Watching that actually makes me feel like my world is in balance again!
@owieprone
4 жыл бұрын
ARg, started that vid without realising it was showing just movement, *vom*! I hadn't realised other sufferers could watch things like that and it not make them feel like the couch has taken up rodeo (as the horse). I have to be very careful around vids/telly for any sort of movements (can't watch The Big Bang Theory intro or swirly atoms, panning shots, handheld/first-person, scrolling, other people gaming, etc).
@mddsfoundation
4 жыл бұрын
This video was shared in our online support group and it was equally well-received as it was symptom-triggering. We hope you returned to baseline quickly.
@888biblestudy
3 жыл бұрын
@@mddsfoundation Good to knkow. It made me a bit nauseous. Been suffereing since 1982 with no let up
@giancarlozarlengo1096
5 жыл бұрын
Yep.
@8QQ8
4 жыл бұрын
Do you actually see *this* or you just feel the rocking?
@giancarlozarlengo1096
4 жыл бұрын
@@8QQ8 This illustration is actually too simplistically exaggerated as in the up and down motion. For me it is up and down, side to side the building beyond is moving the floor I'm standing on, the sky above ... everything, all at the same time. Nothing is ever still. Almost four years now. The movement can be subtle or extreme. On a scale of 1 to 10, some days are a 3 and some an 8. I actually have adjusted to some degree ... what cannot be remedied must be endured. Normal is just a memory. Now MdDS is the new normal.
@8QQ8
4 жыл бұрын
Giancarlo Zarlengo , i’m not sure if its mdds or vestibular migraine is what i have. I don’t see any motion. I just feel like im rocking , swaying, floating... when i lie down or sit. When i walk i don’t feel the rocking but its like my head is floating above my head... and im super off balance... My doctor said its Vestibular Migraine but honestly i think all these are related... do u rock /sway even when u lie down?
@giancarlozarlengo1096
4 жыл бұрын
@@8QQ8 Lying down largely reduces symptoms while walking brings them full on. If I'm sitting in a chair on a hard surface floor then stand up, I feel like I'm trying to stand up in a row boat and walking across the floor feels like I'm walking on a trampoline. The strange thing ... in the weeks after I was struck with MdDS I figured I couldn't possibly drive or travel. Just walking was impossible. Then I eased back into driving. I could do it fine. I started by just going to the store. I could drive like Mario Andretti but then I'd get out of the car and walk into the store like a drunk. In the years since I've traveled in planes, boats, high speed rail all over the US and Europe. I feel the most normal when I'm in these forms of transportation. We humans have evolved with a switch in our brains that tells us when we are in motion. In the last hundred and fifty years high speed transportation has challenged this switch. When we are driving in a car the switch is on and tells out brains we're moving and to adapt to it. When we stop the switch turns off and says were motionless again and go back to normal. With MdDS the switch is stuck in the always moving position like when your computer gets the spinning circles and you have to reboot. The problem is, no treatment is currently available to reboot the brain. If you have MdDS you will begin to research it yourself and you will soon know more about it than most doctors ... most of whom have never even heard of it. I was misdiagnosed for the first six months I had this condition as having some strange form of vestibular vertigo. No audiologist could find any problems on any level. The ninth doctor I saw, a neurologist, was a great listener. He asked me to sit down next to him, start over, and tell him exactly what my world felt like. As I described what I've told you above he smiled and said, "I think I know what you have" then he googled a Johns Hopkins web page and there it was ... almost word for word what I had been describing to him ... row boats, etc. My belief based on all I can deduce is that MdDS is not a vestibular affliction but a neurological one. To put it bluntly, some sort of brain damage. Some event happened to me the day it arrived ... perhaps like a stroke that can't be seen on an MRI. Who knows. I was 65 years old when it happened. It generally hits women in their 40s after a long cruise or some such event but there are plenty of variations. That could even indicate some sort of hormonal cause. For what it's worth I have suffered from visual aura migraines since I was a teenager and I do believe this is some form of later life manifestation or those. There is an MdDS facebook page which is worth a follow and connects you with the latest research. Like everything on the internet there is a lot more bad information than good so beware. Good luck to you in figuring out what's going on.
@8QQ8
4 жыл бұрын
Giancarlo Zarlengo . Interesting! And yes I know doctors hardly know about this syndrome... for me its very bad when i lie or not move... i hope it will subside to a more managable level. Did you get it spontaneously? Or after a cruise? Thanks for the long reply!
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