Did you enjoy the video? What was your favorite part? Or the part you don't agree with?
@kathyingram3061
4 ай бұрын
~Its so much harder to hear you with music playing in the background~Cant you turn that off, or at least way down?~
@leosthrivwithautism
4 ай бұрын
@@kathyingram3061 Thank you for the feedback. This is an old video now. New videos that had been uploaded since this all have better audio due to the feedback on this video. To fix this video I’d need to film it again, delete this one, and reupload. I’m not considering that currently as this is the most popular video on my channel. However, in the near future I do plan to release a follow up to this video and continue to make sure the audio is much better adjusted so the music isn’t so loud. Sorry about the audio issues. But I promise it has since been fixed! 👍 Thank you again for the comment! Feel free to check out the newer videos if you’d like.
@ExploringFate
25 күн бұрын
I'll do my best to keep this short & simple. Currently still on this journey. I live in the U.S. & was looking to see what was going with me and surprisingly there is no direct source for assistance. I found a place and they said they don't do spectrum disorders but they can do a ADHD diagnosis and take it from there. I did & was diagnostic with ADHD and for several reasons have been refer out. (The first place was Psychologists) So I received a second diagnosis confirming ADHD but again have been referred out. (The second place was a Psychiatrist) This time while being a psychiatrist he specialized in certain things and didn't have the tools to test for spectrum disorders. Now both places believe there are spectrum issues there that may be impacting the ADHD but are unable to test and diagnose for it. While in this process someone outside the medical field suggested Aspergers I didn't know anything about it. I have asked everyone previous & moving forward about it, and while similar the answer; the answers were the same & that it is no longer a disorder because they found that it is Autism and will only test for that. One Psychiatrist (not the second place I went to) said exactly this "Yes you can get diagnosed for Asperger's but no one in the mental health field will risk their careers and die on that hill to diagnose someone for it.". Everyone else seemed to shy away from it or act like it was taboo and said that Asperger's is no longer a disorder and is Autism instead. So, long story short. I am still in the process of looking to get testing and getting a diagnosis for everything. Which is harder & taking longer than I thought. But what brought me here was I was looking to see what the exact differences was between Asperger's and Autism and to find out why all these doctors are afraid of addressing Asperger's. I guess the algorithm lead me here which I am happy about. I still want to know what the exact symptoms and traits are between them and the differences.
@leosthrivwithautism
25 күн бұрын
@@ExploringFate happy to try and help. So for me I was diagnosed with Asperger’s before it was coupled in either autism. This was before the dsm-5 was released which is what most medical professionals refer to as a guidance for testing and diagnosing. I am by no means a medical professional but I’ve done some digging around to research for these videos and I’m hearing that doctor Hans Asperger’s (who the diagnosis was named after) apparently had some kind of association with the Nazi’s? I can’t confirm or deny that exactly but it’s what I’ve found out. And could be the reason why the revisions were made to include this under autism. Asperger’s the easiest way to explain it is that it’s the lighter side of Autism. In other words it’s at a level that’s minimal impact to life quality. Again based on information I researched on. Personally I see it as more related to ADHD than I do autism. But then again all three have comorbity or similar symptoms which makes it difficult to know exactly. Asperger’s causes you to repeat things a lot. Have fixations. Have intense interests among a number of other things. If you search up Asperger’s you may be able to find some health articles on Google that can better explain this than I can. Now where it differs between autism is that in my opinion autism has a higher impact on quality of life. Causes you to have mental meltdowns and tantrums. Sensory overload. Etc. So because autism is a spectrum there is a very large array of signs and symptoms that falls within it. It’s this complicity that makes it so difficult for proper diagnosis. There are also levels 1 thru 3. Which is the levels of how things affect you. Level 1 autism is very minor. Level 2 requires a bit more assistance, while level 3 is most sever and usually reserved for those who are non-verbal autistics for example. Your not alone when it comes to being confused because even trying to make these videos some times i confuse myself. But I’ve followed up on this video and I have many others on the channel that your welcome to check out if you’d like I really hope this helps you out even if only a little bit.
@ExploringFate
25 күн бұрын
@@leosthrivwithautism Wow! This was extremely helpful. Because of the way you described it, coupled with the diagnosis of ADHD; I believe it may be Asperger's. I am older now & just finding this out some things I control & guess have coped with, without help until now. It's hard but I manage, example staying calm in long line. Although sometime others may not see or notice it but I realized that I may do something like shake a leg or play with something with my hands or just tinker with my hands to remain calm. But this is how I without knowing coped with it without medical help. Quick question I'll look on your channel to see if you answered it. How will ADHD medicine affect Asperger's? Something like Adderall.
@thentheresjeff
8 ай бұрын
Leo - thanks for drawing attention to the similarities and the distinctions regarding Autism and Aspergers. My diagnosis - which I received in 2020 at age 55 - is, “DSM-5: F84.0 Autism Spectrum Disorder, without accompanying language impairment, without accompanying intellectual impairment.” That’s saying I have “Autism, but without the two primary distinguishing characteristics of Autism.” And, like you, I can back this up with “real world” examples. When I started sharing my diagnosis with people who know me well, I would say, “I’m Autistic.” The responses were immediate and shocking … “Oh, don’t be silly. I know people who have Autistic kids. You’re not like that.” “I think you might need to find another doctor.” “No, you’re not. That’s crazy.” And, my personal favorite … “Why would you want a label like that? People just use that to make excuses for being rude and lazy.” Conversely, when I told people who’ve known me for decades that “I have Asperger’s Syndrome,” the responses were almost as universal, either … “Really? What’s that?” Or … “Oh, yeah. I can see that (being true).” When I looked at all of the information that was online about being Autistic, it seemed to be geared toward people with severe intellectual and verbal deficits, neither of which I have. (Many people who know me well WISH I had a verbal deficit!) But when I looked at the information about Aspergers, it seemed to be my life’s story. And, unlike some people, I did not get upset, disappointed, or experience any other negative emotion when I learned that I have Aspergers. Again, to the contrary, my instant response was relief … “Oh, THAT explains it!” and “Oh, THAT’S why I do (x) or say (y).” I spent three months looking back over my life and connecting the “Aspergers dots” of all the experiences that had been affected, positively and negatively, by having Aspergers. So, I now tell people, “I have Asperger’s Syndrome, which is part of the Autism Spectrum” and then - if they seem interested or ask - I use the color wheel analogy to explain that the spectrum is not a linear measure of “more Autistic” to “less Autistic.” Again, thank you, for making this video. Merry Christmas and happy new year!
@leosthrivwithautism
8 ай бұрын
Wow! I loved the detailed comment! It’s very much appreciated! And also very happy to know you enjoyed the video. I always try hard to make it very friendly and informational. Trying to explain the available data out there so that it helps others make informed decisions for themselves. And showing those who aren’t autistic what autism is all about. Just an attempt to create a positive and helpful community that people can feel safe in and also find sound information to make the best decisions for themselves. So it always makes my day to get comments like this! Thank you so much! 😊
@Dancestar1981
8 ай бұрын
Exactly my diagnosis at 23 was Aspergers Syndrome and I still refer to myself as Aspie
@leosthrivwithautism
8 ай бұрын
@@Dancestar1981 thanks for the comment. 👍
@higherground337
8 ай бұрын
Laypeople in general just don't know what autism is or how extremely diverse it is. And honestly, I don't think it's realistic to expect folks who aren't clinicians to keep up with the latest definitions in the DSM-5. Although I understand the rationale behind putting Asperger's under the autism umbrella, and why Asperger's as a term has fallen out of favor -- I also believe there's a need for new terms which would better help others and ourselves understand our condition better.
@leosthrivwithautism
8 ай бұрын
@@higherground337 very good point! I too believe that studies and research behind autism has to improve. And come together a bit better. I’m no expert and never claimed to be. I’m just someone with the diagnosis trying to put knowledge and experiences in relatable terms and also ways anyone can understand. I dug into the research and available information myself and followed most of it from when Autism was first discovered all the way to what it is today. And among researchers and institutions out there, there is still plenty of disagreement among the professionals themselves. And it becomes clear when you look at the rest of the world and see areas that don’t believe the same as the US does and have decided to keep Asperger’s and autism as their own diagnosis. Almost seems as if there is no one way of treating the conditions and depending where you live and what the health care system their believes will also determine your diagnosis and treatment. And I don’t believe that’s the best way of going about it in my opinion. Thank you for the comment!
@odnarlo
7 ай бұрын
I actually think it was a bit overstimulation to have the music with it, just a note for future. Thank you for taking the time and energy out to make it though!
@leosthrivwithautism
7 ай бұрын
Thank you! I’ve uploaded a few shorts and a new video yesterday all with much lower music volumes. The follow up to this one will have a lower volume too. I’m grateful for the feedback. Thank you! And glad you enjoyed the video too!
@odnarlo
7 ай бұрын
Thank you so much for letting me know and for such a fast response. I've was doing research but was saving this one to circle back to when i can handle it so i'll go and seek these out for now. Thanks so much!@@leosthrivwithautism
@leosthrivwithautism
7 ай бұрын
@@odnarlo No worries. And by all means, feel free to watch at your own pace. I was just simply letting you know it was there for your enjoyment if you wanted to see it! 👍
@denisedarland3345
7 ай бұрын
I do not want to be associated with Hans Asperger though. So... *shrugs* I prefer to say that "I am on the spectrum." Sometimes when I lead with that I get better responses than "OH NO you can't be Autistic." yada yada. But yeah. Hans Asperger was a "NotSee" who sent people he thought were not "normal enough" to the gas chamber to be "unalived". So... yeah. I really don't want to be associated with that at all. I prefer terms ASD, Autistic, or just "on the spectrum".
@leosthrivwithautism
7 ай бұрын
And there is no problem at all with that. The point of the video wasn’t to pass judgement or tell people what to do but basically just provide some information was all. 👍 Plus I find good to have a healthy balance, instead of just having everyone saying they agree. I prefer people be honest. Then blindly agree. And it’s why I appreciate your comment so much! It gives value to the video and also adds to the conversation. Thank you so much for the comment! And for watching as well!
@denisedarland3345
7 ай бұрын
@@leosthrivwithautism And thank you for being the facilitator for these important conversations. :)
@leosthrivwithautism
7 ай бұрын
@@denisedarland3345 No problem! It’s all part of the mission of the channel. Judgement free zone built to help. And moderated conversations to allow truthful information to be shared to help one another. It’s not medical advice but it is a channel where people could get sound information they can use to safely make the best decisions for themselves. And also to serve as a form of education for those who may want professional medical help but maybe hesitant. The whole purpose is simply to help. And if the channel can’t do that I always encourage looking at other resources that maybe could better help. I’m always happy to hear when the channel achieves its mission. 👍
@hilaryabbot9297
Ай бұрын
Hello Friend. Um, you asked for honest feedback. I'm a literal person, so going to say what I think in the hope that it might be of use to you. But first to say, I know making videos is difficult and demanding, and I love that you are bringing so much creative effort. So thank you for all of that! My thoughts are:- 1) music is distracting and made it VERY hard for me to process what you were saying because I am AuDHD. Some of your presentation (bounce and attitude and wrap over text) did make it entertaining and that helped with holding attention and focus. The 'like' button request, for example was cute and pitch perfect I thought. I suggest that you ask yourself are you trying to explain autism to allistic people, in which case music might make it appealing and entertaining or are you trying to help autistic people thrive through community and accurate information, in which case find other ways to be entertaining because music isn't going to help us and folks like me will watch one, maybe two videos and go away. The answer to this question needs to be authentic to you, i.e. your real motivation. If being famous and successful on youtube is what you really want that's going to lead you to different choices from if you are trying to reach individuals to form a community and help people to thrive. 2) Listening to you felt like you were reading out loud one of those annoying click bait articles that crop up all over the Internet when one is searching for information on a topic....the articles that parce out the information they offer in tiny crumbs surrounded by lots of trying to pretend I know you chatter and keep you reading for the correct amount of time to have made you see however many ads will earn remuneration for the content provider. This is alienating and slightly personal as your title is about people who find the world a tough place learning to thrive! I think you need to provide more information and present that info in three different ways, e.g. verbally, visually, and in written form, allowing real communication and forget copying some content-provider A-Z about how to get the most allistic likes. If you are providing something REAL, people who need what you are providing will come, will share, will like, and will return. It might be slow. But you will have helped some folks. At the end of the video I wasn't sure what I'd learned. I think you would be better off copying Teachers rather than Salesmen. But you gotta be real honest with yourself about what you want from your gut because if not whatever you do will fall between two stools. I hope that's helpful even if what I have said isn't useful (I could be and often am wildly wrong and off-target), I hope it's the sort of honest feedback you were looking for. I admire you very much for the level of organisation it requires to do something like what you are doing, something I could never do, let alone maintain. Keep thriving matey!
@Djjustb
4 ай бұрын
NOW THIS VIDEO IS WHAT I AM TALKING ABOUT! This is the love and attention you deserve! AMAZING VIDEO!!
@leosthrivwithautism
4 ай бұрын
I learned plenty from this one. Apparently I had the music up a bit to loud as many comments talked about how they couldn’t continue because of the loud background music. It helped me improve by further leveling and fixing my sound in videos after this one. But yes. This one was a shiny star! ⭐️
@JimRichardHartmann
7 ай бұрын
Tnx for this video! As a newly diagnosed as 47 years I am stunned that people like yourself actually makes these videos and it totally flew by me before, without me noticing. I am just learning to understand why I am like I am and why people treated me like they did all my life. After all they have not seen what is normal to me and I have just tried to mimic what is normal to them, to my own exhaustion and breakdown time after time..
@leosthrivwithautism
7 ай бұрын
I’m glad you found the video to be helpful. I make them as not a medical expert but just fellow Autistic guy looking to share my perspective and experiences. Figured it could help others. So it’s always a treat when it does. There are many autistic creators here on KZitem. There are even some who are medical professionals and can speak from a doctors perspective. I think we all have a pretty positive and cool community we built here. I’m the smallest of the channels but working slowly to grow as well. If there is anything you wish to learn more about that I have not covered in any of my previous videos feel free to let me know. I’m always opened to video suggestions. Thanks again for the comment! 👍
@user-pp4ve6qo1b
5 ай бұрын
I'd prefer that you lose the cringe background "music". It takes away from what you are trying to get across....you lost me...
@leosthrivwithautism
5 ай бұрын
Thank you for the comment. Many have said the same thing. And it’s a point well taken. I just hope in the future if KZitem recommends something new from my channel that hopefully you’d give me my channel a second chance. As a new creator I’m still learning. But if not I completely understand. 👍
@GayToBeHere
10 ай бұрын
Here's more fun facts to add to the history of ASD : - PDD-NOS and Childhood disintegrative disorder are also part of the autism spectrum nowadays but were not always seen as such, it's not just asperger. - Autism was seen at first as "childhood schizophrenia", when we know nowaday it has nothing to do with it! Source : Élèves en difficulté d'adaptation et d'apprentissage by Georgette Goupil Personnally I'm glad they merged autism, asperger and the other diagnosis together. I also think they should add "intellectual giftedness" to the mix because it's incredibly similar to asperger (there's noise/other senses sensitivity, social difficulties and special interests in the symptoms, for example). I really wonder why asperger and autism were seen as so different before.
@leosthrivwithautism
10 ай бұрын
So many good points!! Thank you! I absolutely love comments like this! I mean it. You mentioned two conditions there I need to do my homework on haha. I’ve heard about them but not very familiar. Let I tell everyone I’m not the expert. Just an autistic sharing my experiences and what I know. But i love to learn so this is awesome! I do have videos on the history of autism and you are right it once was heavily associated and part of schizophrenia. But over time became its own diagnosis. As far as why Autism isn’t yet well defined along with its conditions and symptoms is because the information available needs more research. It’s biased towards males so females tend to have a higher rate of misdiagnosis. And there isn’t a clear standard the world follows. The US has the DSM-5 among other studies and research and other countries have their own information. For example in many places in Europe I’ve heard that Asperger’s and autism aren’t combined. They are still separate diagnosis. But overall research is still needed and I hope over time there will be a world wide standard of knowledge and care. Research and studies are rapidly evolving. I see it every day when researching for video topics. I think it’s a matter of time before we get there! Thanks again for the amazing comment!
@SmallSpoonBrigade
9 ай бұрын
@@leosthrivwithautism I haven't had the chance to watch the video yet, I'll have to do it after work. But, AS is the closest point in the autism spectrum to both the cluster A and Cluster C personality disorders, it also is a part of the spectrum with a lot of savant splinter skills. It's easily confused with Schizoid Personality disorder and the Schizoid of Childhood diagnosis was more or less AS when the professionals could tie the traits to an early enough time to be "developmental" whereas Schizoid Personality Disorder is more or less just AS when you can't specificaly prove it was there early enough. (The folks who weren't autistic were mostly rediagnosed to Avoidant Personality Disorder and Schizotypal Personality Disorder with little concern for the autistic side of that spectrum under the DSM IV)
@leosthrivwithautism
9 ай бұрын
@@SmallSpoonBrigade very interesting! Thanks for the comment!
@SmallSpoonBrigade
9 ай бұрын
@@leosthrivwithautism It's one of those things that's sort of buried in the literature. The history of autism and other developmental disorders is really helpful in terms of understanding why the process fails so often. These are conditions that people were talking about in the 19th century, but it took roughly a century before they really got any meaningful recognition and some of the "milder" versions still aren't properly recognized.
@Ignasimp
Ай бұрын
I think it's ok to group them together, but to not distinguish between them is a step backwards, in my opinion. Those things are not exactly the same and a classification and diferenciation is very useful. Just saying I'm on the spectrum doesn't really explain why I can function in life while some kids can't even enter a classroom. A spectrum is not enough. And the spectrum concept has done more harm than good in terms of social understanding. If i tell people I'm asperger's they understand it and say, oh that totally makes sense. If I say I'm autistic or I'm on the autistic spectrum people tell me all kind of things like: "no you are not" or, "everyone is on the spectrum, that's why it's called an spectrum, you are not special". "You don't look autistic". And things like this.
@Moviefan2k4
4 ай бұрын
I was diagnosed with Asperger's in 2013, at the age of 33. When they first told me, I was overjoyed, because it was a huge relief to know I wasn't losing my mind. But then later, when I heard the Asperger's label had been essentially erased from history...words don't exist to describe how pissed I was. I read online that the DSM people had chosen to remove the label because Hans Asperger had supposedly participated in the Nazi euthanasia program during WW2...so with that in mind, it did make rational sense. But it still made me feel like an outcast all over again, because I know I'm not like other autistic people. I don't think of myself as "superior" or anything like that, but the actual condition of Asperger's Syndrome is inherently different from other forms of autism...and even other people with A.S. don't share the same traits. So in my opinion, trying to group everyone together under the same medical "umbrella" is an exercise in futility.
@leosthrivwithautism
4 ай бұрын
You aren’t alone. That thing about Hans Asperger’s isn’t one I’m aware of or read myself but I’m digging more in to it. It’s an interesting thing for me to learn more of and correct myself on in future videos. And this is why I also made a different video opening up the thought that just maybe not even professionals are exactly sure about autism yet and more research is still needed. I mean we’ve come a long way in that at least we have some understanding and guidelines to go by instead of not having anything at all. But I started questioning how much do experts really know and how biased or flawed are the current studies. It’s a really interesting this to investigate at least for me. And I was diagnosed too with Asperger’s initially before the change was made. But my diagnosis was also changed after because I did show other signs of autism so doctors taking care of me felt it would be more accurate for me to have an autism disgnosis over Asperger’s diagnosis. I understand exactly how you felt because I too experienced the same thing. You are not alone. It’s a challenge. But trust me when I say it’ll be ok. Just keep on doing what is right for you and continue to get help if you need it so that it can help you out in life. Thank you so much for the comment!
@robokill387
4 ай бұрын
That's not why "aspergers" was removed from the DSM, because the Nazi history wasn't widely known about in 2013 when these changes took place. The reason they took it out is that there is not difference between Aspergers and "high functioning" autism, the only distinguishing feature between them was what clinician they got their diagnosis from.
@ronnato162
8 ай бұрын
I think it's a bad idea that they removed the aspergers diagnosis amd stuck it with high functioning autism.
@leosthrivwithautism
8 ай бұрын
You’re not alone. There is a large group of people out there that agree with you. And personally I agree too. When I look at it. Asperger’s does appear to fit the spectrum of autism in my non expert opinion. And there are some other countries out there that have no followed this mindset. What I mean is that they kept Asperger’s as its own diagnosis. Thanks for the comment!
@ronnato162
8 ай бұрын
@@leosthrivwithautism I just don't like how it blurs the distinction between them.
@SmallSpoonBrigade
7 ай бұрын
@@ronnato162 The issue is that there are different ways of viewing these things. If you zoom out, there isn't a hard dividing line between autism and schizophrenia. It would be nice because it sucks walking around with incorrect schizo diagnoses. Schizophrenia may well turn out to be the opposite of autism. You have folks that struggle to connect with reality in the same way that normal people due due to a psychic split between them and it on the schizophrenia end of the spectrum. On the autism spectrum, you've often got the opposite where folks are too stuck to a very specific reality and struggle to break free of it enough to deal with the future and make plans. AS was arguably the middle ground there in a sense as it's the autistic complement to the schizophrenia spectrum's schizoid personality disorder. Schizoid Personality Disorder is arguably just AS with so much alexithymia and aversion to support that none of the usual signs are apparent until super late. And, the research literature sometimes treats the two as different subtypes of the same disorder. AS is essentially what they used to refer to a "schizoid of childhood" because it was obvious in childhood before a personality disorder was diagnosable. Going through the diagnostic criteria of the two is incredibly subjective if you don't have much to go on in terms of early childhood and neither one of them requires outside support in all cases.
@beccaa2919
7 ай бұрын
I heard someone once say they wished it was referred to as high masking instead of high functioning, I think its a far better term
@12toro
7 ай бұрын
I don't think it should be it's own thing since the line is so fine. I agree with the term heavily masking.
@mew2635
8 ай бұрын
Why do you have background music the whole time. I can hardly understand a word you said because of the noise.
@leosthrivwithautism
8 ай бұрын
I’m sorry you feel that way. I’ve done some experiments and generally my videos with no background audio did not perform as well as the ones that do. I’ll try to keep the volume a bit lower so it’s not too intrusive! Thanks for the suggestion.
@Catlily5
Жыл бұрын
I knew most of it but not all. I thought Asperger's was always linked to autism so that was interesting to hear that they started out differently.
@leosthrivwithautism
Жыл бұрын
It’s one of the reasons I focused on this question. It was one that not many had the best understanding how they were related. I hope you enjoyed the refreshed style of video I worked hard to make it more entertaining and fun to watch!
@SmallSpoonBrigade
9 ай бұрын
I don't think it came up, but Dr. Down, as in Down's Syndrome, described people that were probably autistic nearly a hundred years before the term was coined, he also identified individuals who had what we would now consider to be savants. One of the issues with the history of all this is that a lot of people noticed these people, it's just that for one reason or another, they didn't put it all together, or the research wasn't available to the right other researchers in other parts of the world.
@lilachodan4941
7 ай бұрын
I was diagnosed with Asperger and I absolutely don't have high autism issues
@leosthrivwithautism
7 ай бұрын
Just for context what I meant was I live in the US and here as of 2013 per the DSM5 Asperger’s is now grouped together under autism spectrum disorder. And most people today refer to Asperger’s as autism here in the US. High functioning autism is basically Asperger’s. According to medical documentation they mean the same thing medically and it’s accepted by most mental health professionals. I too myself was diagnosed with Asperger’s before it was grouped with autism. And normally I say I have autism as it’s usually better understood my experience has been that when I say I have Asperger’s people don’t normally understand and i have to explain it. Because the information isn’t yet fully agreed upon there are countries out there that still separate the diagnosis but I was speaking from the perspective of the information I have based on where I live. I hope this helps clear things up a bit more. Lastly, don’t take this the wrong way as I’m not saying I’m disagreeing with you. I respect your way of thinking and don’t believe there is anything wrong with it. Just trying to help clear things up again. I’ll soon have a follow up to this video clearing this up too. 👍 thanks for the comment!
@turquoisemama33
7 ай бұрын
And the problem sometimes with doctors using their names or other people using doctors' names as the name of an ailment, disease, condition, syndrome or whatever else in the medical field, is when that person turns out to be a horrible person. Even if they did a few good things. It never ceases to amaze me how ignorant people are, including myself. Even though I know there is so much information out there and noone can know everything about everything, it still amazes me how much information goes in one ear and out the other, or just over our heads. AND why it is sooooo, important to do videos like this one. Word of mouth is still the best method of advertising and so it can work with information. Keep up the good work, even though this is my first video to watch of yours. I have liked and subscribed and will proceed to check out more of your content. Happy Wednesday (or whatever day it is when you read this) to ya.
@leosthrivwithautism
7 ай бұрын
Thank you! And you couldn’t be more right. Just making videos and talking to people like yourself I’ve come to realize how Autism is still an under studied and contested diagnosis. Information is scattered and usually when researching I try to verify via multiple sources before I give an input and I admit myself I’m no expert just a fellow autistic person trying to help. So being human I know I make mistakes. I’m willing to always admit it. And if I am wrong I can always fix the information. But being that there is so many opinions around the diagnosis I know that sometimes I’ll be stuck in the middle where both sides of the argument are right. And well I won’t always appeal to everybody and that’s ok. All I’m trying to do is start conversations. Get people talking. Create a community and moderate conversations so that we all could help one another. It’s one of many things I had planned for the channel as it grows. Thank you the support and glad to have you in our community. Hope you enjoy your stay! 👍
@leosthrivwithautism
7 ай бұрын
@Daathiel you mention some interesting points I can’t argue with. I can see the logic in what you’re saying. I guess where I differ is that in my mind I don’t believe all medical professionals are bad there is still a dwindling number of genuine good doctors who are looking at the best interest of the patient. They are just difficult to find. And even then it’s still always good to have a level of caution and not blindly trust a doctor. More often than not I can clearly tell when a doctor doesn’t know or care what’s best for me. Because they just want to keep giving me pills or can’t accurately answer questions I have. Normally that’s when I back up and go get a second or third opinion. But at the same time for example I had a therapist in the past that communicated on my level and explained things in an understanding way to smallest of details. And she wasn’t trying to sell me medicines but rather helping me form coping mechanisms I can use to help me long term. So I can myself can definitely see your point. I appreciate you joining the conversation!
@turquoisemama33
7 ай бұрын
@Daathiel We are inherently evil. Takes work to be good.
@AdamvanTonder
5 ай бұрын
Thank you for your honesty. You are the first person i could easily follow and understand. Please continue this outreach to inform the world. I dedicate myself to follow your desire to help us. Thanks
@leosthrivwithautism
5 ай бұрын
Thank you so much! I’m happy you found value in my work. And yes i plan to continue doing this as long as my supporters like yourself continues to support me and approve the work I’m doing! Thank you for the comment!
@Versatile668
9 ай бұрын
I totally totally understand and agree with all that
@leosthrivwithautism
9 ай бұрын
That’s great to hear! Thanks for watching! 👍
@lavonnetollison724
5 ай бұрын
I want to hear only you. Not annoying “music?” Look forward to more from you!
@leosthrivwithautism
5 ай бұрын
Trust me, lesson was learned as not only you but many others made it clear to me that the music was bothersome. 👍 In videos made since that one I’ve greatly reduced the volume so it isn’t over powering and my voice was enhanced to sound prominent. 😊 As still a relatively new creator I’m still learning. And improving! Trust me when I say things are bound to get better. It is viewers like you that helps this channel grow. So believe me when I say comments like this are more appreciated than you’ll ever know. Thank you! 🙏
@troyblackford-dowell1178
8 ай бұрын
Many objective physical discoveries regarding Asperger's have been published since the 2013 changes to the DSM V edition were released. Establishing, that there needs to be an additional update.
@leosthrivwithautism
8 ай бұрын
This is good information. Thanks! I appreciate!
@maryhazlett
6 ай бұрын
I was dxed only a few years ago in my 60s. It's my understanding that one reason for the fading away of the word "asperger's" is because Dr Asperger was a Nazi. When I was in school in the 1960s (catholic) there was no talk about autism. I'm now certain that my mom was autistic and at least 2 of my 4 brothers are. My sister died 1.5 years ago but I don't think she was. My niece's BIL was dxed with Aspergers in the early 90s.i think Aspbergers as a dx came here in the 80s, so the generation after me, and their families, learned about it. I don't have kids, but I learned of it in a superficial way which included stereotypes. Hope this adds a little to the discussion.
@leosthrivwithautism
6 ай бұрын
@@maryhazlett it does and I thank you for that. As far as dr Asperger’s I’m not sure where that is coming from. All sources I’ve researched, none mentioned anything about him being part of that group. But I’ve heard this mentioned a few times. I’m just trying to figure out where this came up so I can research it myself. Thanks again for the comment! It adds a lot of value to the conversation. And it’s more appreciated than you know! 😊
@maryhazlett
6 ай бұрын
Here's one. It appears to have posted. But maybe it'll disappear again.
@maryhazlett
6 ай бұрын
The words stayed. The link disappeared.
@DaveTheGM
8 ай бұрын
I was diagnosed with Asperger's Syndrome by a psychiatrist this year, I use the more modern ASD 1 term personally. Arguably im not sure of the officialness of the diagnosis since it was pretty much from a 20-30 minute conversation.
@leosthrivwithautism
8 ай бұрын
I was diagnosed with Asperger’s right before it was grouped with autism in the dsm 5. To make it easy normally I say it’s autism since it is technically considered Autism. For me my diagnosis too around 2 weeks. Multiple tests and eventually it came back as Asperger’s. It was refreshing to know because at least I knew what I had and what I needed to do to get better.
@loverainthunder
6 ай бұрын
It took about 1 minute for the nurse practitioner to tell me I'm not autistic. So I think I have to put those opinions in perspective. Sigh
@leosthrivwithautism
6 ай бұрын
@@loverainthunder What do you mean if you don’t mind explaining it a bit further? Just wanted to make sure I correctly understood your comment. I can try to help a little more if you need clarification. No problem at all.
@loverainthunder
6 ай бұрын
@leosthrivwithautism I'm just reflecting on a situation that's similar but different. It's similar because someone is making a fast diagnosis without going through the testing. It's different because I'm assumed to be not autistic without testing. But they're being told they are autistic without testing. So it's just a comment, not a question. Sorry I wasn't clearer. But thanks for your taking the time to kindly respond.
@leosthrivwithautism
6 ай бұрын
@@loverainthunder 👍 No worries at all. That’s for clearing that up for me! 😊
@lizakapibara
3 ай бұрын
Background music is really distracting
@leosthrivwithautism
3 ай бұрын
Thank you for letting me know. I recently made a new video which I linked at the start of the video. This video is an older one. Many have let me know about the audio issues on this one but every video since the audio was fixed. Just seems like this is the one video getting more recommendation than my other videos. Either way thank you for the comment! Believe me I have learned and improved. Always listening to viewer feedback! It's the best way to improve and grow!
@malvineous
7 ай бұрын
I liked it better when they were a separate diagnosis, because it's just more practical to have different labels for different clusters of symptoms. The point of language is to communicate meaning and they've only made that harder by removing categories from the language. People had a certain idea of what autism looks like, and a different idea of what Aspergers looked like. If someone with the condition formerly known as Aspergers tells someone they have autism, they are now more likely to get accused of lying because they don't fit those expectations of not making eye contact or doing hand flapping or whatever. So people suggested calling it high functioning vs low functioning, but that bothered people since a "low functioning" person can function fine in many areas while having difficulties that can be accommodated in others, so calling a person low functioning is an insulting oversimplification. So then people suggested calling it high needs vs low needs, but people with "low needs" are bothered because they might have serious needs in some areas, and saying that they have low needs is minimizing their challenges and making it harder to get help. Maybe the real solution is to, idk, have a separate diagnosis with a specific word for each condition? Hmmmm
@maedetheone
2 ай бұрын
IMO, the right way forward is not to reintroduce various subcategories or labels for all the possible ways in which autism can manifest. Not only is it often a source of confusion especially to us lay persons to have very different words for things that share many things in common, but it unnecessarily reinforces the differences between people and forces us to put ourselves into boxes that then still might not capture the exact way we are. The better thing to do I think is to continue to inform and educate people about autism and all these possible ways in which it can manifest. And to point out how "high need" vs. "low need" obscures the very real toll that masking and other adaptive behaviours take on those who appear to be low-need. My ultimate vision is for a world where people really understand, appreciate, and celebrate the differences that exist within the autism community and where they start to apply their appreciation for differences to the rest of humanity as well, so that we may one day simply be all humans, with all our differences.
@jmvh8736
7 ай бұрын
Why the music? This is awful.
@leosthrivwithautism
7 ай бұрын
I’m sorry about that. I’ve taken note of it as many others mentioned this. Same thing. And in more recent videos I’ve adjusted so it’s not so intrusive. Your comment helps me grow so i appreciate it and thank you!
@jeannettemolina5348
5 ай бұрын
Leo, i really appreciate your help, thanks and please take care
@jimbrown5552
11 ай бұрын
I did not know I was dyslexic till I moved to Ireland
@SmallSpoonBrigade
9 ай бұрын
I thought I was dyslexic, but it turned out to be sensory processing disorder. It's kind of a moot point though as I just see things out of order, whereas dyslexics screw up the order after receiving it correctly. I also sometimes just don't see what I'm supposed to see because the brain doesn't register it as existing. But, it's a pretty similar situation at times where I screw up the orders of things and struggled with S, Z, 5, 2, 6 and 9 in particular. Eventually, I mostly do them by muscle memory, but eventually I figured out that the 9 is the one with the circle at the top. And if you connect your left pointer to your right thumb with the other fingers parallelt ot the ground, you get a Z or 2, if you reverse it, then you get an S or a 5. I wish somebody had taught me that decades ago as it would have been helpful to have a reference for me when I forgot.
@user-we5ne8ho1g
6 ай бұрын
I prefer more information and less entertainment.
@leosthrivwithautism
6 ай бұрын
Thank you letting me know!
@WoohooliganComedy
Ай бұрын
Thanks, Leo. 💖
@leosthrivwithautism
Ай бұрын
@@WoohooliganComedy you are welcome! 😊 glad you enjoyed it.
@geofractal
8 ай бұрын
Where do you guys dig up this music?
@leosthrivwithautism
8 ай бұрын
The background music? I use a service called epidemic sound. That or I use the music library that KZitem provides. Always trying to find a sound to fit the video and give it just a bit of life. Hope that answers your question. 👍
@klat9889
7 ай бұрын
The back ground music is to overpowering that I cant hear you clearly. Please try to learn your audience to reach more people
@leosthrivwithautism
7 ай бұрын
Thank you for the comment! The next video will have better volume control. Thank you for letting me know. 👍
@strashinsky
19 күн бұрын
I can't listen to this with the distasteful music in the background. My mind can't register what you are saying.😢
@leosthrivwithautism
19 күн бұрын
I understand. It’s an older video of mine. And since the videos have improved as a lot of people mentioned the same thing on this video. Only reason i still have it up it’s because it still offers value and it’s my most popular video. I don’t know if you have given any of my other videos a view but they all have volumes adjusted and managed better. Thanks for the comment!
@maedetheone
2 ай бұрын
Sorry, way too much fluff for me in this video. What actual information are you relaying? That Asperger's and Autism were once separate diagnoses that got merged in 2013 and that some diagnostic criteria had to be adapted because they didn't 100% overlap? And that takes 7 minutes? Now, clearly the video was useful for many and inspired a lot of reflection and comments. I still think you could have gone into more details of the process they went through when merging the diagnoses. That would have actually been interesting to me because I have never looked specifically into the differences that existed beforehand.
@leosthrivwithautism
2 ай бұрын
Thank you for the comment. The video is one of my older ones. And had some issues as I learned how to better speak and present the information. And edit my videos a little better as the background music was a little too overpowering as well. It was just a general high level view of both diagnosis and showing a few ways they are similar and a few ways they are different. I agree I could have made it better. But being new to KZitem I was still learning. However, I’ll take not of this and on a future video will go more into the details you mentioned. Thanks again for the feedback. It helps me improve. 👍
@snowbird1831
7 ай бұрын
This is impossible for me to follow because of the background music
@leosthrivwithautism
7 ай бұрын
I’m sorry to hear that. But thank you for the feedback. I’m going to make sure it’s lower going forward. Thanks for the comment!
@sagatuppercut2960
8 ай бұрын
Why does he have so many boxes in that room?
@leosthrivwithautism
8 ай бұрын
The box’s in my living room? I was getting ready to move. Could have put up a green screen but most of my recording stuff was already packed. 👍
@foljs5858
7 ай бұрын
I think the DSM-5 just changed for political reasons, not scientific ones. And the dumping together is in some ways a bad thing.
@leosthrivwithautism
7 ай бұрын
The DSM is indeed weird in many ways in my opinion. Unfortunately I personally don’t know what influenced the DSM, but I don’t disagree that politics probably did have influence. Thanks for the comment!
@jeannettemolina5348
5 ай бұрын
I would like to know if people on the spectrum have to take medication like zyprexa, zoloft etc. I want to know because my autistic son take 3 different meds
@leosthrivwithautism
5 ай бұрын
I myself am on risperidone. And took zyprexa in the past. There are medicines that are prescribed. Depending on the persons tolerance level usually depends on the medicine prescribed. At least in my experience. But generally there are many medicines made to treat different symptoms. At one point I was on 4 different medicines but had to stop due to the fact that i was having palpitations of the heart. I hope this helps!
@krystalsmith849
5 ай бұрын
The opposite is true for me. I don’t have to take medication
@danieladamczyk4024
8 ай бұрын
Isn't this outdated?
@leosthrivwithautism
8 ай бұрын
No, well at least per information that I was able to find during my research. Here in the US this is information publicly available from the NIH and CDC. Among other autism resources. If you have information or sources that says otherwise let me know. I’ll take a look at it and make corrections if it’s needed on a follow up video. Thanks for the comment.
@Catlily5
8 ай бұрын
This video mentions some outdated terms but states that they are outdated at least in the USA.
@Vessels-Psyce
2 ай бұрын
Autism Spectrum Disorder was lumped under an umbrella term in order for each person on the spectrum to help those individuals have access to resources to support, and help. With the whole thing with cancel culture Asperger’s syndrome was looked at negatively by the nazi scientist that originally identified that, and looked at certain traits as undesirable. So some take it having negative, and how some of our brains work off of patterns can associate it with the negative connotation of those past experiences. Basically neurotypical people thinking that their brains think the same way ours do as an attempt to be respectful, and knowing what it’s like to be on the spectrum from an outside perspective thinking each one of us are the same just because we share certain similar traits, or characteristics. Some today still considered undesirable by organizations trying to change us instead of directly providing legitimate support to individuals, and the families affected by living with the specific neurological condition, and most likely a co-occurring mental illnesses along with the existing one.
@PJ-pw8yq
6 ай бұрын
Bloody background music. Had to shut it down
@leosthrivwithautism
6 ай бұрын
Yup, known problem with this video. Sorry about that. I didn’t catch it before uploading. But the advice was taken from you and many others. Newer videos have all had their volumes lowered down. All thanks to viewers like you. Being a relatively a new creator I’m still learning my ways through editing etc. new videos have all been adjusted to make sure it isn’t a problem anymore. Thank you so much for the comment!
@SmallSpoonBrigade
9 ай бұрын
I think it was an incredibly dumb move to obliterate all the diagnoses and lump them together without the necessary research to back it up. Sure the precise lines were a bit imprecise, but if somebody is genuinely on the line then, it doesn't really matter that much which side of the line they're on, either way they should get some support. The schizophrenia spectrum disorders weren't collapsed into a single SPD diagnosis, schizophrenia itself has multiple different recognized types. Even Bipolar gets 2 subtypes, but somehow isn't a spectrum, but ASD is a spectrum despite being a single and unnecessarily vague diagnosis. In terms of autism, autism was a spectrum disorder, now it's a single diagnosis that's broad in some ways and weirdly narrow in others. You've got Social Pragmatic Communication Disorder that's likely autism, but isn't recognized as being neurodevelopmental, you've got ADHD that's likely just autism without the obvious stimming, you've got Schizoid Personality Disorder that's likely just a form of autism for individuals that are higher masking at this point, you've got Sensory Processing Disorder that's likely just autism without any real stimming, not to mention that PDD-NOS should have remained a thing as there isn't a category right now for people that have a neurodevelopmental condition that isn't otherwise classified. I don't know how they get people identified for support and research if there isn't even an NOS option. I'd love for some researcher to actually map this out because these are a lot like little fiefdoms in a larger kingdom, they have a lot in common, but a lot of differences, but we can't have any sort of useful labels to help people get a sense of where we are on the spectrum because doing that was hard. So, everybody gets lumped into the same spectrum or excluded completely without a different option to help explain our experiences and our needs. (As well as in many cases our strengths)
@leosthrivwithautism
9 ай бұрын
This is pretty impressive what you wrote here. If I may ask are you a medical professional by chance? Or not really? I was wondering your sources of information because you mentioned a lot of things I’d love to get some deeper information on myself. I agree on many points. Because when I research the history of how autism diagnosis came to be many things you mentioned was in the research I did. It just wasn’t as deep as you mentioned here. Very impressive indeed. Thank you so much for the detailed comment! 👍
@SmallSpoonBrigade
9 ай бұрын
@@leosthrivwithautism No, but I've got a master's in education studies and that involves a lot of studying the brain, I've also got alumnus access to the library so that I can get access to pretty much all the research literature out there. It's absolutely disgusting how much researchers know about this, but weren't listened to by the working committee that wrote the DSM 5 criteria. It's definitely suspected that these things are separate to some extent, but part of an extended spectrum, the editors just opted to yank the recognition away rather than do the work to figure out how to improve the reliability and validity of the assessments. Previously there was some inconsistency with AS and PDD-NOS in particular, so they effectively just gerrymandered those folks out and didn't bother to ensure that there was a diagnosis available for those that still needed support.
@jimm2600
8 ай бұрын
@@leosthrivwithautism Just want to thank you for taking the time to post this information (both posts). You have cleared up things I have found perplexing and pointed me in directions of study. Thanks again. Absolutely brilliant!
@leosthrivwithautism
8 ай бұрын
@@jimm2600 This made my day knowing this! I’m always trying to find ways to communicate what I know and what is known in an easy to understand way people can relate too. So I’m always happy when my videos can accomplish that task of helping others. Thank you for the comment and for watching! 👍
@orbismworldbuilding8428
8 ай бұрын
Strongly disagree. ADHD has similarities with autism both symptom-wise and neurologically and genetically, but not all autistic people have adhd, there are differences between the ones who do and don't, and the people with adhd who test low or negative for autism are also different to autistic people. adhd does have overt stimming/repetitive behaviors, but for different reasons (mainly regulating energy and boredom rather than regulating overstimulation or stress) ADHD also doesn't seek repetition or routine, despite benefitting from it. People who have ADHD but not autism don't have social or communication defecits that aren't purely caused by impulsivity or distractedness. While autistic people have disinterest, atypical and/or limited relationships, don't easily recognize or distinguish emotions or expressions or social cues and contexts and may have more intense or less intense affective empathy, and are morelikely to have alexithymia(difficulty recognizing own emotions). ADHD doesn't effect language development for the most part besides co-occuring things Where they are similar is intense emotions, emotional dysregulation, co-occuring conditions, and intense interests. So you are wrong that ADHD is autism, they are different but connected Schizophrenia spectrum is separated because the diagnoses are useful in determining the kind of care that is needed for them, while anyone in the autism spectrum can benefit from care suited to each of the previously separated types and the separated types have large overlaps in the kind of care. But when someone is schizophrenic, that care is different to the kind of care a schizoaffective would need, both are different to the care a schizotypal or schizoid need. Schizoid is more common in autistic people and autistic people who lack it may still resemble schizoid, but schizoid is a prsonality disorder of social withdrawl, a masked personality (akin to NPD in ways) and often a belief that they don't deserve human rights. The phenomenon of hikkikomori in japan is a great example of schizoid personality disorder.
@jeannettemolina5348
5 ай бұрын
Leo, do you know how the medicine help ? Is that medicine only for people who are agresiva? My son stopped last week taking his medicine……. 🙏🙏🙏
@leosthrivwithautism
5 ай бұрын
From my understanding, and again I’m not a medical expert here. But the medicines take care of different things. For example some are mood stabilizers. While others balance out different hormones and chemicals in the brain. The medicine I take I believe is considered a mood stabilizer. And it helps me remove some intensity of the feelings I have. Helps me remain a little more leveled. Feel free to take down the name and talk with a medical professional to see if they can prescribe the medicine if they believe it could help. I know certain medicines also have age restrictions i believe when it could be harmful to younger people. Either way since it’s a prescription it needs to be prescribed by a doctor. It may possibly help. Lastly, as for aggression I don’t know if the medicine I take is specifically for that. But being that it is I believe a mood stabilizer it made help. I hope this helps you out!
@jeannettemolina5348
5 ай бұрын
Leo, I really appreciate that you answered my question, right now I am having a difficult time because my son who is 39 years old stopped taking his medication ( with the medication he was sleeping day and night) now with the windrawal he is with nausea and eat little, as mother I support him, but is it very difficult 😥 I would like to hear from someone who is going through the same situation PLEASE 🙏
@leosthrivwithautism
5 ай бұрын
@@jeannettemolina5348 I’m hoping someone in our community here can assist. And if I can find any additional information I’ll let you know! Sorry about your situation. And I hope you can find the answer you need! I’ll send you a message here if i do find anything else.
@jimbrown5552
11 ай бұрын
Watching from Ireland
@leosthrivwithautism
11 ай бұрын
Thank you! I’m glad you enjoyed the video!
@maryhazlett
6 ай бұрын
I hope my replies are here somewhere. I posted, they appeared to be here, but now they are outa sight.
@leosthrivwithautism
6 ай бұрын
Hmm. I do know that sometimes KZitem can fail to add a comment but make it seem like it added the comment. Sometimes they get removed by KZitem as well. And other times they get held for review. I’ve checked and don’t see it in my held comments. Sorry that they appeared to have disappeared. What were they about? Maybe try posting them again. I can assure you it wasn’t anything I did. I normally only remove comments if they offer no value and are extremely negative and are attacking others. I strive to keep the comments safe, fair, and positive. Civil conversations are key. You’re welcome to repost them if you want. And again sorry that somehow they appeared to disappear. 😊
@kathyingram3061
4 ай бұрын
.....i gave up....all that noise over your voice made it not worth it....
@leosthrivwithautism
4 ай бұрын
I completely understand. If you want, feel free to check out my newer videos they have had the audio issues fixed since this video. If not, that’s ok too. I completely understand 👍
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