Pierre was 10 years old when he was diagnosed with FKRP myopathy, after several months of examinations.
Gradually, his illness restricted him on a daily basis. Pierre has difficulty climbing stairs, picking up objects, walking long distances. His muscles let go.
Pierre found it hard to come to terms with his illness which deprives him of moments of life. But today, he manages to talk about it with calm, and with the hope that he will be cured someday. Find out more about his story.
Негізгі бет Pierre | The Telethon webdocs
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