The Spoon Theory sort of make sense. Thank you for sharing your story.
@dianamarie3788
Жыл бұрын
((gentle hugs)). Thank you for sharing your story. I also have fibro (in my 20's) and was diagnosed with rheumatoid arthritis last year at 38. Like u mentioned, about resting when you need to. That took me the longest to learn, I tried to keep going and going then I'd end up in bed with a flare up for days. Now i have learned to listen to my body and rest when needed.
@MsPeacer12
Жыл бұрын
Yes me too
@KadeKurved
2 жыл бұрын
I will be praying for your healing!! Thanks for sharing 😘
@cloverbll
Жыл бұрын
Thank for the information about spoon theory. I have just been diagnosed with fibro after years of chronic pain, and this makes so much sense to me, and gives me so much hope.
@xemieburg
Жыл бұрын
Aw, I'm so glad that it resonated with you. Wishing you a lot of care on your fibro journey!
@MsPeacer12
Жыл бұрын
You are describing how I feel everyday. I work in juvenile justice advocating organizaers and work with parents advocating and building leadership of parents. I feel all this you are describing. My coworkers think I'm lyinging because to them I look fine and I do not look sick. My pain is never ending. When I do outreach and set up meetings to facilitate or prep for rallies. I feel like shit everyday. My doctors don't believe me at times I can't work my job. It is debilitating can't stand alot can't do my laundry or housework. All I eat now is a spinach salad boneless skinless chicken thigh and avocados dressing chive and lemon dressing. The more work building I start to get chest pains difficult to breathe. I'm in debilitating pain daily. Thank you for your story.
@xemieburg
Жыл бұрын
Thank you for sharing your story too, and for all the important community work you do. It's so true that more education is needed for society to understand and validate "invisible" illness and pain.
@croatiananaconda9455
Жыл бұрын
Hi thanks for sharing your story. I have been struggling with TMJ and fibromyalgia for 2yrs now. I can related you. How is your TMJ treatment any better? Hope we can find some release.
@xemieburg
Жыл бұрын
I'm sorry to hear you're going through something similar. Mine comes and goes in waves, I hope you can find some release soon as well. x
@nydiamontanez8025
Жыл бұрын
Hello...I came across your video and wanted to watch as I also have been diagnosed with fibromyalgia and RA and have been dealing with it for 7 years. I just want to share a small change I've made for the last 6 to 8 months that has helped in managing the pain. My primary Dr. monitors my Vit D level and take supplements vit D with K3 that have increase my level and have been taking Magnesium citrate with calcium and zinc. I've notice that my flares have been less although I still take tramadol to manage my pain but have reduced the amount I need to take. Of course the rest is very important. I am retired so that allows me to rest and take things easy. I had noticed my IBS was very much linked with my flares and my gastro had me tested for SIBO and it came back positive so he treated it and it has helped also. Your "spoon" story makes a lot of sense and I'm glad you shared it. I also noticed a flare will come after the jaw pain. Wishing you well and hopefully one day the medical community will be able to help us more.
@xemieburg
Жыл бұрын
Thanks so much for sharing, Nydia. Those are good tips re vitamin D etc. I do take magnesium and also CoQ10. Such an important reminder that a lot of these symptoms are linked in so many ways. Glad to hear you've found some things to help and I hope you can find some long-term release as well.
@healingade5441
2 жыл бұрын
Hi! I am having so many similar symptoms and have had no luck with several doctors 😢 as soon as a blood test comes back normal they stop looking. Meanwhile, I am still on daily pain. I hope you’re doing well! Thank you for your video it was really helpful and empowering.
@mayrarodriguez732
2 жыл бұрын
Feel the same wayyy
@dangercrue
Жыл бұрын
oof same here! my doctor even said it could be fibro but wouldn't help me get a diagnosis. i'm so tired of being in pain
@xemieburg
Жыл бұрын
I'm so sorry to hear that you and the other commenters below haven't been able to get the support you need, such a huge issue with fibro and other similar conditions that are hard to "diagnose." I hope you're all able to find some relief from your pain soon. x
@nameredacted1979
Жыл бұрын
Thank you for sharing this! Would you be willing to share the name of your rheumatologist? The one that I saw was not great.
@xlxthestalkerxlx6729
Жыл бұрын
pretty sure I have this as well . I spent about 10k total going to doctors for a few yrs now to no solution. I have now given up on medical help and have been trying things on my own. massage gun really helps alot I normally use it after a busy day and it helps alot. I have changed diets quite a few times and vitamins some help more then others I think but little difference for the most part. I just started wim hof breathing that seem to be helpful in the morning would say that's a free easy thing to try. looking into cold plunge next but that's expensive so I'll work my way there.
@xemieburg
Жыл бұрын
Thanks for the wim hof breathing rec, will look into that! Instead of a full cold plunge I've been doing a few seconds of cold water at the end of my morning showers, which feels quite refreshing. Hope you're able to find more things that help manage everything for you.
@IamAryaStark
Жыл бұрын
❤
@playmasterangie
Жыл бұрын
do you get headaches and if so how do they feel
@xemieburg
Жыл бұрын
Thankfully I don't get headaches, though I know it's a common symptom for many people.
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