Hey, don't ever feel bad for making this kind of video. Aside from the main purpose of this video, it'll also act as an awareness. That's always a good thing. Stay strong!!
@sh5113
5 жыл бұрын
I agree with you!!✋
@hunterkiller4578
5 жыл бұрын
Agreed
@MickeyDJ1
5 жыл бұрын
Agreed, I certainly learned of this five minutes ago! ♥️♥️♥️
@Phathom0
5 жыл бұрын
Wholeheartedly agree. Wishing you and your family well.
@ethanhull3209
5 жыл бұрын
Agreed. There could be several people watching who have gone through this themselves or had loved ones go through it, it's always good to know someone else understands what you're going through.
@GF_Burke
5 жыл бұрын
Bro, , know what's you going through. My 2nd has Septo-optic dysplasia. Which... also extremely rare. Pray to you and yours.
@vishalkumar-hi7wi
5 жыл бұрын
We pray for your 2nd too
@dragonbond5609
5 жыл бұрын
Haha
@Oscar-vi4uf
5 жыл бұрын
@@dragonbond5609 Hey a douchebag right here, everyone give him the attention he wants, but in reality doesn't need.
@frederick8o8
5 жыл бұрын
Gelu karma will come to you duma$$
@erichall090909
5 жыл бұрын
Didn’t realize septic-optic dysplasia was rare. I have that as well. It’s not that bad though if that makes you feel better. Pretty normal life at 28
@serenameep8565
5 жыл бұрын
The incredible energy you put into every video, i would never have guessed you had all this going in in the back ground...you guys are a credit to humanity. Best wishes
@sasquipitillion7110
5 жыл бұрын
Real talk. You guys are awesome
@RMCVideographers
5 жыл бұрын
Hey man, I am so sorry to hear this, I am praying for strength and peace for you and your family.
@gone3481
5 жыл бұрын
RMC Videographers don’t pray help it’s better it’s come that prayers are useless!!!!
@dilipsrinivasan5117
5 жыл бұрын
Prayers to you and your family, hope your son recovers soon.
@itsJPhere
5 жыл бұрын
Prayer is just a way to feel like you're helping when you're doing nothing to help.
@totallyjerd1751
5 жыл бұрын
@@itsJPhere That's your opinion
@ltzeu8510
5 жыл бұрын
@@totallyjerd1751 The prayer doesn't exactly help though.
@ToastyBros
5 жыл бұрын
Prayers to you and your family, I will be sure to be on during the stream to help contribute to this cause.
@oomphlagwumpla650
5 жыл бұрын
Your profile pic looks like an intel/amd processor running without a cooler
@astroposyt2898
5 жыл бұрын
Why you not verified wtf...love your vids
@272vanditsharma8
5 жыл бұрын
We always got your back man. Never lose hope. It's gonna be alright. May God Bless You and Your Family.
@voyager4328
5 жыл бұрын
@@slyceth tRUMPIST, right !!.
@itsJPhere
5 жыл бұрын
Which god?
@dexgames4366
5 жыл бұрын
@@itsJPhere May God, the God of May. Apparently there's a different God each month... Well, that's new.
@rdmz135
5 жыл бұрын
sIyceth no shit but why does that matter
@bobross9370
5 жыл бұрын
@@slyceth Being rich doesn't make it less difficult.
@JonesJr_art
5 жыл бұрын
I work in Neurology (eeg) and have experienced patients with syngap. My heart goes out to you and your family. Kudos to you for raising money for this disorder.
@UFDTech
5 жыл бұрын
Thanks for knowing about Syngap. If our EEG person had known about it, it would have saved us 3 months of testing & lots of medical bills. Unfortunately even our neurologist didn't even know about the disorder. 🤷♂️
@ashrafsalie6902
5 жыл бұрын
Also from South Africa! Stay positive and hope for the best.
@shubhamsingh6037oct
5 жыл бұрын
Hey man, he's going to get through. Your son is a legend like you. It's gonna be fine. Take good care of him :) God bless
@stevethea5250
5 жыл бұрын
8:38 was when I had a lump in my throat. BLESS HIS BOY
@deeghayu8172
5 жыл бұрын
I'm from Sri Lanka and we don't have many people sharing technical stuff like you do .. so i really like your work .. I'm very sad about what your family is going through .. hope your son gets better .. may God bless your family
@tanujbedi7791
5 жыл бұрын
Life happens sir we pray together for you and your family's wellness and well-being ❤️
@DimNussens
5 жыл бұрын
You're a stronger man than I, by far. You've been living with this for ages now, and you never let it show in your work - I can't even imagine what kind of toll that must have been taking on you. Bless you, your family, and everyone at UFD.
@11ofspades62
5 жыл бұрын
Stay strong Brett, everything will be fine💪💪💪
@righardtnel4944
5 жыл бұрын
Geez sorry to hear, praying for your son and the family. Love from Zimbabwe/Australia
@TechWithSean
5 жыл бұрын
Oh man, my thoughts are going out for you and your fam. He's lucky to have such good parents
@cluberti
5 жыл бұрын
Had a son with a rare disorder and I understand the challenges (and opportunities!) that may bring. I wish you all nothing but the best of any situation, and very glad to see you using your platform to try and help your son and others.
@Binvernon
5 жыл бұрын
Wow. I can't wrap my head around the amazing amount of work you have been putting into the channel while at the same time suffering all of this. I'm stocked. I hope I can donate at least a little and help you out. Sending lots of love.
@ethanhull3209
5 жыл бұрын
All my love and support coming from across the Atlantic
@anthony_leckie
5 жыл бұрын
Who the hell is leaving thumbs down!? UFDTech, thanks for having the courage to talk about such an important issue. I’m praying for you and your family. I hope great things are on the horizon for you all.
@lashyndragon
5 жыл бұрын
I know right? Maybe their phone was upside down? Well, jokes on them... It's still viewer engagement which helps the channel.
@topouzidd
5 жыл бұрын
Thumbs down for the genetic disorder, thumbs up for their strength.
@Danth01gt
5 жыл бұрын
My heart just breaks for you guys! It’s so sad seeing children going through such hard diseases like this. You guys have huge hearts! Hoping for the best for your family and hopefully in time you guys will find stable treatment for him.
@johng6673
5 жыл бұрын
Prayers to you and your family. I will be promoting your fundraiser as best as we can. And thank you for everything, all you do, and for sharing. It's hard to share such a private party of our children's lives, but knowledge is key. And your families strength and bravery is why you are where you are.
@bufferzonegames1443
5 жыл бұрын
I welled up as soon as you started talking about your son and medical testing. I've got a two year old son, birthday was a week or so ago. He's my first born. I know that hurt for them when they're at the doctor and don't understand what's happening to them or why. Love you guys, all the work you're doing as a couple, and your outlook. Thank you for sharing something difficult to help others.
@stylistic007
5 жыл бұрын
I'm a 3rd year nursing student and have to say thank you for opening your heart and your lives about struggles with rare situations. Your commitment to public awareness shows such deep hearts. Love you too.
@securedcertification477
5 жыл бұрын
From the heart of your London UK fanbase thank u for sharing guys...he is lucky to have such wonderful parents and u are held in our prayers and will have our support ALWAYS..
@ImaITman
5 жыл бұрын
I can see how much this is weighing on you, I'll be praying for you and your family and I'm really happy that you have this channel to generate the resources to be able to tackle this. Thank you for what you do brother, and you're not alone in this.
@samuelstarling9756
5 жыл бұрын
You are wonderful people, I wish all the best for him, and will be there on the 21st x
@GamelutioN1
5 жыл бұрын
Thank you for raising awareness about this disorder. Wish you all the best!
@chrismacurdy9605
5 жыл бұрын
Man my heart goes out to your family. Wife and I are preschool teachers. Wish we could help. Keep strong. You guys are amazing. Keep up the good work.
@ajwayman4530
5 жыл бұрын
Hey Brett and Mrs Brett, sending lots of love and support. Thank you for finding the strength to make this video, I can see it's not easy for you guys. I hope it does you and your son some good in time.
@jacobross1971
5 жыл бұрын
There is absolutely nothing worse that finding out there is something that threatens your child’s health. I feel for you and it’s incredible how you have found the strength to not only take of care of your family but also bring us very informative, entertaining and well articulated videos . I wish the best for you and yours going forward and hopefully you guys will find the best resources and answers that you are looking for in order to best treat your son. You’ll be in our thoughts and prayers.
@Ricky-B
5 жыл бұрын
Fully support you. The success couldn't of happened to a nicer guy. Thanks for making a difference and making the world a better place. Much love
@MarioLaborem
5 жыл бұрын
A big hug for you, your wife and the boys! Thanks for all! God bless you!
@BM1620
5 жыл бұрын
I'm so sorry your family is going through this, prayers for your son and family. I applaud your courage and resolve in this, I would definitely want to contribute to this charity. Stay strong brother!
@scottsteeves
5 жыл бұрын
You have a strong family and faith. Prayers for you all and I will be watching and helping on the 21st.
@captainwasel8377
5 жыл бұрын
Stay strong, I hope everything will get better for you and your family. We appreciate all your work for us and for charities.
@kronfle111
5 жыл бұрын
You are not alone man, is very proud to see you doing this video and trying to help other people. Blessings from Ecuador.
@larry62301
5 жыл бұрын
Prayers sent up for you and your family. Love your videos. Keep up the good work.
@davidreagan2830
5 жыл бұрын
Thank you for sharing. Getting the word out about things like this is important. I can't imagine what you're going through, but now others going through something similar can see some hope. I'll be praying for your family.
@umarus2
5 жыл бұрын
You, your wife and your children are an adoring family. Wish your son all the best, hope you can overcome this decease's difficulties. Cheers from Cape Town.
@richardwang8080
5 жыл бұрын
Dude, stay strong. I have mild cerebral palsy due to being born 2 months premature. I wish your son all the best and keep up your great work. If there is anything I can help you with, do drop me a message.
@jefferyragas9948
5 жыл бұрын
This channel is so positive, I can’t wait to help with the next charity drive. I’ll be praying for you guys and will definitely share the drive all over my social media, best wishes.
@edinsonsanchez5591
5 жыл бұрын
Praying for your son today. Definitely tunning into the charity stream. As an uncle of a wonderfull 3 year old boy with autism, I can somewhat relate. You guys have the knowledge, the capacity, and most importantly , the neverending love, to go through this as a family.
@foiblegilneas1777
5 жыл бұрын
So sorry to hear about the condition. I wish the very best for your son and your family.
@bigmike716
5 жыл бұрын
Thoughts and prayers are with you Bret!!! Keep your faith and stay the course... Never lose focus of what's important, family!!! You have my support 100%, I'll do what I can to help...
@PSM-IPODZX
5 жыл бұрын
Sorry to hear about your son’s genetic disorder. Good that your wife and you decided to do this video to raise awareness, though it must be with sadness and grief. Pray that your family will pass the days as normal as possible. Be strong 💪
@ale-lp
5 жыл бұрын
I know the feeling of not knowing what is happening to a son, and I feel extremely lucky with the outcome seeing what other disorders and diseases are out there. It's great that you're rising awareness and trying your best to make a real change. Best of lucks with your child and his progress!
@chae2yng
5 жыл бұрын
Hey man, praying for your family to have the strength to face this, it know not easy to go through this. All the best for you and your family.
@Snafu2346
5 жыл бұрын
Thank you for sharing your life with the rest of us. Inviting all of us into your personal lives. Sometimes we need the support from your fellow companions to get through tough times. You have our hopes and prayers.
@thomasmccormick9441
5 жыл бұрын
Praying for you and your family. Sorry to hear what you are going through. Not many people stay as humble as you and your wife and to be thankful when faced with challenging circumstances. I hope you guys raise a lot of money
@hippygeeza
5 жыл бұрын
You have always seemed like one of the most genuine and honest tech youtubers out there, as a farther hearing you speak about your son hits me hard, i cant begin to imagine going through this, i will deffo be tuning in for the live stream. love going to you and youre family from here in the uk.
@sinterko5370
5 жыл бұрын
I hope everything gets better . I wish your family the best
@momohmom2
4 жыл бұрын
Beautiful family. Praying for you.
@NoGoodGamer30
5 жыл бұрын
Appreciate you and your wife sharing. Wish you both well on your journey to treat and manage your sons situation.
@jeremiahbourne4449
5 жыл бұрын
It's unfortunate that this happened to you I know I was scared thinking my son had this or autism. I was relieved that people around me where there for my family to support and help. State teachers helped my wife and I out and they reassured us that he just had a learning problem. Prayers to you guys and good fortune!
@tobiasvandervoorden
5 жыл бұрын
I wish you and your entire family a lot of strength and future luck! We will always support you and love your content. Very brave of you to make this sensitive subject clear to all of us! The best from a fellow viewer from Holland!
@FireBladeTCO
5 жыл бұрын
Hey man.... Fellow South African Christian here... I will pray for strength for you and your son for sure. I have 2 kids of my own and except for the love of God I don't think there is a bigger love. Where about in SA are you? Really Really all the best!!! Love your channel, please keep up the good work, online and offline! LOTS of love!
@mutley7773
5 жыл бұрын
Wishing you and your family all the best as you move forward. Thank you for your heart felt video, you had me going by the end man. Will for sure tune in for the live stream.
@tompeters4234
5 жыл бұрын
Hey stay strong and be strong. My thoughts and prayers for you and your family. Thanks for helping the community and being a voice. I wish the best for your beautiful son and wonderful family. "Love you too" Bless you all !!!
@shaneeslick
5 жыл бұрын
G'day Brett & Sydney (hope it's spelled like the city), sending lots of love for your family, It is a sad situation getting a Diagnosis like this especially for someone as young as your son, it is a Wonderful Event you are planning to raise awareness & funding of this disorder, I definitely will be joining in
@jacobwonder6735
5 жыл бұрын
Prayers from this Patreon! Hang in there buddy, your kid will be okay, and he has all of us Family!
@conqueso325
5 жыл бұрын
God bless you Brett. You and your family have my full support and I will say a prayer for you. Also I hope I catch the charity stream but will share it when I do see it.
@TinTinGamez
5 жыл бұрын
sorry to hear about this....you always put a smile in my face when I watch your videos.... wishing you guys the best of everything
@daryladams2553
5 жыл бұрын
Knowing is half the battle! Stay strong guys, your UFD fam is here for ya! Sending all the prayers your way! Looking forward to the stream.
@aj35lightning
5 жыл бұрын
bro, much love. I dont know how you've held it together so well considering everything you've got going on on top of searching for answers. , it's hella inspiring.
@FunKaYxxD1sCO
5 жыл бұрын
Man I’m very sorry to hear. I’m dealing with my son who’s 3 & autistic. I can’t imagine the difficulties it is for you both.
@nickfelstead7559
5 жыл бұрын
I pray for u man, god bless from Sydney Australia
@coachhoiidexplains36
5 жыл бұрын
in 2018 my daughter was diagnosed with Epilepsy when she was 3 months old. I know what it's like to see your child seize... you have my deepest of sympathies and you have my hopes and prayers. We are now just over 16 months without a seizure on medication.
@cguzmanify
5 жыл бұрын
Praying for you and your family!! Definitely will show up for the charity stream!! Love you too!!!
@nopenada2271
5 жыл бұрын
been watching you for quite some time man and i always knew you had alot going on beyond the youtube channel. dont take this the wrong way but sometimes it seemed like you were really exhausted and running on fumes, yet you still gave us your all and entertained and educated us each video. also I think this really puts things into perspective for alot of the the viewers on what goes on behind the scene for you. Its sometimes good to give a candid glimpse into the lives of youtube personalities, not that your integrity was ever in question but it just solidifies you as a solid individual and great human being. I have no kids "yet" but i cant even fathom how it feels for you guys even i got emotional watching this video. my final take away from it being how lucky myself and everyone is that leads a relatively healthy and normal lifestyle , and we should all be extremely grateful for every day we get to spend on this beautiful earth doing the things we love... Much love homie, stay strong and I will be making donation when it goes live.
@bruceyoukers3534
5 жыл бұрын
Sending prayers bub. Stay strong. You're one hell of a man and a damn good dad it seems like. I wish you guys the best
@TheReaL35
5 жыл бұрын
Thank you for sharing your struggles and using ur platform to help others
@drakZes
5 жыл бұрын
Thank you for making us aware of this disease, I wish your son all the best.
@HamzaElgarrab
5 жыл бұрын
I am a poor guy but ready to donate to help with what I can. Best wishes for you and your family, we're with you!
@oysterhead5150
5 жыл бұрын
Sorry to hear that Brett, my love and prayers to you and your family! God speed in everything you need!
@DarkReturns1
5 жыл бұрын
You are an inspiration sir. To be dealing with everything that your going through, and continue to be so upbeat and release quality content is amazing. Makes me realize what I can do better in my own life. God bless, my prayers are with you and your family.
@magfal
5 жыл бұрын
I can't even imagine my daughter going through like this but as a father I can feel and relate to the pain that you're face shows through your stoicism. My heart goes out to you & your wife and I hope treatment alternatives improve in the time to come.
@John-np2bf
5 жыл бұрын
So sorry to hear this you guys. He has great parents to help him through a tough battle. I've heard CBD doing amazing things for seizures. I've had several myself and they're not good. I really hope things get better, fast!
@clutchkick512
5 жыл бұрын
Had been a long time KZitem lurker of your channel and idk why but had never hit the sub button. Definitely hit now and will be here for the stream, I wish y'all the best of luck with everything and you are in my families prayers 🙏!
@AGG_Events
5 жыл бұрын
bro i can understand what are you passing through. all i can say is that i wish you from my heart all of the best of luck and best chances for your little angle.
@DBwee
5 жыл бұрын
Hello i have been with your channel since 2000 subscribers and i started with this channel looking through msi laptops you have come a long way great job!!!
@sandraviknander7898
5 жыл бұрын
Hugs ❤️ your are so amazing parents and your boys are so lucky to have you. Your son will have it rough but he will get through it with you and his awesome older brothers. A thousand hugs to you all ❤️
@brianmatthews1736
5 жыл бұрын
God bless you both, and your little boy...all my prayers...good luck to your charity stream...on a side note, a tiny rant not related to you guys..but HOW can anyone let alone 18 people as of my viewing do a thumbs down on this video...there are some truly mean people who would do a thumbs down for this...get a life you people...anyways...cheers for a great channel, an honest, lovely couple...and keep up the great channel and parenting work folks!
@ari-mcbrown
5 жыл бұрын
I have a lot of respect for what you guys are doing on your work and still able to keep your chin up. Stay awesome!
@davemiranda953
5 жыл бұрын
Brett wish you and your family all the very best!!
@caleblol8874
5 жыл бұрын
Been a fan for quite awhile, I myself have a rare genetic disease aswell, I have friedriechs ataxia and it is progressive. I feel the concern you both have and I support you trying to figure out how the hell to cure something that isn't being researched enough. Sorry to hear about the diagnosis and wish you and him good some good luck. I see the pain in my parents eyes and see the same in yours, glad to see you guys taking big actions!
@stephenwojciehoski7629
5 жыл бұрын
As a new parent i'm amazed and inspired by the strength of you and you wife through this video. I hope to participate in the charity event on the 21st. I hope those with a channel and public influence support this as well, especially those in the tech community.
@kajar9
5 жыл бұрын
It must be a big relief to finally know. Certainly a tough situation but at least you know how to proceed to make the best of it. All the best to you mate, you're an inspiration to many.
@stephenhawk1762
5 жыл бұрын
You are amazing parents and are doing everything right. Your son is very lucky to have you both.
@mendozaqft4559
5 жыл бұрын
Hopefully with more knowledge and research help/treatments will come forward to help your son and you guys find some relief and hope. Good luck and stay strong.
@toonslayer4
5 жыл бұрын
prayers to you and your family, it can be hard going through that type of medical process not knowing where the road may lead you. Keep your head high guy, you'll all make it through.
@J0hnny.90
5 жыл бұрын
As a 29 yr old father of a 2 year old son diagnosed with a rare fatal genetic disease called Spinal Muscular Atrophy or better known as SMA Type 1. Where his body does not produce the correct / right amount of proteins to support movement or strength. We've lived in hospitals for months and months at a time, visited many and many of specialist. We were told he would not make it past 2 yrs of age but look at him now he's about to turn 3 in August and is gaining strength and some movement. So I know how you guys feel, keep your head high and your minds in the right place and just be there for your little one for whatever and whenever he needs you. Thanks for this video and always staying positive!
@joaoalegria7578
5 жыл бұрын
Wish all the best for ur son and ur family! God bless u all and stay strong!
@Clockwork.Original
5 жыл бұрын
First time I comment in your channel, but my best wishes for your family man. Health is above everything in life. Stay strong!
@jacqueslaubscher8358
5 жыл бұрын
All the best for you guys. My prayers are with you and your boys. Keep up the good work.
@nimePK
5 жыл бұрын
This dude gotta be the purest soul on KZitem.
@therevanchist1123
5 жыл бұрын
My eldest son 10 now had a very bad heart condition called a Mitrovascular Valve defect that he was born with. He had to have open heart surgery at 6 months and were told by the surgeon it was the worst he’d ever seen he gave my son a week to live if he had not had the surgery when he did. Lucky the surgery went great (shout out to CHKD and their surgeons and staff) and he’s very healthy now he even didn’t have to take the medication any longer when he turned about 5 or 6 I believe. He did have delayed development due to it and has recently been diagnosed with autism but he is ours, he’s here, and we love him and wouldn’t change him for the world. Even when things look the worst there is always hope and every cloud has a silver lining. We will pray for you little one and your family. I wish the best for you.
@cartmann227
5 жыл бұрын
I wish you, your son and your family all the best.
@keesmills2019
5 жыл бұрын
I'm not a regular viewer and came across this video by accident. As a father of a son with Down's, stay strong and keep going but above all: ask for help when you need it! On the practical side: take a look at the early intervention program. This helped the development of our son a lot!
@rduke6566
5 жыл бұрын
Love n hugs for you all from Boston Ma.
@bunnybag
5 жыл бұрын
Stay Strong Bro. Love your work. May your overcome any challenge that comes your way.
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