Magnolias Hope
Rett Syndrome is a terrible disorder that affects 1 in 10,000 live female births and boys even more rarely. Our daughter, Magnolia, was diagnosed with Rett in 2013. Since her diagnosis, she has lost purposeful hand use and the ability to talk. Scoliosis, feeding tube surgery, and loss of mobility, amongst other maladies are all things she will possibly deal with over the course of her life. In 2007 they were able to reverse the effects of Rett Syndrome in a mouse. Since then, scientists have believed Rett Syndrome is curable.Please subscribe and share these videos. Through funding and awareness we will be able to save my daughter and the 350,000 like her around the world. Be Magnolia's hope.
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THE SIMPLE LIFE | RETT SYNDROME ROAD TRIP IN SOUTH DAKOTA
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WE GOT STUCK ON A MOUNTAIN | MOVING FORWARD
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OUR FIRST DAY EVER IN THE RV | MOVING FORWARD
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THE ADVENTURE CONTINUES | MOVING FORWARD (OFFICIAL TEASER)
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Magnolia's Hope Documentary (Official Teaser)
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#ReverseRett Today
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I Am Smart | Rett Syndrome
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Our story in Jenny's words | Reverse Rett LA 2016
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Walking with Rett Syndrome
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How is Rett Syndrome Progressive?
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How To Talk to A Non-Verbal Kid
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What do breathing problems look like | Rett Syndrome
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Another Actual Conversation with Maggie | Rett Syndrome
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- 9 жыл бұрын
An Actual Conversation With Maggie | Rett Syndrome
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- 10 жыл бұрын
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