Dr. Carey and his team are amazing. He gave me back my life this past May 2017 and I consider him my hero. If I would become bilateral, I would go through his surgery without hesitation and in a heartbeat.
@jessicanill1178
3 жыл бұрын
This information is all super helpful I just hit my one year anniversary from my surgery to repair my SCDS and it’s really relieving to know there’s more people out there who have/had the same condition and what they went thru and how similar it all really is.
@raylupa9313
2 жыл бұрын
Did you get good relief from the surgery?
@raylupa9313
2 жыл бұрын
Super nervous. Going to get this done soon. I just can't function and I want as much as a normal life as I can get. It's exhausting living like this.
@judil3294
2 жыл бұрын
Interesting. Watching this video it seems not everyone is born with this issue? I've had it for 70 years and while I get some fluctuation in symptoms, like Advil making it worse, I've always had a lot of noise in my head. I thought the hole would be something you're born with. Did yours start suddenly?
@mv3671
Жыл бұрын
How did it go
@sugaplumalex
Жыл бұрын
i got hit on the ear and then a few days later became dizzy. ive been dizzy 24.7 but have NO other symptoms associated with this. could it still be this?
@JohnsHopkinsMedicine
Жыл бұрын
For specific medical advice, we suggest speaking with a health care professional. If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists.
@americastayclassy2073
Жыл бұрын
Hello My name is Jessica Dance. I have been suffering with SSCD since my late 20's . I'm 35 now and just had my 2nd child by c-section. All the fluid I retained in my back has made my SSCD feel like a CSF leak. I can't even begin to tell you the pain I feel in my entire body from all the pressure shifts. On top of that I struggle everyday with dementia type memory loss. I wish one of you guys would help me ! I am scared of this surgery but at the same time I'm desperate to pick up my baby . I am so lost I don't even know where to begin.... Pleeeease , please help me ! 🙏
@JohnsHopkinsMedicine
Жыл бұрын
Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please call 888-872-1408.
@nigusha1177
3 жыл бұрын
Please help me😔😔😔
@raylupa9313
2 жыл бұрын
Is there an ENT near you?
@pam2718
7 жыл бұрын
This is the location for the Superior Canal Dehiscence Support Group (SCDS) on Facebook. facebook.com/groups/221257197900489/
@Tin_tin_tin_tin
5 жыл бұрын
Can anyone tell me how much does this surgery cost?
@Katie-vy5rd
3 жыл бұрын
I would call a ENT and talk to the surgery scheduler who can hopefully get you in touch with the biller and ask for a quote.. they should be able to do this .. if not, call the next one... maybe a hospital... be persistent
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