the real villains were the social service system (CPS) and the judicial system.
@Sucheta211
11 ай бұрын
That testing patients... I was so abused by a doctor in CCCounty hospital. Had a 2 week migraine and she was sure I was faking. Kept moving me around -- telling nurses to position me so that when they opened the blinds the sun would be in my eyes. Moving me into a room with a loudly arguing couple who were blaring the TV. Great stuff for migraines. At least I got to watch her get dressed down and removed from my care by her boss after I started screaming at the top of my voice to get out of that last situation. I won't dox that SF Bay area doctor here, but 20+ years later, I curse her being whenever she crosses my thoughts.
@NavyWife
11 ай бұрын
I can somewhat relate to your abuse. Because of a CT Mylogram I had a Spinal Fluid leak and the treatment was having a blood patch. The leak caused me to have an awful headache with sitting up. I went to two different hospitals where the Neurologist ordered the blood patch, but the Anesthesiologist at both hospitals refused to do it. My Pain Management doctor ended up doing it but because of his schedule I had to wait. I was basically bedridden for three months. I have lost all confidence in both of these “Teaching” hospitals. Stay well.❤
@helennichols6531
11 ай бұрын
@@NavyWifeI can sympathise. I had it after a c section. Fortunately being in hospital I was given the blood patch within a day and until it happened I could keep lying down. My son was in special care so I wasn't having to be a full time mummy except for feeding. Lasting 3 months I could not have done. It felt like my brain was being ripped downward. You're a braver person than me!
@sharibaratono8363
11 ай бұрын
@@NavyWifemy friend had a bladder mesh surgery. She had a headache at home and went to ER, she wondered if she had a spinal fluid leak. They didn’t do anything and sent here home. Later she passed out on the back of their motorcycle and fell off and was back in ER where they found the spinal leak from the surgery and then did a blood patch. Besides the bladder mesh being a total disaster requiring more surgeries.
@jbp784
11 ай бұрын
@@NavyWife I can’t believe you had you had to go through that for so long. I don’t know how you could take that kind of pain. I had the same thing happened to me I had to have a ambulance take me to a hospital the pain was so bad. I couldn’t move upright the pain was so excruciating. The hospital did a blood patch immediately. Mine was caused by an epidural and the hospital didn’t have me lay flat for the amount of time I should have. I am so sorry you had to go through that I can’t even imagine having to have that kind of pain for so long. That doctor should not be practicing! 😢
@ninamartinez5171
11 ай бұрын
Im so sorry.
@michelleduncombe9675
11 ай бұрын
My daughter had an 8 hour surgery to correct severe scoliosis at the age of 12. They cut her open from the base of the neck down to the middle of her back and then pulled her spine back into place and then attached titanium rods to the length of the curve to hold it into its new position. After she came out of intensive care and up to the ward, I slept in the room with her. She was medicated via an epidural. In the ward, she was never without pain. Those first few days broke me as a mother as my child cried out in pain continuously. She did not sleep, or eat, and I told the nurses something was wrong. They told me to calm down, that she probably had a low pain threshold. At some stage I became agitated and started checking things for myself and I discovered a wet patch on her pyjamas where the epidural connected in. At that stage I went feral and demanded the anesthetist come in and sort it out. The nurse again told me to calm down and that everything is as it should be (without even checking). So I became extremely aggressive and told the nurse that they would have a team of lawyers in the room if she didn’t investigate immediately why my daughter was in so much pain. She rolled her eyes at another mother overreacting, and then went and checked my daughter and discovered low and behold, that there was definitely a large wet patch where the epidural was leaking. Called the anaesthetist in pronto and he didn’t say anything much (they never accept any responsibility) but he took the epidural out and gave my daughter morphine. She finally relaxed and slept and was able to recover after this. My analysis is that my daughter had little to no pain relief after an excruciating surgery and that pain was unrelenting for the 2 days that the hospital would not listen to her and believe that her pain was real.
@rebeccacampbell8020
11 ай бұрын
They have a God complex.
@horacethecheese
11 ай бұрын
God if she had a low pain threshold that's all the more reasonable to give her pain relief. I have a high pain threshold and usually don't need anesthesia for small things or meds after dental extractions things like that. I have a high pain threshold so I need less pain meds because I can handle a lot of pain. If she had low she needed more pain meds. And why on earth would they not establish that before surgery ..poke her with a stick and see if she cries poke me ten times and I won't mind and then they would know not to waste meds on me and give them more for her. Right. Like is that such a difficult mental thing for smart doctors to think about? Surely to god that's what would make sense? Sometimes I am baffled by the stupidity of people who did so well at school when I did so badly at school yet seem to have more sense. Am I missing sonething?
@justjosie8963
11 ай бұрын
They NEVER apologize or admit their MISTAKES, and they make a LOT of mistakes.
@cynthiabelknap8655
10 ай бұрын
Just went through this with my kid. Different surgery though. Had to push for her to get pain relief after surgery. It’s not ok
@lilaworley8935
10 ай бұрын
Oh this breaks my heart. I had a spine surgery and can imagine her pain and the overwhelm you felt as a parent. Thank goodness you were there advocating for her.
@debbie4503
11 ай бұрын
I've been following this trial. It is heartbreaking. The Mother was told as long as she lived in the home Maya couldn't come home. There's so much more to this case. It's heartbreaking. One thing that came out in this case was the hospital billed the insurance company for treating Maya for CRPS. As well as other things. I don't want to put the name of the channel that I am following the trial in without this Dr. Kaveh giving me permission.
@Catglittercrafts
11 ай бұрын
Why wouldn’t you just share the channel. It’s all public. Just tell us.
@EmiliaZochowska
11 ай бұрын
I love your answer to the question about why women are more likely to get gaslit by doctors than men. It’s exactly that - people who enjoy practicing gaslighting will only target those, who they perceive as weaker than themselves. They might try to bring someone down a bit, but not a whole lot. And they will always step down and show respect to a more powerful person. This was the problem of Beata, Maya’s mother: she would stand up to people who consequently perceived her as weaker and didn’t hesitate to go all the way against her. If she tried to change this perception, she could have solved the problem (or not, one never knows with the Angry Authorities). I guess she might have expected respect, because she was a nurse. Well, apparently being a Polish immigrant and a skinny, polite, white woman trumps bring a nurse. In a negative way.
@malonislaw
11 ай бұрын
I’m so glad a doctor has named this phenomenon that has happened to the Kowalski family - medical gaslighting! Great video, Doctor. Thank you.
@kandymich4861
11 ай бұрын
The “I’ve never heard of this or experienced this. So you are harming your child.” The arrogance of these people
@MedicalSecrets
11 ай бұрын
While I'm sure it is more nuanced than that, I agree that it is a terrible outcome 😔
@kandymich4861
11 ай бұрын
@@MedicalSecrets true The is how it comes across
@TBIcel
11 ай бұрын
A doctor told me that an experimental treatment he was not aware of must be invalid because he had not heard of it. It was HBOT (it's used already for non healing diabetic wounds) I was using it for a brain injury. The doctor tried to bash alternative medicine I called them out saying it's not alternative medicine when you are not providing any treatment.
@OmEvul1415
11 ай бұрын
Munchausen by proxy: 1. Almost all cases women 2. Majority of cases are mother with daughter victim 3. Significantly more likely to work in medicine, especially as a nurse 4. More likely to have had trouble conceiving the child 5. Switches doctors and clinics often 6. Does not start with conservative treatment, but jumps to extreme treatments first
@blisslam8797
11 ай бұрын
@@MedicalSecretsactually it isn’t. The child abuse doctor has no experience in child psychiatry and neurology but decided she knows best. She didn’t ask for notes from Maya’s other doctors.
@brettneygibbs9047
11 ай бұрын
She went under a 5 day ketamine coma ONCE. She had other treatments, but only one ketamine coma.
@erikkaelsbury8986
11 ай бұрын
I’ve had RSD / CRPS for 22 years. I wish my doctors would entertain the idea of ketamine for me. I am blessed I get to be treated at the Cleveland Clinic
@Lilmiket1000
11 ай бұрын
So glad to hear a doctor talk about this issue of ignoring and not believing their patients. Its so frustrating! I myself have had high blood pressure for as long as I can remember and I've never had a doctor tell me that. My sister works at the hospital and she saw it in my medical records. Same with my mom. My sister found things in her medical record that nobody ever told her. They also said that she was being non-compliant during her diabetes diagnosis situation which is simply not true. She was in excruciating pain and thought she was dying. She, we just wanted answers. We were all 100% compliant.
@shewitt7603
11 ай бұрын
This is exactly the similar nightmare my son lives with. I don't even care what has been done to me but carried over to my child, now an adult under their full control. This world ....😢
@annakarenina3188
11 ай бұрын
I'm so sorry. That fear is horrendous and gnaws at the insides, and I'm sorry you're going through it: no one ever should. Does your jurisdiction have a court of protection where you can apply to be awarded either guardianship, or power of attorney? If not to you then to another family member who can then make decisions on your son's behalf?
@ldolan4051
11 ай бұрын
I'm sure he appreciates your support and that you didn't give up on him. Don't ever give up,
@horacethecheese
11 ай бұрын
Horrible..dont kill yourself as a solution though.
@glee21012
11 ай бұрын
Like most medical practitioners I have seen, they do not listen to the patient. We are a piece of meat to them, and they let their pride get in the way. That's what happened to Maya, a 10-year-old little girl, who had no advocate for her, at the mercy of a psychotic therapist and doctor.
@cjcarver6290
11 ай бұрын
OMG, I am a former surgical RN and a chronic pain sufferer after a traumatic injury. I so relate to this.
@michelledubois4581
11 ай бұрын
You’re a great Dr. I appreciate your opinions. My son and I have been gaslit and I took him to India as he was very sick with what was diagnosed as Chronic Lyme and co infections like I had also. 14 to 19 years old no school, no support by family. Luckily he got better (remission) and is working right now. He is much better… I can relate to Beata. 😢
@MedicalSecrets
11 ай бұрын
I'm so sorry to hear that about your son, but I am also so happy to hear that he was eventually diagnosed correctly 😎 I hope that you can advocate for so many others who have been in that position
@carolashlee8002
11 ай бұрын
I have been gaslit for most of my life and at 50 diagnosed with auto immune diseases. I also have asthma. After Covid I was gaslit for 12 months at emergency and told it’s anxiety. Finally found out I had clots in my lungs and mast cell activation syndrome. I have lost all faith of the medical system in Australia. Thankfully I found a great Dr that could see I was at crises & has been helping me.
@tammyhooker62
11 ай бұрын
My son was dx in 1996 at age 14 w/ RSD. I too was accused of Munchausen to which thankfully his pain doc QUICKLY stood up for us. As a mom watching you child suffer with unrelenting extreme pain 24/7 is a living nightmare. I too would have tried the Ketamine coma in a heartbeat had it been an option. Thank God after 4 yrs he did find an experimental drug program that helped him. We both have PTSD but we are so grateful for the relief he has gained. He still has intermittent pain but has gone on to live a normal life and gave me 2 wonderful grandsons!
@melissaowens6031
11 ай бұрын
I am so glad for you!!! Dr. Kirkpatrick tried to tell them that this is NOT fake, this is a diagnosis, and they didn’t care
@skullvr7654
11 ай бұрын
Yeah that’s what I thought and didn’t dr Hanna talk to them also In Er..I still don’t understand how they came to dx with conversion/abuse with confirmation from these doc specialist? so sad what u moms go thru…I’m glad ur son is doing well…I hope we get justice for maya❤
@catelewis7223
11 ай бұрын
I also have CRPS ...It is so depressing having Drs dismiss me. May I ask which drug your son found helpful? I will be trying K boosters in small doses. Im also following the trial...
@nataliemcmanus113
11 ай бұрын
Wow thanks for sharing this beautiful story!💕
@serinadelmar6012
11 ай бұрын
I’m so glad that has a lovely ending, interested to know what a relief helped him too, another CRPS patient one thing that’s rather lovely is how many of us have come out for this trial and connected. Justice for Maya. ❤
@robyndawn
11 ай бұрын
This story is so heart breaking. Medical gaslighting is absolutely terrible. I got medically gaslit as a child and it has me doubting chronuc pain and any other pain i have at 35 . I waited 3 days to go to the hospital once, until my appendix burst and i couldnt get off the floor. Or the time i was in severe pain from preterm labor that was about 3 days too before i went to the doctor to find out i really was in pain. When this happens, you spend your life in denial of your chronic pain and any another pain. For Maya its even worse though especially because she not only will doubt herself and whether she'll even be believed by medical people but shell have a fear of being harmed them or the power they have to take her from her family.
@chesneymigl4538
11 ай бұрын
Thank you so much for this channel! This education is needed. I've been accused of drug seeking because I said my current regime of adderall wasn't working. I specifically asked if maybe there was more to my diagnosis. In the end I had to do intensive research on my own to figure out that part of my symptoms were ASD. Doctors need to listen actively, not expectantly.
@actuallowroller
11 ай бұрын
The documentary truly broke my heart. Of all the documentaries I've watched over the last few decades, I watched with shock and disbelief. Nothing will bring her amazing mom back but would possibly set a precedent to avoid something like this from happening in the future.
@emilysnyder4857
11 ай бұрын
I'm so tired of the medical gaslighting that women face. I hope this highlights the problem. I had to deal with not being believed by my doctors and I lost organs due to doctors not being thorough and dismissing my complaints as somatic.
@mohergenrader2113
10 ай бұрын
I was diagnosed with somatization. In other words, it's all in your head. SOB. He was head of medical at UC Irvine.
@TheresaGraf
11 ай бұрын
I wish I could get money for every time I was told that it was all in my head and it wasn't. My latest surgeon said "You're a complicated case." How many times I've heard that one, too.
@MedicalSecrets
11 ай бұрын
I feel like being labeled as complicated has a high association with having symptoms blown off, as well. That is so sad, because it should be the opposite!
@Kiki-Kauai
11 ай бұрын
Thank you for taking the time from your busy schedule to have this dialogue. Most people could never understand the hours a doctor works. I tried to get my husband, a physician also, to do just this type of channel a few years ago. But time is a precious commodity, as I know you know.
@vickiwaatti1076
11 ай бұрын
I have CRPS from a leg injury. I choose amputation. Unfortunately, I now have CRPS now in my stump. I wish I could try Ketamine. I live in the UP of Michigan and there are no doctors who do it up here and mu Insurance will not cover it. I have been told by family that it is all in my head. They just think that I am a drug addict. I was once told that CRPS was called the suicide disease. I truly believe that. There are many days where the thought is there. Luckily my husband and doctor are amazing, So at least I have their support.
@gnarthdarkanen7464
11 ай бұрын
I might suggest you bring up "Mirror Therapy" and consider (just for a temporary argument) that if CRPS is a physical neurological disorder, then the amputation did (probably) what it's going to do... AND you are now "stuck with" a slightly different situation, like "phantom limb" (sometimes referred to as "phantom pain" by amputees, and you can pop over to "Footless Jo", a Channel on YT, for more about the experience from her perspective...) Mirror Therapy helps by "hacking" your brain psychologically... and while it takes time and patience like so many psychological processes, once you can get a good place to start and refine the practice to best suit YOU (everyone is an individual, after all)... Coming from a background with CRPS, it's just a bit more of a B*TCH than it might be for the next person... so probably a bit longer and more "homework"... especially helpful bonus if your husband steps up to help out with it. I only bring it up because it's a pretty recent method development for sufferers of Phantom Limb, but it seems (at least anecdotally) to be more helpful than harmful... AND in case you trust me as a rando' faceless mook (other than the green dude with a finger jammed in his nose in the pfp, give or take) here's a link to maybe save you the 30 seconds for scroogling up "Phantom Limb and mirror therapy"... haha irp.nih.gov/blog/post/2019/07/mirror-therapy-alters-brain-response-in-phantom-limb-patients I don't know a lot about UP Michigan from the last... prob'ly 20 years or so... SO maybe you've already heard of it, or even tried it... BUT maybe not, and it can't hurt to give you some thoughtful resource to maybe share with the Doc' and who knows what y'all might cook up... Hopeful for the best... ;o)
@vickiwaatti1076
11 ай бұрын
I have tried it, Thank you. That plus many others @@gnarthdarkanen7464
@lorig7077
11 ай бұрын
I have a chronic illness and in the hospital a lot. Every doctor that comes in doing rounds give completely different opinions. My dad and I were talking about that in front of one of the nurses and he shook his head and said that's how it always is. I've always worked as a medical assistant for about 30 years. I've seen the best and the horrifying worst of physicians. You really do have to look out for yourself and if your gut is telling you something is wrong don't ignore it.
@rainbowzebraunicornpegasus2962
11 ай бұрын
My daughter and I could write volumes of the gaslighting from medical professionals as well as outright abuse by medical professionals (I was having cord strokes after an ACDF complicated by EDS- I woke up with my nipples bruised! The ICU nurse said the team said that I had conversion disorder and that she knew how to force me awake!!!)!!! Denied anesthesia even though dxd with visceral hyperalgesia. I was accused of Munchausen by Proxy as well! Being treated like a criminal for self harm after being denied inpatient psych care due to medical complexity. The list goes on...
@N0N4M30
11 ай бұрын
I suffer from EDS , ENDO , PCOS , CRPS AND MANY MORE RARE THINGS PLUS IVEBEEN ADOPTED UNDER X so whenever I went to see drs they always ask about my family history but I can’t show them so some dared to say I don’t have anything Fortunately I found a good doctor in a different country tho who Behaves like a real doctor should
@judyalonso3746
11 ай бұрын
I am so sorry! I have had some cruel nurses and doctors myself.
@lhr8833
11 ай бұрын
I called the hospital one day, when I figure out the “allergy” I would get after a cluster of headache with the brain tumor I had could be CSF leak. I was like a month away from my programmed surgery, but I wanted to test the leak to have in record it was happening confirmed because I didn’t know how the surgery would go and if I needed that on record eventually. My treating hospital was 2 hrs away, so I called my local hospital to ask if they test the leak, in my case was nose leak. The person that answered the phone laughed at my question, seems like she had never heard we can leak CSF through the nose, but she found it funny and hung up the phone. I hate the ER so much.
@antheajohnston4906
11 ай бұрын
I am actually having Ketamine therapy atm (yes, literally, I am in hospital with the canular in) as the trial for Maya Kolwalski is happening. I have suffered chronic back pain since having several surgeries and fusions for both lumbar and cervical, for a chorda equina injury. It has now been twenty years. I have tried many different types of pain relief, and opioids have proofed to be the best solution. (total immobilisation and heat packs provide some relief) I did not do well with quartizone injections to the spinal chord, or exercise programs that did not take my injury into account. I am hoping that this ketamine treatment therapy will be a positive solution for me.
@ThatRedhedd
11 ай бұрын
I hope so, too! If it works, you could spread the word so it isn't so stigmatized or criticized.
@mariawarsoldier3524
11 ай бұрын
Did you develop Arachnoiditis?
@debbielafoy1052
11 ай бұрын
I have been watching the trial. so tragic thank you for explaining all of this information is very helpful. When it comes down to it, you should always listen to your patient. It seems like there was a big conspiracy started and it is snowballed into a abusive situation. Maya, her father and brother will never be the same life was changed forever, trusting medical personnel would be Hard to live with every day
@cmckinney2318
11 ай бұрын
I’ve been following the trial and also have chronic pain so I 100% appreciate you doing a video like this!!!
@Jewels_8404
11 ай бұрын
I hope the Jury watches this after the trial. It’s very informative and the information lines up with what we’re hearing at trial.
@gabeangel8104
11 ай бұрын
I've been through medical gaslighting. I was treated as an attention seeker and even had anything I found to help myself taken away from me. This lasted from when I was first taken to the doctor with severe pain and a consistent limp at the age of 3, until I was finally diagnosed with Ehlers Danlos in my 30's. My connection with my own body has been shattered to the extent that I find it pretty much impossible to effectively manage my symptoms and I'm still, in my 40's, untangling potentially serious symptoms that I maybe should actually get checked out (as there are a lot of common co-morbidities with Ehlers Danlos), because I learned to assume everything was just not worth mentioning. I always fear a bad reaction to my symptoms and fear negative consequences every time I have to seek medical attention. I also fear that any medical or social care professional will look back in my medical notes and see that there's a lot of things about me supposedly faking things as a child and teenager, before my Ehlers Danlos diagnosis proved I wasn't faking, and make assumptions that will prevent me getting the care I need
@notmyrealaccount8564
11 ай бұрын
I have that too and my records are filled with rubbish that makes doctors automatically ignore anything I say so I just don’t bother and always keep it to myself for ages because I just can’t handle the abuse and I know deep down that they aren’t going to help me anyway after years of being told to get out and that nothing was wrong with me.
@DrPatriceBerry
11 ай бұрын
Thanks for adding this info! They accused Beata (mom) of factitious disorder by proxy/Munchausen by proxy. They thought the mom was making her sicker which was not true 😢 thank you for talking about medical gas lighting! I see this a lot in the experiences of my chronic pain clients.
@juliewilliams2867
11 ай бұрын
I had a surgery that didn't go well and CRPS set in. It really is excruciating. For the first year I kept the arm covered as even breathing on it made me scream from pain. The arm became weak from lake of use protecting it. Then adhessions, scare tissue and arthritis took over. I was told the shoulder needed replaced but because of other medical isues I am not a candidate for surgery. I am also allergic to most pain killers. This now a lifestyle. feel for this person and really do understand the pain.
@MedicalSecrets
11 ай бұрын
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you've found a trusted healer to integrate your whole story to give you the care you deserve 🙏
@cee2615
10 ай бұрын
I feel so bad for Maya and what she went through. For months after I had a knee replacement I had uncontrollable pain, yet I was told I shouldn’t have that much pain … no one knows how much pain another person has or can manage … I hope you win Maya, you have been through too much
@TheUnderCoverMother2020
10 ай бұрын
They won over $200 million! Verdict reading is available on YT now.
@i.m.watching5536
11 ай бұрын
Easy on the eyes and with a big brain and heart. Whatta' guy! ❤
@alyciaholloway2151
10 ай бұрын
Oh MY gosh!! You have me in tears😢you have said so many things I’ve been through. I was Dx with conversion disorder after I was in the hospital x5 midnights-after I thought I was having a stroke-as a medical assistant, I was in the middle of clinic so it was VERY inconvenient for my coworkers. Instead of taking me to the hospital, they all gathered together in my boss’s office to interrogate me-hell I couldn’t talk! I couldn’t walk! I was having these seizure like symptoms. And it got worse. They ended up firing me. I haven’t worked since. Doctors see my med list and don’t want to help me. Anyways I just heard you say CD/FND & I’ve been watching this trial (just watched the verdict🎉) I have so much more to say on this topic but you’re hitting on so much! Please educate other doctors in the south! I love your videos and think it’s so cool you get to film in the OR❤
@cynthiamahoney1015
10 ай бұрын
I watched a Netflix Documentary. The physician treating Maya ,that diagnosed her and prescribed the high does ketamine attempted to advise the doctors in the hospital and they blew him off.They completely disregarded his input ! As an RN....and human being,I am horrified by the treatment of this family.
@aron1632
11 ай бұрын
You must be the kindest most understanding Dr there ever was or ever will be. I am thankful I finally found a Dr who I don't think exactly thought there was anything wrong with me, but was willing to look. When he did figure it out, he said he was very surprised by how extensive the issue was. I am very grateful that someone was willing to look because of a previous experience. That really helps me appreciate the good Drs.
@sarashepard7504
11 ай бұрын
Hospitals and social workers have too much power and should not have the power to remove a child from a parent in this way. My god, her mother just wanted the best for her child. Advocating for her daughter shouldn’t have caused anyone to think they are above the parents. This needs to stop.
@shelldeluca
11 ай бұрын
I have Not missed one day of this trial. Every family should be watching this - so important! My family have dealt with something very similar. Thank you for speaking up on this!! ❤❤ I pray Maya & her family gets every damn penny!
@kento4177
11 ай бұрын
My medical provider, Kaiser California insisted that my chest pains were being cause by anxiety. After a heart attack I got a stent. Voila no more chest pains. Imagine that. They could have done some testing but took the easy way out and it nearly killed me.
@punampatelgrewal8082
11 ай бұрын
Thank you Dr. Kevah for emphasizing the importance of TRUST & COMPASSION in our self care & care for others dealing with challenging symptoms & illnesses, i.e. "gas lighting on top of CRPS" is heartbreaking. We need more healthcare professionals versed in the importance of building TRUST and treating patients with COMPASSION.
@charlottestandage2765
11 ай бұрын
You are such a kind and compassionate doctor...I cannot thank you enough for spreading awareness of this issue. You really help patients worldwide. Xxx
@ThisTimeLady
11 ай бұрын
Thank you for this. I have chronic intractable pain so I was immediately drawn to this case when I started watching coverage on Law&Crime and other "LawTube" channels. I was horrified, saddened etc AND THANK YOU! Yes,even a few months without pain or with such small amounts it may get below my baseline is an amazing thing and helps my mental state so much,too.
@indigobleu
11 ай бұрын
Having had a spontaneous spinal leak caused by two venous fistulas started a 13-month journey of medical terror. Gaslighting is quite common for this condition also. All tests including MRIs were normal. I can’t even describe what suffered go through.
@Tally_Kolomas
10 ай бұрын
My heart breaks for this family. I know first hand what it's like to be accused of Munchausen by proxy. My son has Digeorge syndrome, he was getting large bruises without reason. I knew something was wrong. I took him to the ER told them he had Digeorge, no one knew what that was. This was in 2006. The ER called Child Protection Services. Told me that I was the one doing this to my son. Luckily he had one good doctor that did the genetic testing. She intervened and had a blood panel done. He had no platelets. We spent the next 5 years in that hospital with that stigma. All because doctors didn't understand Digeorge syndrome. When I saw Take Care Of Maya it brought me back to that time, I was Beata. I understood why she was, what the hospital thought was pushy and uncooperative, she was being Maya's mom trying to protect her baby.
@proudparrotparent815
11 ай бұрын
Dr Kaveh ,you are one of the very best . I had one similarly caring as you ,for almost twenty years . WHEN. he retired I felt like I lost a family /friend .I really hope that everyone had a Dr like him ,and you. Thank you Dr Kavey for all the great advice, an explanation ,and being such a caring Dr etc etc .God bless you.
@anthonyrowland9072
11 ай бұрын
This happens in every area where someone gets a big head over being "the expert".
@marielle3548
10 ай бұрын
Soooo happy Maya and her family won the case!
@M11969
11 ай бұрын
❤Thank you for covering the medical aspects of this case. I've been following the trial, from what I've seen, Beata was a blunt speaker, which is an aspect of her Polish culture; and I do not say that in any way to be disrespectful to her. I appreciate the advice you gave on how to speak to a physician to let them know your concerns as a patient. You didn't say this, but I would advise seeking another doctor who can't or won't answer your questions in a respectful manner. Physicians are only human, we can't expect them to have every answer; by the same token physicians should be honest about what they don't know, and listen to their patients.
@coleendean6577
11 ай бұрын
You're so good at explaining everything - super thanks!
@Susan-ev2ll
11 ай бұрын
Thank you so much for such an informative vid on Medical gaslighting and mentioning the issues with stoping opiate therapy for on-going moderate to severe pain. I was on opiate therapy for many years without any issues and when I had to get a new doctor, i was told I had to get off of them in a couple weeks, i found out she didn't look into my deep past medical history. So very difficult. Since then my life has changed and I walk bent over and don't engage in my life the way I used to. Keep up the great work and advocacy.
@miraheil5521
11 ай бұрын
When I was in nursing college, during rotations, I came across a girl in hospital, that was in horrible pain. Nobody of the nurses and doctors believed her. She was crying and screaming in pain. And the stuff literally laughed at her. It was about 30 years ago.
@patriciadsteinberg4853
11 ай бұрын
Sounds like my story 30 + years ago. That is until one doctor, just 1, had seen me in the halls of the hospital before the nightmare pain began. The were no “Pain Clinics” at this time. He was an Anesthesiologist who invited me into a new program for chronic pain. For three years it became my life’s journey to figure out what this pain was. And, why it was. I agreed to try multiple medications, studies and monthly I received Sympathetic Lumbar injections. Finally my diagnosis was “Reflex Sympathetic Dystrophy”. Later this name was changed to “Chronic Regional Pain Syndrome”. Ketamine wasn’t used during these days and drugs like OxyContin weren’t even on the market. And then finally, a drug called Methadone, which is an old pain medication, was tried and it slowly changed my life and gave some semblance of what use to be. Thirty years later I am still on this medication along with multiple other therapeutic treatments.
@zxy78267
11 ай бұрын
That's horrible. 😢
@bioshawna
11 ай бұрын
That's awful. The staff as well? I wish this wasn't true but I know these awful things happen
@sharmawade5498
10 ай бұрын
I love your very pleasant, kind delivery. You are very pleasant to listen to and to learn from.
@beadbird
11 ай бұрын
I have had Reflex Sympathetic Dystrophy Syndrome, which is now called Complex Regional Pain Syndrome, since the 1980s. It is an absolute misery! What they did to this poor little girl and her family is unconscionable! I am so sorry for the loss of Beata. I hope that Maya and her family get everything they are asking for! She deserved good treatment at that hospital, not the abuse she suffered!
@stevengill1736
11 ай бұрын
Good looking out doc - thanks for standing up for your (and other) patients!
@lisaspencer1057
11 ай бұрын
Although the hospital says conversion disorder they charged her insurance under the diagnosis of CRPS.
@BearSiren817
10 ай бұрын
Thank you for this video. You have no idea how much this video means to me. I have CFS and Fibromyalgia. Diagnosed after being treated for depression including ECTs. The diagnosis helped with the depression almost immediately. I finally had an answer. That was 10 years ago and just recently I was really triggered when my Primary Care Physician said “well there can be many reasons for fatigue. Really? Tell me what we haven’t ruled out? Because I have had all the tests, been to all the specialists and have had the diagnosis reaffirmed by 3 wonderful Psychiatrist (yes this is where fibromyalgia and CFS are often dumped). He absolutely made me question my sanity again. Thank you so so very much.
@michelephelps1087
11 ай бұрын
So many things in this case makes no sense to me… Why would this child protective agency hire a medical director who has so little training in child psychology and psychiatry that in her deposition she testified that she couldn’t recall for certain if she had any at all? Why wouldn’t they call experts in to consult before rushing to judgment that abuse was occurring? If they thought it might be conversion disorder, didn’t they get a psych consult? Why didn’t they allow supervised visits with the Mom? In the foster care system, parents are generally allowed supervised visits and I was under the belief that the goal is to restore the family whenever possible. 😢
@lindaspurlock1850
8 ай бұрын
Thank you for making something very clear! My grown daughter was prescribed med marijuana without any questions. She became dependent on anything that would help her be in less pain, no one has helped her. She has at times been homeless and very desperate!
@cristyf5431
11 ай бұрын
My kid was suffering from CRPS. Finding help was near impossible and I had to fight tooth and nail to get any treatment. Gabapentin ended up helping along with physical therapy. It shouldn't have been so hard to get.
@sherrieprettyman6448
10 ай бұрын
Would you have agreed to ketamine coma?
@zanb35
11 ай бұрын
That was really nice for you to answer questions not on the subject. It shows compassion in your work. Everyone just wants to be heard sometimes, and when you're not heard.... the frustration can be intense. Thank you for caring.
@4KConelove
10 ай бұрын
We in states ( like CA) who do have holistic care have no idea ( possibly) how fortunate we truly are. I pray for everyone else to come into the modern world 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
@a_Cynthia_Main
11 ай бұрын
If memory serves, i believe the ketamine induced coma was only performed once. It worked great for a while just like you said, but less than a year later she had a really bad flare-up that forced her Dad to drive her to JH. I think it was the closest hospital to where they were at the time. I think they also felt comfortable taking her there because she'd been treated there before and had her medical records and previous DX of CRPS. I think the problem was that she was taken to the ER and they're used to working so fast that nobody checked previous records so when patient and parents became demanding, they started seeing "red flags". It just all seemed so avoidable and led to such a tragedy. The hospital and CPS pushed it to the most cruel of extremes.
@zeevanatashazazhinne3136
10 ай бұрын
I just saw the vid of the verdict and came here to hear what you had to say! Very glad that times have changed enough that the jury were able to see right. I remember reading about this when it happened and thinking how horrible these hospital administrators and MD's who think they are God are and how glad I am that I was able to advocate for myself. So glad the jury made the 'right decision'. Though that sure will not bring Maya's mother back! You are such a gem Dr Kaveh! I wish you were infectious and every graduating medical student could be exposed to you! Thanks for being what my late father the (Heidelberg trained) MD-MedProf-eventual NYC Institute Director used to call 'a rarity in our times-- a real PHYSICIAN.'
@MarieCarlton
5 ай бұрын
Your continued education, explanations with regard to patients within the medical arena has no surrogate. Thank you, keep the info coming for excellence in patient care
@EverAppl14
10 ай бұрын
You're the best for highlighting the medical gaslighting that goes on through a professional lens. We need advocates in the field, like yourself. I deeply appreciate the time and dedication you've spent on this topic.
@megscott222
11 ай бұрын
Thank you for being one of the good ones❤
@tanyabrown9839
11 ай бұрын
Im in Australia, twenty plus years ago I had very severe pain due to ME/CFS, bone pain, joint pain, muscle pain and strangely even skin pain where pressure from my clothes and sheets on my bed were even causing me pain. I ended up suicidal and was given a wrong diagnoses of borderline personality disorder due to all the pain I was in. Back then I couldn't find a dr to even treat the fibromyalgia. Thankfully now I don't have much issue with pain with the ME/CFS (unless I really overdo things)
@anniejacobs7126
10 ай бұрын
The government should also be held accountable!!!
@brendag.3384
11 ай бұрын
I’m curious how much ketamine is safe for treating depression. The literature almost always uses 0.5mg/kg of body weight. I’m on 2.0mg/kg and sometimes it goes thru me like water. I don’t even feel it. Not sure if I have any wiggle room to increase. Love your videos - Always so informative.
@MedicalSecrets
11 ай бұрын
Thank you for the kind comments! you ask a very good question, and it highlights the variability in dosing these powerful medications. That is an important discussion to have with your treating doctor, because in our experience, there certainly is a significant range
@dianneking7305
11 ай бұрын
Prayers for the Family! My heart goes out to this family,this story broke my heart! May JESUS give them strength.
@bjdefilippo447
11 ай бұрын
Such a awful situation all around. It sounds like the hospital made some assumptions and sought to confirm them, rather than objectively, compassionately explore them. I'm sure at some level, they thought they were doing what was best, but that motivation wasn't clear in their actions, which separated a child from loving family, and, ultimately, a loving mother from not just family, but life itself. I've suffered from chronic pain for more than a decade. If there were a potential treatment available with few side effects as ketamine seems to have, my mother would have tried to get me access. Having just a few days of relief from pain is a dream I hope becomes real.
@YIKESMF
11 ай бұрын
Thank you for your honesty and your candor. I appreciate the unbiased medical opinion.
@johnbucklerfarms
11 ай бұрын
I remember waking up from Stomach Surgery and I herd them give him more Special K ! I remember the Lights in the Ceiling dancing Around! I was under for 5 hours because of Hernia Mesh Entangled in my Small Intestines! I spent 17 days on Daladid and a Wound Vac! I still have phantom pain in my Stomach!
@historyiwitness5915
10 ай бұрын
6:29 To be more exact, Ketamine was originally (and still is) a veterinary sedative for animals ranging from horses to small primates. It was patented in Belgium for this specific purpose in 1963. In 1992 it began a completely different journey when it appeared in powdered form the NYC nightclub scene (Limelight, Tunnel, etc.) and rapidly gained popularity albeit often confused with cocaine. At the time, it was not illegal to possess, but legislation followed. Years later, not surprised to see it being used therapeutically as it was always short-lasting, with no side effects and the experiences were very often transformative.
@sianprice7210
11 ай бұрын
What an amazing doctor you are. I would love to have you as my doctor. I love your videos. God bless you from Sydney, Australia. 💛🙏💛
@MedicalSecrets
11 ай бұрын
Thank you for the kind comments! 🙏I hope you learned something new and feel empowered to advocate for your health 🙏
@rhondamelissa3292
11 ай бұрын
Unfortunately, drug seekers have made it difficult for physicians to believe those in real 24/7 pain. Retired RN
@tracyrogers8528
11 ай бұрын
So nice to read comments in support of Maya’s case. My best friend’s child died from complications of CRPS and her journey very much mirrored Maya’s. Ketamine therapy was the only thing that helped her. Also many many nurses and drs suspected the mom of wrong doing.
@bonniebuchanan504
11 ай бұрын
(Gas Lighting). I went 2 days w/o any pain medication after major (ostomy) surgery, because the nurse told me they wanted me not to take pain meds as they wanted my stomach to wake up. Then they tried to sit me up & it was the worst pain I’ve had in 10yr.. A nurse tech (& my sister) found out & blew her stack as the surgeon had not written me any pain meds..some Ppl just don’t realize what they do to people. 😢 I learned that wasn’t true about the pain meds, as 2 other nurses got very mad that other nurse said that to me (when they found out why I had not asked for any pain medication) & both were shocked I wasn’t on & had not asked for pain meds previously, as they knew I had to be in pain after that major surgery. I think I was the only one at that time on that surgical floor not on anything for pain. Thankfully, my Elder Sister called and gave both the Surgeon & my PCP a piece of her mind for neither monitoring their Pt well, and not writing pain meds after Major stomach (ostomy) surgery nor wondering why their Pt was 2 days out of surgery and not asking for any pain relief.
@MedicalSecrets
11 ай бұрын
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I am happy that your older sister was able to help advocate for you in that vulnerable time 🙏 I hope you are doing better now
@tinathenurse9073
11 ай бұрын
RN for over 30 years who also has CRPS from a work injury . I related to both Maya and Beata.JH should pay them more than they are asking!
@ROOFMAXXofSebringFl
10 ай бұрын
Thank you for being so candid!
@Annasgardenparty
11 ай бұрын
The case turned for me when Maya testified that she how she improved (got out of her wheelchair etc) AFTER her mother died was that she “CHANGED her MINDSET”. that was a powerful moment for me, and I don’t think she recognizes how powerful that was. It’s like she freed herself from whatever form, perhaps unknown, of conversion disorder she had. By now, there’s been plenty of evidence from the Chicago doctors that something was “off”’with Mayas presentation to suggest something was going on in the mind, and I def think her mother was endangering her with risky treatments, high dose medications, comas etc. if something had happened to Maya, we’d all be asking “why didn’t somebody doooooo sooommmmeeeething?”
@KaareneRNHealthLifeCoach
10 ай бұрын
I am so glad the family won! That poor family. I just can’t understand why this hospital would do this??? Just horrible.
@selahr.
11 ай бұрын
I’m a psychotherapist who specializes in chronic pain and I’ve worked with several people who have CRPS and there often seems to be an autoimmune component or co-occurring autoimmune disorder that either starts at the same time as the original injury/onset or follows it pretty quickly. These patients are gaslit and ignored, where doctors ignore all their complaints as being secondary to pain or psychological stress or medication side effects instead of having their future symptoms honestly investigated. The medical field routinely maligns chronic pain patients as having major psychological problems (or “secondary gains” is used as the label) when there’s still so much we don’t understand about how the body and brain respond to and maintain (or cause) chronic pain and chronic illness. Just like we’re finally seeing new science prove that brain inflammation and CNS inflammation appears to be driving Fibromyalgia, I think in the next two decades we’re going to find more proof that a lot of what we’re labeling as psychological in origin is actually physical/objective processes. I’ve also worked with a lot of severe childhood trauma survivors, and most of them develop high pain thresholds, not lower. These patients are neglected most often by the medical field especially when it comes to pain management. We are overestimating the amount that psychological “weakness/fragility/damage” plays in chronic illness/pain and completely ignoring the probability that severe, chronic, and/or early trauma causes autoimmune or nervous system disordered processes that may become permanent disorders. Add in government persecution against pain management doctors and patients and it’s no wonder patients like Maya end up desperate enough to see risky and experimental treatments to try to survive. The medical field has gone off the rails and no one can count the number of lives they have destroyed by continuing to see psychology as separate from the body and as the convenient scapegoat.
@GlamGam1964
11 ай бұрын
I only just stumbled upon your channel, and wow! Are there some good topics! I can’t wait until my work break, so I can get started!
@oliviabanica1799
10 ай бұрын
Thank you that's very helpful. I wish there would be more doctors like you
@klynch7912
11 ай бұрын
The word “conversion” causes ptsd in me. Unfortunately it’s associated with FND. There is not enough knowledge out there that there is actually a neurological issue and it’s not made up “in our head”. Lots of gaslighting with FND which I think is the umbrella that CRPS is also under. I have just learned to live with my symptoms and not seek help as no one understands.
@skyydancer67
11 ай бұрын
I literally told the neurologist that I would be better off talking to a rock than seeing another speech therapist in their hospital. I'm over it myself.
@MedicalSecrets
11 ай бұрын
Oh my goodness, I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you've found a trusted healer to integrate your whole story to give you the care you deserve 🙏
@stacimicheletto6110
11 ай бұрын
I’ve been diagnosed with FND, with Parkinsonism and possibly narcolepsy and cataplexy under the umbrella of FND. I actually have an appointment at Stanford (27 hours from my home) but have thought seriously about canceling because i too am sooo tired of specialist and doctors and therapist appointments. If i knew i was seeing a doctor @MedicalSecrets with your open mindedness and eagerness to help, i would be much more willing to keep my appointment. I’ve cried at at least the last 5 appointments I’ve had from pure frustration. Not sure which takes more strength, to give up the fight and live with my symptoms or to keep fighting for a solution that will give me back my quality of life… @ klynch7912 you are brave…
Пікірлер: 1,7 М.