Hope you enjoyed this episode! I'd love to hear what you thought. Leave your comments + questions below :) And if you want more information on this topic, check this out → Itch - www.skinterrupt.com/?s=itch
@gailpittilla3240
5 ай бұрын
I lived in a hot country for 10 years, bitten by a sandfly also a tick, and thought this was how I got nodular purigo, but a mass of stress was also a possible factor. Returned to the UK (am white female) and discovered this massive problem was not known much about. Several doctors, five consultants, 4 hospitals later, suicidal and desperate, I was finally diagnosed with NP after many biopsies. Had been treated for scabies, tick born diseases, anti biotics which made it worse, etc, and clearly no treatment worked until diagnosed. Given Topical creams, changed diet to a plant based (any sugar sets off a flare up which is painful) and trying to destress my lifestyle and problems helped enormously. 12 years later and my NP is finally manageable. Had all treatments but only barrier treatments help. With 3 other auto immunity problems, one being Raynauds which affects the blood stream and makes body cold. By keeping warm can also be an irritant to NP, so daily a challenge. It is wonderful to see research is being made as has been used as a general term and not specifically studied. I hope not done on animals as does not affect them. Desperation point can lead to suicide, and I was fortunate to find an amazing dermatologist who diagnosed me correctly, but who has sadly now retired, and I am finding not much progress in our country. Let's hope now this great Doctor will help find even more ways to aid the incredible itchiness and pain those who suffer have to endure. Even having a shower or bath was very painful, but now years later, I feel the most comfortable just sitting in a bath being soothed by treated water.. 😊. I'm convinced the nodule comes from under the skin from the blood stream, not from initial scratching, and one thing noticed is nodules are mirrored on the other side, ie, left leg nodules will be in similar place on the right leg, or arm/thigh etc.
@fisherman1964b
Ай бұрын
Me to if my left elbow itches and has bumps my right elbow itches and has bumps, on my left hand on .y right hand ,right foot and left foot. Finally I feel like I know what making my itch. It's horrible
@username604error5
Жыл бұрын
THIS !!! THIS !!! THIS !!! So very validating. I want the 4 hour deep dive version. The most accurate way to describe the itch is PSYCHOSIS INDUCING …. The appearance of which resembles more of a need for an EXORCISM than, “Have you tried an oatmeal bath.” I’m full of gratitude for this episode and full of frustrated rage
@jenfugo
Жыл бұрын
I'm glad this was helpful to hear. I hope that this helps people out there so please share this if you're in an online community for PR. It's an awful condition and I'm hoping to share more so let me know if there are any questions or specific topics about it that I can help with!
@lf9341
Жыл бұрын
YES! It's 4am an I am MISERABLE! I am woman in my mid 50's. This sounds like exactly what I have. Mine started about 3 weeks ago maybe from a bug bite. Finally I got seen by a derm (very young) I suggested maybe scabies? (From those Asian foot massage places) She scraped skin but did not find anything but wants to treat me for scabies. Not in the usual scabie places. I don't want meds unless they know for sure what it is. I googled and it sound EXACTLY like this! My 21 year old doesn't have anything No creams, baths, steroids or antibiotics working. Been 3 weeks . I get about 3 hours of sleep.Ready to kill myself if it doesn't get better. Reply
@lf9341
Жыл бұрын
Any luck? I know I am diagnosing myself but it sounds like 100 percent what it is.
@KnockOut242
8 ай бұрын
@@lf9341. I was just diagnosed today after 15 years of suffering and gaslighting. I have been so depressed because of it, but hope has been restored today. I got a steroid shot, labs, labs, labs and follow up in six weeks. Best wishes for you!
@jayfarstv1215
5 ай бұрын
I was diagnose with prurigo nodularis. And Im undergoing PHOTOTHERAPY and taking pill METHITREXATE, FOLIC ACID and OMCET CITRIZINE HYDROCHLORIDE.. and its HEALING..
@debbiebeenau6338
Ай бұрын
I have found relief for itching using a spray bottle with witch hazel mixed with organic rosemary essential oil sprayed on my scalp and massage in. This works when I need relief from the intense itching it.
@yana_del
6 ай бұрын
I have had prurigo nodularis for over 10years now. I had biopsy year 2014 and confirmed that I had it. I am bery happy hearing that someone is studying about our disease. I had no hope that I will get well until I hear this. I have accepted that I am dying with my disease. I prayed and hope I soon there will be medicine for us
@jenfugo
6 ай бұрын
Have you spoken to your doctor about Dupixent? It is an approved treatment option here in the US. It's not a cure, but it can bring a great deal of relief.
@PaulDowsettUK
5 ай бұрын
See my comment about monoclonal antibody treatment.
@poshmamma
8 ай бұрын
12 years countless dermatologist I finally diagnosed myself .. I researched n researched n saw a pic of this n realized that's what I has
@levanhunts
11 ай бұрын
It’s great to finally hear someone talk about this disease. I was diagnosed with vasculitis several years ago and then a couple of years ago was also diagnosed with Prurigo Nodularis. I am currently suffering through a flare that has been just awful! I get these sores on my chin, chest, neck, shoulders and legs. It’s a living nightmare. Thank you for bringing this terrible disease into the spotlight.
@jenfugo
11 ай бұрын
You're so welcome and I'm sorry that you are struggling with this. If I was to do another episode on PN, what would you want me to cover?
@SiobhanAhearne
7 ай бұрын
I am told l have p n but l don't have a itch .
@iamyou8416
5 күн бұрын
@@jenfugo. What is the stuff that comes out of them. They are like “plugs” and they drain a LOT.
@cbell-on9tp
2 ай бұрын
I have just been diagnosed after having it for one year. 58 yrs old in Texas. I have Hashamitos thyroiditus and had my first shingles vaccine 6 months earlier. And I was under high stress when I broke out.
@BernadetteZayasLore9
6 күн бұрын
I’m on Dupixent! I’m thankful to GOD!
@iamyou8416
5 күн бұрын
I just started ❤
@luzreyes1997
11 сағат бұрын
DUPIXENT has been a God sent for me.
@GodsDiva239
Жыл бұрын
I found out that I had this dreaded skin disease about 7-8 months through a biopsy. After months of suffering!! Thank you for bringing light to PN
@jenfugo
Жыл бұрын
You're sooooooo welcome!
@MrIncognito785
7 ай бұрын
Months? Lucky you. I've dealt with it for 30 years.
@iamyou8416
5 күн бұрын
I have just been diagnosed through a biopsy. I’ve suffered with this for more than 15 years and it’s debilitating. I had such a difficult time getting any health care professional to take me seriously and was scolded by one dermatologist for doing it to myself! It’s been a nightmare and my quality of life sucks because of all of these spots all over my body. I literally feel like a leper 😢
@muddy5797
4 ай бұрын
I am suffering from this right now
@HopefulHil
Жыл бұрын
Thank you for this episode. The change to my life and the helpless and hopeless feelings that come with it - it's just good to see this discussed. The sleeplessness and someone recognizing that symptom chokes me up bigtime. Thank you again.
@jenfugo
Жыл бұрын
You're welcome. I'm glad that I could share this to help you feel seen 💛
@lf9341
Жыл бұрын
@lf9341 10 minutes ago (edited) YES! It's 4am an I am MISERABLE! I am woman in my mid 50's. This sounds like exactly what I have. Mine started about 3 weeks ago maybe from a bug bite. Finally I got seen by a derm (very young) I suggested maybe scabies? (From those Asian foot massage places) She scraped skin but did not find anything but wants to treat me for scabies. Not in the usual scabie places. I don't want meds unless they know for sure what it is. I googled and it sound EXACTLY like this! My 21 year old doesn't have anything No creams, baths, steroids or antibiotics working. Been 3 weeks . I get about 3 hours of sleep.Ready to kill myself if it doesn't get better.
@annemariepurdy5556
7 ай бұрын
Same here !
@evahelen3511
11 ай бұрын
Thank you for this useful, good video. I was diagnosed with Pruigo Pappler three years ago by a dermatologist at a skin clinic. I got this disease after an insect bite on one leg, then it spread to both legs and both arms. I have noticed that I get worse from synthetic clothes and fruit, also creams and shower soaps. I have had light treatment with the dermatologist and it has made my arms healthy again, but both legs do not appear, but keeps the disease stable so that it does not spread. Was diagnosed with diabetes 2 this year and has severe asthma and EDS. I am a big consumer of plasters and have to change the bed several times a week. Fatiguing illness that itches intensely and burns and stings, but it also hurts in the legs. In Norway, my hospital Ullevål has come up with a new treatment for prurigo, but it costs so much that very few get it. They had patients who had jumped naked into the snow at night because the itching was so strong that they scratched their skin off.
@jenfugo
11 ай бұрын
Thank you for sharing your experience... I know it can be so horrible for some
@HopefulHil
7 ай бұрын
Ohmigosh. Jumping in snow sounds so good to me right now. I'm in south Florida and the heat and humidity very very much do not help.
@anaminke4228
4 ай бұрын
Flocinonide cream 0.5%. Apply it once a day and cover with gauze and tape.
@SukieTawdry1000
8 ай бұрын
I've been dealing with this for the last 2 years. Thankfully it's clearing (ever so slowly). The 2 most helpful products to deal with my itching are Gold Bond Maximum Strength Pain & Itch Relief Cream with 4% Lidocaine HCI and Thyme Out Plus which is my favorite. Thyme Out is entirely organic and is a liquid so you can use a spray bottle to cover large areas. It's not easy to find, but Amazon does carry it as does one of my local nutrition/health/natural foods stores.
@jesuschristismylordandsavi6108
Ай бұрын
Thank you so much. I just ordered some Thyme Out Plus.
@Vmgut3
6 ай бұрын
I've struggled with pn since 2013 at age 28. I wasn't diagnosed until 2021. I was in misery for all those years until I found the right dermatologist that actually wanted to make time for me. Anyone dealing with this please hang in there and make sure you advocate for yourself.
@toddciavarella
17 күн бұрын
Finally, I think I’ve found the answer because of this video. I agree with everything I’ve heard so far and believe that this is the condition that I have. I will be researching more on this topic. Thank you.
@Ihron_cuzieleia
5 ай бұрын
I have prurigo at the age of 17 years old. I suffer a lot because I am always laughed at and told that I am a zombie. I am losing my confidence so sad that I need medical treatment.
@ksazeema6876
2 ай бұрын
Mee too, started when I was 17😑
@happymunchkin2812
11 ай бұрын
I have this intense itchy over a year now and I thought it was menopause but after got on HRT and thought would go away but no. I went so many drs. But all of them keep subscribe to me medication with steroids and non of them help. Also I breakouts so mmuch that I’m embarrassed to go out and wear anything that sleeveless and short.
@jenfugo
11 ай бұрын
Have your doctors mentioned Dupixent to you as an option? It's free of steroids
@happymunchkin2812
11 ай бұрын
@@jenfugo yes …I started a week ago and still no response yet. Dr. Said its take couple of weeks. 🤞. Thank you for responding. Did you hear any successful case?
@justmel3303
2 ай бұрын
Hey are you feeling better ? I have it and I’m like you steroids didn’t work for me…
@happymunchkin2812
2 ай бұрын
@@justmel3303 better, but still there and as time to time intense itching start but short. Thanks.
@pattigrossman3021
Жыл бұрын
After 2 years of these symptoms and 2 dermatologists, the 3rd dermatologist finally looked at my whole body and sent a biopsy off to a dermatological pathology lab to be diagnosed. I have some relief with Zyprexa 5 mg, Hydroxizine and started on DUPIXENT 4 months ago. At least my lesions have stopped seeping body fluid and itching is 40 % reduced. Anything is better than no relief. This is truly a type of torture and would not wish this on anyone! It started 3 months after I was hospitalized with Covid and before I had any vaccines.
@jenfugo
Жыл бұрын
I'm so sorry that you're going through that. But I do appreciate you taking the time to share your experience and hope you continue to improve 💛
@caxcalvinchannel1133
7 ай бұрын
Hi actually we have same condition i also suffered from covid 2 times then took vaccines 3 doses then after 6 month it started a bumps that soo itchy in my arms and then back and trunk almost 2 yrs now im sufferring thankss i saw this video and i saw your comment
@shelasarn
3 ай бұрын
I’m dealing with this with my 6 year old son! He got a staph infection from a daycare when he was about 3 1/2 years old. Out of nowhere he just started picking! So from about 3 years to now he’s been picking and scratching his skin. He has dark spots all over his arms legs and thighs. As a parent it has driven me crazy!! trying to find out what it is and why this has happened… my son is now almost 7 and today a dermatologist of color told me it’s PN. He had prescribed dupixent. Officially discussing this with his dad to see if it would be a good fit for my son to try. This diagnosis’s has been a long time coming I have been so tired of dealing with this. My son is so smart so handsome and a happy child and now he’s forming a self conscious attitude about my he spots. He asked me could I buy him a bathing suite with sleeves because he’s embarrassed. It makes me so sad that he had to deal with this!! I had his pediatrician tell me that this was anxiety driven that he needed to see a phycologist 🤦🏾♀️ i just pray that he gets some relief and these spots clear up.
@pratyushasthanaakaAKIN
Күн бұрын
Thanks for the info I have had PN since last 2 months, I got it checked yesterday. And It all matches like you said, I am even scratching right now, hand, face, head, chest, back everywhere. And I think : 1 - vaccine did trigger PN in my system. 2 - Psychological activity did trigger PN in my system. 3 - itis - related, Diet related PN trigger in my system. Could be more but this is what I think
@pratyushasthanaakaAKIN
Күн бұрын
By itis-related I mean, I have had bronchitis for 1.5 year after covid and vaccinations, I already had Sciatica and bulging in my lower spine, and tremors in my thumb which I think were twitching or misfires. And I believe these could be the triggers too.
@KnockOut242
8 ай бұрын
This is exactly what I’ve been suffering from for 15 years! Just diagnosed today 😢 through the VA. Maddening
@ashcraft555
6 ай бұрын
This video has so much good information! I hope content like this gets out to more doctors so they can recognize this condition and help patients find relief. I saw multiple doctors and was just told different versions of this being my fault - that I was intentionally self harming, had bad hygiene, just had anxiety, just needed to cut my nails, everything you can think of. I cried when i finally found a doctor who could properly diagnose me instead of blaming me. She said my case is absolutely textbook but a lot of doctors aren't familiar yet. The whole experience has been frustrating and heartbreaking. And don't get me started on my insurance company denying me prescribed treatments.
@tandicalove9268
11 ай бұрын
Im 27 noticed it while pregnant had my baby in 2020 and it got worst im in guyana and health care is not at its best its a life of torture note : i has 2 miscarriage before 2020 and i think the stress depression and fear started it
@agapelove9859
Жыл бұрын
I think I have this condition. It's the worst itch I ever felt in my life and it's so bad. I had this since June. I had erythema nodosum in the past. I have autoimmune issues. I may go to John's Hopkins. I can't handle this. It's so intense.
@jenfugo
Жыл бұрын
Dr. Kwatra is actually at Johns Hopkins. Perhaps you should see about scheduling with him or someone in his department since this is what they focus on. I very much understand the hell you're going through and know how detrimental it can be to your daily life and mental health.
@nicoltrobertson65
3 ай бұрын
I have this almost 2years it's horrible I think happen because stress the loss of 4 family members back 2 back this video help .Lots of good information
@nicoltrobertson65
3 ай бұрын
Also I have type 2 diabetes
@jackygummer3329
8 ай бұрын
I have been struggling for over a year, I live in England and have tried everything the NHS has to offer but nothing works. My last hope is light therapy which starts next week
@yana_del
6 ай бұрын
I have had prurigo nodularis for over 10years now. I had biopsy year 2014 and confirmed that I had it. I am bery happy hearing that someone is studying about our disease. I had no hope that I will get well until I hear this. I have accepted that I am dying with my disease. I prayed and hope In god’s time I will be healed
@MrIncognito785
7 ай бұрын
I tried the only approved medication for it. It worked but I got the flu for the first time in 30 yrs. And a lung infection. I quit the dupixent tout suite
@lf9341
Жыл бұрын
I need this doctor in my life!
@arnoldfrackenmeyer8157
8 ай бұрын
Thank you for this video. I have been diagnosed with PN. Suffering for 20 years. One tiny pinpoint spot on my back where I cannot reach. I am ready to kill the nerve. I keep imagining liquid nitrogen to freeze the nerve or a laser to burn out the nerve. ...Back in the 90's I had laser treatment on a morton's neuroma which was 100% successful. Why not a laser for one pinpoint spot? Does anything like this exist?
@jenfugo
8 ай бұрын
I appreciate you sharing your experience. I don't know if that exists for PN unfortunately. That would be a question to ask your doctor.
@HopefulHil
7 ай бұрын
I have fantasies of holding a lighter up to my arms and tummy and my back and letting the flame slightly sear my skin as I slowly drag that hand back and forth. Just letting it lick the skin, I don't care if it burns it to a crisp but I'll try to save some muscle covering if I can. I only hold myself back from this because I think of myself lying in the local ICU burn unit and while I'm trying to heal, the scabs start the itch nightmare again and because I'm so excessively bandaged, I won't be able to attack my skin back. I just broke two of my natural nails on my damn forearm as I dug them into the 8-10 bumps I have there. That was .... pretty gross, actually. Ok, I'm stopping. I want a laser treatment too....except that I'm super-ok if they just want to fillet the skin right off. Omg, I hate this. I'm so tired and I'm so sick of hiding in the house from the rest of the world. Sorry, got carried away. Going through a pretty bad flare-up right now. I hate my life.
@arnoldfrackenmeyer8157
7 ай бұрын
@@HopefulHil I understand.
@kathrynnielson5689
3 ай бұрын
I was recently diagnosed with this after years of dermatologists telling me I needed to see a therapist and that is was a mental condition. So insulting! Has anyone every taken dupixent for this condition?
@jenfugo
3 ай бұрын
I'm so sorry to hear that Kathryn. It's an awful condition. I know of several patients of Dr. Peter Lio's who have had amazing shifts in their skin after starting Dupixent. Obviously as you decide to go this route, you should review the pros and cons as well as potential side effects as the medication can impact everyone differently.
@kevinmccorkle7476
10 ай бұрын
Wow! I've been dealing with this disease for 4 years, and this is the most information that I have seen or heard. My trigger was chemotherapy with platinum based drugs for lung cancer.
@kevinmccorkle7476
7 ай бұрын
@@barkerbiz not that I am aware of.
@kendraa_______9981
2 ай бұрын
Mine was triggered by pregnancy but my doctors don’t believe me. They keep saying flea bites. I’m want to go see this doctor in Baltimore 😢
@DebbieColeman-xg7jy
4 ай бұрын
I have had this disease diagnosed for 11 months but suffered from it for years before being diagnosed. I am allergic to a lot of drugs and have been diagnosed with sojurens autoimmune disease and raynoids autoimmune diseases. After spending over 30k o my teeth due to syjorens I just in the past month lost all I my upper teeth and in a denture due to lack of saliva from syjorens. I have been through living hell due to these 3 autoimmune conditions. So my dermatologist puts me on dupenskinfor the PN which has helped lead my skin some and also helped some with the itching but now I’m having to use a cane to walk and almost need a wheel chair to help me walk due to the I intense muscle pain from muscle cramps and pan due to side effect of dupexine!!! What is next ,I in I’mtdse pain,can’t sleep,fatigued to the max. Im70 years old, widowed and really can’t find a lot of reason to go o n, IM MISERABLE!! Any advice’s what as to what I can possibly try? Thanking you in advance for information as to what to do
@gillyboy1566
6 ай бұрын
I have just been diagnosed with this Disorder in the UK, however looking back I have had this for about 9 years, I have an absolutely intense itch and just recently, I noticed lesions on my forearm I have a Nodule on my thigh that has been there for 2 years and shows no signs of healing, my GP has just put me on a course of Prednisolone until I get to my Hospital appointment in the UK which will be around 2055
@jenfugo
6 ай бұрын
I'm sorry you've been dealing with this for so long! Has your doctor recommended the Dupixent option to you? It's approved here in the US, but I'm not sure about the UK.
@gillyboy1566
6 ай бұрын
@@jenfugo The only option in the UK is Phototherapy or Methotrexate, and I already have a compromised immune system, and i don't really want Phototherapy
@nhimsvlog6978
10 ай бұрын
I am currently having this skin problem for about more than 5 years and I’m about to inject a Dupixent by my Doctor, this video help me a lot…
@jenfugo
10 ай бұрын
I was in the clinic with Dr. Peter Lio on Monday and got you see firsthand how much Dupixent helped one of his PR patients
@riseaboveit5236
10 ай бұрын
I've been dealing with this for years as hives. All of the creams and ointments I have tried helped but did not solve. The sores ultimately left huge craters that hurt. I finally went to a dermatologist to diagnose me with PN. I got my first treatment of dupixient. The next morning I could feel a difference day two could see improvement. Today is day 5 and sores that I have been fighting with for months are now gone. I'm thankful to the doctor for the right diagnosis and that dupixient is available. I finally have hope.
@HopefulHil
7 ай бұрын
@@riseaboveit5236 Ohmigosh. This makes me so hopeful. I've tried so many prescribed and OTC products that I am now kicking around a bleach bath. I'm just scared of pain because I have so many open wounds. A biologic sounds so good to me. Please update your post every now and then, if you can - hopefully I'll get a notification. I'd love to know if you have longer-term success with it. Good luck!
@randypandolini6506
8 күн бұрын
Not sure if i have this but getting nowhere with dermatologist. I was also told all in my head. I have lot of the same simptoms. Going through tremendous stress. I get this over and over every year. I was also diagnosed with Mgus. Could have some relation. This really does m ess with your mental health. I thought i had bugs, but why know one else in the family has this.
@iamyou8416
5 күн бұрын
I am going through the same thing for more than 15 years now. I just had a biopsy and this is what I’ve been diagnosed with.
@pamelaanderson1124
8 ай бұрын
Thanks for sharing this, after 14 years of this anything is worth a try!!!!!
@Wales-forever
7 ай бұрын
I was diagnosed with this, i was given emolients and antihistimine , neither work and i never had them biopsies ....ive really bad scarring from when they burst and i bleed out 😢
@tedkalikuddy313
9 ай бұрын
Very useful information . Thank you
@jenfugo
9 ай бұрын
You're welcome! Are you struggling with PN?
@lf9341
10 ай бұрын
After months of being told I have excema it ended up being scabies from a cheap massage place. NOW I Hvae this hell! I have a lot of thick patches all over my body.
@sharvarirg984
2 ай бұрын
I'm going through this very badly.I couldn't hear the medical terms from 25:51 to 26:09. Can someone tell me if there is a medicine or content to reduce PN itchiness other than steroids?
@jenfugo
2 ай бұрын
We actually have the full transcript here www.skinterrupt.com/what-is-prurigo-nodularis/
@sharvarirg984
2 ай бұрын
Fabulous!. I purchased 'thanks' and contributed a bit from my side.
@angelbarrett4477
Ай бұрын
Can I take a survey? How old were each of you warriors when you got this disease?
@SailingSarah
10 ай бұрын
This hell hound started after I had a subarachnoid hemorrhage. So did type two diabetes, high cholesterol, high blood pressure, gallstones,..... 😒
@dianeknauss7824
7 ай бұрын
I’m so sorry for u I too am struggling with this whole nitemare!! Praying 🙏🏻😵💫 it is 12:50 am
@collyjohnson4541
Ай бұрын
What can you recommend for the itching
@brendaleary9281
10 ай бұрын
I was diagnosed delusional the schizophrenia, now PN! For 5.9 years! I have no itching. I have piercings and biting. Extremely painful. Was expoto scabies in 2018 but my disease came from property flushing plumbing that came into my home. Jet black water, no debris. Its been with me dince. Totally attacks head. private area and then moves out of hair and is eaten my skin
@brendaleary9281
10 ай бұрын
I am 65 years old diagnosed schizophrenia??! Now I'm not. Gaslighting for more than 5 y! These things crawl then pierce my skin. Not PN
@ip3931
10 ай бұрын
I have no life quality yet I receive no help. The NHS staff certainly don't care equally about all patients.
@jenfugo
10 ай бұрын
Unfortunately I hear that a lot about the NHS. I'm sorry you're going through that. Have you asked them if Dupixent would be an option for you?
@Wales-forever
7 ай бұрын
Same with some doctors but there are still those who are very good with patient care too ....
@Bearguy512
11 ай бұрын
About 3 years ago I had PN due to a mosquito bite that turned into PN. I cured it. My dermatologist did a biopsy and they shaved off the entire mosquito bite area and it never itched again after that. HOWEVER, I recently got another mosquito bite that turned into PN. Do I have to get it shaved off every time to cure it? There’s got to be another way. I’ve tried freezing it off with a wart remover, but it did not work. Can anyone please share their cure?
@sebilemortas7333
5 ай бұрын
Bunu bende yasiyorim tamamen sitrese bagli sikposporin diye bir hap yutuyorum noduller kuculuyor
@sharvarirg984
2 ай бұрын
Thanks
@isaackitone
7 ай бұрын
What is a skin biopsy? How does that identify an autoimmune skin condition that has no pathogens to identify?
@taralilarose1
Жыл бұрын
I was diagnosed with this disease after first being diagnosed with eczema. Does this mean I have both or that some dermatologists made mistakes?
@jenfugo
Жыл бұрын
I don't honestly know. It's certainly possible to have 2 different issues going on at the same time. This would really be a question for your doctor so you have a clear understanding of what's going on from someone who knows your case.
@taralilarose1
Жыл бұрын
@@jenfugoTHANX for trying but the truth is there is no cure and/or efficacious treatment. I had histamine intolerance but I managed to heal it. As a survivor of scapegoat family abuse having an itch is the least of my problems though I do believe there is a connection.
@EmsThaBreaks441
Жыл бұрын
It varies depending on your dermatologist and their use of terminology. Generally if you have had longstanding eczema childhood, PN is not a separate finding. I do not like the term - in particular the suggestion is that you have a psychological problem alone.
@littlemissyd34
11 ай бұрын
I think I have this on my face. I have small fluid filled bumps that appear near the same area all the time ( around nose, chin and mouth, cheeks) and they get big and bust open ..since wearing masks with covid. The neurological burning in my chin is awful.
@jenfugo
10 ай бұрын
I'm so sorry that you're dealing with that. Have you seen a dermatologist and asked them if this is what's going on? It would be best to get a clear diagnosis.
@littlemissyd34
10 ай бұрын
@jenfugo I've seen 5 of them, I've been told everything from dermatitis, scabies which lol it isn't, prurigo nodularis, and mcas. I think it is a fungus
@Pul818
4 ай бұрын
It os said rhat the itch will last for 6 weeks. So afyer t6 weeks would there be no itch anymore experienved by the person suffering from pn
@mikakaleesi4693
4 ай бұрын
Any help for this skin desease😢😢
@shelasarn
3 ай бұрын
Dupixent injections
@high4travel
Жыл бұрын
I have this condition for few months and just found out it might be PN as per specialist. What’s the best medicine to test this now? I hope there’s real cure soon.
@Engr_Mijan
Жыл бұрын
How I get Duplimab inj from Bangladesh & how to use for PN?
@jenfugo
Жыл бұрын
You'd need to speak with a dermatologist. I'm not certain if it's available there.
@Engr_Mijan
Жыл бұрын
Thanks a lot.
@tamarahill5464
10 ай бұрын
I have had whatever it is on skin itch crazy,hard lumps feels like something bitung they crack open and then ooze and bleed over 2 years now doc thought it was scabies,then saw a dermitologist and he gave me different cream well I then got diagnosed with endometrial cancer so that's alot in itself ,I need to go back to derm for a biopsy but also it's like black specs and hard little slivers that fall off or protube thru the skin. I am so imbarrassed oh my sk8n also feels only and I have had a rash under my breath so I got nystatin powder it's so mentally draining oh I am female 60 yrs old had a hysterectomy and 2 chemo treatment need 1 more then radiation ! My skin also has a spine to it😢
@jenniferriddle-ht6fk
15 күн бұрын
Omg this is the worst thing ever. Essential oils do help frakensense and lemongrass oh and castor oil
@aemanjamal6545
11 ай бұрын
Can it happen to children
@high4travel
Жыл бұрын
I just found out I might have this PN after 4 months of intense itch bumps on my legs. Any cure yet? I heard Dupixent is only to eliminate the itch and very expensive.
@jenfugo
Жыл бұрын
I'm so sorry because I know that PN can be extremely detrimental to your quality of life and mental health because the itching can be soooo intense. There is no cure at this point in time. Dupixent (dupilamab) is the only approved treatment thus far which has been cleared by the FDA. You could talk to your doctor about trying it.
@cabral10196
11 ай бұрын
dupixent works very good Ive been on it 2 years if faithfully taken every 2wks I promise you will be sooo happy...my symptoms started subsiding after one month and have been clear to this day...im still on dupixent and if I miss a dose my skin feels itchy dupixent kills the itching and drys up the nodules pretty quick...good luck with your recovery 🙏🏽
@cyclebreaker1
11 ай бұрын
Dupixent works and is affordable with health insurance and going to Dupixent My Way to help cover. I pay nothing except my monthly health insurance payment. I took it and the itching went away immediately which kept my from scratching in my sleep, therefore, the wounds were able to actually heal. The nodules are built up scar tissue from continuous scratching.
@chasiegrisaffe5867
10 ай бұрын
The company that produces Dupixent offers a program to help pay for the treatment
@riseaboveit5236
10 ай бұрын
Dupixent although expensive works. It's the first time I've felt hope in years
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