Hang in there sir I hope you are recovering well young man. I hope the drs can find something to where one day you will be siezure free or to lessen them. Here for you if you ever need a friend to talk to.
@UnshapedLynx
3 ай бұрын
Do you suffer with seizures yourself if you don’t mind me asking trying to find out as much as I can about how others experience them
@richardanderson-gj8wr
3 ай бұрын
@@UnshapedLynx I am one of the ones who has been siezure free for 20years as the last cluster siezure I had was a few months before i turned 15. I am now 34 going to be 35. But yes when was younger I had siezures similar to you and my friend Alfie usually once a month upwards to 10 a day in a week period sometimes lasting two weeks my clusters involved were usually 70 to 140 depending on the severity over a week or two Time period. My friend Alfie is from over in the UK he has them very similar to yours and pretty much at the same frequency it seems.
@BellLiz-zj7ki
3 ай бұрын
As someone who experiences tonic clonic seizures constantly, it’s different sitting from another persons perspective. I’m sorry you are struggling right now
@Greencloud8
3 ай бұрын
I feel alone with tonic clonic epilepsy. I wish I had someone to talk with
@BellLiz-zj7ki
3 ай бұрын
@@Greencloud8 I’m always here if you want someone to talk to!
@Greencloud8
2 ай бұрын
@@BellLiz-zj7ki good how do i get a hold of you
@francescagiughese9781
Ай бұрын
Devi fare la respirazione diaframmatica
@Greencloud8
3 ай бұрын
Have you had a 24 hour eeg
@UnshapedLynx
3 ай бұрын
Yes I’ve had that aswell as the 7 day video telemetry and I’ve also tried many medication options with each causes side effects or increasing my seizure rate
@Greencloud8
2 ай бұрын
@@UnshapedLynx are you a candidate for brain surgery
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