I'm happy that you are getting to get go to Thailand, if it all works out!❤️
@nadiaaquino7382
4 ай бұрын
A support system is so important. Being a stay at home Mom, I took on the cleaning cooking laundry etc. I didn’t impose much on my kids because I wanted them to focus on school. I wish I had given them more responsibilities growing up because I could really use their help right now. Fortunately I have a husband who is retired and understands my health issues. He is a big help and supporter.
@aubreyjones8103
4 ай бұрын
I feel the scariness of needing a walker/wheelchair. I have had to use one (again) since 2022. It’s such a frustrating experience. I need it because I developed atrophy in my thighs and core while waiting for a “non-essential” back surgery. I am so grateful that you have chosen to share the information you’ve learned. But most of all I’m incredibly thankful that you share yourself. All of it! Have caregivers that come and help me. Cooking, meal prep, washing my hair, driving me to appointments, coming in to all appointments with me because I lose my ability to speak during them. I keep going. I keep getting dressed (most days). I keep asking for help. I keep doing counseling and am starting a chronic pain group that my counselor is starting. When I was 26 I went to a group in person. I was the youngest person by 200 years, well, it seemed like that. They had us do the Hokey Pokey. I couldn’t do it. Everyone else could, some even did it in chairs, and I could not make my body move to get through the first round. I’m 49 now. I can do the Hokey Pokey in the pool!! I don’t do land based pt anymore. My ego causes me to hurt myself! lol I did have a 10 year time frame that I was able to bartend and manage restaurants. 2011-2021. In between surgeries, and great supportive people. Now I live alone. And struggle with the feelings of “F” it all. I try to remember 1. Just because I am in pain doesn’t mean I get to be a pain. 2. There are no bad days, just bad moments. 3. I have survived and overcome every single obstacle that has presented itself in my life. 4. Community does not have to be what I painted it to be. Paint a new way to see it. I am practicing these. I mess it up daily. But I keep showing up to practice. I really appreciate you. Ok …. TMI But I’m gonna hit send even though I’m nervous that I put too much “out”
@tt_looking_glass
4 ай бұрын
Thank you so much for sharing your journey with such honesty and vulnerability. It's clear that you've faced immense challenges with courage, resilience, and a sense of humor, even in the toughest times. The strength it takes not just to navigate these experiences, but also to share them, is truly inspiring. Needing assistance, whether it's a walker, wheelchair, or caregiver, is daunting. It's a reminder of the challenges you're facing. Yet, it's also a tool of empowerment, enabling you to live your life more fully. It's beautiful how you've embraced these aids, not as limitations, but as enablers to keep moving forward, literally and metaphorically. The gratitude you express, even amidst frustration and pain, is moving. The practices you're adopting, reminding yourself of the moments of joy, the obstacles you've overcome, and the new perspectives you can choose, are powerful affirmations of your resilience. Your journey of managing chronic pain, seeking out community, and continuing to engage in activities that bring you joy is a reflection of your determination and zest for life. It's okay to have moments of feeling overwhelmed or wanting to say "F" it all. These feelings are valid, and they don't diminish your accomplishments or the progress you're making every day. I didn't quite understand what you meant by 'My ego causes me to hurt myself." Remember, it's okay to mess up, it's part of being human. What matters most is that you keep showing up, keep practicing, and keep reaching out. You are a beautiful example of strength in vulnerability, and your story is a powerful reminder that, even in our toughest times, we can find strength, community, and hope. Your approach to life, recognizing that there are no bad days, just bad moments and that community can be redefined according to your current needs and experiences, is very profound. Thank you for hitting send. Your story is too important, too impactful, to be left unsaid. Keep sharing, keep living, and keep being you. You are not alone, and your experiences, shared so openly, help light the way for others navigating their own paths. Keep going, because your light shines far and bright. ✨
@aubreyjones8103
4 ай бұрын
@@tt_looking_glass thank you! Your words make me feel seen. I don’t have the words to let you know how big feeling seen is. What I mean by my ego causes my to hurt myself…. I, like many of us, have good days and bad days. Even after 2 decades, I still will overdo when I’m having a good day. Or if I’m having a bad day and am angry and stuck in grief of what I “should” be able to do. (I really need to stop shoulding on my self!🤷🏼♀️) So I might lift or grip or try to do the splits. Just to say I’m still me and watch me…..get stuck in bed for a week and have all that in my medical record except that the bed stuff…. I am better with it now. Not that I could even get to a .25 split now… but I’m very competitive with the abilities my body once had and the abilities it has now. Late last summer I was in an aquatic physical therapy session and it felt so good to do some basic yoga poses and very large steps!! I felt like I could go out and dance the night away. In the car ride home, my body started having all these muscle spasms at the same time in different places. It looked similar to a seizure, but it wasn’t. So that’s what I mean. I want to enjoy movement like I want. It’s comparable to a toddler looking at an entire row of candy and know in their head they can pick in between 2. But crying because there was so much more to choose from, if only he could. So… yep I’m a 2 year old throwing a temper tantrum. It is exhausting.
@tt_looking_glass
4 ай бұрын
I totally see where you’re coming from with the whole ego and good day vs. bad day scenario. It’s such a human thing, isn’t it? Trying to push our limits to prove we can still do the things we used to, only to be reminded by our bodies that things have changed. It’s a tough balance to strike, and your analogy of the toddler and the candy aisle really hits home. I love your sense of humour. Your honesty and resilience are inspiring, and they light the way for others facing similar challenges. Keep embracing those victories, no matter how small they seem, and remember, you’re making waves in this journey. Your spirit uplifts us all.
@JessicaPetra
4 ай бұрын
❣
@jenniferw1595
4 ай бұрын
10:40-13:00 showing this to everyone in my life. You are so wise.
@charlashellhorn3866
4 ай бұрын
Hi, Daniela🎉. Your Go Pro is working wonderful. Sound was good and I like the clarity! I love listening to you, it makes me feel I have a friend, I have very little support with my COPD, but I manage. I get bouts when I think the world is just unfair. I had some help from a family member that I’d just about given up on n, and helped me with a very trying problem, so I’m feeling happy and very grateful today. I over-spent my energy today, but it was worth it, now I have my peace back. My two boy cats help me keep things going. I have one who is almost 18 named Kai, and I have a tuxedo cat,whom I rescued as very feral, named Jazzy. The love of animals gives a reason to get up. They think I’m mommy😂😂😂😂😂. I’m glad your foot is better. Charrla
@user-sj7ll9wo1b
4 ай бұрын
👍❤
@jenniferw1595
4 ай бұрын
Your husband sounds amazing! 💕
@tt_looking_glass
4 ай бұрын
I think so too! ♥️
@jenniferw1595
4 ай бұрын
Hi Daniela, I think that you have shown that several other people live in the house with you (kiddos?). Could they create a chore chart and rotate making food, cleaning, vacuuming, errands?
@tt_looking_glass
4 ай бұрын
You've brought up a critical aspect of managing chronic illness: the necessity of support and collaboration from those in your life. Reflecting on my journey, I feel I've significantly struggled in this area. For 15 years, I embraced the roles of mom and housewife, taking great pride in maintaining a clean and tidy home, and ensuring my children were happy. However, this dedication came at a significant cost to my health. Now, with my children older and trying to forge their careers, the dynamics in our home have shifted. Our standards of cleanliness vary greatly, and with eight grown people living under one roof, it's challenging. Everyone is immersed in the hustle culture, striving to save money and eventually move out. They contribute to the mess but don't always have time to clean up, which might be manageable if one lives alone, but it's complicated in a large household like ours. I acknowledge that much of this situation stems from my reluctance to enforce stricter rules in the past. Recently, I've found I don't have the energy for confrontation. The truth is, I need to adjust my expectations. Even if I were to do nothing, my house is still cleaner and tidier than most. But it's evident that a shift in perspective is necessary for the sake of my health and well-being. Creating a chore chart and rotating responsibilities among us, including making meals, cleaning, and running errands, seems like a practical approach. As soon as I gather the energy I will have a family meeting and reinforce the need for everyone to have chores. This way, I can focus more on managing my health and less on maintaining perfection. Adjusting my standards and seeking collaboration from my family is not just practical; it's essential for creating a supportive and understanding home environment where we all contribute and respect each other's efforts. Thank you for bringing this up and encouraging me to take this step. Your input is much appreciated. ♥️
@nadiaaquino7382
4 ай бұрын
Daniella, this is off topic but you need to try toast with Nutella, Peanut Butter and sliced strawberries on top. Yum
Пікірлер: 15