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This is the story of Griffin. Griffin will be 5 September 16th he has polymicrogyra and heterotopia. He has a trach and vent for breathing and gtube for eating. He is no mobile and non verbal. He also has epilepsy along with infantile spasms. He had open heart surgery a year ago and had VNS placed for his seizures. He is currently on 4 seizure meds and unfortunately they are not working. We recently had another 24 hr eeg and his Drs told he is have over 400 seizures and day 18-20 an hour. At this point in time we have tried everything and nothing has worked. The Drs told us we are looking at 3-6 months left with him due to the brain damage caused by the seizures. Our hope is to enjoy whatever time God has planned left with him and make as many memories as a family. We want to take a camping trip with him and our 2 other kids so they have memories with him as well. We want to not worry about everyday life things and just cherish our time together.
Негізгі бет Фильм және анимация The story of Griffin Being told their son has 3 6 months left
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