I'm thinking perhaps the last neurologist I saw was not a neurologist at all but five red flags wearing a white coat 🤔
@AaronBosterMD
2 жыл бұрын
🚩🚩🚩🚩🚩🥼
@desiredecove5815
2 жыл бұрын
They can be incognito 🚩🚩🚩🚩🚩
@maletero9888
2 жыл бұрын
I made the appointment out of necessity, there was a 3 month wait to see a neurologist in network but I was desperate for answers. I should have cancelled the appointment when his office assistant called the day before my initial appointment to try and make it Teldoc. He never gave me time to fill out my medications list before scrolling over my mri, reading the report provided with the image. He said "it is not MS or you would have big lines and spots here before dusting his hands. Leaving me standing dumbfounded in the exam room I read the online reviews of my him after. I should have spent that money on booze
@brittca
2 жыл бұрын
Relatable. haha
@sharidawn2718
2 жыл бұрын
I saw a strange old man in the waiting room. Then I'm in the exam room and that guy comes in, I told him what was going wrong and he said "what do you want me to do about it?" I really did question is he was for real.
@rcassia
2 жыл бұрын
One more thing: please believe in us. Some doctors don't believe in what we are saying as a symptom. This is not okay, we know how we feel.
@Eaw13
9 ай бұрын
Hello, I have such a great wonderful MS Dr. Every appt with him he covers all of these red flag items. I’ve been with him over 20 years and I’m doing great. His name is Dr Barry Hendin in Arizona. Thank you Doc for all these videos.
@EMS-hp9tf
Жыл бұрын
Hi Dr. B I have had “MS type symptoms“ for 20+ years which keep getting worse. I am currently waiting to see my seventh neurologist because I just continuously get dismissed and literally verbally insulted. All of those red flags such a crying shame. Although I haven’t been diagnosed with anything to date, I do find comfort in your videos as they help me to understand many things to which I thank you for taking the time to show your God given heart to the world.❤
@EMS-hp9tf
Жыл бұрын
I’ll add that I’ve been taking Tizanidine for about 7 years now
@RebeccaOsterbergFamilyandMusic
Жыл бұрын
Me, too. I saw four and gave up.
@florabraswell-nm1re
Жыл бұрын
At 75 years old my symptoms are worse! Doctors have never taken me seriously for some reason, l still do not have a diagnosis of MS even though l have had many problems for years, l have been quite frankly been suffering Praying to God for Stamina to go on , l was taught as a child many times to suck it up , my parents somehow managed to get me medical care when l needed it , l was always having problems with pain and numbness in my body even as a child but didn’t know how to describe the problem to anyone! I have had in my life the Ebsteen Bar virus and rheumatic fever, from lots of Streptococcal infections! I feel so bad now and l have talked to Doctors till l am talked out , they have recently given me a nerve conduction test , n EMG test plus labs but stated that l have severe carpal tunnel in both hands and pinched nerve in neck and back l asked about my numbness that doctor asked me if they have given me a spinal tap? I said no , l wonder if l can get that done at my age ? Thank You Mr Boster l wish l had you years ago for a Doctor ! You seem such a caring and thorough DR! God Bless You For What You Do ! 🙏❤️👍
@franciir
2 жыл бұрын
Wish I'd seen this years ago 🙄
@sarahkretzmer8190
2 жыл бұрын
I had a surprisingly emotional response watching this video. Being newly diagnosed and told to go out and do the research to decide on which treatment I wanted to start was so overwhelming. It just made me feel hopeless. Thankfully, I now know that this just means I need to find a better provider who is knowledgable about the options. Thank you so much for all you share with our community in a country where our healthcare system is so convoluted you give me hope.
@eileensmollen8641
3 ай бұрын
Very good that you know what you need to do now. Your six sense already told you actually. 😉 I have been MS diagnosed recently as well. As a 58 year old woman it was a confirmation for me. I have had so many health problems and always been in search for an answer to what was going on. Diagnoses as RSI, neuropathy and fybromialgia never satisfied me. I new there was more to it. So, it turned out they overlooked MS. Now that I know, for me it is easier to give my health issues a place, and to take my energy level better into account instead of crossing the line all the time. A ergotherapist has been a great help to me to bring back balance (work/private) in my life. It is bc of this therapy that I can work for an employer again.
@eileensmollen8641
3 ай бұрын
I am 58 year old and MS diagnosed a few months ago. Point 10 is exactly the reason why I changed from neurologist. The difference is huge. My new neurologist is interested in me and bc of his positive attitude I can open up easily and feel at ease to do my story and ask questions. The neurologist I left felt like he did not like his job, as if he was done with it. No heart for his job and/ or me.
@emmas3771
2 жыл бұрын
Great advice. Unfortunately many of these red flags are unavoidable in our struggling NHS in the UK though. But we should certainly be striving for better care and monitoring.
@klburke
2 жыл бұрын
It is the same here in Canada Emma. Red flags here are unavoidable and out of our control with our struggling national healthcare system.
@manuelam2172
2 жыл бұрын
Emma, I totally agree. It’s like care for MS in U.K. has not changed since the 90’s. My friends dad was diagnosed in the early 90’s, I was diagnosed in 2020, nearly 30 year gap and when we talk it’s like we were diagnosed at the same time.
@aprilvannewkirk8761
2 жыл бұрын
I told my neurologist physicians assistant, that she needed to watch me walk, so she did. Then I said I’d like to try Ampyra. I also had to ask for an new MRI. We must self advocate to be well.
@v1nc3nt_bl4ck4
3 ай бұрын
Nothing will improve under Starmer
@EMS-hp9tf
Жыл бұрын
I had a neurologist literally say "boy you walk funny, now walk right!" and then proceeded to ask me what my symptoms were and after I told him he said "geez the patient just before you was complaining of the same thing!" And my response was "what are you trying to say" he said "you know like, financial gain!" I was appalled to say the very least!!!!
@carolynhamilton3316
Жыл бұрын
All Dr's should be like you.
@pathworkscounselingLLC
2 жыл бұрын
Dr. Boster, One of my passions is to help MS patients with mental health comorbidities manage what they are experiencing through psychoeducation and therapeutic support. I use you as a resource often alongside the awesome powers that neuroscience provides, because the brain is a magical place! I just want to thank you for being a resource for Therapist's like myself that have a heart for the mental health of those on their journey with MS. Everyone has the right to understand what's happening to their body, expectations help manage stress and reduces the feeling of being out of control...knowledge really is power and it shouldn't be so mysterious. Normalizing the experience has brought peace, so thank you for unintentionally partnering with me lol!! Mental health and MS are intertwined ❤️ treat the whole person: mind, body and spirit! I have told many of my own clients this, Drs and Therapist's are like shoes, don't be afraid to try a few out until you get the perfect fit. 😉
@paulabrowning7025
7 ай бұрын
I have no relationship with my neurologist...or my ms nurse...if been put on some serious medication for my mental health which required the 'home treatment team ' if it wasn't for them I don't think I would be here now.I am very angry with the people who should be helping me.
@cassieski8005
2 жыл бұрын
Number 9 drives me crazy! It was the strangest part about being diagnosed, and is absurd. Just as you described sending a patient home to make their own decision without much clinical explanation and support is quite frankly, lazy medicine in my opinion. I experienced this, and it led to a small delay in starting treatment for fear of selecting the wrong medication.
@annettematisz46
2 жыл бұрын
I was given a package outlining DMDs, side effects scared me so went with a lightweight med when the MS continued to get worse. Thankfully I got scared and chose to switch DMDs, the possible side effects scary but disability even scarier! Guess that comes with experience and wisdom 🤷♀️
@judiw2045
2 жыл бұрын
This happened to me too.
@AaronBosterMD
2 жыл бұрын
amen Cassie
@marcydeck3103
2 жыл бұрын
My clinic did this too. Thankfully, I chose a good med and my research skills are amazing. I researched until there was nothing more to find. 😂
@stacyb2649
2 жыл бұрын
The neurologist I saw today...had several of these. I still don't have a diagnosis that my PCG and I agree with. I was told less is more...eat less. Weight gain and diabetes (although it's been pre-diabetes for about 20 years) and my age is why I have the problems I have. As soon as the word diabetes was said, my diagnosis was decided. He didn't let me tell him all I had going on. He didn't ask me about the information I gave the nurse. He told me he doesn't think it's neurological. Now correct me if I'm wrong here...I have fibromyalgia, raynauds syndrome, and essential tremors... aren't all of those related to the brain...and the nerves? But there's no way any of my many many other symptoms could be more than a case of being fat... I'm sorry. At my wits end.
@stacyb2649
2 жыл бұрын
And my pcg has said several times that my diabetes is controlled. So umm yea there's that.
@JerryBehrendt
2 жыл бұрын
I dumped my old neurologist based in large part on this advice and saw an MS specialist for the first time this afternoon. The difference is night and day. My new doc checks all of the boxes you've mentioned here and I couldn't feel more vindicated right now. Thank you for the excellent advice.
@susanmanns5332
8 ай бұрын
Can u send a clone of you to Australia please !!! Seriously though, my newly diagnosed daughter (30 years old) was sent home to choose between Tysabri, Ocrevis and Kesimpta. She doesnt know what to choose for herself. We have watched your videos, with amazing information, many times but deciding as a lay person is impossibe. Creates profound and overwhelming anxiety. She just can't choose. I hope we end up with the right one. Thankyou so much for all your wisdom.
@ahangayekhodam
7 ай бұрын
It’s the same here is Sweden 😢
@rebeccahesser8057
Жыл бұрын
2015 I was told I had lesions, 2017 I was told it was all psychosomatic so I quit the neurologist completely. 2022 mri shows MANY lesions!! MS!! 7 or more years of non treatment and complete and udder frustration!!! That’s a HUGE HUGE red flag!!!
@Gamepak
Жыл бұрын
the last time i tried to visit a neurologist he told me "go away, there is nothing i can do for you" that was for me a BIG RED FLAG,
@GingerSnap7
Жыл бұрын
Maybe I should just drive the 2 hours to see you. I have 4 new lesions just this year and was given the choice of 3 meds to choose from. I still haven’t decided because I’m afraid I’ll make the wrong choice for myself. And I don’t know what to do. I also have to schedule my appointments 4-6 months in advance just to be seen. I’m currently on the cancellation list and still waiting to get in. I was diagnosed 4 years ago, or should I say, someone missed my diagnosis in 2008. I currently have 15 lesions. I’m afraid, yet still very blessed to be able to function at almost full capacity! The anxiety, pain, depression, and fear are probably not helping!
@jenc.7097
4 ай бұрын
My neurologist isn't recommending anything she follows my lead. And I have always questioned what has worked best for me in the past it seems like a neurologist would look at your history and see whether it was the b or the t-cell therapy that works the best for you. I'm thinking about quitting her. I wish I lived closer to you and had better insurance.😢
@AmyMalone-pu2lp
5 ай бұрын
Wow!! I was Recent diagnosed, January of 2024, and received a phone call from my neuroimmunologist saying I had MS and then she emailed me 5 choices to pick from for my Meds. Needless to say I have no idea how to pick and haven't yet! It is now mid May. During my initial and only in person visit last October, she also told me we didn't want to focus on my symptoms! I definitely need to kick her to the curb!
@makers721
2 жыл бұрын
Another great one. My first neurologist had most of these red flags, which brought me to find you!
@amandao4724
Жыл бұрын
Thank you, Dr Boster! I have idiopathic intracranial hypertension and I think that these points for MS can relate to IIH (idiopathic intracranial hypertension). I've had a VP Shunt and have been experiencing so much vision loss, I'm getting a white cane soon. I've been using a walker and I'm only 32. On another note, my neurologist ordered an EMG because I've been having my hands and feet go numb. Thank you for the video. It clarifies a lot about my neurologist
@HeyStrangerFriend
2 жыл бұрын
If not for the red flags, I never would have been desperate and started to search on KZitem, finding you. It’s empowering to have this access to wisdom and support outside of an office and hearing it when you’re at such lows.
@DrBrandonBeaber
2 жыл бұрын
Nice video. Incredible production value too. Maybe you could do another video on "green" flags. #9 is essentially a critique of the so-called "McDonaldization" of medicine ("would you like fries with that" etc). I have had patients tell me they were literally handed a stack of brochures (i.e. drug-company marketing materials) and asked to tell the doctor which drug to prescribe.
@AaronBosterMD
2 жыл бұрын
Amen. #WeHaveMS BTW a 2022 collab needs to be planned asap!
@DrBrandonBeaber
2 жыл бұрын
@@AaronBosterMD For sure
@joandalessandro5530
2 жыл бұрын
My old neurologist hit 8 of the 10 red flags. The last nail in the coffin happened when I called 1 month early for my 6 mo. checkup to complain about doing worse with walking and was told 'he had not available appts. to advance my appt.. So I am now going to an MS Center and she is so much more thorough with the interview and switched me to a more effective infusion med. And she mentioned that she'd seen other patients from my doc even though it's about a 70 minute drive from the former neuro's office. I've also informed my GP about my experience with old neuro and have encouraged her to refer anyone with suspected MS to an MS Center.
@Sally-ih6ls
6 ай бұрын
Here in Canada, my neurologist dies not do MRI unless new symptoms appear. Been 6 yrs since last one, I’m in my 60’s
@belmakanlic1113
2 жыл бұрын
Greetings from Bosnia and Herzegovina! Unfortiunately, I can recognize all red flags you stated regarding the doctors in my city hospital. That's why I drive 500km once-twice a year to Croatia, to see a doctor who really dedicates herself to her patients. Wish she was a little closer, so I could visit her more often, but once a year is better than nothing at all. Your videos are great and thank you very much for caring for patients via youtube!
@57June
2 жыл бұрын
OMG! I have seen several neurologists over the last twenty years (not my choice, they just move on), and the best one only succeeded in one half of one of those red flags! I didn't know any better back then, so your advice is monumentally important to recently diagnosed people. I am sharing this video everywhere I can and will continue to do so every few weeks. If it can save someone from what I; and many others, have experienced, it is worthwhile. Thank you.
@freethinkeralways
2 жыл бұрын
Txs! I have the same experience with neurologists in my area, many of whom advertise themselves as MS specialists.
@wolvenmeck
2 жыл бұрын
The Neurologist who made my diagnosis gave me 4 options for treatment and asked me to look into them and choose. However, from day one he was up front about not being an MS specialist. He also told me that anytime I wanted to find a specialist, he would help me find one and refer me. Fortunately I have an acquaintance who likes her MS Neurologist and recommended the clinic where she goes. That's where I am now. Different doctor than her, but same clinic. Looks like Dr. Boster would give me the thumbs up on these Red Flags with my neurologist.
@kara7197
2 жыл бұрын
Thank you for sharing. My neurologist asked me to choose between two medicines but just because I'm a young female and she wanted me to think about wanting to have children or not in the future, which can be impacted by certain medicines. Unfortunately most people I know with MS have been given the choice between quite a lot of meds, the only thing the doctor decides usually is if giving a first or second line med, then it's up to you, which of course is very confusing for us and also scaring, because if the med doesn't work we feel like it was our fault cause we picked the wrong one...
@cranberryjane
2 жыл бұрын
Honestly watching your videos helped me find a better doctor. I found out two years into care that they were a general neurologist and not one that specialized in MS. I can say hands down that I makes a huge difference in care and overall treatment. I finally got to be on a DMT that I wanted and that didn’t make me feel worse. Got diagnosed with something I didn’t realize was an MS issue and had my first MRI that didn’t have new lesions. I appreciate your content and attitude on MS.
@youandmeandmultiplescleros402
2 жыл бұрын
Dr. B, I've visited many neurologists over the years, and very few of them would have received a passing grade according to your list. The timed walk is the only one that's been done consistently. I haven't had an MRI for...um...6 years, maybe? It feels like once I was diagnosed with secondary progressive MS, I fell off the radar.
@57June
2 жыл бұрын
Yes, it appears that when a neurologist decides you have SPMS, they believe there is nothing more that they can do, so you have to get on with it, not bother them and wait to die! Not the practical ideas you need or help, the monitoring of the symptom drugs, etc., you've got to figure it out yourself and hope your general doctor will amend your prescription because you know more than him/her, which has so far been the case.
@flapkatt6094
2 жыл бұрын
THAT is exactly how I feel. They've seen the diagnosis, and decided without hesitation that I was a lost cause, unfixable, and therefore, bad for their stats! At age 55, I suddenly lost the feeling in my legs, and I felt like an elephant was sitting on my ribs. Straight to the ER via 911, panicked that I was having a stroke or heart attack! The next day my lumbar puncture confirmed MS. Probably had it for years without symptoms. To make it worse, I treat at the Veterans Administration, so we "get who we get" and are supposed to be grateful. He "looks through me" and bitches if the nurse intake goes longer than 10 minutes. If it does, I only get his time for 40 minutes, maybe. It depends on his mood. The next time someone casually thanks me "For my service" as a veteran I'm going to tell them I'm sorry I stood up for my country. My country is NOT standing up for me or any service member. I am abandoned by the very people who are supposed to serve "those who served". That's BS! I'm so grateful Dr. Boster has this knowledge he's willing to share. This channel is where I'm learning about my SPMS, Certainly not from my "team".
@deborahrombouts9958
2 жыл бұрын
I’m confident my current neurologist is one of the best where I live, EXCEPT I haven’t had a full neuro exam in years, and last year when I had deteriorated due to spasticity he was totally shocked. Mind you, he’s fully aware of the team of rehab physician, pain management etc I’ve organised around myself to take care of those issues. He once commented that I know “how to work the system” because I had organised some accommodations. I’m very good at downplaying any MS issues I have, but get exasperated when I actually raise my hand to say I’m not ok, only to have to convince him. Much better than the diagnosing neurologist 9 years ago who got her secretary to hand me a bag of pamphlets & said come back next week & tell me which one you want. I was shocked (behind my copious tears). Her whole diagnosis speech was a red flag… “if it looks like a duck & quacks like a duck, it is a duck. You have MS”. We joke that this was the day I found out I was a duck. Thank goodness for my non-linear ADHD brain - in that crappy moment I was still amused at how awful her bed manner was. 🦆 🦆 🦆.
@desiredecove5815
2 жыл бұрын
Excellent explanations on why they are red flags… luckily MY neurologist is spot on and willing to have conversations about my MS and offer up joint solutions. Thank God I’m a “ Bosterette”. #wehavems #Sharingiscaring
@shelleyross2886
Жыл бұрын
My husband had 2 neurologist for 2 years upon diagnosis that fit the bill for ALL of these red flags. And their nurses were no better. It was copy and paste every appointment. Thank you Lord he found a wonderful doctor at UNM and when we moved to TX he has found another fantastic Dr!! He took Copaxone for 18 months with no improvement at all, and wasn’t even properly diagnosed with Primary Progressive until we found a Dr. with integrity, knowledge and compassion. Thank you for sharing this vital information on how treatment should be expected.
@judysmith7607
2 жыл бұрын
I’m in the uk. It’s too late for me now. But this makes me weep. Thank you for your online messages. Truly, it helps.
@SmileyTheAxolotl
2 жыл бұрын
Thank you for this video. My first neurologist had many of these red flags. I finally switched when he aggressively yelled at me for not getting into a trial (for what later was named Tysabri) because I didn't have insurance and couldn't afford MRIs and they would be free in the trial, but I was too afraid. I literally left the office sobbing. I like my neuro now, but I'm still terrified to go to appointments or report issues I'm having. I'm glad to see this video so patients can evaluate their quality of care based on these red flags.
@johnpoling6318
2 жыл бұрын
Another great video. I didn't hear one red flag so I think I'll stay with my Neurologist, ha, ha, you're not getting rid of me. I'm not going anywhere. You are the best Dr. Boster. Oh, btw, you answered a question on my list for my February appointment. See you then.
@shanagirl87
2 жыл бұрын
I see a neuro at an actual MS Clinic and based on this video I need to run for the hills.
@petitemaam
Жыл бұрын
My first neurologist was almost all these red flags. 😂 complained about his own job to me....
@suzanneknepp849
2 жыл бұрын
Thank you for a very informative session. Fortunately for me, my MS neurologist passes this test with flying colors! It’s good to periodically take a look at your relationship with your physician to make sure you are being treated with the latest standards available. Great video, Dr. Boster.
@mollycox1
2 жыл бұрын
I've not seen a neurologist in two years, he did ring and conduct a phone review a year ago, is it just excuse due to covid? I do live in England, but do feel a bit over looked. Your videos are brilliant! Thank you 😊🇬🇧
@TheresaMadame
2 жыл бұрын
Mine too, especially since I'm still, after reading 22 years with Copaxone, still on t his first line medicine. Butt I'm a super responder! My symptoms continue to improve and I haven't had an episode in fourteen years. AND m y general neurologist hit only one red. Flag! Thanks for the reassuring news, Dr Boster!
@cc34945
2 жыл бұрын
My first and second neuro had most of these flags. No meds. No repeat MRI. Told me to do my own research. No testing.
@freethinkeralways
2 жыл бұрын
7 out of 10 red flags for mine! But I've seen worse ☹️
@beckymoran321
2 жыл бұрын
Sadly, I have too. This has to change for us. We need MS specialists, not just Neurologists.
@melisamcdonald5033
Жыл бұрын
Dude. Awesome post!! Thanks for the information!❤
@ShekinahGwaii
4 ай бұрын
Thank you for putting this up, even tho it was a couple years ago. My neurologist is guilty on all of these, how sad. I fired him a few months ago after my first annual Mri was overdue by 18 months, in addition to the above. I justified that no doctor was better than a bad one.
@carleengoldeski5523
Жыл бұрын
Wish I knew this years ago. When I was first diagnosed I was going through a relapse. Three neurologist later in a four year span none of them did a MRI. By the time I found my forever Nuro they immediately did a MRI. My relapse was still active and I developed a black hole in my brain. Since then I switched to Ocurvus and I've been stable ever since.
@14sgs
Жыл бұрын
I am visiting my neurologist for the first time since diagnosis a week or two ago. This list will be in my hand (along with many other bullet notes collected from your videos) - Thank You!
@shannonciaramella7599
2 жыл бұрын
Thank you so so much for this video. I didn't have a great relationship with my first neurologist a live in a small town so not to choose from. My husband and I decided to go to Cleveland clinic for the care although it's a 3 hour drive I feel alot better. I still have to keep my first one on because I love in PA and with my insurance I need a local doc on to prescribe ocrevus. He's not happy he has to follow their orders and he has said that what Cleveland ordered wasn't necessary my Primary orders what Cleveland wants. I'm very thankful for my primary he's more involved and does more than the neurologist and will order anything Cleveland wants. I also feel that I get better care thru a telemed with Cleveland than in person with my local neurologist. He hit all the red flags.
@SaraC-us5ky
Жыл бұрын
No one ever screened me for all the invisible symptoms you mentioned!
@nobhillrox
2 жыл бұрын
GREAT vid. My neuro is at a huge massively-funded research clinic on the US west coast with thousands of patients.For people with subsidized health insurance in huge metropolis’ there can be grey areas and the self advocacy part is much more than 50%. 4ys ago he rec’d first-line injection, but also gave homework with a specific list of his #1,2,3 recs for me, for discussion based on my comfort with protocols and risks. Then, viewing past MRIs and events (which I did drive), he zeroed in on Tysabri. He is intense about adherence, especially JCV antibody screening. Overall onboarding at this place was quite bad. For more vulnerable patients, I feel that is another red flag. But now my neuro will spend hours with us if we need it. And he is a great teacher. Your list really helped in reviewing my situation. It helped to clarify things I need to push hardest on in my situation. Thank you for your time and generosity.
@nobhillrox
2 жыл бұрын
I am unable to edit the above comment but wanted to add that it is not easy to switch neurologists. I don’t know if you have a video about navigating that, but it would certainly be useful. I am not being rhetorical or sardonic here - it’s just that telling a MS patient to leave their neurologist should be backed up by, “after you’ve found another one.” Just like switching jobs only maybe more important…THANK YOU AGAIN
@bmiller949
2 жыл бұрын
I dig my Neurologist. He is super brilliant, starting with his Bachelors from MIT...
@chrisbonar699
Жыл бұрын
My husband has seen all 10 red flags! So sad 😢
@katm8895
2 жыл бұрын
My ex-doctor was great as ms specialist, but we couldn't find a connection with each other. The reason was #10 in this video. Now I am in great hands!
@teenjules2309
2 жыл бұрын
Mine ticks all the boxes. I'm a health care provider and colleague and he never hides anything from me. First neuro I have ever had come sit with me before finishing rounds every night at 11pm and play cards and bring hot chocolate when I was admitted. Kindest caring neuro ever
@Allismindtarot
Жыл бұрын
I wish you were my neurologist
@ChristianGirlwhoLovesJesus
2 жыл бұрын
Yes. I switched neurologists and glad I did. My last 1 refused to scan my spine when I started experiencing spasticity- a year later my new neuro scanned my spine and bingo - signals in my spinal cord. Now I'm on meds.
@alishiahallam9371
2 жыл бұрын
I wish I had a neurologist period. 🤦♀️
@jjkouper5163
2 жыл бұрын
You nailed it again - I wasted years with two Neurologists- when I finally saw my current Dr - he wanted his own MRI’S and I returned a week later . First words he said to - he couldn’t believe I hadn’t been on D.M…T’s . My Neuro said he has met you ..
@user-fd5qx9hr6q
Жыл бұрын
1 red flag of seeing me only annually but this is how it goes in the nhs.
@leswhitney6356
2 жыл бұрын
My Neurologist is the best , got me on the best meds for me .We talk as open and freely as any doc. I've ever had. Hits all the marks and above. By the way He also has M S and knows the journey we are on.
@gwenjones1913
Жыл бұрын
This news just makes me 🤬! I see my doc Once A Year, but in the interim, see his APRN @6mths, who asks questions but always seems to look for some reason to write a prescription!! The doc will watch me walk out into the hall on the way to the lab, about 4-6 steps, and whatever I mention I may be having troubles with, the first thing I say is all he hears and he gets stuck on it. For the rest, I’m on my own. And I was dx’d in 1991-I heard that once you’re in your 60’s there’s a ‘theory’ that your MS stops progressing, no more lesions; I asked him about it and he indeed said there is a “theory out there”, so this past year, at the end of Dec. I stopped taking the Avonex I’ve been injecting since 1994!! I get an MRI every other year-tho I give him credit for being the Only MS neuro that has always ordered the MRIs thru my thoracic spine; not Just my brain. Sure enough, there was a lesion on my spine, but for how long?? I am So frustrated. It makes me not want to see anyone. I have appts made for me, and notified when it will be for the APRN & the then it gets canceled bc he has other plans that week. Should’ve seen him in April & haven’t rescheduled bc a new appt will end up being in summer, no doubt. God bless all. Sorry so long. 🤷🏼♀️
@DarraghMcGannSinger
2 жыл бұрын
I am sorry I am just watching this now but it makes a load of sense and my late Mum was adament that I wasn't getting the proper care. My neurologist will only see me once a year and then that is in his private rooms, not when I am in clinic every month for Tysabri. Initially at first diagnosis, the neurologist asked me to read up on all the varied medicines and then asked me to choose which therapy I wanted!! My first line was Aubagio and after three months switched to Tysabri and been on it over 5 years while JC+. I do get an MRI every six months but the results are never discussed with me and if when asked by the MS Nurse if I have any sympthoms, if they are considered "old" sympthoms, then I am completely ignored. Think there are too many red flags!! Thank you for discussing this DR B.
@SatansFire
Жыл бұрын
You know how the hologram doctor in Star Trek Voyager was a clone copy of a real doctor programed into each ship at the time? Yeah well I hope this man is the inspiration because I need a personal Aaron Boster as my MS doctor
@Stephy373
11 ай бұрын
I’m so disappointed in my neurologist because she hit all five red flags and would not help me with the symptoms that I was having.
@Krise343
8 ай бұрын
Ok, I’m convinced. I need to find a better neurologist.
@ahc1957
2 жыл бұрын
I recently saw a neurologist at the emergency room. I’m having some serious issues at the moment. He took less than 10 minutes to examine me. He had me walk about a 5 foot distance in front of 2 patients in a small room. The part that disturbs me most is the out of character cognitive issues I’m having. I just cannot think fast. He asked no questions about history. If he did I would have mentioned the pain that I’ve had off and on for a few years. The pain around my ribs that make it difficult to breathe or the numbness and tingling in my hands and legs or the fact that I do not go shopping because by the time I’m get my items and go to the cashier I need to hold onto the counter, I’m no longer able to stand. Or how often I trip over my own feet and fall. Anyhow, I did get an MRI and was called back to get another MRI + bloodwork + SCAN. Apparently they did see something on the initial MRI and bloodwork. A doctor that treats you that way is crushing. I think I got on his nerves because I had to think before responding to his commands and he was very busy. I’m in 🇨🇦- we have a serious issue with very limited access to doctors at all much less a family doctor that can follow you. Your videos are a great help, thank you.
@CypeltResortAustralia
2 жыл бұрын
This has just confirmed to me that my Nuerologist is useless. 20minutes with an intern and 2 minutes with him is absolutely ridiculous and not acceptable. I’ll be changing nueros 🇦🇺🤬
@mag8737
2 жыл бұрын
Thank you for this amazing video! I've been thinking a lot about quitting my own neurologist. He is not imterested in my personal life and has always tried to diminish my feelings towards this disease.
@ailishbethd4033
Жыл бұрын
Wow! That is amazing doctor! I have never had a neurologist ask me anything more than 'how are you doing?'.
@barbarajohnson3761
2 жыл бұрын
Awks, 7 out of 10 flags. Have to admit being told to pick medication did seem odd
@kathyrasmus4574
2 жыл бұрын
THIS is the best advice ever .... my husband's neurologist hits almost all of these ... 😕🤨🤨🤨
@caraaliseo8586
Жыл бұрын
I am fortunate to have a Neuro that I love and trust. The reason I trust him so much is bc you and he are on the same page all the time. I have learned so much from watching almost every one of your videos that I am confidently armed with the knowledge you have shared. I have a tremendous amount of comfort knowing that you are a short flight away if my circumstances ever change and even though we've never met, you are a part of my team and my ms journey. THANK YOU for that! ❤❤❤🔥🔥🔥🔥🔥
@DTrain2k
2 жыл бұрын
Based on this video, it sounds like I'm really getting top tier care from the Japanese public health system. Neuro appointment once every six weeks with MRIs every 3 months and labs (incl. JCV screening) twice a year.
@maireadtierney9692
2 жыл бұрын
Thanks Dr B,Great video.I have a great neurologist here in Dublin 🇮🇪
@pixxelated
2 жыл бұрын
Are they HSE or private? Sorry to randomly ask on here but I’m very interested!
@houseoforange3932
2 жыл бұрын
I live in the uk and I have seen my neurologist once in the last 45 months
@brutallyhonestmf5578
2 жыл бұрын
I literally diagnose and treat myself, my doctor only signs the paperwork 😂. I have to ask for everything from MRIs, JCV tests change on infusion etc. They suck.
@freethinkeralways
2 жыл бұрын
Same here! Sorry...
@oliviagraham9523
11 ай бұрын
I'm so grateful that you made this video! I am newly diagnosed with MS to be specific PPMS/ SPMS and I know almost nothing about the disease or that there were different variations. Now at least I know what to be on alert for...
@theadventurekidz-scienceho843
2 жыл бұрын
Wow! Mine has a lot of red flags. I now only see for migraines because they couldn’t figure it out.
@Pugmamma
5 ай бұрын
Crazy! I have been a patient at the ms clinic at Stanford Hospital for the last 15 years and my Doctor is the head the Neurology. There are probably 6-7 red flags you named. Thats scary! My biggist issue I have with him is because I can walk and haven’t had a flair in years he doesn’t seem to think my ms symptoms are a concern. I might see him once a year and thats if I call to make the appointment. During Covid was the only time I had regular appointments and the were virtual visits. I really don’t know what I should do now because I don’t know if I could find any better. 😢
@GiaNescio
2 жыл бұрын
I just had to switch my Neuro after I couldn't get an appointment with him for over a year, he was changing my appointments and rescheduling all the time. For a 15 minute appointment! I have switched to a new doc at UPenn. She is fantastic and gave me a lot of information.
@janeshanahan5421
2 жыл бұрын
Thank you Dr B - as always, you've managed to highlight quite a few 'red flags' I'm guessing in a lot of MS patient/neurology care! My thoughts have always been that we should have access to regular meet ups to ensure various levels of support and care. It wasn't until after newly diagnosed, did I come to learn that this wasn't the case in the UK. Especially if you're are not experiencing any new symptoms or MS activity (according to your tests). Such as shame, as I believe relationships & patient education about the disease, should be about building one that can help support you through your lifetime. Here's to raising awareness and trying to change the way we currently do things in the UK :)
@nicce
Жыл бұрын
My wife's neurologist did not do anything, although new small activity. She is on Tysabri. I told her to have a second opinion now.
@danielleniez96
2 жыл бұрын
While my neurologist is a nice and very knowledgeable man, I can tell he has been in the game for a bit and is getting to the end of his career and thinking more on retirement. He came highly recommended in the area, and pulled the whole "here are some pamphlets, pick your med. I suggest Tysabri or Ocrevus." I have learned how to advocate for myself with him, and he never fights me when I bring up issues. Honestly I have had more of a struggle with the office staff between his clinic and the infusion center sending paperwork in a timely manner to each other and insurance, but I digress. I know I will have to find a new provider soon, be it because we move from our current area or he retires. These are good things to keep in mind when I have to try and select a new player on my MS fight team. Thank you for posting.
@Solitaire65
2 жыл бұрын
I've got trigeminal neuralgia and yet to see a neurologist, four years now
@GenghisBird
2 жыл бұрын
It all starts here, and I try to instill in all the newly diagnosed people that I come in contact with HOW important this is. This choice can absolutely determine how well you do with managing this disease. Unfortunately so many people who are newly diagnosed feel like they just had all their choices taken away, and it's a traumatic experience. Or they were "assigned" someone who IS probably a knowledgeable and good neuro but isn't explaining the difference in efficacy between these meds. I tell people "if *I* was on that med in 2004? You're going to want the UPGRADED options- trust me! Thanks for another great video- love following your tech evolution, too, in addition to your great content! 🔥🔥🔥
@TheresaMadame
Жыл бұрын
This is my favorite Boster video! I was fully reassured about my neurologist because he didn't do ANY of the red flags! My neurologist and I had a good laugh about this way of evaluating my neurologist. And this video also reassured me about the Diseae Modifying Therapy that I use. I've been on Copaxone for 23 years, and I haven't had a flare since 2008. No discernible disease activity! Gotta love the shots! Thanks, Dr. B!
@beckymoran321
2 жыл бұрын
Gaaahhh! My Neuro hit 9 red flags. He does take my complaints seriously. But I feel like I am the MS specialist here, not him. CRAP! Many THANKS for this video!
@mikekerr5843
Жыл бұрын
Hi Doc. My wife has been following you for years. From back in the day when you talked from your vehicle or your farm. Today, I sent your link to a friend. I thought I should "like" and "subscribe" to your channel. Have a Safe Day from Canada.
@deanyagallegos6563
Жыл бұрын
I have had numbness and tingling now full feet and hand numbness I told the pain doctor and pcp, no one did anything. Now I need a stat mri I have been trying to get? They think I have ms
@marcydeck3103
2 жыл бұрын
Oh my goodness. 6/10 red flags. I knew the clinic I go to is bad, but I have limited options where I am. 😞 How can the only option for me be terrible healthcare? I wish I could find someone better.
@j.svensson7652
2 жыл бұрын
She didn't ask me much. She didn't care to hear anything. She kept repeating "I don't have time for this." She assumed that my incontinence was only at night... she berated me for not having donated my hearing aids since I don't use them much (they are in canal and wouldn't fit anyone else). She left me so upset and feeling like I was just an annoyance that when she wanted to do a follow up... I canceled it. She also decided I have Progressive Relapsing MS and I have no idea how she came to that conclusion.
@jacki6301
2 жыл бұрын
A wonderful video. Red flags on every point with my last doctor. Five years without an MRI and finally asked me why I use a cane. New Dr isn't passing either. Oh wait, he was trained by the first Dr.
@pond9550
2 жыл бұрын
Number 11 - If your neurologist is more interested in taking your driving licence away than advising you on treatment options, symptoms, coping methods etc... My first guy spent 90% of his time in the driving licence despite me having no symptoms. He didn’t make it to a second appointment.
@lisaboo5806
2 жыл бұрын
Good Lord so many red flags...always asked what medicine I want to go on and sent home with brochures if I need to change. Pretty much every red flag...never ever have seen my MRI scans
@cherylwoods4200
2 жыл бұрын
4 out of 5 red flags! Dr. Boster can't you open a MS clinic in South Dakota...please.
@GBoooo814
2 жыл бұрын
That is what my doc did. Sent me home with ever pamphlets they had and said let me know which one you want to starts
@richardlindsey7112
2 жыл бұрын
We left our MS doc a year ago because of your education to us. If only you would open a clinical in Memphis
@xroaddog934
2 жыл бұрын
This is a conclusion of my other message... I was diagnosed in 2016 with PPMS and have been on Ocevis since 1st infusion in 2017 with my next infusion in 5/5/22. Been signed up Ocevis Access Solutions that supplies it to me for free and if I didn't get a Nero I couldn't get Ocevis which I fully understand and I feel I should be able to see him more than once a year.😮
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