EDS Vlog 7- Discussing my journey with Ehlers-Danlos Syndrome including my route to diagnosis with hEDS, symptoms and how it impacted my life as a father of two young kids. Looking at my life before EDS, where I am now and where I see things going in the future.
There is always a lot to cover when you are describing the journey and I've probably missed out some important things. If you have any specific questions, drop them below and I can answer them in a separate video.
I will go into more detail on how I manage my conditions in a follow up video.
TW- discussion of depression and suicidal ideation
WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
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Psst...I am writing a book about living with EDS. Would you like to get involved? If so, click on the link below
docs.google.co...
Any questions or problems email me on scottorrance@gmail.com
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CONNECT WITH ME:
Instagram: / scottorrance
#EhlersDanlosSyndrome #Hypermobility #HypermobilitySyndrome #HypermobilitySpectrumDisorder #HSD #EDS #ChronicPain #ChronicFatigue #ChronicIllness #ZebraStrong #zebra #Raredisease #invisibleillness #zebra #vlog #chroniccreator #edsbook
Негізгі бет My Ehlers-Danlos Journey: Navigating Life with hEDS as a Father 🦓
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