I don't have epilepsy or any other seizure disorder but I find this absolutely AMAZING!
@JenSAN4105
2 ай бұрын
Anyone who is losing hope, it took me 7 years to find the right mix of meds to help me. New innovations are worth it if it keeps you seizure free. Don't lose hope. There is a way to stop your seizures. You just gotta work with your doctors and researchers and have patience. I believe that there is a way to stop seizures in every person with epilepsy. We just gotta find the right path.
@samarc4467
5 жыл бұрын
Thank you so much sir! People like you are the hope.
@dqdave
3 жыл бұрын
Every seizure takes a small bit of my life out of me. This surgery is worth the risk. Having it done in April.
@tony745
3 жыл бұрын
Hello David. How did it go ? How are you feeling ? I am thinking about this for my son. Any advice ? Thank you.
@dqdave
3 жыл бұрын
@@tony745 Mayo and the surgery was wonderful. A week out, recovery will be long. A bit confused and memory is gone. (part because of the medication). but long term, I believe my memory will improve. Pain is there, but better than a sore back to compare. No downside, in my opinion. I'd do it over again.
@tony745
3 жыл бұрын
@@dqdave Thank you. God Bless you.
@cagefreebrain5843
3 жыл бұрын
Thanks for the update -- hoping for an ideal recovery for you!
@bogusmcbogus2637
2 жыл бұрын
@@dqdave Thanks for coming back with the update. I'm being offered RNS implantation pending iEEG results.
@iniobong5571
2 жыл бұрын
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
@Rlaliceiwl
Жыл бұрын
Hey, may I know what treatment did he use on you pls?
@laurasviland5775
10 ай бұрын
❤
@ryanstrasser3695
2 жыл бұрын
The best strategy is to accept epilepsy as a lifelong condition... allow these guys to experiment as they always will.
@loristevens-ec9jd
5 ай бұрын
That's easy to say if you don't deal with Epilepsy. I deal with drug resistant seizures. I went from taking 2 medication to 3 and most I have taken. I now have Essential Tremors stage 4. Though I take so many medications I still have seizures. I had complex partial seizures in the beginning and currently I have those and tonic-clonic. Perhaps you would appreciate the crazy words more if you walked in different shoes.
@wapiti128
5 ай бұрын
@@loristevens-ec9jdI have seizures too. I'm going to try fasting to increase my BDNF and hopefully that cures it.
@ryanstrasser3695
5 ай бұрын
You are a scumbag. 30 years of dealing with this. Kicked out of HS for it… given a full scholarship to an Ivy League school thereafter.
@robertbrown785
2 жыл бұрын
Every time a seizure hits me, I do not remember the previous day.
@charlotte7955
5 жыл бұрын
Amazing! Thank you so much!
@barbgill3776
5 жыл бұрын
the nuerostimulater surgery cost $100,000 in 2012. The battery and up-grade needs to be redone q 8-10 years. No quality of life and $10,000/year for surgery plus $10,000/yr for meds. Send me flowers. My migraines are still keeping me in bed, in a dark room. Keep working doc
@alc1212
3 жыл бұрын
You get these?
@cagefreebrain5843
3 жыл бұрын
Wow, every 8-10 years -- not ideal lol. Hope your migraines are getting better!
@johnlp3376
3 жыл бұрын
8-10 years I have RNS I got 1.5 years out of first battery they lied said 8 on second battery no way gonna be more around 4 years. After this battery dead I won't do again. It helps but also will make disablity breathe down your neck you won't be seizure so working lol. I wouldn't do it again you spend a ton of money to put a bandage on a bullet hole it just covers problem up all they care about is the data 3 people can see you have a seizure if RNS dont see doctor will say you didn't have one.
@cagefreebrain5843
3 жыл бұрын
@@johnlp3376 Thanks for your story. 'Not using a bandage for a bullet hole' is a great analogy. My journey led me to the same conclusion.
@loristevens-ec9jd
5 ай бұрын
I had a conference call with one of the directors at the Epilepsy Foundation. He told me about someone having 200 seizures a day.
@JAM-zb2vh
9 ай бұрын
I did the VNS and it did not help at all and medication is not helping so I live with it.
@wapiti128
5 ай бұрын
Have you considered fasting? I'm trying it now.
@iniobong5571
2 жыл бұрын
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
@strgazerlilly
3 жыл бұрын
I'm getting my VNS in 5 days thank you. I had to fight for the "right to try" because they have brought back lobotomy as a approved treatment for epilepsy AGAIN.
@tony745
3 жыл бұрын
Hello. How are you feeling ?
@alc1212
3 жыл бұрын
All that work when this could be cured with a keto diet. Don't belive me look it up. But people aren't disciplined enough to stay on one and instead would rather down$100,000 on this type of stuff. God bless this man and the work he is doing. But should direct it towards truly uncureable things. Just my thoughts
@cagefreebrain5843
3 жыл бұрын
I agree fully! Have you had success on keto or know someone who has?
@lizzyking.official
2 жыл бұрын
I agree that the keto diet is a much safer option, however, unfortunately, it isn't a "cure". It can diminish your seizures and improve your epilepsy a lot, but it isn't a sustainable diet to do forever since you will miss out on some vital vitamins and minerals. Of course, you can consume those separately but especially if you are a woman wanting to reproduce, it can affect your pregnancy too. I still highly recommend the keto diet to anyone struggling with epilepsy, but it is not a long time cure. (Talking from experience :) )
@bogusmcbogus2637
2 жыл бұрын
@@lizzyking.official Very true. Thumbs up.
@mariadinn4441
Жыл бұрын
Ketogenic diet is most effective in children - but not all children. Only 10 - 15% become seizure free. The rates are even lower in adults. :)
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