FSHD Society
Our PromiseAs long as we are here, no patient need ever face this disease alone. And with generous donations from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments by 2025 and eventually a cure.
Our Vision: A world free of the suffering caused by FSH Muscular Dystrophy (FSHD)
Our Mission: Find treatments and a cure for FSHD while empowering our families
Our Core Values: Research | Community | Urgency
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people world.
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- Күн бұрын
Join the 2024 Walk and Roll to Cure FSHD!
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- 14 күн бұрын
FSHD University: BetterLife FSHD with Amanda Hill
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- 14 күн бұрын
August 2024 Early Onset Parent Resource Roundtable: Nutrition for FSHD with Selina Lai
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July 2024 Early Onset Parent Resource Roundtable - Connect Report Back
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Young Adults: Clinical Trial Readiness, August 19, 2024
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- 14 күн бұрын
Feeling Fit: In-Home PT and OT with Jhana Wilson, August 22, 2024
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- 14 күн бұрын
Wellness Hour, June 10, 2024
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- 14 күн бұрын
Feeling Fit: Aquatic Exercise, July 25, 2024 with Andrea Jaworek
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- 28 күн бұрын
FSHD Straight Talk: I Never Thought to Say No with Mary Beth McCabe
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FSHD University: Better Nutrition for FSHD
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Early Onset July 2024 Connect Recap
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2024 FSHD Connect Highlights
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FSHD Straight Talk: Movement Is Medicine with George Pollock
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Feeling Fit: Breathwork Part 2, June 27 2024
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- 2 ай бұрын
FSHD Straight Talk: Behind the Mic with Chis Carrino
- 56:09
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Feeling Fit with FSHD: June 13, 2024, Breathwork, Part 1
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6 20 24 FSHDUniversity Avidity Fortitude Update
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FSHD Straight Talk: 2024 World FSHD Special!
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- 3 ай бұрын
Young Adults May 20 2024 About Kratom
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- 3 ай бұрын
Early Onset May 2024, featuring Heloise Hoffmann and the Stanford FSHD Research Team
- 36:48
- 3 ай бұрын
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