I have NF1 was diagnosed early 80s. Have 20/20 vision in right eye but loss of some peripheral vision in same eye. Left eye I am pretty much legally blind. I can make out a few things if they are close up maybe that is due to the lische nodules as well in left eye as well. Ben Carson wanted to take out the optic glioma when I was younger but neuro optic eye doc at Hopkins said no way. The only outcomes was blindness and death, but that was in 80s and they had not really tried the surgery before. They worried about the optic tumor bc it was malignant and pressed against pituitary gland and I was going through puberty very early. So Hopkins waited it out and tumor became benign.
@elissagrace5618
2 жыл бұрын
First symptoms and surgery at >1 year old. Noticed something off about my eye as i grew up. Again at age 16, eye began bulging again, loss of vision, dark spots, pressure, two surgeries. Now in that eye i have loss of orbital volume and permanent “bruised” appearance . This is also on the left side of my body where the lymph nodes are more pronounced under my jaw, left breast is larger and i feel a pea sized lump, left shoulder joint is able to pop out or dislocate itself on demand... Not sure why my left side is so affected and wondering if you have any answers?
@brianalugolugo9776
4 жыл бұрын
I have an optic nerve sheath meningioma. My main symptom was transient visual obscurations in that eye every time I stand up.
@Raj-ul9my
3 жыл бұрын
get it removed
@sowhat6401
2 жыл бұрын
The docs here in MR say they can't. They want to treat it w/ irradiation now. I'm looking for a new clinic in Germany. Can anyone help?
@digantakalita3945
4 жыл бұрын
sir, how can i contact you?
@Baldric2018
3 жыл бұрын
Scary if you have these tumours
@BL-rb7jm
Жыл бұрын
Can someone who had mild covid 19 get a tumor on the eye nerve as a side effect
@cabrito1cabral
Жыл бұрын
Could be unrelated
@ddoliveron197
2 жыл бұрын
Sir,when a 2yrs old child with tumor optic nerve glioma,after chemotherapy,what are possible side effects?or will a child be back to normal health and grow normal?
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