I think she might have been dxed with the wrong type. Type 3 is the worst and can be fatal. I have known a few kids with this and this doesn't strike me as a type 3. Any way these kids are almost always clever, chatty, chirpy and super delightful. Yes their disease is awful but despite that they amazing little kids.
@ericawhite9041
Жыл бұрын
It doesn’t make much sense, but it’s actually type 2 that’s lethal. 3 is bad, but those diagnosed can live. en.m.wikipedia.org/wiki/Osteogenesis_imperfecta
@tylerfriends1924
10 ай бұрын
I have that
@FZfishing524
10 ай бұрын
Fun fact I have this disease but only type 1 and we get micro fractures that you can’t see until it’s healed. there is a medicine that helps with this but it does take about a year to see change in my first year I had a 60% bone density increase and apparently that is like 1 in a million ( I was to when I got my first dose) but there is only 3 places in the world that actually have centers that study oi and ounce you do your first couple of appointments they can send the medicine to your local hospitals and continue it from there
@Kimacho
Жыл бұрын
God bless this family. Not sure why mom was put on bed rest. I go to Boston for my care of my pregnancy and OI and was never put on bed rest. It's always good be extra careful though
@warriorsage591
4 жыл бұрын
Thank God for my health.
@likeisaac5290
Жыл бұрын
Sorry 😢
@MostPowerfulPMofIndia
3 жыл бұрын
Pls dont make them wear clothes which require lot of movement of baby. Pls use simple loose clothes. This is too painful for the baby
@angelamartin2811
3 жыл бұрын
I follow little 4 year old ainsley on Facebook this little girl is so beautiful ❤️ and I love to see the world through her eyes! God bless these kids and parents 🙏
@hixxyted1244
7 ай бұрын
Ainsley Grace lovely little girl I follow her on here
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