Some families have no choice but to accept what the person wants. My grandma was one of those people who said she didn't care what happened and to keep her alive as long as possible. That was her wish. So my family took care of her in my sister's home. Only every other month she would go for a weekend trip to a facility. She had Vascular Dementia but also CHF. When she passed away she was severely impaired by dementia. She didn't know our names anymore. The CHF took her. My grandfather passed from Parkinson's Disease 8 years before her.
@AskaDeathDoula
6 ай бұрын
Yes, this is why it's so important to discuss our end of life wishes before it's too late. So our family can honor them, whatever they may be. Thank you for sharing your story, sending lots of love 💗💗
@sharonnemeth7252
Жыл бұрын
Thank you for your honesty & transparency. I lost my mom on Christmas Eve and I nursed her in our home. The end of life journey has made me become whole!
@AskaDeathDoula
Жыл бұрын
Thank you for sharing that! xo Suzanne
@Dustyonelife
Жыл бұрын
This, this, this! All of it! So very important and needed. Very timely in that I am Doula-ing a loved one with Cancer and Alzhiemers at present. It's an incredibly challenging situation, meaning suffering by all involved and lack of system support. I reflect deeply upon my own wishes for end of life. Much is answered in your sharing here. Thank you, and Alan for being so generous.
@AskaDeathDoula
Жыл бұрын
Beautiful Susan ❤😘
@Dustyonelife
Жыл бұрын
@@AskaDeathDoula and thank you of course for orchestrating this conversation xoxo 😘 always great topic.
@fredphilippi8388
9 ай бұрын
I congratulate the Shacters for successful implementation of their chosen form of death transition, VSED. I noticed that Alan was diagnosed not only with dementia but also with cancer and given a prognosis of 6 months on that basis. In States where medical aid in dying is legal, that would have been sufficient to request that option, which would definitely be my preference. From my viewpoint, VSED seems too complicated and protracted. In Canada, people diagnosed with dementia or neurological diseases may request medical aid in dying. Hopefully the U.S. will eventually get there too.
@AskaDeathDoula
9 ай бұрын
Thank you for your kind words! MAID is such an important option.
@francescaboone7993
Жыл бұрын
Wonderful interview. Options like this are so important to know about. Thank you both for sharing
@AskaDeathDoula
Жыл бұрын
Agreed!!
@kirstenvinge1326
Жыл бұрын
what a beautiful love story. Grateful for you sharing your journey Phyllis. Thank you Suzanne.
@AskaDeathDoula
Жыл бұрын
Beautiful!! ❤
@deirdrescott7259
Жыл бұрын
Such an amazing story. One that gives hope in being able to control end of life . Thank you for sharing this information.
@AskaDeathDoula
Жыл бұрын
Thank you so much! xo Suzanne
@patriciaschlehuber6798
Жыл бұрын
So Amazing ~! In Great appreciation and Love Patricia from Cape Cod.
@AskaDeathDoula
Жыл бұрын
Thank you!! xo Suzanne ❤
@Tonyal2012
11 ай бұрын
I am 66 and as of yet do not show signs of dementia however I fit into the category of advanced neurological diseases the worst and most painful being the very rare disease of CRPS (complex regional pain syndrome). I am in a nursing home now going on 3 years. The suffering I and my loved ones have been through in the last 8 years is nearly unimaginable. I have my families agreement in my doing vsed to hasten my death. With me there is a gradual breakdown of my nervous system as it is under attack by at least 2 different neurological diseases one being CRPS the most painful disease known to medical science. However being in a nursing home brings up obstacles and challenges I wouldn't have if I still lived in my own home. I'm still doing what I can to set things up to where I can voluntarily stop eating and drinking. Your story has helped me much. Thank you. Tony St.Louis Missouri.
@AskaDeathDoula
11 ай бұрын
Tony, thank you for sharing your story with me. I'm sending lots of love and comfort to you and your family 💗💗
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