Courageous Parents Network
Courageous Parents Network channel features videos of parents of children with serious, life-threatening illness sharing their experiences across a wide range of psychosocial and emotional issues. It is not disease specific but is for anyone who is seeking community and a desire to hear from other parents to know that they can do this. Issues explored include: coping with the diagnosis, spirituality, marriage, caring for the other healthy children/siblings, working with the medical team, self-care, control, decision-making and palliative care, questions about end-of-life, transitioning to end-of-life, bereavement, parental identity, and meaning making. Videos also include a pediatric psychologist and grief counselor who frames the issues, a palliative care doctor, a palliative care nurse, and a chaplain.- 56:37
- Ай бұрын
In the Room: Discover the Power of Children’s Books to Help Young People Understand Death and Loss
- 5:09
- Ай бұрын
The mother of a medically complex child’s advice to clinicians: Don’t call me ‘mom’ … Don’t ask my q
- 4:52
- Ай бұрын
I knew he wasn’t going to be the exception. I had to connect the dots. No one else did that for me.
- 1:04:15
- 2 ай бұрын
In The Room: Book Talk with Myra Sack - Fifty-Seven Fridays
- 1:00:11
- 2 ай бұрын
CPN In the Room: Do you want to work? Do you have to work? How do you caregive and work?
- 2:47
- 2 ай бұрын
NICU bedside nurses take the brunt of a lot things Watching babies suffer is always a challenge
- 1:56
- 2 ай бұрын
Our role at the bedside is to partner with the family and also face the reality in front of us.
- 1:57
- 2 ай бұрын
Perinatal palliative care: It is possible to do intensive care and palliative care simultaneously.
- 2:02
- 2 ай бұрын
Medical complexity:The importance of setting families' expectations for the load of home care
- 4:01
- 2 ай бұрын
The crisis of Medicaid variability across states and the homecare nursing shortage in pediatrics.
- 4:02
- 2 ай бұрын
Do parents ever say, “I didn’t realize how hard caring for my child at home was going to be”?
- 1:17
- 2 ай бұрын
Caring for medically complex children at home: Helping parents know which things are most critical
- 50:11
- 3 ай бұрын
Learn About NeuroJourney
- 50:24
- 3 ай бұрын
In The Room: Caregivers, Get Acquainted With NeuroJourney
- 2:23
- 3 ай бұрын
Un pediatra paliativista: El cuidadado paleativo no es ciodado de hospicio o de final de vida .
- 1:47
- 3 ай бұрын
Un pediatra explica el cuidado paleativo pediátrico
- 2:00
- 3 ай бұрын
Parent Champion Amy Graver, mother of Lauren.
- 4:16
- 3 ай бұрын
Introducing NeuroJourney 2024
- 4:42
- 3 ай бұрын
Decision making over 14 months: Our goal was always for her to feel loved and be out of the hospital
- 1:36
- 3 ай бұрын
“Advice to my past self at the 20 week ultrasound: It’s your decision at the end of the day.”
- 2:45
- 3 ай бұрын
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