As you know from the last post, we had to turn off Robert’s Deep Brain Stimulator because of the reaction he had. His doctor replied to my message and said the uncontrolled movements could be a reaction that could last a few days to a few months!
(There’s no chance we could let Robert continue in that state for a few months!)
He suggested putting it on a lower setting to see if that helps so that’s what we did today.
I’m certainly no expert at the DBS but I do my best to explain what happened and what we are doing now.
Fingers crossed all goes well and he doesn’t have such an extreme reaction this time.
Thanks for watching and following Robert’s epilepsy experience.
With love,
Trish, Richard and Robert (and Taz!)
Негізгі бет Take 2 - Turning the Deep Brain Stimulator Back On
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