Myotonic Dystrophy Foundation
The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 80 countries around the world.MDF is a non-profit, 501(c)(3) organization based in Oakland, CA, and founded in 2007 by families living with myotonic dystrophy (DM).
Our vision is a world with treatments and a cure for myotonic dystrophy.
The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure:
+ We support and connect the myotonic dystrophy community.
+ We provide resources and advocate for care.
+ We accelerate research toward treatments and a cure.
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- Күн бұрын
Juvena Therapeutics - Meet the DM Drug Developers 2024
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- 14 күн бұрын
Exercises for Everyday Life - 2024 In Motion Awareness Month
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- 21 күн бұрын
Dyne Therapeutics (July) - Meet the DM Drug Developers 2024
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- 21 күн бұрын
Stump the Doctor & Community Panel - 2024 In Motion Awareness Month
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- Ай бұрын
Los Angeles, California Highlights - 2024 Myotonic Dystrophy Foundation Regional Conference
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- 2 ай бұрын
Boston, Massachusetts Highlights - 2024 Myotonic Dystrophy Foundation Regional Conference
- 1:31
- 2 ай бұрын
Gainesville, Florida Highlights - 2024 Myotonic Dystrophy Foundation Regional Conference
- 37:23
- 3 ай бұрын
Applying for Myotonic Dystrophy Research Funding '24: Peer Reviewed Medical Research Program...
- 1:16:46
- 4 ай бұрын
Avidity Biosciences - Meet the DM Drug Developers 2024
- 58:26
- 6 ай бұрын
Dyne Therapeutics - Meet the DM Drug Developers 2024
- 23:56
- 8 ай бұрын
Insights Into Muscle Pathology: Imaging Analysis & Clinical Endpoints in Myotonic Dystrophy T...
- 1:18:15
- 8 ай бұрын
Accelerating Knowledge: Research Poster Lightning Round - 2023 MDF Annual Conference
- 35:32
- 8 ай бұрын
Brain Disease Mechanisms in Myotonic Dystrophy and Why Neurons Aren't the Whole Story
- 30:32
- 8 ай бұрын
Genetic Modifiers of Huntington Disease: Biological Insights and Therapeutic Opportunities
- 52:48
- 8 ай бұрын
Social Security Administration Demystifies the Benefits Process - 2023 MDF Annual Conference
- 54:46
- 8 ай бұрын
Gastrointestinal Considerations in Myotonic Dystrophy Type 2 - 2023 MDF Annual Conference
- 55:44
- 8 ай бұрын
Industry Updates: Day 2 - 2023 MDF Annual Conference
- 42:31
- 8 ай бұрын
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