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@KyrilPG
7 ай бұрын
Anything that can reduce suffering is good, even if it's a Truman Show environment. I've had personal experience with this difficult question : A long time ago, one of my friend's mother had severe and fast progressing early onset Alzeimer and was in a care home. We regularly visited her, she took me for her late husband almost every time, and in agreement with my friend I went along with it. Even carrying a piece of cloth with me that had her late husband's perfume on it. She'd spend an hour or two holding my hand and and chatting about stuff, remembering certain moments, like couples do. With her son we'd find coherent stories for when we had to leave and to justify our absence. She was happy amd calmed to have those moments and the clinic staff thought it was very positive and helped her remain calm, serene and focused. However, my friend's sister was absolutely opposed to this, she insisted on systematically reminding her mother that she was a widow, because she thought it was horrible to play along her dementia's alternative reality. She felt like it was betraying her mother to let her take comfort in what she considered a lie. The mother cried and was agitated and stressed, after each if her daughter's visits. The daughter started to be angry against us, accusing us to be the reason for the state of her mother. What's the point of forcing someone's back into a harsh and painful reality? Will it slow the dementia from progressing? No.... Even the clinic's staff couldn't convince the sister that playing the part along her mother's alternate reality wouldn't hurt her at all and on the contrary would appease her. Sadly it went quite far with the sister even trying to sue her brother to prevent him from coming to the clinic to see his mother... The mother passed away peacefully the night after one of our visits. She seemed happy and serene on her last night. So I'm all for those villages. I'm just a bit unsure about the grouping by type of people. Curiosity and otherness are still important for people with dementia and seeing, meeting, interacting and living with people that are different can be enriching. For myself, I'd prefer to speed up my departure and choose on my own terms when I've exceeded my time. In all cases, needless suffering should always be avoided. Strapping people to bed is not acceptable. Forcing people to live in terrible conditions is awful. If they can have a pleasant life, even if it's a complete show, that's fine. The thing is to let people with the most choices possible. So, it's a conversation everyone should have with their loved ones, and regularly updated. What do you want? What you don't want? And what do you find acceptable or not for you? One thing to be careful to : not reproducing the same social constraints and "shackles" in these villages. People should feel as free as possible to be themselves, even in alternate realities.
@MindTheMap
7 ай бұрын
Thank you, that is an incredible story. And it seems to always be the key conflict with Dementia: Does Truth or Peace matter more? This is right here is what I thought was most valuable about your comment though: "So, it's a conversation everyone should have with their loved ones, and regularly updated. What do you want? What you don't want? And what do you find acceptable or not for you?" - I could not agree more.
@KyrilPG
7 ай бұрын
@@MindTheMap Though truth becomes a relative concept with altered or different minds. Their experience at the moment they live it is the only truth they know, it's very real and meaningful to them. I'd say the question is more between our reality and theirs. Why deprive them of these moments of happiness just for the sake of our harsh reality and "a" truth they'll never go back to. We tell stories and fairytales to kids to better cope with reality. Why not do the same with the ones that need it. They're most of the time reliving moments and eras that are long gone. It's not disrespectful, there's absolutely no deception or ill will, quite the opposite. Whatever pleases and appeases the person and fits their alternate reality is fine. I've seen people much more happy and serene that way. Why force a reality that's painful? Their well-being, serenity and happiness is more important than our philosophical questions. Yup, way too many people never really talk about end of life, organ donation, altered state of mind, directives, etc. with their loved ones. Or much too late.
@alfonsrasmus4710
7 ай бұрын
While I do understand the criticism, I still think this is a very promising concept, but one that could still be improved upon. I think it would be great if they would have more contact with the outside world as well, and not be completely locked up. However I of course see the problems with this, you would have to come up with solutions to protecting the safety of the patients. Thank you so much for another amazingly produced video, hope to see many more in the future! Congrats on the sponsorship btw, i'll check it out.
@MindTheMap
7 ай бұрын
Thank you for your insightful comment! (I feel like the first sponsor is a bit of a KZitem rite of passage so thank you for your support that got me here & thank you for checking it out!)
@JP_TaVeryMuch
7 ай бұрын
Those fenced off bits threw me for a while but then I was hoping that it might be one of these. Here in Britain we've only seen a rather Scandi style village in France so I'm pleased to see the history and extent of them ~ thank you, as ever. Whilst still experimental and expensive to run (& to afford to live in) we've got to try all angles until we can beat this upsetting illness. There's a powerful story of an American Doctor on the BBC World Service's "Outlook" audio files where the poor son, the doc, was advised to play along with his father's dementia. He had to suffer lying to his dad as to where mum was hour after hour. The alternative was seeing his father collapse in floods of tears every time he had told him the truth that she had died years before. It really is cruel. From all angles.
@MindTheMap
7 ай бұрын
A horrible dilemma, I can only imagine how it tears into you with each visit.
@PhoenixHen
7 ай бұрын
Your video editing style changed a lot over the years! Good video as always!
@MindTheMap
7 ай бұрын
The only thing I can say is thank you as always!
@betsykroll6583
7 ай бұрын
Brilliant & empathic solution for dementia patients. Most caregivers are overworked & only the super rich can afford one-to-one caregivers 24/7. Providing an environment where these patients can safely roam around is certainly 1000x better than keeping them locked up in sterile facilities or keeping the elderly in a drugged haze so they stay "manageable". I just wish all countries had the luxury to build "fake villages" as the world population gets older.
@MindTheMap
7 ай бұрын
Unfortunately it truly is a luxury - it's a flagship project by a private foundation and probably far from being break-even financially. Even in a comparatively wealthy country like Germany there are only seven Dementia Villages.
@chrisgironde6669
7 ай бұрын
My dad died through dementia last year and my mum, still alive, suffers from dementia
@MindTheMap
7 ай бұрын
I am sorry to hear that.
@AlphaGeekgirl
7 ай бұрын
Me too!
@Traveler_sn
7 ай бұрын
I know how you feel - my grandma died last year suffering from dementia for year. Also my great grandmother suffering from dementia.
@deedikjepijn
7 ай бұрын
As always love the content. Absolutely enjoyed the content. Amazing topic and I think it is waayyy better then the usual prison like envoirements they live in. ❤
@MindTheMap
7 ай бұрын
Thank you as always! The Netherlands setting an example once again...
@edithwhitebrownhall
7 ай бұрын
Excellent video, really really nicely done. Im very much in favour of these dementia villages and hope that it gives patients a much more familiar and enjoyable life, even if it is just all an illusion
@MindTheMap
7 ай бұрын
Thank you Edith!
@sammymarrco2
7 ай бұрын
Good to see something is being done to help them hopefully some sort of medical treatment is available soon.
@MindTheMap
7 ай бұрын
There is a lot of research happening and lots of money flowing into the field so let's hope there will be something like an "Anti-Dementia-Drug" one day...
@iQKyyR3K
7 ай бұрын
If this makes it easier for less caregivers to keep more residents safe then I'm in favor of it. The reality is that we'll have ever more aging people in Germany and caregivers are already overworked. I'd try to avoid those Bauzäune and make the fences look more natural and integrate them into the village look. There's been concepts where Uni students and seniors live together in WGs, try the same principle. Get some folks without dementia living adjacent that aren't caregivers directly but know to watch out for and you'll have a win-win situation. Students can live there a bit cheaper, seniors have more contact with non-seniors, turning it into an actual small village, while the students can live around the edge of town and send a text if they see someone distressed. It's by far better than being directly locked up, medicated or restrained.
@officialmcdeath
7 ай бұрын
Before I started watching, I thought we were going to be discussing Bielefeld \m/
@MindTheMap
7 ай бұрын
Next time... Although there probably isn't much to be said beyond Tom Scott's Bielefeld video!
@officialmcdeath
7 ай бұрын
@@MindTheMaptouché \m/
@thomasross4921
7 ай бұрын
I understand the criticisms, but to those who would complain, I have to ask, "have you got any better ideas?". This whole concept is leaps and bounds ahead of how dementia patients are traditionally housed, and if I should be so unfortunate as to develop dementia, a dementia village is where I would prefer to go. Hopefully by the time that becomes an issue for me, there will be a village or two in the U.S., but I'm not holding my breath. None of Europe's best ideas ever get adopted here.
@smvwees
7 ай бұрын
About the critisism, i don't think, certainly in the case of such a village, to mingle it in with urban areas, is a good idea, as i feel only family, staff and people specifically invited in to entertain the inhabitants should be on the premise concerning safety and privacy. Concerning the vigilanty one even must have going shopping or near trainstations because of people with ill intent and rowdy harrassing teenagers, that would be the last place i would like to walk with someone with dementia. Plus these were the places where people with earliest signs of dementia got in trouble or got lost in the first place! Only in the first stages of dementia an inhabintant might 'find' out he/she is locked up and can't leave, but soon they lost the sense of time and place and it is more a living in the moment. Therefore i find a 'city' for people with dementia the best solution one can get for their loved one having dementia. I noticed, it looks like those fences were put there as a temporarily solution as there were first no fences around and people either stayed inside or walked with one of the nurses outiside? If they want to permanently wall it off, wooden fences with vines or hedges overgrown could be solution as it then looks like a giant garden and not like a prison outside.
@FelicitationHumain
7 ай бұрын
amazing
@bluebillbo
7 ай бұрын
Interesting video ruined by a 2 minute advertisement in it.
@MindTheMap
7 ай бұрын
Thank you - I should have made the ad-read shorter - that was on me. Sponsors like Ground News are incredible as they financially support the channel - but I can understand that it breaks the flow of the video.
@shamicentertainment1262
7 ай бұрын
That’s honestly standard nowadays, just skip it if you don’t want to see it
@Knusper-Knoppers
7 ай бұрын
You should really practice your English pronounciation. Even for me as a German it sounds awful.
@shamicentertainment1262
7 ай бұрын
I think it’s fine, had no trouble understanding him
@maxmusterkann6057
7 ай бұрын
Nobody gives a shit about accents is normal. Everyone come from somewhere and nobody except for Germans care that much about their accent
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