I was diagnosed with a form of muscular dystrophy called FSHD which means that pregnancy is high risk for me - the disease is very rare so there is already limited research, and even less research is available for pregnancy with FSHD.
In the few reputable studies available, up to 24% of pregnant people with FSHD reported an acceleration of their condition - ranging from increased pain to complete loss of limb mobility.
Considering all of this, I feel lucky and privileged that surrogacy with genetic testing is an option for me, and that is how we will be exploring having a family. I’m not sure I’ve worked out all of my emotions yet, but wanted to share where we’re at. Thank you for being here with us, love you ♥️
If anyone has had a surrogacy experience I would love to hear your thoughts & lessons if you feel comfortable sharing.
#surrogacy #surrogacyjourney #surrogacyprocess #surrogate #fertility #familyplanning #family
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