A PACK WITH ME VIDEO.
Packing up to go to Nashville for the MPS Family Conference!
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
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♡ IN THIS VIDEO:
TOILETRY BAG:
www.amazon.com/dp/B083XMC1D1?...
TRAVEL STEAMER:
www.amazon.com/URPOWER-Portab...
PACKING CUBES:
www.amazon.com/gp/product/B07...
2 LARGE WET BAGS:
www.amazon.com/dp/B09C22Q6W7?...
COVERUP:
www.amazon.com/dp/B08MJ7PG5H?...
OWEN’S TOY STORY BAG:
www.shopdisney.com/toy-story-...
OUR DIAPER BAG:
fawndesign.com/collections/th...
\\ 3 DRESSES I LOVED FROM AMAZON \\
LONG BLACK CASUAL DRESS”
www.amazon.com/dp/B093RY4SYC?...
SHORT SLEEVE FLOWY DRESS:
www.amazon.com/dp/B08NPP6QF3?...
BABY DOLL DRESS WITH PUFF SLEEVE & TIE IN FRONT:
www.amazon.com/dp/B09ZPK58ZX?...
\\ CAR RIDE GOODIES FOR KIDS \\
COLORING PAGES WITH WATER MARKERS:
www.amazon.com/dp/B01MQ5DA9I?...
SCAVENGER HUNT FOR THE ROAD TRIP:
www.amazon.com/dp/B001MY20X8?...
MAGNETIC PUZZLE BOOK:
www.amazon.com/dp/B09XDZTTVN?...
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♡ REALTED VIDEOS TO WATCH:
GET TO KNOW HIM: AN INTERVIEW WITH OWEN!!
• AN INTERVIEW WITH OWEN...
MPS AWARENESS WEEKEND VLOG 2022:
• MPS AWARENESS WEEKEND ...
MEDICAL UPDATE | WHEN WE CHANGED HOSPITALS:
• A Recent Medical Updat...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Owen’s Story on Facebook: / owensmpsstory
Негізгі бет PACK WITH ME || WE'RE HEADED TO NASHVILLE!
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