"...but I took Ole as a role model," Claudia, the mother of our campaign participant Ole, tells us about her life as the parent of a child with hydrocephalus. Especially the first time after the diagnosis was hard, she says. The sense of ease was gone and instead came a time of uncertainty. The worries are similar now with a big child. But by taking her cue from Ole and his way of dealing with the disease, Claudia was also able to develop more equanimity again and gain confidence.
Every hydrocephalus is individual and so is every perspective on this disease. With the #MyHCandME campaign, we want to make the stories and faces behind this diagnosis visible. Be a part of it too!
www.myhcandme.com
Негізгі бет Фильм және анимация "There was a lot fear and uncertainty" - My life with hydrocephalus
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