Bardet-Biedl Syndrome UK
Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome, their families, and carers in the UK. We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.Our aims are ‘to preserve and protect the health and promote the welfare of persons who have BBS and to advance the education of the medical and educational professionals and the public about BBS’.
We support over 640 people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK.
Further information can be found at www.bbsuk.org.uk
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Closing remarks Laura Dowswell - BBS UK Conference 2024
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Q&A with Dr Elizabeth Forsythe, Dr Arlene Drack, Dr Shehla Mohammed and Prof Phil Beales
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Supporting Siblings - Clare Kassa - BBS UK Conference 2024
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Q&A - Prof Phil Beales, Dr Shehla Mohammed and Prof Claire Hogg - BBS UK Conference 2024
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Welcome - Laura Dowswell - BBS UK Conference 2024
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Contact details - BBS UK Spring 2024 newsletter
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BBS UK Out and About - BBS UK Spring 2024 newsletter
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Healthy Eating Workshops - BBS UK Spring 2024 newsletter
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