One of the few videos that acknowledges that systems outside of a person's control can affect one's ability to take care of themself was really validating to hear and emphasizing interdependence is very healing
@LongCOVIDPhysio
Жыл бұрын
Thank you for the feedback. We are pleased this video was validating.
@barbarateresarhiannonsreal1756
Жыл бұрын
Right! I live in Seattle, WA. USA where we have 4 seasons & a lot of weather variables. Once the cold & cloudy weather hits my symptoms get worse. Fatigue, depression & body aches. I use extra energy (that I don't have) to stay warm. So, 9 months of hibernation & survival mode waiting for the sun is not a great way to live.
@alliee1846
Жыл бұрын
This is one of the best videos about pacing I've ever seen. I've lived with ME for over 20 years and had to figure a lot of this out for myself as a teenager and young adult. I'm very happy to see resources like this widely available online to help support people with Long Covid as well as many other illnesses.
@LongCOVIDPhysio
Жыл бұрын
Thank you so much for this feedback. We are so very happy that this video is having a positive impact.
@laurazavar
Жыл бұрын
Same here, it’s tweeked even since the 2017 pain toolkit, for modern day issues.
@kimberly-abriefongrief7777
Ай бұрын
Prioritizing the 'fun ones' and sources of Joy is KEY to this, and to happiness and pleasure in Life as a whole! 🥰 Joy is ALWAYS on the top of my 'to do list'! Pacing / balancing activity and rest is part of the natural cycles needed by our body to functional properly. We are all a part of Nature and made up of the same things our natural world is - as nature functions in cycles of night/day, the seasons, the tides etc, so do we! We too NEED to run in balanced cycles like Nature to maintain healthy, or to restore health🥰 Let's toss out society's unhealthy rules about what is 'productive' or 'good', and make our own healthier, balanced rules for living and thriving in the life!!
@LongCOVIDPhysio
Ай бұрын
Well said!
@tamiamatthews4410
6 ай бұрын
Awesome video thanks for sharing!!!!!! I have fibromyalgia and chronic fatigue also chronic pain!!!! Soft hugs for my fellow warriors
@TaleenVezina
3 ай бұрын
This is also wonderful advice for those with Dystonia, Rheumatoid Arthritis, Fibromyalgia, Cancer patients...the list can be very long. Thank you! 🌻
@David-Hope
Жыл бұрын
Excellent, thank you - pacing is a simple idea but it really does work - one of the key things to understand if you have LC, probably THE key thing.
@pivrehal
6 ай бұрын
It’s helpful that you’ve explained pacing in such a simple way - but please acknowledge that progress is also possible with pacing. It is not just about limiting your life, it is about expanding your life and eventually making a full recovery.
@VeganCheeseburger
13 күн бұрын
Absolutely. I have had long covid for a little over a year and I am seeing small signs of progress. Recovery is possible!
@mayneats8204
Жыл бұрын
Well said and well done. Thank you for providing a relatable and easily understood explanation to help as well as advocate for those suffering with LC or ME. 🙏🏼
@LongCOVIDPhysio
Жыл бұрын
Thank you for your feedback.
@tamrat662
6 ай бұрын
Had to watch with an eye covering 💙🤩🤕 So on point!!
@orfamayQ
Жыл бұрын
Thank you, but one little thing: The sound effects are quite painful (and I'm not super sensitive to sound). I think more severely affected patients will not be able to watch/listen to the video. Maybe put a warning somewhere that those are more targeted towards care-takers and HCWs? Or a hint to mute the sounds and just activate the subtitles could make the video more accessible for some.
@LongCOVIDPhysio
Жыл бұрын
Thank you for the feedback. In the description of the video we signpost to audio only version without additional sounds. Here’s the direct link 👇 open.spotify.com/episode/3BOqIrNmHWqUWdRl80Abik?si=XoGi0cXvRPGTZFtLvrM65g
@Lenszel
3 ай бұрын
Yes, I came here to say this! These sound effects are very difficult for sensory issues!
@Vicky-jj8pv
Жыл бұрын
I have ME and this is a great video to help me explain what I mean to close one’s, when I mention Pacing. Thank you
@tracyb3162
Жыл бұрын
This is a great video that explains simply what is pacing. It also addresses many of the different nuances and facets and perspectives. Pacing can be a simple word, but it is anything but.
@LongCOVIDPhysio
Жыл бұрын
Thank you for your feedback. We are pleased this video is able to explain something complex, in a simple way.
@rachela5605
Жыл бұрын
"Trust your instincts" can be bad advice. Pacing oy works for me bc it means going against my instinct to exert myself. If I wait until my instincts tell me to rest, then I have alreasy exceeded my energy envelope, and may have a serious crash
@LongCOVIDPhysio
Жыл бұрын
Thank you for your comment. We provide lots of advice in this video. We hope it expands beyond solely trusting instincts.
@amberbeam4248
11 ай бұрын
Instincs may be different from your desires
@simonduckworth5941
Жыл бұрын
This is superb! Thankyou 🙌
@LongCOVIDPhysio
Жыл бұрын
You're so welcome!
@VeganCheeseburger
13 күн бұрын
Thank you
@Flobyby
Жыл бұрын
Hello! The video is incredibly helpful and clear. Not so surprisingly it is helpful for swapping out a taxing conversation with a ready made explanation. I notice the generated subtitles work very well in English but the automatic translation can be poor in places (I tested for French). Would you be interested in me providing translated subtitles for this video in French?
@LongCOVIDPhysio
Жыл бұрын
We are glad it is helpful. @youtube are responsible for the automatic translations of closed captions. We have no control over them. We are however translating the video series, and French is under development in partnership with ApresJ20.
@Flobyby
Жыл бұрын
@@LongCOVIDPhysio so glad to hear it. Aprèsj20 is our French hope. Thank you
@susanne-k
Жыл бұрын
Könnt ihr das Video auch auf deutsch aufnehmen und teilen?
@LongCOVIDPhysio
Жыл бұрын
Translations are planned. You can access the available videos in German or turn on German subtitles. Visit our website to learn more. longcovid.physio/german-long-covid-video-series
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