2 years on my own with this. Over a year begging the doc to check my chest. It wasn't right. Me losing hair didn't feel right - stress. Me aching like I got beat up- the flu. Me just simply saying - this isn't right! Something is wrong. Everything hurts when I'm not Asleep... And that seems to be all I am able to do... but it's me! ME! Something is wrong. It never hurt like this before... something is wrong! Please help... ? Another 2 years. All it took is one doctor that actually did his job. 1 biopsy 1 explanation ...
@tiakato633
6 жыл бұрын
Just don't lose yourself.
@spicysizzling1600
6 жыл бұрын
I came across you channel because of ASHA a formal LUPUS Warrior who just lost her battle , I don't have LUPUS but I just wanted to encourage you too continue your FIGHT ...YOUR SPRIT RESEMBLES ASHA SO MUCH , I ADMIRE YOU FOR BEING VERY WELL SPOKEN & STRONG , YOU ARE SUCH AN INSPIRATION FOR OTHERS , GOD HAS PUT YOU HERE FOR A REASON , I'M A SUBSTITUTE TEACHER FOR 13YRS & I LOVE KIDS , YOU PUSHED YOUR WAY THOURGH & CONTINUE TO FOLLOW YOUR DREAM , DON'T LET NOTHING STOP YOU ,, YOU'RE SUCH A BEAUTIFUL YOUNG LADY ..YOU WILL BE IN MY PRAYERS...MUCH L💖VE
@TheOfficialBiancaMedia
6 жыл бұрын
OMG Thank you for watching. I really appreciate it, it really means alot!
@fabiennemuller1863
6 жыл бұрын
I got newly diagnosed with SLE and I loooove your videos, they are so inspiring 💕 keep going!
@TheOfficialBiancaMedia
6 жыл бұрын
Fabienne Müller thanks for watching! I appreciate the support! Please share! Let me know if you have any questions.
@lilliantrevino6940
5 жыл бұрын
@@TheOfficialBiancaMedia I was Just diagnosed 2 months ago SLE. How do you deal with Leg sores.And Burning and throbbing.
@TheOfficialBiancaMedia
5 жыл бұрын
@@lilliantrevino6940thanks for watching. I didn't get any sores, so I'm not sure how to deal with those. With throbbing, the medications tended to the pain when it was bad.
@virginiamercey940
5 жыл бұрын
I was recently diagnosed this week with Lupus, and your videos have given me hope. I had been struggling for almost a year without knowing exactly what was happening to me. I am only 17 and it has been incredibly hard for me to keep going, but I’ve never given up nor do I plan on it.
@justagirlfrombrooklyn
9 ай бұрын
You should be 21 now. I pray your feeling better stay strong
@cynthiamaua
4 ай бұрын
How are you copying?
@cynthiamaua
4 ай бұрын
How are you coping?
@chelseawilliams6115
5 жыл бұрын
Thank you for sharing your story... I got diagnosed with lupus nephritis January 9 2019 😌 I felt so alone until I found your channel. Thank you for being so strong!!!
@TheOfficialBiancaMedia
5 жыл бұрын
Thank you so much for watching! I really appreciate it.
@tabitha5743
3 жыл бұрын
I’m currently undergoing diagnosis. Biopsies, dermatologist, rheumatologist....test, test and test. I am so happy I stumbled on your channel. I have some of the very symptoms you speak about and more. Thank you and keep doing what you do!
@Sherre6ix
6 жыл бұрын
Your story sounds a lot like mine. It’s great to hear that you had support. Lupus survivors need support from family and friends,something I don’t really have and it makes it really difficult.
@TheOfficialBiancaMedia
6 жыл бұрын
Sherre Six wow i know that can be tough. Is there a support group in your area.
@Sherre6ix
6 жыл бұрын
I am looking into a support group but it is few and far between
@mischastewart
5 жыл бұрын
Let's connect on IG @sheislupus
@NaturalNae
4 жыл бұрын
I’m an in the process of being tested. I had positive ANA titers. Now waiting for more blood work to come back. I love your videos. Please keep making them.
@mckenziejohnson9783
2 жыл бұрын
Do you have an update on your positive ana test? What was the outcome
@Ryan-yw8iz
2 ай бұрын
Hello. I had positive ANA test. How are you doing?
@mymi2k11
5 жыл бұрын
You're such an angel , I will also be telling my Lupus story on KZitem very soon! Thank you for your courage of sharing yours 💛💜
@TheOfficialBiancaMedia
5 жыл бұрын
Myiieshaaa thanks for watching. Yes never be afraid to share your truth. Keep me posted. I wanna see.
@AMS0118
4 жыл бұрын
I think sharing our lupus experiences will help so many people :) xx
@LalaLarrieux
6 жыл бұрын
I really admire your strength and how you worked hard, did your research, and fought through to get healthy. Thank you for sharing your journey with us. 💜💜💜
@TheOfficialBiancaMedia
6 жыл бұрын
Phoenix Rainwalker thank you for watching !
@Chuchiross
5 жыл бұрын
Thank you so much for your video, living with Lupus is so hard alot of people don't understand that we go thru. Im having so many health issues from my lupus.
@bettyevans6060
6 жыл бұрын
Your diagnosis sound like mine, You’re not alone bless you. Thanks for having the straight To share your videos.
@TheOfficialBiancaMedia
6 жыл бұрын
Thank you for watching. I really appreciate it!
@mischastewart
5 жыл бұрын
I was Dx with SLE in the ER with swollen balloon feet. I was Dx by rheumatologist. Then I got a kidney biopsy with protein in my urine. Living with lupus 19 years. I hate the weight gain. I'm tapering off prednisone down now to 3mg!
@ericamiller3585
2 жыл бұрын
Many blessings upon you and yours.... we're going to crush this "health challenge!" Although Lupus is in our DNA, GIVING UP IS NOT IN OUR DNA!!!
@russellloveland1214
2 жыл бұрын
You are beautiful soul in and out keep your story coming. Enjoy listening
@newchick10
6 жыл бұрын
I stopped taking the Prednisone because it pushes you to being diabetic. My vitamin D levels are always low. I'm anemic too and always cold. My feet and one leg is swollen and numb.
@TheOfficialBiancaMedia
6 жыл бұрын
newchick10 Thanks for watching. wow I definitely had those same symptoms. Do you take any vitamins to help?
@ariyahyisrael1232
5 жыл бұрын
You are a courageous young lady. Prayers are in order here. I pray you come out of this successfully.
@fightinglupus2356
6 жыл бұрын
New sub thanks for your video sending prayers your way keep fighting I have Lupus as well glad to know that there's people out there who are getting their story out so people like me are not feeling so alone. . .
@TheOfficialBiancaMedia
6 жыл бұрын
Thanks for watching! Yes, I wish I started my channel back in 2009 when I was diagnosed. But better late than never. Thanks for watching.
@fightinglupus2356
6 жыл бұрын
TheOfficialBiancaMedia I had a little episode today and had to go to the hospital and the doctor on call was stressing out and freaking out which made me get anxious nervous paranoid and scared because she didn't know anything about lupus and her whole medical career she's never had a lupus patient in the ER and I'm just like wow this is ridiculous people need to spread the word about lupus because I feel so alone like all the doctors here in Utah are so incompetent. . .
@RachaelCrump21
6 жыл бұрын
Our stories are so similar in regards to being diagnosed.🦋
@carlabarron7898
6 жыл бұрын
I ran across your videos and have helped me understand this diagnosis better. I was just recently diagnosed with Lupus and a differential connective tissue disease. I still don’t quite understand it all. I started out with dropping everything out of my hands and it progressed fast. I also woke up one morning with a stiff neck that would not go away. I’m sorry you have been through so much but your story has helped me tremendously. I will continue to watch for your videos.
@TheOfficialBiancaMedia
6 жыл бұрын
Thank you for watching! Let me know what else you would like to see.
@thapriceisright514
5 жыл бұрын
I have dropped things in my left hand :(
@thapriceisright514
5 жыл бұрын
You are awesome!! I am not sure if i have it yet but my bloodwork came back with some red flags. Appointment is April 8th. Very nervous
@AMS0118
4 жыл бұрын
Gives me hope that I may get lupus under control! Xxx
@TheOfficialBiancaMedia
4 жыл бұрын
It's a journey. Stay encouraged.
@hannahknowles417
6 жыл бұрын
In early August I woke up one morning with my knees fingers elbows and hips hurting really bad along with a fever headache and just feeling so tired, that lasted like a week and I didn't know what is was. I was gonna go to the doctor but was just too busy and when I was finally able to go I wasn't really hurting that bad, so I just didn't go. But a couple weeks ago it started again and I couldn't even go to school because I was so tired and hurting so bad. I went to several different doctors and they all ran a bunch of tests and said that they didn't find anything that was really alarming. So I still don't know what it is but it's still happening. My mom and I have looked into lupus and I have quite a few of the symptoms but none of the doctors have said anything about it. I'm really stressed about it and some of my family members think it because I'm just "lazy". Idk what to do...
@TheOfficialBiancaMedia
6 жыл бұрын
Thanks for watching! Wow, I know that can be frustrating. Good thing you are taking note of your symptom. If you can go to a bigger hospital system or another hospital in your area, try that. It sounds like it could be something autoimmune even if it isn't lupus.
@hannahknowles417
6 жыл бұрын
TheOfficialBiancaMedia Okay I'll try thank you so much
@stephanee4242
6 жыл бұрын
I feel the same way. Haven't seen doctor yet
@safetypins69
6 жыл бұрын
If they test ANA, Rheumatoid factor and CRP levels it can paint a better picture of what exactly is going on! I tested positive for ana and high CRP and low wbc so my doc is thinking lupus. It's so hard but keep being your health advocate! Keep pushing. You know your body!
@ACole-to3ij
5 жыл бұрын
Love your story this is helping me a lot . Waiting on my results
@TheOfficialBiancaMedia
5 жыл бұрын
thanks for watching. stay encouraged.
@kisha_cm3426
5 жыл бұрын
I have lupus nephritis also. It’s relatively under control at the moment. The worst part is when you are going through a bad flare up. Also realizing your limitations like I can’t be out in the sun all day and that I need to rest. Thanks for sharing your story.
@russellloveland1214
2 жыл бұрын
Yes journals help I write in one myself
@devynashley9871
5 жыл бұрын
Thank you for sharing your story . I’m scheduled to see a Nephrologist soon due to having high bp and protein issues. I understand everyone’s body can be different, but (if you don’t mind sharing) how did your body respond to the chemotherapy ? Also, were there any alternatives to chemo treatment plan?
@TheOfficialBiancaMedia
5 жыл бұрын
Devyn Mitchell i took pill form of chemo and not iv. It took several months for my protein issues to subside and for them to get me stable. I was taking blood pressure med but the only natural remedy that made a huge change was my diet. I made a video on what I did that made a difference.
@maamedansowaa1520
5 жыл бұрын
To reduce proteinuria, stop eating meat and chicken, dairy and glutten.
@chenettagilliam9247
6 жыл бұрын
My friend has lupus she has her ups and downs
@shandaa2007
6 жыл бұрын
I have collagen vascular disease,lupus,MCTD, and fibromyalgia and I’m about to go crazy because my body is swollen and I have a young child and I’m under the age of 40. The Struggle is Real
@TheOfficialBiancaMedia
6 жыл бұрын
omg. I can only imagine, the struggle is so real. Sending positive vibes your way. What a blessing to have a child, gotta keep going for them.
@dw5591
3 жыл бұрын
15:07 🤣🤣 she’s silly love her personality 🥰
@cassandravick6327
4 жыл бұрын
I am a SLE Lupus warrior 💜🙏🏽
@nicoleb5115
5 жыл бұрын
I’m 19 I been in out the hospital I have yet to figure out if I have lupus i had protein in my urine right along with chest pain joint pain also they kept telling me it’s anxiety I had some test done cause I was totally over the pain and they told me I’m showing signs of lupus I tried to go to a specialist but they are telling me I have to wait months it’s ridiculous one doctors office told me next year i refuse to wait thanks for sharing your story I hope that I don’t have it but if I do i have you to look up too 💜💜💜💜 I cant fully watch the video I stopped bc I have similar problems I’m also have a vitamin D Deficiency but it’s common in Ohio but Idk what to do anymore it’s had to get to a specialist
@alyssabraster6970
4 жыл бұрын
Don’t give up girl! I was in the same situation and I finally found a good rheumatologist! Do your research and make sure you get all the help with insurance that covers you for the best plan possible! I currently take benlysta and it’s 45,000 a year and I pay $43.80 a year! That’s less an 50 dollars a year for that medication. I also make under 10,000 a year so that is why I am approved.
@chantelsweeney
5 жыл бұрын
Thank you for sharing..i'm newly diagnosis with Lupus nephritis a little after thanksgiving.. I'm on cellcept, prednisone and plaquenil .. i was wondering if you experienced hair loss? and if so what did you do to decrease it? when did it stop?
@TheOfficialBiancaMedia
5 жыл бұрын
Thanks for watching. My hair loss didn't stop until I stopped taking prednisone. That steroid had my hair falling out like crazy.
@daphneteno
5 жыл бұрын
Don't know if you've tried Alkaline water but it be something to consider..
@Namgyalma
5 жыл бұрын
I have lupus too. I was diagnosed 1 and half year back can you please help me with my skin problems what should I follow? I'm going through very bad skin disorder.
@TheOfficialBiancaMedia
4 жыл бұрын
you might want to check with a dermotologist.. it doesn't impact my skin. so i just use items from the drug store.
@mrsfweni2011
6 жыл бұрын
New to your channel. It has help me see I’m not Crazy. Dr told me last week I have lupus. Haven’t seen my Rheumatoid arthritis doctor. But do have an appointment. I cant remember when I first started feeling bad cause I to was a busy girl. Over the years I’ve slowed down but not because I wanted to. So many different elements kept coming up and I convince myself it was all in my head. Well as I kept going to dr there was always something b12 deficiency thyroid disease swelling fatigue pain in the joints inflammation iron low cold all the time . At this moment I’m still feeling all this.
@TheOfficialBiancaMedia
6 жыл бұрын
Thank you for watching. Yes, go see the rheumatologist, ask as many questions are possible! Sending you positive vibes!
@dowhatyoulike137
4 жыл бұрын
Hi I diagnosed with lupus, before 9months.i have symptoms of joint pain muscle pain.which antibodies you have?I have ro antibodies
@susanrodocker3147
5 жыл бұрын
God Bless You.... and your mom sounds like a wonderful person and mother. I am getting tested for lupus this week and I am super scared.
@margrettbraddock5769
5 жыл бұрын
I was diagnosed in 2004. Just wondering did you get any of the side affects from taking the bp meds (lisipril) you was on
@TheOfficialBiancaMedia
5 жыл бұрын
No, but I changed my diet/lifestyle to get off of it as soon as possible.
@margrettbraddock5769
5 жыл бұрын
Ok just asking because the coughing drove me crazy.
@mandiparri4501
3 жыл бұрын
Hi, are you living a normal meds free life now?
@kshan6911
6 жыл бұрын
I was just diagnosed with lupus nep.... did they offer cytoxan infusion
@TheOfficialBiancaMedia
6 жыл бұрын
K Shan thank you for watching. Yes i talked about it with my doctors but they ended up putting me on cellcept
@kshan6911
6 жыл бұрын
@@TheOfficialBiancaMedia so is there a reason you didn't do it...i suppose to start it Friday but im having 2nd thoughts...i feel like its going to cause other things....how does celpt work for you
@TheOfficialBiancaMedia
6 жыл бұрын
K Shan i would definitely challenge them on that method. I know for women it can impact your chances to have children. When i was talking with my doctors i told them I’d prefer the pill rather than the other. But it could depend on the severity of the situation.
@kshan6911
6 жыл бұрын
Thanks so much for replying...
@TheOfficialBiancaMedia
6 жыл бұрын
K Shan of course. Stay encouraged and let me know what other videos you would like to see!!
@janinedsouza8280
6 жыл бұрын
What dosage of prednisone do you take if you dont mind me asking?
@TheOfficialBiancaMedia
6 жыл бұрын
Janine Dsouza thanks for watching. I don’t take it anymore unless I’m flaring.
@yunassecretrapcareer6106
5 жыл бұрын
My dr just put me on prednisone Nd gabapatin n folic acid. Is that a good starter pack?
@TheOfficialBiancaMedia
5 жыл бұрын
Paola Banuelos i didn’t take those last two. I was on prednisone. You shouldn’t be on it long and the doctor should give you a timeline to get you off of it.
@gracielagarcia5085
5 жыл бұрын
Bianca I was diagnosed with lupus 2007 I had my first baby 2008 he was a preemie. 22 weaker weight 1.3 Oz because of the same reason of my lupus and right now I was diagnosed with arthritis and osteoporosis l feel so sad :( and depressed I'm not the same person anymore my rheumatologist tell me about getting benlysta infusions
@TheOfficialBiancaMedia
5 жыл бұрын
Thanks for watching. Keep your spirits up for your son! You have more living to do, don't give up.
@luckymom241
4 жыл бұрын
Lupus survivor
@elaineporter9341
3 жыл бұрын
Thank you ‼️‼️‼️
@TheOfficialBiancaMedia
3 жыл бұрын
Stay encouraged.
@elaineporter9341
3 жыл бұрын
@@TheOfficialBiancaMedia i order those pills so I’ll see if it makes a difference
@CT-kg3st
6 жыл бұрын
Did your medication result in hair loss. I’m about to start chemotherapy pills and I’m scared about the hair loss
@TheOfficialBiancaMedia
6 жыл бұрын
Thanks for watching. I started experiencing hair loss before my chemo pills. The prednisone caused me to loss my hair.
@herstyles238
4 жыл бұрын
Our symptoms are so similar. You’re the only one I have seen that has mentioned high white blood cell count. I have been tested for leukemia, lymphoma, and other blood cancers. Now being told possibly Lupus and waiting on some of the lab work. Thank you for sharing.
@ashontisjones4630
6 жыл бұрын
I love your videos. Is there a way I could talk to you privately??????
@TheOfficialBiancaMedia
6 жыл бұрын
Yeah sure thing, email me at BH2568@columbia.edu. put KZitem in the subject line.
@singhster300
5 жыл бұрын
7
@zanialanley
6 жыл бұрын
I have Lupus, My mom died from Diabetes 2,Lupus
@TheOfficialBiancaMedia
6 жыл бұрын
Oh wow, my thoughts and prayers and with you. I hope you are doing ok.
@thameembasha3433
5 жыл бұрын
@@TheOfficialBiancaMedia I was lupus is curable r not tell me
@newchick10
6 жыл бұрын
The music is a little distracting and loud.
@TheOfficialBiancaMedia
6 жыл бұрын
Will be sure it's lower in future videos. Thanks for the feedback!
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