I take your point entirely.As I was post 1st op in 88 I could not work as I still had uncontrollable bowel movements.Post 89 op all Crohns symptoms ended!Right away!Wonderful freedom!Year after year pouch changes became less frequent as I became more adept at the art!Thanks to Anne,SCN,negotiating this was made so easy!Keep on with B12 and soon life with an ileo becomes nothing like disabling!
@VeganOstomy
8 жыл бұрын
Regardless of how able we feel, we rely on a medical device, so we are considered disabled in the eyes of the law. That status offers us some protection, but it also gives us "legal ammunition " for when it comes time for our employer to accommodate us in some way. Congrats on the job and good luck with your surgery!
@leadavenport4142
8 жыл бұрын
Kate,after seeing your latest cast I had to reply to the disability question you pose.As I have been with my ileostomy since 1988 I would have to say no,I don't consider myself disabled.I do,eat,drink everything I did in 86/87.The b12 jabs are indispensable though.Good luck,keep the updates coming!
@kateellenberry
8 жыл бұрын
Hi Lea! Yes that's why I'm not sure!! I don't feel unable to do anything I want to do, but at the same time recognise sometimes I need some understanding from employers (e.g. Time away from my desk to change my appliance, or access to toilets, time off for surgeries or exhaustion). I think it's the wording I'm not comfortable with!! Wish it was 'Disability or Chronic Illness Related Leave'!
@ThailaSkyeVlogs
8 жыл бұрын
Good thinking about asking employers to record any absences related to ostomy and IBD separately to 'normal' sick leave! I'm still on the fence about whether it's a disability or not, because on the one hand it doesn't really stop me from doing anything, but on the other hand I still use a medical device. Great video!
@ThailaSkyeVlogs
8 жыл бұрын
+Thaila Skye / Oh, and CONGRATS on the job! :)
@kateellenberry
8 жыл бұрын
+Thaila Skye thanks! :) yeh I'm still undecided re disability...other illnesses/diseases are automatically recognised as disability at my work, like cancer, MS, HIV.. I wonder if someone who had them would think of themselves as disabled too!
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