SOFT UK
SOFT UK is the national support organisation for families affected by Patau's Syndrome (Trisomy 13) and Edwards' Syndrome (Trisomy 18). Patau’s and Edwards’ Syndromes cause a variety of developmental and health difficulties for affected individuals. Both conditions are considered to be life-limiting, meaning they may affect how long a baby can be expected to survive. SOFT UK’s mission is to ensure families can now access information and support when they need it. SOFT UK provides up-to-date, relevant information, in a way that is accessible to both families and the professionals working with them. Our information is evidence-based and prepared in collaboration with our professional advisers. We support families at every stage of their journey; through pregnancy, when caring, after a loss, expecting a new baby and beyond. There are a range of ways to access our support; through our publications, our befriending service, our social media pages or our Family Events. www.soft.org.uk- 11:05
- 9 ай бұрын
SOFT UK Scotland Family Day: An Update on Ayla
- 23:45
- 9 ай бұрын
SOFT UK Scotland Family Day: A Time Of Reflection
- 18:24
- 9 ай бұрын
SOFT UK Scotland Family Day: Una MacFadyen and Nadia Bowley
- 21:53
- 9 ай бұрын
SOFT UK Scotland Family Day: Introduction
- 32:09
- 10 ай бұрын
From Past To Present: Reflecting on Demi's Trisomy 18 Journey
- 42:14
- Жыл бұрын
Pregnancy after a Trisomy 18 diagnosis
- 24:00
- Жыл бұрын
Leaving the hospital with my Rainbow baby
- 21:16
- Жыл бұрын
A Sibling's Path: From Loss to Strength as a Rainbow Baby
- 36:33
- Жыл бұрын
Navigating the Complexities of Genetic Counseling: Insights from a Trainee Genetic Counselor
- 25:45
- Жыл бұрын
Siblings Talk: Having a Sibling With Trisomy 18
- 18:14
- Жыл бұрын
Jenny Hudson - Chiropractor, IBCLC, Infant Massage Teacher
- 27:18
- Жыл бұрын
SOFT UK Family Day: A Year in Reflection
- 11:11
- Жыл бұрын
Making a Difference: The Power of Volunteering with SOFT UK
- 2:24
- Жыл бұрын
10K Steps a Day: Getting Half Marathon Fit
- 41:21
- Жыл бұрын
Trisomy 13 Story: Improve, Inspire, Empower (Bereaved)
- 15:45
- Жыл бұрын
Breaking the Silence: Deaf Awareness Week and Trisomy 18
- 27:23
- Жыл бұрын
In Our Own Little Bubble: Coping with TFMR - Marie's Story
- 7:49
- Жыл бұрын
Our Story With Edwards' Syndrome
- 21:24
- Жыл бұрын
In Conversation With Sarah: A Mosaic Pregnancy and Journey
- 10:24
- Жыл бұрын
SOFT UK: Royal Parks Half Marathon Discussion
- 30:22
- Жыл бұрын
Fiona's Story
- 11:38
- Жыл бұрын
Can HIV Cause Trisomy 18 Edwards Syndrome
- 41:15
- Жыл бұрын
The Importance of Support
- 15:29
- Жыл бұрын
Пікірлер