The Procko family shares their story about living with Duchenne muscular dystrophy, a fatal genetic disease that causes muscle degeneration. Evan, 12, is on a clinical trial for Sarepta Therapeutics for its exon skipping drug eteplirsen, a promising treatment for Duchenne. Hugs take on a new meaning when you have a child with Duchenne. The Duchenne community needs approved treatments for Duchenne. For more information, go to www.CureDuchenne.org
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