EDS Awareness
Chronic Pain Partners/EDS Awareness, a US-based non-profit 501(c)(3) organization, was created in 2011 to support people with Ehlers-Danlos syndromes. It is an online resource for the Ehlers-Danlos Syndrome community, their caregivers, medical professionals, and everyone interested in learning more about the genetic connective tissue disorder.Chronic Pain Partners helps create independent, local EDS Support groups, hosts live webinars to help educate our members, caregivers and healthcare providers, and launched a CME program for physicians and another one for nurses, and lately, we have developed towards becoming a multimedia online magazine for people with varying chronic pain conditions, producing high-quality video content and documentary films as well as a monthly newsletter with original content only found on our website!
Website: www.chronicpainpartners.com
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EDSed, Episode 3: PT Elan Schneider on Neuroplasticity and New Chronic Pain Treatments
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We Are Visible (Too), Episode 2: Caitlin O'Donnell
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EDSed, Episode 2: PT Dr. Lilian Holm
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EDSed, Episode 1: The Norris Lab
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We Are Visible Trailer 1
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We Are Visible Trailer 2
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We Are Visible (Too) - Episode 1: Sarah Rightmire
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Sonny Mullen presents “A Guide to Medical Fundraising”
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Andrea Julian - EDS Leadership Program - Starting and Maintaining a successful support group
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Mast Cell Activation Disease Current Concepts
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John Ferman - EDS Leadership Program - Introduction
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Mandy Harvey - EDS Leadership Program - Interview
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EDS Leadership Program Panel Discussion
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John Ferman - EDS Leadership Program - Concluding Remarks
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Amanda Aikulola, LPN - EDS Leadership Program - Advocacy 101
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Mandy Harvey - EDS Leadership Program - Entertainment program
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Clair Francomano MD presents “EDS Overview of Diagnosis and Management"
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Dr Alan Pocinki presents "Sleep Disorders in EDS"
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Bonnie Nasar RDN presents “Optimizing your nutrition to decrease brain fog, fatigue, & chroni...
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Cathy Pederson PhD presents “Understanding the Relationship between Chronic Illness and Suicide”
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