APDA Diversity in Parkinson’s Disease Research Roundtable with Ruby Rendon, Denise Coley, and Bernard Coley moderated by Anushka Shiell.
Denise Coley is the Founder & Co-Managing Partner of Enable Your Vision, a firm that provides supplier diversity consulting to drive economic vitality for diverse businesses, corporations, and the communities in which they reside. She is also a person living with PD since 2018. Her husband, Bernard Coley, is an executive with 50+ years of experience in the high technology industry and is also a Principal in Enable Your Vision. Bernard has had a lengthy career of volunteer work including community development projects and facilitating/mentoring entrepreneurial development in underserved and indigenous communities.
Bernard and Denise co-chair the Special Interest Group Black Diaspora, which focuses on closing health disparity gaps in under-engaged communities, educating health resource and research organizations on engaging communities in a culturally sensitive manner, bringing Black patient advocacy perspectives to PD research, and increasing Black Community participation in clinical research studies. He and Denise are members of the Parkinson’s Foundation’s Research Advocates cohort and Bernard is an Advisory Board member of the CA Chapter of the Parkinson’s Foundation. Bernard and Denise work together on numerous initiatives to increase awareness of PD and PD resources in underserved communities of color. Their Parkinson’s story can be found in PD Movers: We Keep Moving, an anthology of stories from people with Parkinson’s and care partners.
Ruby Rendon is the primary caregiver for her mother, Corina Villalobos, who was diagnosed with Parkinson's disease (PD) 17 years ago. Ruby has been involved in the PD community as a care partner and research advocate ever since. Ruby began volunteering for the Muhammad Ali Parkinson Center at the Barrow Neurological Institute in 2012. In 2019, she was hired as coordinator of their Hispanic Outreach Program, and in 2022, Ruby was promoted to the position of Hispanic Outreach Program Coordinator. She enjoys family time, loves spending time with her kids, grandbaby, and friends, and will never say no to a Disney trip.
Негізгі бет Panel Discussion with Caregivers & People Living with PD
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