I had brutal long Covid and beat it . The thing that beat the chronic fatigue, insomnia, anxiety attacks, headaches was i gave up coffee and sugar. Within two weeks my 7 month Long Covid was 95% clear.
@donttakethemark65
3 жыл бұрын
Could that indicate a possible diabetic/pancreatic autoimmune connection? I too notice that sugar makes symptoms worse.
@AnnaD25
3 жыл бұрын
Thanks for sharing. I am going to cut both out and see if my symptoms improve👍
@jimmydavis7587
3 жыл бұрын
I don't drink any caffeine and don't eat sugar. My long covid has been there for 7 months
@notsogreen
3 жыл бұрын
Coffee should be avoided during the infection days, as it depletes Glutathione levels. Probably would help to stop or lower coffee intake if one is a long hauler and support Glutathione levels, with NAC and Glutathione and Vit C, preferably on an empty stomach. Maybe worth a try.
@jimmydavis7587
3 жыл бұрын
@BlackPill Jesus Thanks man you too. I have hay fever a little, or I did. It weirdly dissapeared when I got covid. But my long covid was weird. I had tinnitus for 3 months and nothing else then the fatigue and dizzyness etc kicked off after catching a none covid bug
@happynessadict
3 жыл бұрын
my post Covid symptoms where severe depression and feeling suicidal it was the hardest fight I ever had . it lasted 5 months . i felt like my old self had died .
@Penel62824
3 жыл бұрын
I feel like that now
@Good.Idea.Zlovakia
3 жыл бұрын
I have the exact same feeling now. I had covid 2 months ago and still have some symptoms and i don want to live anymore like this. And i feel like another person, totaly different... are you Ok now?
@MrDanno180
3 жыл бұрын
And you say that's from covid? Wow they really have you brainwashed
@stbam1965
3 жыл бұрын
@@Good.Idea.Zlovakia pray. And believe in prayer. Up to you. It cant hurt.
@amerigoves5099
3 жыл бұрын
Me too
@LearningLife-sh1fh
3 жыл бұрын
Long haulers illness seems so much like CFS. Many Drs have dismissed CFS/ME but the same dismissive behaviour of long haulers will not work.
@kaleidoscope8743
3 жыл бұрын
Drs. don't dismiss it, but some don'tlike dealing with it. They come across as patronizing because they realize thevpatient is so uninformed/misinformed (literally). CFS/ME is not a disease per se. It's a real physical condition (physical symptoms) of an underlying condition, which could be caused by one or both reasons ... (1) one or more pathogenic infections are present (like viral, bacterial, fungal, paracytical - which includes protozoa and other water bourne types. ) If the body's immune system cannot totally clear the pathogen(s) because it(they) go to the intracellular phase. ... I forget how they number the phases, meaning phase-1 is contact & the initial trigger of your immune systems "acute response phase", which will show its present in the blood. But the advanced stage/phase is chronic inter-cellular phase where the pathogen has established a chronic presence in the body. If the body clears it in stage 1, fine. But if not, then it can move to host cells in the body. And immediately begin to spawn, just like fish, they need hospitable locations to colonize and spawn. They secrete substances that are similar, protein-wise, to the body healthy proteins that trick the body into missing its presence. You may have heard of biofilm? Anyway obviously it will invade and colonize the tissue that is feeds on. I'm the case of Muscular Sclerosis the paracytical infection infects a certain enzyme (protein) that is found in the collagen rich layers of the spinal cord! With MS The gradual crippling of the body and organ functions is the symptomatic clue of its presence. Lyme is a similar story. Doctors are not telling patients that a 1 or 2 or 3 ... 4 is in fact positive result, because certain organizations tell them to tell patients their tests are negative. It's not. In fact a 0.9 is not negative. Even a negative result, may not mean you are negative. It just means your test was negative. Blood tests can be negative while tissue samples are specifically positive. Envita in Arizona treats Lyme. FYI Lyme is not just the Borrelia b. bacteria, that a pepper-flake sized tick carries. In fact a Lyme tick will absolutely carry multiple pathogens ( such as Powassan v. Bartonella, Babesia, Erlichia, HHV6, mycoplasma, cytoplasm a, AND others!!). The tick will carry a cocktail of these pathogens. Doxycycline is what drs are told to treat all that with. When in fact that is simply not enough! And naturopathic medicine can assist in killing some of this. But most drs wont be able to tell you what safe doses are or drug/herb interactions that could cancel each other out. They face legal challenges for trying to help. CFS/ME could also come from environmental exposures to pesticide and herbicide, but again don't expect drs to tell you this. All these chemical air deodorizers like glade, fabreeze, Etc. are bad for your endocrine system. Other possibly factors are nutritional deficiencies. Don't expect your doctor to tell you about nutritional deficits either. Body attacking itself is more likely a nutritional deficit and the body is liberating collagen from its own tissues literally. Otherwise it is simply collateral damage from the low-level infections when they "bloom". This causes a Flare. When the body has an intercellular-level infection in its collagen-rich connective tissues (fascia, sheathings, tendons cartilage, ligaments and tendonous tissues) it is both painful and crippling litterally. The inflammation is literally the evidence of that, and the body's war is legitimate, CFS/ME is legit! Fibromyalgia is legit! But the side effect of your body battling the infection is doing collateral damage to the surrounding tissues. Some of that the body can repair unless it's just constantly busy fighting tons of these low-grade infections. Also biolicials (classification) do not protect you at all. They shut down or suppress your body's ability to mount an immune response. This could have deadly consequences and will prevent your body from fighting cancer (TNF/TNFa etc). NSAIDS & DMARDS COX2 inhibitors etc. Do organ damage while masking symptoms partially. Not all pathogenic cellular infections are curable. They are considered treatable with these dangerous drugs. Now you are armed with new knowledge!!! Find a good reputable Infectious disease dr to help.
@donaldviszneki8251
3 жыл бұрын
Twiv recently covered this
@karlhawkes
3 жыл бұрын
My interpretation of your point is coronavirus a common cold and it's no more than standard respiratory virus.
@bluefairyuk
3 жыл бұрын
I think you are wrong. Feeling exhausted is only one of the huge number of symptoms that we long haulers have been experiencing, including chest pains, chest tightness, shortness of breath, pains all over, burning veins etc etc etc on top of high fever, cough, sore throat, dizziness etc...
@danyellerobinson5940
3 жыл бұрын
Many with CFS are patients with implant devices and inherent implant-associated biofilm.
@rev.rachel
2 жыл бұрын
These videos are so interesting! Thank you for doing all these studies while formal research is only in its beginning stages. You're saving all us long haulers' lives and sanity
@RUNDMC1
2 жыл бұрын
Thanks Rachel!
@carolenmarch7445
3 жыл бұрын
Thank you so much Gez for your usual standard of high quality research, so eloquently presented, that both layman and medical practitioners can easily access this and understand the implications for future research and treatments, all undertaken while struggling with Long Covid, yourself. We greatly appreciate your efforts. ( You're looking better. Nice shirt! ) Cx.
@RUNDMC1
3 жыл бұрын
Thank you!
@FreddieonFilm
3 жыл бұрын
Hi, Gez! Another great video and illuminating research - thanks! As I reported back in August, my energy levels made a dramatic improvement after 4.5 months w/ long Covid. I've now been back to my usual exercise and activity routines, with no relapses, for about 3 months; however, I had a mystery eczema-type rash (hand & leg) that took weeks to clear, and a few weeks ago I developed some mild joint pain/stiffness in my hands and feet (no history of RA, but I do have Type 1 diabetes and a wonky thyroid). Going with the theory that my immune system was/is still in a revved-up state (to which it is clearly prone!), I upped my anti-inflammatory strategies (diet, supplements, intermittent fasting, further stress reduction practices, sleep management) and have noticed significant improvements. Very best wishes to you, as ever, as you battle this beast ... and thanks again for being a beacon of reason in all of this hoo-ha!
@RUNDMC1
3 жыл бұрын
Thank you Freddie!
@Tamar-sz8ox
3 жыл бұрын
Thank you . I’m glad you’re doing better
@loveinautumn3978
3 жыл бұрын
Were you ever anxious and were you ever afraid of going to sleep 😅
@FreddieonFilm
3 жыл бұрын
@@loveinautumn3978 My health-related anxieties predate COVID - but stress reduction has definitely been part of my long-haul recovery program. Re. sleep, it was more the opposite: I had trouble sleeping at the height of my illness and was worried about the effects of poor sleep on my health.
@helenmillington2113
3 жыл бұрын
The symptoms described sound so much like CFS/ME. I have spent over 10 years recovering from CFS, still a way to go. My only advice to long haulers is don't try to beat this, accept it ( yes, that is very hard), don't fight it, give yourself the time to rest and give your body time to heal. I sincerely hope all the long haulers recover soon. Good luck and best wishes to you all
@jennyeyles9596
3 жыл бұрын
I agree.
@jennyeyles9596
3 жыл бұрын
You could also take a look at the other autoimmune disorders like Lupus, MS and (APS)Antiphosphlipid syndrome (I have APS)
@apienootiemiesie9852
3 жыл бұрын
You should learn about Robert Naviaux's work on the concept of Cell Danger Response
@paulgee4336
3 жыл бұрын
This will most likely help people with pre-COVID-19, COVID-19, and post-COVID-19 health issues. It helped me and two other people I know personally. Join the Grassroots Health Revolution Movement. You DO NOT have to be unhealthy, sick, ill, dying, or near death! (almost everyone, almost all of the time) BE Healthy and Well via CHP -- The Clean Health Protocol. SEE: @t .
@globalbridges8570
3 жыл бұрын
Viruses do not exist, those 80-120nm spiky outer membrane vesicles are exosomes. The word virus comes from the Latin word poison, all respiratory diseases are caused by toxic chemical pollution. Lookup WW1 chemical weapons, then lookup their symptoms on the CDC website and you’ll see they match all the supposed ‘virus’ outbreaks.
@VictoriaCounsellingServices
3 жыл бұрын
I suffered from ME/ CFS for over a decade until I got very ill at the beginning of this year. I had solid, unrelenting fatigue that lasted months, breathlessness, problems digesting food and when recovering from that, seemed to get hit by everything else that was going around. I knew I was deficient in key vitamins and found myself craving a mostly raw plant based diet which slowly helped me regain vitality. Six months on and I feel stronger and fitter than ever due to the changes in diet and lifestyle but still get tired from time to time.
@paulgee4336
3 жыл бұрын
This will most likely help people with pre-COVID-19, COVID-19, and post-COVID-19 health issues. It helped me and two other people I know personally. Join the Grassroots Health Revolution Movement. You DO NOT have to be unhealthy, sick, ill, dying, or near death! (almost everyone, almost all of the time) BE Healthy and Well via CHP -- The Clean Health Protocol. SEE: @t .
@tracysrogers
3 жыл бұрын
Hey, I just stumbled on these videos from the LH Covid reddit page, I think I've had a "mild" case of long covid since March. I would categorize myself as a fast clearer -- I thought I just had a cold in February, but then started having weird symptoms in March. The first thing I had were 3 months of allergies. about 4 years ago now, I had one week of watery eyes as an allergic response to something in October, and otherwise have never experienced allergies. From March through June, I was on constant eye drops, and even that wasn't enough to keep my eyes working normally. Additionally, I was feeling skin discomfort almost constantly, with periods of fatigue and insomnia hitting me at what felt like random times. I've since been able to almost entirely eliminate the buzzing and sunburn, which happen directly before fatigue, insomnia, and other symptoms by eliminating exercise, alcohol, and dairy (which, if I have enough dairy, can trigger an episode, as I have extreme lactose intolerance. I think I had lactose intolerance to a lesser degree developing as much as a year ago), and by limiting coffee. Outside of the occasional flare up (2 in the last couple months), I have constant skin irritation, like someone is just sandpapering my skin all day long, and I can feel rough fabrics through two very soft layers. I'm a 36 year old, previously very healthy male. I'd be happy to join any future surveys you are doing.
@RUNDMC1
3 жыл бұрын
Thanks Tracy! Best of luck with your recovery.
@cavelleardiel
3 жыл бұрын
There is a high level of oxidative stress in people who are extremely active.
@michaelherlihy2090
3 жыл бұрын
Only running 90km a week like Mr DMC isn't that active. It's probably less than an hour of exercise a day. I have run over 200km a week and that is probably what could be categorised as extreme.
@rosiej9231
3 жыл бұрын
@@michaelherlihy2090 it’s very individual. What’s fine for one is way too much for another body.
@robertolsen9721
3 жыл бұрын
What is oxidative stress?
@robertolsen9721
3 жыл бұрын
Just read about it, maybe I'm not extreme but bicycling 38 km a day + gym 3-4 times a week. I don't have oxidative stress. I'm 52 years old.
@cavelleardiel
3 жыл бұрын
@@robertolsen9721 is an imbalance of free radicals and antioxidants in the body, which can lead to cell and tissue damage. occurs naturally and plays a role in the aging process.
@jofox8066
3 жыл бұрын
This makes a lot of sense. Thanks for explaining it so clearly,
@RUNDMC1
3 жыл бұрын
It’s a pleasure, Jo :)
@ApprendreSansEcole
3 жыл бұрын
I am a long hauler who did not have any of those pré-existing conditions, at least not that I know of (I was diagnosed with slight asthma since covid infection, I don’t know if I had asthma before or not). However, I did a mycotoxins testing which showed high levels of Ochratoxin and Mycophenolic acid (coming from mold in our house due to water damage). Both of those mycotoxins are known to lower T and B cells, in fact, Mycophenolic acid is used in anti transplant rejection medecine. My doctors believe this prior mycotoxin intoxication led to my immune system reacting poorly to COVID-19. I wonder how many other long haulers have environmental toxins which compromised their immune system, and nobody knows about it because we aren’t tested for that. Could there be a link between your findings and this theory ? I would be interested in understanding the mechanisms of the long haul covid immune response.
@RUNDMC1
3 жыл бұрын
I’d need to do some more reading before commenting on this!
@stepujacybudowlaniec
3 жыл бұрын
@@RUNDMC1 can you take a look at the impact of mold (spores, toxins) on autoimmune diseases?
@DragonHeartTree
3 жыл бұрын
Thank you for posting these comments
@LindaGailLamb.0808
3 жыл бұрын
I had serious eczema as a child, and I still ave occasional flaeups; and I have some seasonal allergies, including snow mold in the spring. I've also had recurring episodes of ITP - an autoimmune disorder, where my immune system atacks my platelets. Some of those occurrences came shortly after I had infections and antibiotics - obviously, some of those infections were triggers. At this point, I'm REALLY hoping I never get covid - it might trigger my ITP as well as long covid symptoms.
@PBrofaith
3 жыл бұрын
When you were tested for covid did they inform you regarding the number of cycles they did ?
@finallyfinally9317
3 жыл бұрын
It sounds like the chronic fatigue some people get after an illness it's probably the same thing but as there is so much focus on it now it's actually being recognised
@charlotteholst298
3 жыл бұрын
You might definately be onto something here! I used to be allergic with light asthma too. Have been medicine free for 10 years until Covid decided to stop by. Apparantly my trigger-happy body and Covid had a shoot-out. I imagine this Western now where there is a gun fight inside a saloon, where everybody ducks behind counters and tables and the two shooters cause an immense chaos. After the fight is done, you know how that saloon looks, good luck with cleaning up the mess ;)
@RUNDMC1
3 жыл бұрын
Haha, exactly this!
@nasimgillani1161
3 жыл бұрын
Good talk creating Health MANIA
@mysticswalk3086
3 жыл бұрын
@@nasimgillani1161 Your mindset seems very negative and rude. Some of us need to know these things since we are already compromised by other illnesses. Since you are not immune compromised then you're all good so move on. Leave the rest of us alone in our "mania".
@nikkij4873
3 жыл бұрын
@@mysticswalk3086 thank you for saying this. One person's "mania" is another person's "survival". As an asthmatic if I walk into a dust cloud, I'm dead.
@sandrag8656
3 жыл бұрын
Love your sense of humor, Charlotte.😆 Get rid of the shoot-out-mess soon!
@ROTALOT
3 жыл бұрын
I quit coming down with more than a tiny sniffle by 2001 as a school teacher for decades. I started taking a lot of natural D3 and added animal protein back into my diet. I had my first rhinovirus free year. My success continued but I still had some chronic issues. Ultimately I got a genetic profile that showed me my severe issues with D3 deficiency, magnesium deficiency, and all the mystery foods that were triggering my migraines/inflammation. I lost 75 lbs while getting better! From 2001 on I continued teaching and being exposed to young people from all over the world, but as sick as they would get and still come to class, I never caught anything from them. Whenever I feel a bit sniffly and tired, I soak in a very hot bath to get my temp up to about 101 to 102 for at least 20 minutes. My dad learned this trick in the Navy. This method has been 100% successful for me for over a dozen years now. I come from a family of people except my dad who get bedridden for a week with simple colds. Now I know why we do. We have terrible D3 levels unless we supplement. We also have chronic INFLAMMATION partly from genetic causes. BTW, boron fixed my joint and back pain.
@misse7154
3 жыл бұрын
Thank you for your research. I'm not an expert, but your research is sound and makes complete sense. I believe I contracted COVID in late February (before they were testing), and have been experiencing significant fatigue since. I have asthma and allergies, so I would fit with your findings. It's nice to have a potential explanation for the hell if I've experienced for so long!
@nataschavisser573
3 жыл бұрын
I have an anecdotal case study: a friend of mine (female, age 50+, overweight) with type 1 diabetes was only tested for covid as a routine percaution before surgery. She was discovered to have covid but had no symptoms, just a massive imune response that showed up in scans as swolen lymp nodes. The doctors actually thought she may have lymphoma and took a number of biopsies which all came out clean.
@malak2858
3 жыл бұрын
Were the swollen lymph nodes around the neck area? Just curious because my mom started complaining from a feeling of something swollen and hard just below her jaw after she got c19
@chanchan5349
2 ай бұрын
I’m so glad this is available. I’ve had to come back to reread information.
@BodyRocker9
3 жыл бұрын
I wonder if the amount of virus you get exposed to in the first place has anything to do with severity
@captainwalter
3 жыл бұрын
Also exercise during initial stage. I was doing hot yoga between exposure and diagnosis, I imagine pulling it deep into tissue. Also was running a lot. I talk to a lot of long haulers who were exercising during that period
@hebejeebee
3 жыл бұрын
@@captainwalter I reintroduced exercise after about 6 weeks, thinking I was well clear of the worse effects. Oh how wrong I was! The advice I now have from a good ME physio is rest, rest, and the rest some more. Two naps a day!
@ellyw7201
3 жыл бұрын
The amount of virus you are exposed to has a great impact on severity. This is one reason why health care workers who get COVID-19 have often gotten severe cases -- they have been exposed to the virus via many different patients; especially if PPE was in short supply and they didn't have N95 masks. So they have started right out with a high viral load. The good news is that there are a variety of ways to beat back the virus, reducing your viral load...plus ways to block viruses from attaching to your cells...plus ways to interfere with the virus's ability to replicate if they do get into your cells.
@BodyRocker9
3 жыл бұрын
@@ellyw7201 I guess that explains why I had such a bad case, my dad (pre existing conditions)who got exposed by someone at a restaurant in February got over it in 2 weeks. He was spreading it all around the house while I thought it was just a cold so no mask and even ate at the same dinner table while he was coughing everywhere. I ended up getting it way worse (no pre existing health conditions)and now I’m a long hauler.
@rasmasyean
3 жыл бұрын
A study in Spain said this: "Smaller viral inoculi as a result of wide social distancing would contribute to the lower pathogenicity of recent SARS-CoV-2 infections." Though they are clear at this point it's not proven, but just a guess based on their survey. www.sciencedirect.com/science/article/pii/S1201971220304707 But how would you explain Sweden who does practically nothing and has a much bigger "second wave", but much less death rate. Unless perhaps those are mostly reinfection of asymptomatics with quick anti-body expiration, and most of the high chance severe ppl already died? I wonder. www.worldometers.info/coronavirus/country/sweden/
@vidateksolutions956
3 жыл бұрын
I have long covid and I've been wiped out for over 7 months now and still fighting everyday. I can be absolutely fine for 3 hours and then all of a sudden just completely wiped out for the rest of the day.
@RUNDMC1
3 жыл бұрын
That’s exactly how it works for so many of us.
@AnnaD25
3 жыл бұрын
I can relate😢
@getsideways7257
3 жыл бұрын
Do you also have to sleep a lot during the day whenever possible?
@vidateksolutions956
3 жыл бұрын
@@getsideways7257 I also have to sleep during the day, drives me crazy considering, use to be a super active person
@getsideways7257
3 жыл бұрын
@@vidateksolutions956 I can't really call myself that, but with all this fatigue and insane amounts of daytime sleep I feel like I'm not really living anymore, barely managing to do ANYTHING while I'm still awake and feeling more or less fresh.
@king51009
3 жыл бұрын
I just want to say that videos like this have helped me tremendously! Since Javi my “long haul” symptoms I researched like crazy and added lots of supplements and probiotics to my diet and included hot yoga. I always met my body where it was at but I think just allowing it to “sweat it out” has helped me tremendously! After every class I feel better and better, possibly more emphasis can be placed on sweating and moving. The virus wants to live that’s why it makes us fatigued. 🤔
@king51009
3 жыл бұрын
Having not Javi lol
@RUNDMC1
3 жыл бұрын
Glad to hear you’ve found a way of managing the condition!
@helengarrett6378
3 жыл бұрын
Oh my heaven, 79 years old, hay fever, asthma, thyroid problems leading to chronic hives, diabetes. How am I still alive?
@loveinautumn3978
3 жыл бұрын
Do you have covid-19?
@helengarrett6378
3 жыл бұрын
@@loveinautumn3978 I don't know if I had it in June I had a runny nose, stuffy. But I'm allergic. I had diarrhea one day with cramping but my intestines get wonky sometimes. I had a 99.8 temp for one day. Normal is 97.8 most of the time. Then after that I felt like I inhaled a sock and had a pain vertically under my breast bone. No strength for a week and so fatigued I could hardly get from the sofa to the kitchen, a very short walk. But I'm asthmatic so I upped my asthma preventer meds and used my Ventalinin for a week. Then I improved a little but not enough to change my sheets for 3 weeks. Just barely could take care of myself. Very fatigued and breathless walking around my small apartment. A shower was very tiring. Did no housework except dishes. Then I felt better after 3 weeks and regained my strength enough to slowly catch up on laundry, vacuuming and changing bed. So I am not sure if I had Covid ir something else. Could have been worst asthma ever but not much coughing.
@Blessed_by_Yeshua
3 жыл бұрын
If you need a long hauler for a study, I’m willing to volunteer.
@nikkie1189
3 жыл бұрын
Same
@MsBelinda1958
3 жыл бұрын
Me too
@hackedstalked6371
3 жыл бұрын
Me too!
@ROBLOX-jq4qo
3 жыл бұрын
me too
@beeboops6845
3 жыл бұрын
Same
@leeannepina2649
3 жыл бұрын
Well done! Mast cell dysfunction before COVID. ( Allergic march) Yes, mast cell activation syndrome is likely occurring in our long haulers. In fact, autopsy have shown mast cell degranuation in patients that passed away.
@brobinson8614
3 жыл бұрын
ME/CFS is a disease that also is predominantly in 2/3rds of women (due to endocrines and cytokines interrupting each other). ME/CFS has links to autoimmunity, especially if it runs in families. My elderly family have had several different autoimmune diseases, eczema and asthma. and I have ME/CFS. Anyway, I think there’s a large subgroup of long haulers who are starting to develop ME/CFS. Especially those getting well into 6, 7, and 8 months (most importantly those who aren’t improving. Those who are improving may still have just Post Viral Fatigue Syndrome which can take up to 2 years to recover from) Clinical signs for ME/CFS to look for include: Post exertional malaise Persistent reported fatigue that substantially reduces activity levels Unrefreshing sleep Muscle and/or joint pain Cognitive disturbances (memory, attention, information processing) Sensory disturbances (photophobia, sound sensitivity) Orthostatic intolerances (inability to tolerate anti-gravity positions) Ongoing flu-like symptoms, sore throat/lymph node swelling -------- It’s not a new phenomenon either, it’s just been largely ignored because patients weren’t believed. However the outbreaks of ME/CFS (which itself is not contagious) happened after viral hits throughout history here’s a report from 1934-1990 of similar outbreaks with similar symptoms ammes.org/outbreaks/
@RUNDMC1
3 жыл бұрын
I’m minded to agree with you.
@getsideways7257
3 жыл бұрын
By "orthostatic intolerances" do you mean difficulties with keeping it horizontal (especially with trying to fall and staying asleep)?
@brobinson8614
3 жыл бұрын
Get Sideways (and @RUN-DMC ) That symptom you mention is more a generally unwell symptom caused by the autonomic nervous system in disarray. That feels awful especially with the heart pumping away. However Orthostatic Intolerance (OI) is a condition that seems to exist in some post viral and more so in ME/CFS sufferers. ‘OI’ is basically the inability to stand or sit upright for long periods. I myself will struggle after about 30 minutes of standing. I become lightheaded and very weak and a sickly sensation. With an overwhelming physiological driven desire to lie down. Often most symptoms reduce after lying down. You still feel sick but nowhere near as bad as standing. It’s not to be confused with POTS (postural orthostatic tachycardia syndrome) although that is very prevalent in a ME/CFS and Long haulers as well. You can have OI without having POTS. There was a recent study found blood flow to the brain was reduced and also both CO2 and oxygen were greatly reduced in ME/CFS patients who were observed in testing www.ncbi.nlm.nih.gov/pmc/articles/PMC7044650/ The Bateman Horne Centre who specialise in post viral illnesses including a ME/CFS recommend wearing compression garments of at least medical grade 3 (don’t sleep with them though), And 10 mg of propranolol which does sounds counterintuitive however if you squeeze the lower part of the body and open up the blood vessels the rest of the body will get better bloodflow. I myself take sildenafil (viagra) 50mg three times a day (helps with brain fog). And wear compression grade 3 stockings and drink Oral Rehydration Salts (The formula that the WHO recommend). www.healthrising.org/blog/2020/09/15/saline-ors-oral-rehydration-pots-chronic-fatigue-syndrome/ I get less brain fog from that combination and can stand much longer, up to 2 hours at a time. Unfortunately doing too much physically and mental exertion still triggers the ‘Post Exertional Malaise’ (PEM) relapses. Which I believe is an autoimmune response to something being released during the metabolic process in order to exercise or exert. Maybe a metabolite that the immune system has mistakenly found an antigen (shape) on it that may resemble an antigen (shape) on COVID-19 (called ‘molecular mimicry’ also called ‘co-reactivity’) Although I see in a subgroup of ME/CFS patients they have found autoantibodies to the beta-adrenergic and muscarinic cholinergic receptors in ME/CFS patients. The last thing we need is anything attacking those receptors because they are fundamental in bodily function www.sciencedirect.com/science/article/pii/S2666354620300727 it’s important to understand the possible worst outcomes of what PEM does to the body. It’s not just a few days of feeling bad. More is actually going on. Dr Nancy Klimas from the Neroimmune Institute discovered very high levels of gene expression from the immune system, sensory system, metabolic pathways and the adrenergic system pathways etc in ME/CFS patients compared to controls after exercise. kzitem.info/news/bejne/13uptourh4B-qIo (Cued to play video of lecture at gene expression from exercise) So my advice is if you have long haul Covid and suffer from ‘Post Exertional Malaise’ is to do very little to avoid activating the immune system. As that’s constantly reminding it that something produced by exercise / exertion is mistakenly seen as a pathogenic threat. The less that’s activated the less it ‘remembers’. And hopefully switches off and your health returns. It’s important to point out that during any infection people’s bodies do have a slight autoimmune attack going on at the same time. Usually when the virus is cleared the immune system settles down and that autoimmune attack also settles down. In powerful pathogenic attacks however, in a small percentage of people, the autoimmune attack continues. So constantly waking it up by exercise or exertion will be a never-ending loop of ill-health. Eventually locking a person into the disease ME/CFS. Something I was never taught about so is unfortunately too late for me. However all that said it’s important to point out that you shouldn’t ‘medically decondition’ either. So very short amounts of light exercise in the form of gentle movements, Some yoga positions are helpful, but not the ones you have to strain or use strength in. Once you’ve established your baseline maximum exertion level that stops triggering the worsening of symptoms (PEM) you’ll know what the maximum you can do is and to keep below it. However do be aware that it’s a ‘fluctuating baseline’ and some days you may not be able to do as much as others. So it’s a constant monitoring game, and remember that immune gene expression is triggered after exercise/ exertion. So best not to exercise daily either. The key is to give the immune system a chance to not keep getting reminded and reactivating from exertion. Even when feeling good you still have to keep below that baseline (very challenging that!!) Due to that ‘fluctuating baseline’ avoid the bogus ‘Graded Exercise Therapy’ as treatment as is a fraudulent design by a bunch of lying psychiatrists. As they took no regard for the immune response. The problem for many people though is that daily living (washing, getting dressed, cooking, etc) is actually still too much exertion so adding exercise to that will take them over their baseline. It’s all catch 22 stuff. My advice is read all you can on ‘Post Exertional Malaise’ Moral of the story ‘Less is more’ Best of luck 😎👍
@alyssalesko7258
3 жыл бұрын
Another thought... I have long suspected that I have an MTHFR gene mutation due to, along with all my other allergies and intollerances, my extreme reaction to folic acid supplementation during pregnancy. I wonder if the mutation could be the missing link between which asthma, hay fever, reumatoid arthritis or other auto-immune disease sufferers have long term covid symptoms.
@waggawaggaful
3 жыл бұрын
I haven't heard you discuss low dose naltrexone yet. It sounds like you'd be the perfect candidate for it too. My doctor just started me on it for continuing inflammation post-Covid. Apparently it is prescribed for autoimmune and chronic fatigue issues as well. I've been researching it non-stop for about a week now. It is a complex and nuanced drug that has paradoxical effects at low doses. One of the things that concerns me about naltrexone is that is inhibits certain cytokines such as IL-6. Inhibiting cytokines may be helpful for Covid but in other cases your body may require a strong cytokine response to certain pathogens. If you google IL-6 inhibition you'll find studies that cite vulnerability to Tuberculosis infection when IL-6 is suppressed. I'm not a doctor, so most of this research is way over my head. I'd love to hear your take on it. Cheers from the U.S.
@teddybearroosevelt1847
Жыл бұрын
I agree. This would be a good new topic. As well as methylene blue and pycnogenol
@santoshingle3989
3 жыл бұрын
Exactly you are on the mark, I am allergic and recovered 2 month before from covid but still suffering from long covid.
@MrDanno180
3 жыл бұрын
You had the flu
@MJR1117
3 жыл бұрын
I'm a covid long hauler. I also have asthma, excema & rheumatoid arthritis.
@theeggtimertictic1136
3 жыл бұрын
Before you got Covid?
@theeggtimertictic1136
3 жыл бұрын
@Martin toutcourte My cousin got Covid in April and went from being very fit and healthy to having uncontrollable heart palpations, breathlessness (just walking to the shower), psoriasis and arthritis ... so yes you can get these in 6 months .
@theeggtimertictic1136
3 жыл бұрын
@Martin toutcourte I'd be skeptical too only I know 2 people with long Covid. I'm so fed up of saying this but here goes ... My cousin is a 45 year old nurse, a very fit and healthy woman who could run a half marathon no problem . She was working on a Covid ward looking after Covid patients in a small rural hospital. All 6 nurses got Covid in April ... only 4 have been able to return to work ... my cousin and another nurse have life changing symptoms for the past 6 months. She got a 'mild' dose for the 2 weeks and managed at home ... she came out of isolation and felt ok for 2 days but then she ended up in hospital for a couple of days with an uncontrollable racing heart (she had to go to hospital again 3 months later with the same thing). She has had the weirdest symptoms for the 6 months and so has her co worker. About 1 in 8 people experience 'Long Covid' to varying degrees of severity. That's why there's a shortage on nurses ... many of them are still not well. This is not all about death and not all about being old. Some of her patients actually got better even though they were old. It's a very weird virus.
@theeggtimertictic1136
3 жыл бұрын
@Martin toutcourte It causes other conditions ... you can even get Type 1 diabetics from Covid ... If you never had it before !
@MJR1117
3 жыл бұрын
@@theeggtimertictic1136 yeah, I had them all pre-covid. It was probably inevitable I would have had some issues by the sounds of it.
@crhodes8245
3 жыл бұрын
One theory is that some people have more mast cells than others and when these get triggered the hyperinflammatory state begins. And that theory seems to imply that it will be difficult to get the system to settle down because there are just too many of these cells. I'm not sure but I think they call this mastocytosis. Another theory is that sufferers have the same amount of mast cells but that they get triggered to release their inflammatory cells and thus you see this immune over-reactivity. As I understand it, it may be possible to get the mast cells to stop degranulating by trying to reduce their triggers.
@janeathome6643
3 жыл бұрын
I've been experiencing more and more neurological symptoms, I think encephalitis. Just last week, I felt like I had a bad concussion for about 36 hours. I was so addled, I didn't even think of calling an ambulance and getting checked out in the ER. I was nauseous, had blurry and double vision, my skull felt heavy and lolling, I had a persistent headache, extreme fatigue, slurring words, inability to mentally focus or recall words, kept falling asleep. I felt like I'd been kicked in the head.
@valek7700
3 жыл бұрын
This sounds bad! I'm so sorry! You should see a doctor.
@o0Avalon0o
3 жыл бұрын
Beautiful work here! I was able to follow along well & it was presented in a way that kept my interest unconsciously. Just subscribed.
@amyserio4600
3 жыл бұрын
I wanted to say thank you so much for your videos. They made me cry in a good way. I have got all the supplements you recommended. Just started yesterday. Almost completed 3 months of terrible long hauler symptoms like crushing fatigue, brain fog and muscle pain. You give us hope. The 3 doctors I have seen act like I am crazy.
@RUNDMC1
3 жыл бұрын
So sorry to hear about this Amy - take it easy, rest as much as you can and best of luck with your recovery.
@KathleenJean53
3 жыл бұрын
For years I have been dealing with chronic Lyme, we have been called long haulers for awhile now. We and other sufferers of chronic conditions have been ignored or dismissed. I am hoping that all this attention on Covid long haulers will help us out also as we have THESE SAME EXACT SYMPTOMS which have greatly reduced our quality of life. The fatigue, headaches, brain fog, tinnitus, muscle twitching, body wide pain, etc are what the Covid long haulers are experiencing and we know so well.
@RUNDMC1
3 жыл бұрын
So sorry to hear that Kathleen
@joannabroomfield9636
3 жыл бұрын
Thank you so much for your continued efforts. Your video is hugely insightful and thought provoking as always.
@RUNDMC1
3 жыл бұрын
Thank you Joanna!
@sampipitone5939
2 жыл бұрын
I admire your passion for what you are doing. You are giving a huge amount of information and data in a short span of time.. I do find it funny watching your eyes blink in tandome with you pronouncing words. The longer words are the best. You are a great filter of information. I appreciate your work.
@daviddiehl197
3 жыл бұрын
Some of us just don't get sick, EVER.
@globalcaregivertv8994
3 жыл бұрын
Lol Great !
@HalfB
3 жыл бұрын
That’s great to hear! Can I assume you’re under 30 years old? The guy in the video is a marathon runner who was in the best shape of his life.... that’s notable and part of the point of learning about this virus and it’s effects. People who are Young, healthy and with no co -morbidities are getting ill and have long haul health issues. All my best to ya✌️
@No-nl8jn
3 жыл бұрын
I ONLY have about 2 days a year being sick. I am female, 45 year, non smoking, traning 2 times a week, not eating suger or white bread, eat Greens, eegs and meat, I have blod type 0 and do a lot of meditation and praying, THINK POSITIV AND CLEAN, is my Best service.
@continuouslylearning6152
3 жыл бұрын
I said that. A week before getting violently sick with covid.
@daviddiehl197
3 жыл бұрын
@@continuouslylearning6152 Haven't been sick in 40 years. Tested twice, my immune system attacked the tests. I heal quick also, ran my thumb threw the table saw. It was sealed before the ER could look at it. Also don't feel pain when bones break. Unfortunately now it is burning out my body.
@pmsavenger
3 жыл бұрын
I'm a long hauler, I'm 36, and I have both asthma, atopic exema and hay-fever, although the latter have been pretty inactive for the past ten years. Suffice to say, it's less inactive now, but the most difference was with my asthma that went from manageable to severe.
@katzzz3355
3 жыл бұрын
This sounds like exactly what happened to me. I have asthma and am prone to hay fever. I got Covid in the middle of March and I’m still not entirely well. I was out of commission completely for five months.
@continuouslylearning6152
3 жыл бұрын
Same. Never had any known issues. Got violently ill in March. Jan now and STILL HAVING massive issues. Night time breathing issues, random sudden involuntary breaths, reddish eyes with pressure.. I mean it just wont end. Cardiovascular issues now. Lung damage clearly. Im only 35. This thing is so strange. But I WILL see wellness again.
@BartokAndras
3 жыл бұрын
@@continuouslylearning6152 Keep it up, you will come back strong
@continuouslylearning6152
3 жыл бұрын
@@BartokAndras thank you man
@nicolajknott
3 жыл бұрын
I’m hypothyroid and have wondered if this was a factor. Also prone to stress eczema and mild hay fever though 🤔 Another great film 👍
@lwaters3100
3 жыл бұрын
NO. I'm hypothryoid, over 65 AND on disability. But I eat organic, do HOLISTIC therapies & exercise every day, refuse to wear a mask, shake hands with everyone who will for the last YEAR & am healthier than most people in the US
@lyndaturner3592
3 жыл бұрын
My son who is now just 40 had covid in March , he was fit slim and has no asthma or any respiratory or arthritic conditions. He had however a few years ago had Glandular fever. He is also lactose intolerant. He has suffered from fatigue , headaches , brain fog and aches and pains since the infection and to the present date. Hope this adds some information to your research .
@RUNDMC1
3 жыл бұрын
Thank you Lynda. Best of luck to your son in his recovery.
@signsofbias9640
3 жыл бұрын
Your son is probably deficient in vitamin D, he should try introducing organ meats into his diet, expecially in winter.
@lyndaturner3592
3 жыл бұрын
Signs Of Bias . You are spot on , he is now taking vitamin D as are we all , as I had found some research advising that. Thank you
@jedilegoarts9882
3 жыл бұрын
I have Hashimotos which is an autoimmune disease.... I have felt very ill for a over decade due to this illness. Why is it never mentioned when people talk about autoimmune diseases? It really upsets me. Like its a non illness. I'm in my 40s. I'm a secondary school teacher. I'm screwed.
@micheleantonello3187
3 жыл бұрын
Same here. Hashimoto's is never mentioned or included with autoimmune disorders, yet it is so debilitating. I have Hashi's and possibly had covid last March. I was very ill for weeks, and lethargic and depressed for months.
@kimicatt
3 жыл бұрын
Long hauler here. AB+ 49 years old I have RA . I have had this virus for 58 days and still have a fever. I’m not getting better and now I have unexplained uterine bleeding.
@vaguemartin
3 жыл бұрын
I think psoriasis should be included in this as well. I’m almost certain this has contributed to why I am still unable to walk far without getting out of breath, a month after contracting Covid.
@RUNDMC1
3 жыл бұрын
Yes I would include psoriasis too
@cantfiindquin
3 жыл бұрын
How are you doing now? experiencing the same
@marlylove9994
2 жыл бұрын
I have both psoriasis and hypothyroid.
@LauraKWeld-bz4dt
3 жыл бұрын
I'm a type 1 diabetic with long covid. It makes perfect sense to me that my overreactive/haywire immune system is the root cause of how I've responded to the virus.
@lisamelnychuk8674
3 жыл бұрын
Thank you so much for your tireless research! Been a fan since day one.
@RUNDMC1
3 жыл бұрын
Thank you Lisa! I hope the films have made some small difference :)
@lisamelnychuk8674
3 жыл бұрын
@@RUNDMC1 they certainly have! I am struck by your devotion. I'm an exposed healthcare worker near New York City. Got sick March 4th, tested negative for COVID19, no antibodies. Been unwell since. Left my job. You have been so great exposing research, evidence, etc. Sending healthy vibes!!!
@RUNDMC1
3 жыл бұрын
Lisa Melnychuk wow - I’m sorry to hear that Lisa. Best of luck with your recovery :)
@lisamelnychuk8674
3 жыл бұрын
Same to you!!!
@wewemcrhyne
3 жыл бұрын
I live in the US. My daughters and I have had COVID 19 twice. My husband (52 years old) died the first time we had it. My oldest daughter is 20 years old with severe sinus allergies that required allergy shots for 4 1/2 years. She also has eczema. She also has arthritis in her knees. She has had extreme fatigue and heart racing since the first time we had it. I took her to her regular doctor, then her rheumatologist who did bloodwork that showed she was slightly anemic. Then the doctor did nothing. I didn’t know about long Covid then. I’ve been giving her iron since then, her doctor didn’t even tell me her iron was low. I’m going to make an appointment again and find out what I can do for her.
@mattizzle81
3 жыл бұрын
Asthma, check. Eczema check. Lord help me lol
@nosuchthing8
3 жыл бұрын
Get the vaccine
@nosuchthing8
3 жыл бұрын
@Sunny Days yes I'm double dosed thank GOD.
@nosuchthing8
3 жыл бұрын
@Sunny Days thanks. Hope you are not trolling me.
@mattizzle81
3 жыл бұрын
@@nosuchthing8 Already booked 😘
@signsofbias9640
3 жыл бұрын
Most if not all viral and bacterial infections can leave people with lasting side effects and symptoms, we just haven't talked about it till now. I wonder why?
@Pacdoc-oz
3 жыл бұрын
In the over 50 years I have been a doctor we HAVE been talking about these things and spending millions on research about them.
@signsofbias9640
3 жыл бұрын
@@Pacdoc-oz Great, I salute your effort, but why have long lasting or chronic side effects of viral infections not been talked about on mainstream outlets until now?
@JeffreyWillis800
3 жыл бұрын
If I understand correctly, if we have asthma or eczema we are in big trouble of we catch covid and enjoy life?
@jessicah3450
3 жыл бұрын
Asthma+Covid sucks but you can still enjoy life.
@tonkysue207
3 жыл бұрын
Must be so hard for you all.great information.
@RUNDMC1
3 жыл бұрын
Thanks Sue!
@katharina6865
3 жыл бұрын
Have you considered heavy metal poisons(Mercury) from Amalgam fillings, which are still common in old and middle age people; and cause plenty of problems with the immun system?
@MadWolfMike
3 жыл бұрын
Thank You for Your Excellent Work Here! Your hard work is very helpful and very much appreciated.
@BedboundME
3 жыл бұрын
Hypothalamus & immune dysfunction has already been implicated in #mecfs. But we had no research funding so despite thirty years passing we are in a hardly more advanced state than longcovid is after eight months. I’m impressed at the research that you as one individual are doing. interesting to see how many had had post viral fatigue in the past because I’ve noticed several people saying that. I personally would argue having that susceptibility would lay an individual vulnerable to getting #mecfs after any infection whether covid, mumps, or swine flu. I still think the overlap or even sameness with #mecfs is undeniable and it’s unfortunate, especially with your described symptoms almost from an ME textbook , that you omit any mention of it again but I don’t really blame you from appearing to trying not to mention #mecfs given how we have been treated and there really is so little research to compare with. There has been some #mecfs research that suggested, i don’t know whether it was an immune or genetics study, that the closest illness to #mecfs was systemic inflammatory syndrome which ties in with what you say. But the whole immunology/ inflammation side of ME has been hugely under researched, scandalously when you consider that the ME population was pushed into graded exercise.
@RUNDMC1
3 жыл бұрын
Hi there. I’ve not mentioned ME/CFS in this film but I have done in several of my previous ones. I think the ‘engine’ of disease is exactly the same in the majority of cases in both - but Long Covid does seem to have some confounding factors (such as organ damage) that means there’s some points of difference too. We basically do just need more research - into both!
@DocHoliday596
3 жыл бұрын
I wouldn't be so quick to diagnose thousands of people with an incurable disease.Many people are already getting better or cured.I am really sorry about cfs suffers i truly am.But the vast majority of people with post viral fatigue get over it.CFS remains a very rare and heterogenous condition.We are chronic covid sufferers.Not cfs sufferers.We at least have a unified cause.CFS doesn't.Don't try to take this away from us.The condition is very similar and research will surely lead to answers for both conditions.CFS sufferers should be happy and hopeful about that you don't have to tell us how much we will suffer like you for years to come because you simply don't know that.Even cfs experts don't know what causes predicts or consists cfs.So a sufferer is definetely not qualified to make a propable diagnosis.I wish you the best.We are truly in this together.But we are definetely not the same.
@Parianparlay
3 жыл бұрын
@@RUNDMC1 Thank your so much for all your research. I have had M.E. For 31 years, gradually slowly getting worse not better alas. I have watched the videos on Long COVID and seen that the symptoms described appear to be similar, and have been heartened that the medical profession are taking great interest and preparing to help as much as possible. Heartened because we as M.E. sufferers have spent all those years consistently having to justify our symptoms and be taken seriously. So no ...we would never wish to, as a previous comment mentions to ‘take away’ or distract from Long COVID symptoms we more than anybody understand just how difficult day to day life becomes. I for one just pray that now Long COVID has been recognised and is being treated respectfully, then maybe more will be done to also help all the many thousands of M.E. sufferers.
@multicrogamer
3 жыл бұрын
@@DocHoliday596 At least do to this Covid crisis more funding is going into immune disorders and hopefully we might find mechanism of CFS since it seems linked to immonulogical disorder at least in my view. I am physics student, day 12 of COVID-19 but i have everything ready for long covid. In some ways this is lucky for few people with CFS cause their disorder might get some advancment. For this 6 days life is terrible and i am already suicidal. I can't imagine suffering CFS patients endure.
@whisperingsage
3 жыл бұрын
I never had autoimmune diseases before now. Never had hayfever, any of the stuff he described. I'm a year now still struggling to get well.
@NinJahBaeLLC
3 жыл бұрын
Same here... 😒
@jsull6430
3 жыл бұрын
Thanks for the video, there aren't many on this topic that I have seen
@JePeVePe
3 жыл бұрын
If hyperactiv immune system could be 'a' reason, wouldn't this be a risk with a vaccin also? Since, it reacts the same way almost as if a virus is in the body. Would be interesting to see if people that got vaccinated, have such symptoms?
@RUNDMC1
3 жыл бұрын
Watch my films on vaccine reactions I made more recently!
@donttakethemark65
3 жыл бұрын
You are on to something. Our long covid group had many with RA or EDS, etc. I have hEDS, have a positive speckled ANA (but no other lupus or RA markers), and have not had a flu or cold in at least a decade (also never take the flu shot). Not getting sick from viruses is also a common asymptom of MS (which I don't have, just pointing out another autoimmune parallel). Note: I started lysine this week (boosts collagen and fights herpes, another neurotropic virus), and my long covid symptoms improved as well as my cerebellar tremor, which has worsening during covid. I believe I am part of your recent cohort.
@donttakethemark65
3 жыл бұрын
Fyi, I'm taking 1000mg lysine 3x/day.
@donttakethemark65
3 жыл бұрын
Thought of one more data point--I test positive for chicken pox (varicella, another herpes virus) titre but my mother says I never had it, and I did have mumps and German measles (as well as five MMR vaccines by age 25).
@carolenmarch-williams7417
3 жыл бұрын
Please can you send link for EDS as increased risk for Covid Long Haul, as l am also diagnosed as EDSh / JHSSD. Interested to know how a collage disorder could affect immunity, thanks.
@donttakethemark65
3 жыл бұрын
@@carolenmarch-williams7417 I wish there was a link! Someone should do a study.
@carolenmarch7445
3 жыл бұрын
@@donttakethemark65 Thanks! I'll do some research then. I'll be having an appointment to genetically profile my exact EDS ( but they think it's JH ..... in which case they won't be interested in me !) I shall ask about any research into EDS and autoimmunity and get back to you if I find out anything interesting.
@thel9262
3 жыл бұрын
Thanks for sharing your findings. Best explanation I came across so far. I caught Covid in March and still suffer from several "Long Covid" symptoms. I had an autoimmune disease already prior to the infection (Psoriasis, Inflamation, Asthma in childhood). Much thanks.
@RUNDMC1
3 жыл бұрын
Best of luck with your recovery!
@jojosmojoco2235
3 жыл бұрын
I already had moderate ME/CFS and became severe after getting Covid even though I did not have major respiratory symptoms only SOB. Almost a year later I am still using a wheelchair and entirely dependent on others to be able to go out a couple of times a week. The focus was all on acute Covid back in March 2020 and the ME/CFS community was not included in shielding - I sheilded anyway but likely caught from step son who had been at senior school. This information REaLLY needs to be in the mainstream press.
@RUNDMC1
3 жыл бұрын
It really does. Sorry to hear you’re struggling so badly.
@Z-Boi456
3 жыл бұрын
Well this confirms my fear. I have excema on my hands, have it come and go seasonally, and long covid is presenting itself as an autoimmune disease. Like tinnitus that comes and goes, fatigue that gets better randomly, pots symptoms that come and go. Just dammit, can't believe all this.
@platos9054
3 жыл бұрын
"My fatigue gets better randomly", same here. And the most frustrating part of all this is that people think I'm making it up. Like a hypochondriac.
@nicholasroberts6954
3 жыл бұрын
I'm a recovering Lymphoma patient (DLBC, surgery + R-CHOP chemo) five years on. Just before xmas 2019 I underwent corrective surgery, at my local DGH, on the site of the original disease process, my abdomen. The surgery was successful but, 4-5 days after discharge from hospital , I developed what I assume to be a Hospital Acquired Infection. This had most of the symptoms of COVID - 19, 24-hour dry cough for 4 -5 days, accompanied by diahorrea, fatigue, random chills and hots (But no high temperature, only slightly sub-normal) and, after a week, drenching night sweats started, every night, which persisted, gradually ramping down until they stopped in the second week in February. This was then followed by a mild-form of long-COVID for six months, where I got a milder repetition of the symptoms + other new symptoms, e.g. a measles type rash on both wrists, sensation of stickness on the inside of the arms, vascular twinges similar to clotting (I'm also a stented cardiac patient, so am fully aware what clotting feels like) and these usually occurred, without fail in the first two weeks of each month. This was so clearly significant (To me) that I reported it on the King's College Database. The symptoms suffered in December to February were so severe that I called-in my GP for a home visit and blood-tests revealed that the inflammatory marker LactoDeHydrogenase was about 20% above the normal top limit in mid-January, returning to normal range by early February. This worried me as high LDH is symptomatic of Lymphoma but because the high LDH value was below the normal 3-5 times the normal upper limit of LDH experienced when Lymphoma is present, my GP took no further action, assuming it was a viral infection, and the second blood test result sort of confirmed this. Strangely, GP didn't order a bacterial test, which I would have thought would have been the obvious thing to do with a post surgical HAI. What I think is of significance here, is that during the high period of my HAI infection (i.e. December to February), the reactive Supraclavicular lymph nodes (Autoimmune condition, where immune system incorrectly codes certain tissues as foreign and attacks them) that had been going up and down like Tower Bridge since 2017 (My chemo in 2015) went into effective hybernation and shrank back to normal. And then after the main part of the HAI retreated in February, the supraclavicular lymph nodes woke-up and started being Reactive again. A subsequent PCR test for COVID-19 undertaken before another hospital procedure (Endoscopy) in September showed clear. Subsequent CT/PET scans (The gold standard for detecting Lymphoma), Endoscopy and colonography at the site of the original disease process and ultrasound of the supraclavicular lymph nodes all showed all showed negative for Lymphoma. As its unlikely that a bacterial HAI would endure for 6 months without serious side effects and complications, it seems likely to me that the cause was viral. This virus , whatever it was, sent part of my immune system into overdrive (High LDH) and another part into shutdown. Duh ! I noted at the time of first infection that PHE website, on its influenza page, was showing an unnamed virus which is first recorded in week 42 2019, peaks just before xmas, apparently plunges and disappears by week 3 in January 2020. What winter virus behaves like this ? Was in fact this the real first wave of COVID which HMG suppressed public knowledge of until the weight of reporting from other countries around the World couldn't be ignored or suppressed any longer ? Looking at the COVID-19 infection figures in the USA recently shown on Dr Campbell's podcasts, it was evident that the R factor varied in a consistent way between the cold northern states and the warmer southern states, warmer states having a lesser R factor. I posed the question whether this variation was in-line with the distribution of cold agglutinin disease, another autoimmune condition (I suffer from Raynaud's) Whilst normal cold agglutinn disease doesn't have the incidence of COVID-19 ( 1 in 35,000 to 80,000) I speculated whether prior mass influenza innoculation could have induced a CAD like disability leaving populations open to COVID-19 infection. If that's the case a RNA vaccine won't cut the mustard as its missing vital information component from the innate immune system - something that only a deactivated or attentuation innoculation could supply. How off-kilter am I ? I'm not an anti-vaxxer, had my flu jab in October.
@jamesbonde4470
3 жыл бұрын
I used to get 2 colds and one flu every single year that I can remember. The year that I took the flu shot was the worst. I spent 3 weeks, flat on my back and I was only 40 years old. Nearly lost my job. I retired at 50 and haven't had a single case of a cold or flu ever since. Explain that. And don't give me the bull that I'm not mingling so much with the general public, because I started my own business, as a fruit and vegetable vendor of the organic variety. Not only did I sell organic, foods, but I ate them as well.
@MrToontuber
3 жыл бұрын
Its profen that organic food cranks up the immuum system.
@paulscottfilms
3 жыл бұрын
So learn your lesson, keep away from these WHO zombies and their RNA vaccines
@boxerdogmum583
3 жыл бұрын
At last! Thank you for this. I’m atopic and now have POTS and MCAS following Covid.
@Shanchelle
3 жыл бұрын
Those are often associated with toxic mold exposure, perhaps the CV was the straw that broke the camels back so to speak.
@qaphqa
3 жыл бұрын
Very clear and helpful - thank you!
@RUNDMC1
3 жыл бұрын
No worries SL!
@andreafigueroa1581
3 жыл бұрын
Is High WBC from virus? How do you check the hypothalamus? I'm thinking the loss of taste that's been for a few months has something to do with the Thyroid and Hypothalamus?
@Pacdoc-oz
3 жыл бұрын
Lots of what we call taste is smell; the virus gets in the nose where there is olfactory tissue nerves which are only millimetres from the base of the brain and connect directly through little holes in the skull.
@cameronidk2
3 жыл бұрын
Thank you for your hard work !
@Daniea3
3 жыл бұрын
I'm a semi-long hauler who developed myopericarditis with mild-moderate Covid. I have "non specific" autoimmune disease and multiple chemical sensitivity. The chemical sensitivity has gotten SO much worst now. Being in my apartment makes me sick as people living under me use scented fabric softener. It didn't make me this sick pre-Covid.
@creatingwithangie1111
3 жыл бұрын
I appreciate the time you put into this information, this made sense. Your work, along side Dr. Tina has helped me understand how to take charge of what has been happening to me. Appreciate you 😊
@RUNDMC1
3 жыл бұрын
It’s a pleasure - I’m glad it’s helped!
@astrocatcity
3 жыл бұрын
Your formulas are showing! :-) Thank you for another excellent, informative and very clearly conveyed set of findings. I really hope some grad students find their way here - lots of great areas of potential research.
@RUNDMC1
3 жыл бұрын
Thank you Catherine! And yes, I meant to flash my formulas 🤣
@redmcclaff
3 жыл бұрын
Me, my brother, 2 of his kids, my daughter, all living along away from each other devoloped tiredness and spots throughout our bodies, in April at roughly the same time, yeah people in my household had the classic, Temperature, cough, etc, me just the above, though they recovered the classic type Im still like that, tired and spots, but what I found out not eating sugar and Bread, instead eating lots of raw greens, apples Celery, my spots started going away I do balance my fat and Protein too, more like keto. Diet. I'm only one week in. My theory is I was already immune system compromised and down to lifestyle, and my body now is doing less work balancing itself. But im amazed at my spots some like cysts, going away after only one week. I'm doing exercise every 3 days due to the fact I'm taking longer to recover. I do the Wim Hof Breathing aswell. Hopefully someone can benefit from my experience.
@Luci_loves_Bangtan
3 жыл бұрын
I got Covid right before Christmas, so I just got out of quarantine like a week ago. Not sure how long my symptoms will last, but at the moment I’m dealing with brain fog, fatigue, vertigo, occasional tunnel vision, headaches, I still can’t smell, nothing tastes good anymore, and I now have hand tremors. My only pre-existing condition was very manageable asthma. I was terrified when I tested positive. I got very lucky that I had mild symptoms throughout. But it was definitely scary.
@RUNDMC1
3 жыл бұрын
Hi Samantha, I recommend you watch my most recent video for tips on how to deal with these symptoms!
@Medjugoriemiss
3 жыл бұрын
Thank you for taking the time to research the condition. It explains why I am likely to have developed long Covid.
@RUNDMC1
3 жыл бұрын
My pleasure. Best of luck with your recovery.
@longcovidkids
3 жыл бұрын
Thanks for this, just listening in really interesting, this fits with many parents and children in our group.
@Abdega
3 жыл бұрын
Cousin had COVID, she said she’s mostly recovered except when she takes a full, deep breath her lungs spasm a bit so that kinda worries her
@stressfree9780
3 жыл бұрын
Shes got chronic Lung disease now- rest of her life will be worse
@SongofaBeach2012
3 жыл бұрын
Her phrenic nerve leading to her diaphragm may have been affected by the virus. She could get checked by a respiratory therapist or pulmonologist but many long haulers have had lingering symptoms that have now resolved. It just takes time to heal. I hope your cousin continues to recover
@Officialcbr
3 жыл бұрын
This happened to people I know with Influenza. Covid-19 has just got a spotlight on it atm
@gurpchirp
3 жыл бұрын
10-20% flu patients don't develop 'long flu', though. SARS1, EBV, CMV, coxsackie B, ebola, etc... these are less sanguine comparisons.
@@gurpchirp where is this 10-20percent number from?
@gurpchirp
3 жыл бұрын
@@Officialcbr before i put in the effort, are you skeptical of the survey data* that indicates 10-20% of covid patients are still suffering symptoms months after infection? we have to wait for peer-reviewed papers considering this is condition is literally 8 months old, but they are definitely on their way. there is also data that nearly 78% of all infected (asymptomatic included) have myocarditis (swelling) and/or lasting heart damagewww.scientificamerican.com/article/covid-19-can-wreck-your-heart-even-if-you-havent-had-any-symptoms/ : survey data* isn't the tightest methodology, but, again, this is a brand new & the peer-reviewed data is forthcoming. this data is imperfect as it deals with italian hospital patients only, but simple extrapolation will tell you that we should worry about this condition and the numbers look *awful* jamanetwork.com/journals/jama/fullarticle/2771111
@celiad6012
3 жыл бұрын
I had mild Covid19 in March, with some after effects lasting 12 weeks - covid toes, skin rashes, middle ear inflammation. Skin rashes occurred on sites where I had previously used (prescribed) Aldara cream to treat actinic keratosis, suggesting auto-immune interference is happening. I also have some arthritis and atopic eczema in the past.
@tracik1277
3 жыл бұрын
Celia D Hello, please tell me about the symptom of COVID toes?
@celiad6012
3 жыл бұрын
@@tracik1277 It is a blister/rash on the toes, looks like chilblains, and is an inflammatory response to SARS-CoV-2 virus. The toes look red, sometimes swollen and purple later on. It seems to be a more common long Covid symptom in young adults.
@tracik1277
3 жыл бұрын
@@celiad6012 Thanks. I asked because I had a really weird thing in beginning of April before I knew anything about the covid toe thing where most of my toes felt like chilblains, maybe a bit red/itchy, lasted two or three weeks, hasn't come back. I couldn't explain it to myself other than putting it down to not moving around much, but I've had many bouts of not being very mobile/long time on bed rest for years due to scoliosis. I didn't have noticeable other symptoms, but then I get asthma from cat allergy regularly and hot flashes from menopause daily so perhaps I didn't notice? I haven't had actual chilblains since a teenager (30 years ago).
@celiad6012
3 жыл бұрын
@@tracik1277 I thought I had chilblains at first (for the first time), but the weather was warm enough for sandals, so that was unlikely. I did not see a doctor because there is nothing they can do and not much was known about all the symptoms then.
@world-of-susan.
3 жыл бұрын
After viral fever in 2015, I had fatigue, stiffness in joints and pain. I went to an Ayurvedic hospital and got treatment there. Dhara, Kizhi and Kashaayam. The physical treatment was for 10 days. Medicines for a month. The doctor said that the immune system is attacking my tissues. I felt better by the third day and recovered very fast. I got better in a month or so. Ayurveda has immunomodulators. May be these are plant steroids. I wish someone with long Covid would try treatment at one of the old Ayurvedic hospitals in Kerala. They should select only the authentic well reputed ones.
@juliegill9322
3 жыл бұрын
Wealth of info! Thank you!
@RUNDMC1
3 жыл бұрын
Thanks Julie!
@victoriahouse9969
3 жыл бұрын
Asthmatic 40 years. Hayfever sometimes. Right age group. Right blood type. 1st infection March 2020. 2nd infection December 2020. I knew a week before Lock Down I would be at risk. I didn't need anyone tell me that. 11 months later from 1st time still getting symptoms.
@victoriahouse9969
3 жыл бұрын
I've had 17 symptoms so far.
@victoriahouse9969
3 жыл бұрын
I'm now taking Vitamin D, Folic Acid and antihistamine tablets. Given new inhaler.
@sp4rtavus244
3 жыл бұрын
That’s good information right there.
@davotravel
3 жыл бұрын
I have been living with a terminal condition since 1970....it's a struggle and I don't expect to survive, but I live each day fully with spirit and refuse to be locked up
@loveinautumn3978
3 жыл бұрын
Don't give up
@crazydaizy915
3 жыл бұрын
You mean chronic? Terminal for 50 years sounds like a misdiagnosis? Now some disease drastically shorten a life span, maybe that's what you mean by this statement? Either way it's wonderful you're still with us regardless! Just found the comment curious.💜🙏
@Pacdoc-oz
3 жыл бұрын
well, I have had a terminal condition for 77 years and not yet dead. It is called life. You are right, you will not survive and neither will I.
@sampipitone5939
2 жыл бұрын
Very informative and you are very well connected in your studies between a and b and its outcome. But are you aware your eyes are blinking a great deal and often not at the same time?
@deeandrews7051
3 жыл бұрын
Don't most hayfever and allergic people use cortiscosteroid nasal sprays, like Flonase which lower inflammation in your nose, and wouldn't this affect whether you get the virus or not?
@ginamitembe8935
3 жыл бұрын
Thank you for this important, informative article!! Hopefully the cure will come soon!!
@texasslingleadsomtingwong8751
3 жыл бұрын
I'm 40 year d male with psoriasis arthritis. I suffered pretty badly with illness (2 weeks after first symptoms) . Recovery , 4 months later is not good but getting better . Diziness. Loss of concentration, poor memory , dropping objects . Other symptoms as well .
@stefanomariani227
3 жыл бұрын
try reading some of Joe Dispenza's books and courses they could be very useful in this particular situation! Wish all of you suffering from it a fast recovery
@sarethums
3 жыл бұрын
I had covid on the 15th of nov. By the 8th of dec I was back training in the gym at full pelt but as of the 20/12/20 I have a heavy cold that wont shift. Ive not had a cold for years (although I do get really bad flus pretty much every year). Im concerned this is long covid. Can long covid have 2 weeks of symptoms, full recovery for a week or so and then hit you? Or is it all in 1 go?
@RUNDMC1
3 жыл бұрын
Yes - you can seemingly recover from covid, go on to be ok then long covid hits you hard - often triggered by hard exercise or activity. How bad is your fatigue at the moment?
@sarethums
3 жыл бұрын
@@RUNDMC1 I have no fatigue whatsoever. My current symptoms are typical cold, stuffy nose, flem, sore head, slight brain fog and a sore throat but that has gone now. This morning felt the worst tbh on day 5 of this cold. Ill see what tomorrow brings.
@jeanr6948
3 жыл бұрын
This is so interesting. And worrying for those who get Covid. I am 68. I have had chronic bronchitis since age 2 or 3 or earlier [early 1950s] with chest infections regularly each year. Childhood and adulthood a daily struggle, chronic fevers, rheumatism, weakness. Suddenly diagnosed with severe M.E. CFS fibro some 10 plus years ago! But had a lifetime of symptoms!
@feketeagnes
3 жыл бұрын
How many of the long haulers got the flu shot?
@isabella6206
3 жыл бұрын
Yes I would be very interested to know.
@neuromancer5703
3 жыл бұрын
@@isabella6206 Notice the conspicuous absence of addressing this MORE THAN OBVIOUS correlation of this subject. Whenever it is brought up with these guys, they invariably avoid the debate or summarily dismiss it a if you were suggesting the earth is flat! One need only investigate the subject of antibody immune enhancement to quickly see the pathophysiology of this mechanism. Yes, there has already been research and direct correlation with shots. This was the primary reason that there has been ZERO success with developing v@xines for coronaviruses for the past twenty years. Don’t worry though, these massively rushed new ones with no real placebo or long term safety testing should do the trick!
@carollarock4496
3 жыл бұрын
Excellent, & much needed research. It is certainly groundbreaking for a new avenue of research, especially in keeping the long-haul debilitating character of this infectious viral-disease in the forefront over time. And that is just it.... what kind of "time" is really in question, here???
@Devdev-zh7ic
3 жыл бұрын
What are your thoughts on vitiligo and long covid? I imagine very rare representation, but like eczema it’s an autoimmune skin condition.
@claudiamiller7730
3 жыл бұрын
This is such great information...thank you for your detailed research to compile it! At age 70, my doctor STILL does very little to address my constant complaints of breathing issues...plus a youthful exposure to TB doesn’t seem to raise any red flags?? Time to find a pulmonologist on my own, I guess.....need to protect myself from COVID as much as is humanly possible!
@RUNDMC1
3 жыл бұрын
Yes be careful out there Claudia!
@baldeepbirak
3 жыл бұрын
Great study
@amandadavies..
Жыл бұрын
I have had hay fever since the early 1980s, severe until about 5 years ago. If I've had Covid I was not aware of it.
@xiao-rongpeng9804
3 жыл бұрын
This might explain the efficacy seen with cortisone treatment for Covid patients
@da1stamericus
3 жыл бұрын
Long hauler here. I always had loads of allergies as a kid. Now I have hay fever. I had no other preexisting diseases. I am still getting out of it. It's getting better, but I still cough up a load of phlegm daily.
@rachello6655
3 жыл бұрын
Ah crap, I have asthma, eczema and hay fever. I work out a lot and go on runs etc and am literally a teenager so I hope I’ll be okay :c
@Jeremy_810
3 жыл бұрын
You'll be fine. There is direct correlation with age. The statistics are publicly available. I have an overactive immune system, eczema, seasonal allergies, overweight, 42 years old, and I smoke. I got it last weekend. I was tired one day, then barely a head cold the next day and it was gone that evening. I feel great.
@k8eekatt
3 жыл бұрын
All the best to you! 🍀
@rachello6655
3 жыл бұрын
@@Jeremy_810 ok thanks👍
@rachello6655
3 жыл бұрын
@@k8eekatt thank you x
@katea5590
3 жыл бұрын
It's called Chronic Fatigue Syndrome and yes, this name is ludicrous for such a debilitating and long term syndrome, which typically arises after a viral infection such as EBV or COVID. And I hate to tell you only about 5 pct actually recover, 25 pct are bedbound or housebound and over 50 pct are unable to work. Reading, conversation, learning, thinking are just as devastated as running, dancing, cooking, driving, etc.
@elizabethpatterson1776
3 жыл бұрын
An autoimmune connection with long Covid is not surprising. In my own experience, I wondered if my persistent symptoms were a flare, and my doctor checked my autoantibodies. The levels were better than two years ago; I was not having a flare. (I have had a flare in the past and there is nothing to do except wait it out.) She instead addressed my persistent issues as a virus that had not cleared my system and added supplements that would strengthen my immune system. After two months, I have more good days than bad days, but still have frequent headaches, poor concentration and poor endurance. Definitely not back to my previous level of activity, but any improvement is welcome.
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