EDS Vlog 20- Parenting is never easy, but when you're managing Ehlers-Danlos Syndromes (EDS), it can feel like an uphill battle. As a parent with EDS, trying your best but feeling like it's never enough. Feeling like you are never enough. Throw into the mix a child who also has EDS, and the challenges multiply. It's a journey fraught with uncertainty, but amidst the struggles, there are valuable lessons to be learned and shared.
My own journey with EDS parenting began with my ten-year-old son, who, like me, was diagnosed with hEDS. Despite being relatively asymptomatic at the moment, occasional bouts of unexplained pain remind me of the uncertainties that lie ahead. Seeing echoes of myself in him, especially his boundless energy and love for activities, brings both joy and apprehension.
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