Hi everyone, here is a link to my weekly newsletter, I am adding a PIP section due to the increase in questions/feedback, please feel free to check it out if you are interested: charlieanderson.substack.com/ Thanks EVERYONE for watching and commenting! We will WIN! I send this weekly so its quicker to get updates and I chat about my life that week. Hope this helps as well x
@thecheshirecrafter4522
8 ай бұрын
I started my KZitem channel about crafting as someone with a disability. KZitem is full of perfect people with perfect hair, perfect teeth and nails, with perfect lives and families who show their perfect projects. Not mine, am realistic. I applaud you for just having the guts to speak into a camera. Like you, I had to retire from my beloved career at age 44yrs. I had therapy for years to help me cope with accepting that. I was so good at my job too. But when I was able, I took up a free course which helped me get a job which I really enjoyed, best of alll I met some wonderful people and made really good friends. Been years now since I worked. One mantra I use is "I did it while I could" and that helps me. Another is "I might look dead, but I'm just resting" I feel a KZitem upload coming on, haha. Keep smiling xx Maggie
@CharliesJourney
8 ай бұрын
I am subcribed!!!!! xx
@shirleyelliott9848
5 ай бұрын
Thanx charlie,great video. Im on pip,lowest rate mobility component. Was on dla ,wen it finished i was told i didnt qualify for pip and had to go to tribuneral. Lowest rate was the outcome. I have type 1 insulin dependant diabetes, copd,and spinal artheritis. Its all taken away who i am as a person but theres little to no understanding. Thanx again for such a great video of how it affects our lives. I wish you peace and continued support.
@Cornishheart
11 ай бұрын
Thank you for sharing and putting into words exactly how I feel xx
@CharliesJourney
11 ай бұрын
Your comment means so much to me. I know I am not alone and millions of people are suffering as well, but being on here and being able to talk to people that REALLY understand is massively helping me. I hope you are ok, thanks again for taking the time to comment Charlie
@Cornishheart
10 ай бұрын
@@CharliesJourney thank you for responding, yesterday I signed up to receive your newsletters, and I have just seen you have sent me an email 🤩 hope you are doing ok yourself, take care of you. Regards Liza x
@CharliesJourney
10 ай бұрын
Hi Liza, I have a good one this weekend, I got really really angry about the subject I am writing about....I am sure you will agree with me! Take care of yourself Charlie
@sherrypatanker8200
9 ай бұрын
Lovely lady to share her feelings with the world!! ❤
@CharliesJourney
9 ай бұрын
Thanks so much for commenting. I think we need more people suffering from chronic illness sharing things in a positive manner........ So we are reminded we are NOT alone! Thanks again for commenting Charlie
@daviebevan
11 ай бұрын
You are an inspiration, as well as an understanding nature
@CharliesJourney
11 ай бұрын
Thank you so much, I try to be positive.....but I think its equally important to show people life is NOT perfect. Its so tough being chronically ill! Take care of yourself Charlie
@zoefelton7727
8 ай бұрын
Hi there I also suffer from cfs no one understands and I agree with your doctor other people will not get it . I'm really lucky with my partner who's my carer and understands i have to rest regularly .
@Truerealism747
6 ай бұрын
CFS 26 years though I've found out genes Fotbit at 43 I have asperger's ADHD heds are you hypomobile muscle pain is worst for me
@laurenwest5189
10 ай бұрын
So true, you don't get it until you get it
@CharliesJourney
10 ай бұрын
Hi Lauren.....yep.....I am pleased the people that do not get it have never suffered from chronic illness. But its really tough. I hope you are ok Charlie
@DroneHDTV
9 ай бұрын
This true, I have stage 5 CKD and no one can see that im ill at 53. But now I have a broken pelvis and more in that area and now having to use sticks to walk short distances. people treat you different. I say the sticks are my least most of worries.
@CharliesJourney
9 ай бұрын
LOL yeah!! I am the same...people see the zimmer frame and think its bad....thats the good bit. It helps the bad bit is on the inside. I had to Google what stage 5 CKD is......sh#t......please tell me you are getting PIP? Also, sticks are a nightmare (I think) have you tried a zimmer with a comfy seat.....its the best thing I have brought to help my quality of life!
@garybrown5426
11 ай бұрын
God bless you,what a beautiful person you are.
@CharliesJourney
10 ай бұрын
Thank you so much for commenting! Take care Charlie P.S In person I can be really annoying at times LOL
@thecheshirecrafter4522
8 ай бұрын
Totally agree.
@smh1072
Ай бұрын
Thanks for sharing Charlie. I too have CFS and Fibromyalgia. However, in addition, I have scoliosis of the spine and rheumatoid arthritis. Life is a huge struggle. People including professionals suggest I go swimming, or walking, or join a gym etc for exercise. Are you kidding me, my body just wants to sleep which I try to fight against. Even the simple act of eating a meal gives me what I call food coma lol. I’m sure you will understand this. After eating a meal, I have an overwhelming need to lie down and sleep. If I go swimming, the exertion of undressing, swimming, showering and getting dried and dressed, I wouldn’t be safe to drive the car home because I would involuntarily be falling asleep. Yet to the outside world I look normal. All this is before I even mention the pain I’m in.
@martjackson7942
8 ай бұрын
Is this Parkhall Charlie. Just started following you, excellent videos, have been ill for 20 plus years with arthritis and dish, on pip for 6 years, another assessment coming up in about 8 months which I'm dreading. Keep up the good work.
@CharliesJourney
8 ай бұрын
Yes!!!! Its me....the one that sits on the floor alot! Drop me an email: charlieisdisablednotdead@gmail.com We can link when we are with the dogs! LOL
@mercyln6646
10 ай бұрын
Gosh Charlie😢 you just described me to the dot...I thought I was losing my mind with all the gaslighting going on with my surgery , work etc. I'm not alone in this dreadful lonely journey😢😢😢
@CharliesJourney
10 ай бұрын
Hello! You are NOT alone! There are literally millions of us who truly understand each other. But there are not enough positive chronically ill people on social media. Hopefully we can change that with this community! Thank you so much for commenting, if ever you are getting isolated just drop me a message (if there is a delay its due to my body shutting down.....but I will reply as soon as I am awake and alert again). Did you watch the 'battle buddies' vlog? I don't think its a term people are used to......we can be battle buddies Take care Charlie x
@KimWilliamsmixupchannel
8 ай бұрын
Good video Charlie
@melaniewalker5226
8 ай бұрын
Your biggest challenge might be the disability. Agencies who scour Facebook and KZitem.
@CharliesJourney
8 ай бұрын
Hi, I do understand that being on KZitem will put me under the spot light at some point (I have had threats already). But, I made the decision that its more important to add value to peoples lives. AND I am telling the truth about my circumstances so I do not have to fear them, even if they follow me and Ollie when we go out, they will see me sitting on the floor a LOT I know it will happen at some point xx
@melaniewalker5226
8 ай бұрын
@CharliesJourney I know how you feel. Because I have chronic pain as well. And a couple of immune diseases and i'm being checked on at the moment. Thank you so much for your reply that was really nice of you.
@mikaelastefkova
8 ай бұрын
I relate so much and I'm sorry 🫂 Tho I've never had a time in my life when I'd be able to "just live", go to the gym and stuff, but it's still similar for me, because I'm grieving the life I could have had instead :c I wish more people would understand, but not at the cost of them experiencing it 🙏🏻
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