I can't believe he was diagnosed with FTD - when he seems pretty normal and able to speak fluently which requires thinking. My husband was diagnosed with FTD - but by that time he struggled to speak complete sentences, he was confused and sometimes spoke nonsense, and could no longer hold down a job. He fell apart completely - in every way. Once he was diagnosed and I read about it, I looked back and realized the earliest symptoms had begun years earlier, but subtle. He was diagnosed in the Fall of 2009 and died in the Spring of 2015.
@bmortloff
7 ай бұрын
I'm sorry for your loss
@Paulohlsson7
Ай бұрын
Hi Nancy, how's your day going with you?
@24bellers20
2 жыл бұрын
My wife has this condition. Diagnosed in 2014 by scan. She’s had ms for 30 years too. It’s devastating. Her speech is now almost gone and she struggles to eat. Well done with this video David. It’s hard.🙏🏼
@FresnoRays
3 ай бұрын
I'm sad to hear of her condition, it must be horrible not being able to hear her voice anymore
@GlynisWilliams1
3 жыл бұрын
My husband has this disease and it’s the hardest thing in the world to watch the decline and loss of function! On diagnosis we chose to do “bucket list” things and live in the moment which helped. I can only say thank you for sharing your story and bringing awareness to this rare, largely unknown disease. To keep adjusting to the new norm in your lives will take strength and support 🌷
@louiseuk4001
3 жыл бұрын
Keep strong Glynis. All the best x
@MC-MODS
Жыл бұрын
L,l
@MC-MODS
Жыл бұрын
Llll
@MC-MODS
Жыл бұрын
L,l
@arawiri
Жыл бұрын
God bless for health 🙏
@WowWowzie
2 жыл бұрын
Thank you ❤ I have been diagnosed last year with FTD. It's getting really difficult. All the best.
@FresnoRays
3 ай бұрын
This is horrible! I wish the best for you and I hope you can still speak full sentences
@jenniferagee2450
Жыл бұрын
Hi David I Hope you are doing Well. God Bless You. My mom was diagnosed two years ago, she is 74 and has always been a strong person. She’s hanging in there and seems to be Happy. She doesn’t realize she has Dementia. I Totally Agree, Please be Kind and Patient to your Loved one with FTD or any type of Dementia. My Dad had Prostate and Pancreatic cancers and unfortunately passed away in 2018. My mom and Dad were married over 51 years. You take Care and my Prayers are with you.
@mikefraumeni5367
3 жыл бұрын
Very informative, thank you to all responsible for this video and especially the presenter for coming forward with his diagnosis and lived experience.
@johnaddison3545
11 ай бұрын
my dad got diagnosed with this at 63, 13 years on he is still doing well. worst symptom is speech and a little inappropriate behaviour but really nothing to bad. everyone who meets him loves him. i hope everyone with this awful condition is able to do well for a very long time xx
@rainbowstarmced191
6 ай бұрын
Glad ur dads doing well! Is there any memory problems?
@sammyrichardson7305
6 ай бұрын
Best wishes to you and your family
@FresnoRays
3 ай бұрын
Glad he's doing well, I hope he can make it through
@abrazalves
Жыл бұрын
One of the things that help these typeof diseases is keeping classic instrumental music, Chopin, List, Mozart....or any similar classic music playing all day....the brain keeps memory of music and softens the pain and emotional reaction to one's surroundings by listening to this type of music. Gives the calming power of continuing living with the music played always in the back ground.
@Hararetarumaki
2 жыл бұрын
My father was diagnosed with ftd this year. He started falling a lot recently. He fell and went into cardiac arrest recently and is now in a coma. Pray for his recovery ❤️🩹
@genawatkins6636
2 ай бұрын
🙏
@jtixtlan
2 жыл бұрын
Thank you for telling us what this is like for you.
@gloriamaggs5453
2 жыл бұрын
Bless you. G.
@user-de7gc3tb4j
9 ай бұрын
I have FTD dementia and I have been taking supplements Genius Mushrooms otc Walmart and MCT oil sublingual quality of life
@jamilaibrahimwaziri-nm4qw
Жыл бұрын
name the medicine.of dementie,iwas 40year help
@Golden_lavender
Жыл бұрын
❤
@darwinsfinest8741
Жыл бұрын
Sh*t……
@arawiri
Жыл бұрын
Take wine with ya pills and cheese or whateva it is good 👍🏼 the bible says how
@JimJimJimJim
3 жыл бұрын
Bravo David! I am full of admiration for your strength. I also admire the Durham police force in seeking to come to an understanding of such issues. My late wife had this condition for more than a decade. One of the worries that we had was about what might happen if the police became involved, because some of her uninhibited behaviours in the later part of her journey were technically unlawful. Thank you for a great contribution to the community affected by this condition.
@catherine7147
3 жыл бұрын
My husband lived over 15 years with a form of FTD. He never did get an exact diagnosis despite going to several quality neuro physicians. He was told he had severe depression, that he was a hypochondriac, that he needed to check into a behavioral health center for inpatient treatment of mental disorders. He had both physical and cognitive issues as well as a behavioral component. I applaud you courage.
@Dinngg0
3 жыл бұрын
15 years is exceptionally long for FTD... typical length is half that. Was he diagnosed with FTD at autopsy?
@catherine7147
3 жыл бұрын
@@Dinngg0 No, never a true diagnosis which was very hard for us. The last neurologist said it was a “tau” type but no details. Death certificate just stated a “neurological disease”
@Dinngg0
3 жыл бұрын
@@catherine7147 You have my sincere condolences. My wife is suffering from this terrible disease, a type of FTD named Primary Progressive Aphasia. She did get a diagnosis almost two years ago but was misdiagnosed by the neurologist at first. It's been a steady decline since it started in 2017.
@catherine7147
3 жыл бұрын
@@Dinngg0 Its so hard to watch the person you love struggle with dementia. I was able to care for my husband at home and hospice helped during the last few months. Prayers for you and your wife.
@arjunsuresh8785
2 жыл бұрын
My father has FTD. He was diagnosed with it on 2019 december even though small language problems were there in 2018 itself. Now his behaviour is like a child and he's mute. He's 60 now and all other physical health is sound so it's very hard to appoint a care taker and he's aggressive some times. I have resigned my work to look after him. In my country there no proper institutions for dementia patients.
@girlanonymous
Жыл бұрын
Unfortunately law enforcement don’t recognize neurological disease as a factor when dealing with someone who is irritable agitated or acting strange and many people end up dying by cop due to their lack of knowledge.
@thegardenoffragileegos1845
6 ай бұрын
Everyone outside of the margins is treated at fault for existing crimes or as a precrime perpetrator by law enforcement. The general public seems fine with the disposal of 'outsiders', so nothing will change anytime soon.
@heatherloesch1343
Жыл бұрын
Lost my Mom to this. She was Dx at 56 and by age 61 she was passed in God's hands. Today would've been her 73d birthday. I wish more PPL would realize that Dementia is no longer an old person's disease.
@Paulohlsson7
Ай бұрын
Hi Heather, how's your day going with you?
@danieldarrough2791
2 жыл бұрын
Thank you for posting this. I’d like to follow your journey as I’m being told it’s what I have as well.
@cynthia3536
2 жыл бұрын
How old are you?
@jenrobinson8072
2 жыл бұрын
I believe that I have it, as well. I am on sick leave. My colleagues thought that I was depressed. It’s awful, because I do not appear ill.
@minusmymemory
3 жыл бұрын
No….. not a death sentence… we all have an ‘Expiry’ Day on our birth certificates…? It’s when our time is up here that we cannot change, BUT we can change what we do whilst we are still here… I have same as you dementia frontotemporal but during my first couple of years i have met others with this same and they had their diagnosis over 20 years ago?? So, just live in today and let the future ‘you’ deal with the challenges when they occur? Blessings, John
@utsavpradhan7126
3 жыл бұрын
20 yrs 😊😊😊... Its really Good to hear that man... Stay happy stay blessed ...
@anthonyqcolosimo5374
Жыл бұрын
Good to hear some people have lived with it for 20 years. My bf was just diagnosed at age 46. I hope and pray he loves a long and healthy life
@minusmymemory
Жыл бұрын
@@anthonyqcolosimo5374 bless you guys and hold onto the hope that every minute is spent filled with love and care knowing this is planted so deep inside us that it is the very last thing to go. Holding hands more is another benefit of this and helps us to feel ‘grounded’ in a happy place knowing someone is there travelling with us. Blessings, john
@Uncle-Smart-Alec
3 жыл бұрын
I doubt I could be as accepting and brave in the face of this illness.Still the fact that you are so self aware is a good sign.(I hope at least)
@maryhall7464
6 ай бұрын
You will never know unless you live (lived) with it.......😢
@ya472
9 ай бұрын
I am 68 and have recognized a slightly milder form of similar symptoms since my late 20's. Since then, I have helped my ex-MIL, my father, my uncle, a couple of friends and now my current MIL, whom all had/have more aggressive forms of these symptoms. Eventually enough medical research will help pinpoint causes, and hopefully provide solutions, or better education to help people understand and assist.
@kathyk1690
8 ай бұрын
God love you David. Totally agree that ALL first responders are schooled in these dementias. There's no way my husband would be able to follow commands.
@ashleystipes11
9 ай бұрын
Thank you for sharing your story😢❤❤ I have cerebral small vessel disease and everything you say I feel and go thru but thought I'm going crazy because no doctor has been able to tell me what to expect or help me. This has helped me by your words I can show my family to explain. God bless you and your family❤
@beverlylamon2169
3 жыл бұрын
I have always loved working with this group.
@sues1748
Ай бұрын
My mum has late stage FTD & PPA. In hindsight her symptoms were there. Thank you for speaking out David, you are right in what you say, dementia is not all elderly infirm nursing home residents. Its also young, and can be rare in its presentation. I'm exhausted explaining FTD to people, so again, thank you. From Cardiff, Wales
@suzy4798
Жыл бұрын
I was of the impression that people with dementia have no insight or awareness into their condition. I guess I was wrong . Thanks for sharing and I hope your days are filled with love and joyful days .
@missylearned9821
Жыл бұрын
I believe in the beginning they do.
@MrDWCallahan
2 жыл бұрын
Thank you for sharing. God Bless.
@katsadventures7027
Жыл бұрын
God bless your heart a great video to get out there to people. My husband has moderate frontal temporal dementia. ❤
@arawiri
Жыл бұрын
If pain morphine sprinkled with flour of the coccain leaves
@marywilson641
8 ай бұрын
I am just the same, I think i should see my G.p.
@marybrand1977
2 ай бұрын
All people should watch.
@arawiri
Жыл бұрын
Do not over indulge 3 or 4 time ya hear
@jimimased1894
2 жыл бұрын
good on you david! youre an inspiration
@daleneminnies5113
9 ай бұрын
My husband was diagnosed with FAHR, s DEMENTIA a very RARE DEMENTIA in 2008 and at that time he was the only one in SOUTH AFRICA according to his NEURO DR he lived with it 13yrs Was a Tough journey for me because I was his Carer 😢he did in 2020 of a HeartAtackt
@genawatkins6636
2 ай бұрын
😢🙏
@myricambicarbon
Жыл бұрын
God Bless you!
@zenayuen1097
9 ай бұрын
I have this disease, and it is hard for me sometimes.
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