On May 1st, I will be releasing a song called "Fly Away", in honor of 2 loved ones that lost the battle against Lupus. 100% of the proceeds will be donated to the Lupus Foundation of America. Thanks for the great work you all are doing. God bless!
@rowenaventura9066
5 жыл бұрын
Thank you really! Knowing more about lupus prepares me to face it unafraid for I would know how to deal with it..
@Cheetahprint85
5 жыл бұрын
Lupus is such a debilitating disease. Stay strong my #LupusWarriors 💜
@shosho-gerges
3 жыл бұрын
Thank you 💗
@IvanDubois2
6 жыл бұрын
So there's no cure for lupus ... I'll have to keep waiting
@Radical_Onion
6 жыл бұрын
Truth, bro. You speak truth. At least we're not alone in waiting for that mythical cure. There's lots of us still waiting. *fistbump of solidarity*
@georgerangel6628
6 жыл бұрын
IVAN:. there is no cure just ways to feel better and ways to try to prevent flares
@rkgki
5 жыл бұрын
The is no cure, but proper treatment minimizes damage done to the body by the disease, which is what you want.
@loishamilton8923
3 ай бұрын
Take heart. I grew up with debilitating lupus. When I finally realized that there are pain relieving treatments I learned I can control how bad the pain will get. The only thing I can’t control is the fatigue. I did have a job but I’m not a hero. I made it through and it gave me courage to go on. The maddening aspect is that your’e living alone in your body and no one can see what you’re feeling. We will persevere. Stay strong and be proud.
@Radical_Onion
6 жыл бұрын
Super useful, thank you very much for this! Does anyone have a recommendation for NICE-SMELLING, NON GREASY sunscreen? I avoid putting on sunscreen because it's so thick and greasy and smells medicinal. Feels like being dipped in a vat of fryer oil. Anyone got suggestions?
@georgerangel6628
6 жыл бұрын
Teressa Watts hey there I pray for the best in your journey with having Lupus. however I would go to the spray ones . it's not as thick and way less greasy
@baxn2211
6 жыл бұрын
Teressa Watts, I use garnier ambre solaire, sensitive advanced 50+ It's non greasy. I also find having an anti inflammatory diet helps keep my lupus in control, not had any flare ups since I started it a year ago.
@charleneeaton5575
5 жыл бұрын
CE1995 - I have been diagnosed with SLE over 20 years and have tried different sunscreens. I did not like the oily feel and I tried Neutrogena products and have been very satisfied with the products. I have used the following sunscreens for over 6 years. The products are very light and do not have the greasy feel to them. They are : 1- Neutrogena Ultra Sheer Face & Body Silk Sunscreen SPF 70 (very lightweight); 2 - Neutrogena Healthy Defense Daily Moisturizer with Sunscreen SPF 50 (cream); 3 - Neutrogena Ultra Sheer Body Mist Sunscreen Spray SPF 100+; and 4 - Neutrogena Ultra Sheer Liquid Sunscreen SPF 70 (use on face - very light). They all have Helioplex Broad Spectrum uva-uvb. Take care and stay strong.
@ryancurtis8737
3 жыл бұрын
Would the antibiotic ceferoximine cause similar effects? I am currently battling an autoimmune/rheumatological disease and were in between lupus and dermatomyositis for my diagnosis 9 months ago I was put on that antibiotics and I’ve never been more sick my rashes became more rend itchy and scaly my arthritis was hell and my lungs just burned all the time my Sternoclavicular joints were pounding not sure but just curious
@MsMonica1724
Жыл бұрын
I was diagnosed with SLE lupus in 1976, age 15 via kidney biopsy because my legs was swollen. When I was around 5, I had a rash on my hand that wouldn’t go away nor at that time doctors only gave me ointment to apply. I recall that I would try my but to wash/scrub this rash to make it go away. In 1973, age 10, I was diagnosed with autoimmune disease, Myasthenia Gravis and put on high dose of prednisone, the rash went away. I believe that I had this lupus but no one really knew of prior to being diagnosed with Myasthenia. When diagnosed, my doctor when have me do 24/hour urine because I had protein in my urine and I continue to stay on prednisone as it helped both autoimmune diseases: Myasthenia Gravis and SLE lupus. I have been blessed to never experienced pain from this disease and if I did have any pain it would come and in in minutes, I even enjoy the sun but it does drain my energy. I now eat lots of fruits and vegetables, avoid processed foods, avoid sugary pops/salty snacks and exercise. I started taking D3 5000mg(have your levels checked as 89% of patients with autoimmune diseases are deficient in D), K2 (mk4/mk7), Boron, collagen, zinc, Magnesium Glycinate and silica....to avoid bone/teeth and osteoporosis from the effects prednisone.
@tracysmith245
Жыл бұрын
ironically I have never had vitamin d since the 80s after a routine operation took my parathyroids been in pain since not having any calcium all linked together with phosphorous foods only had 40 plus years in pain yep zinc vitamin E B C Magnesium all vital minerals dairy depletes are calcium from bones i just pass mine though urine or get kidney stones now lupus means for me avoid sunlight have skin lesions if i go outdoors.
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