Would love to see you get to that point. Best wishes!
@JohnGraybill
10 ай бұрын
Thank you!
@sakeenaanjum1268
10 ай бұрын
I am from kashmir watching your videos similar disease
@romotv123
7 ай бұрын
My dad has this disease and it is so terrible
@sezersardogan2171
3 ай бұрын
Hello. I also have lgmd2a. I read an article explaining the benefits of growth hormone for lgmd2a. Have you ever used it? or are you using any other medication? Finally, do you think that gene therapy studies are progressing too slowly? I appreciate your fight against the disease. Sorry for the bad English, I use translate
@JohnGraybill
3 ай бұрын
Hello. I do not do any type of therapies. I have not heard about growth hormones and at this stage I would not take them unless there has been extensive research into it. You have to think about the effects of such a treatment if it does not work and what that could do to you. I haven’t read or looked into this but rather giving you my personal opinion. I think gene therapy is moving slowly but I know nothing about it or how it could work. Instead, I enjoy my life to best I can. I don’t put my happiness into being cured anymore. Enjoy what you have now and when the cure or treatment comes then your life will be twice as nice as it is.
@tanishaagrawal7439
2 ай бұрын
For how many years have you had the disease and in how much time have you progressed with this disease?
@JohnGraybill
2 ай бұрын
I have a KZitem page documenting just about every year of my disease starting in 2008 up until now. I’ve have Lgmd for 30 years and the progression has been quite slow. If you want to see what I was like nearly 17 years ago, go to my KZitem page and look at the playlists. They are organized in years of 3.
@moneycreator6944
5 ай бұрын
How can I lose weight I also have lgmd but I have gain a lot of weight can you plz recommend something .
@JohnGraybill
5 ай бұрын
I don’t know how to lose weight as I’m fairly thin and have always been. Maybe try eating less portions or skipping one meal a day. I really don’t know what’s best for you but staying active as best as you can will help keep the weight steady.
@pooky102
14 күн бұрын
Intermittent fasting and ketogenic diet. See a naturalpathic dr. This is what I do. I have LGMD
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