It was wonderful to chat to you man. I'm glad we did. I resonate with your crash so much. I remember not being able to talk either, just trying to mutter for people to leave me alone because the talking was too much to concentrate on. I know you feel like you're dying, but you will prove to yourself that you won't. Don't try to do too much at once. I know you are incredibly eager to get better but try one thing at a time or it will overwhelm you and you will want to drop them all. I'm looking forward to seeing you get better man.
@jacksrecoverycfs4643
5 жыл бұрын
Thanks again brother! :)
@kathystoner5239
5 жыл бұрын
I relate to everything you said. Recovery is definitely not linear! I started the ANS Rewire program in July. I've lived with this illness for 3 yrs now. I have had on and off times where I was mostly bedbpund, but in December of 2017 to July of 2018 I was pretty much bedbpund. Between using the ANS Rewire program( which I love!) and using James advice( hes amazing), now I only spend 3- 4hrs at most resting in bed. I'm able to cook all the meals, do my laundry and have been able to go out a few places for a short amount of time. I did overdo it recently and am paying for it, but it's not as bad as when I was bed bound.
@kathystoner5239
5 жыл бұрын
I know you will get there!
@jacksrecoverycfs4643
5 жыл бұрын
You are amazing thank you so much for this comment! :) Well if you were bed bound and are now able to do more then that is progression right (even if its slow)!? :D Keep going and you will get there too! Is ANS Rewire worth it do you think? I've been given the login to the Optimal Health Clinic (I shouldn't really say that haha), but I'm tempted to sign up to Dans programme. Yes I agree I honestly would be lost without James he's so great and an inspiration!!
@kathystoner5239
5 жыл бұрын
I love Dan's program. To me it was well worth the money! He includes diet, how to do movement in a good way, supplements, meditation, how to calm the body and mind, psychological issues ect. I love all of it, and even though I finished the videos in August, I am still using the techniques found in the videos! I plan on watching them over again. I think what has helped the most is the way he teaches you not to focus on your symptoms. I found I was scanning my body everyday, now I don't do that hardly at all. By not focusing on your symptoms you are able to put your body in a more calm state. It's not easy. Like lately I have had a flare of symptoms. It's hard when you feel like crap to not think about how awful you feel, but I keep doing the technique he recommends over and over again and it really helps, because when you feel awful, by focusing on your symptoms your body tenses up, which makes your symptoms worse. Often I'm able to calm my body which greatly reduces my symptoms.
@jacksrecoverycfs4643
5 жыл бұрын
@@kathystoner5239 Thanks so much Kathy!! I'll definitely check out his programme then. I feel I need something to focus on in recovery, even if it is a small focus (especially now James has gotten a job and probably won't be posting as much). That's really great, keep going and you will get there, we all will!!! :) Thanks again!
@kathystoner5239
5 жыл бұрын
It is nice to have something to focus on to help in recovery! Thanks! I know you will get there as well!
@lisakaylanemorris
5 жыл бұрын
I have tinnitus.. and head pressure and full of cotton. if I eat lots of veggies and fruits and fish and seeds and some nuts and root veggies and rice I can handle.. then it greatly diminishes. I also have pots.. postural tachycardia which is much better eating like that. I have alot of muscle issue and I have alot of hard time breathing right. I think I may have to eat like this forever..... hang in there.. I am doing ansrewire right now
@jacksrecoverycfs4643
5 жыл бұрын
Thanks so much Lisa!! You will get there, we all will eventually and it seems that your diet etc is on point! On my first video there is a girl who posted saying she had tinnitus and its gone 95% so there is some hope :) I've been tempted to start ANS Rewire, is it worth it do you think? I've been working with some of the Optimal Health Clinic content, I'm not sure if its worth doing both?
@Coolgamer-ys7qt
5 жыл бұрын
The tinnitus will definitely lessen. It's part of the dysfunctional autonomic nervous system. The death like feeling, omg yeah... you cannot process anything!! Little crashes to find the balance are kind of 'ok' as you know then when you've gone over the invisible line, lol! Absolutely you will get there. Just keep on relaxing the nervous system 👍
@jacksrecoverycfs4643
4 жыл бұрын
Thanks Beki!! Yeah the tinnitus is still there but it has died down a little. I used to get these full blown deaf moments where my hearing would almost completely go, it was awful and pretty scary. Luckily I don't get them as much now! How are you doing?
@Coolgamer-ys7qt
4 жыл бұрын
Oh wow, that is scary!! That's so good you don't get that anymore. I'm doing ok thanks, just got back from 5 days holiday on the coast. It was the furthest I'd travelled in 3 years, and I wasn't my best whilst there. But still got out 2 out of the 3 days that weren't travelling days. Scooter is a life giver! I'm still functioning around 40%, though started driving a bit last month, a few mins here and there. How are you doing?
@jacksrecoverycfs4643
4 жыл бұрын
@@Coolgamer-ys7qt That's amazing, I can't wait to go on holiday again haha! So glad you could even if you didn't get out all of the days! Where did you go? Yeah I've been getting in the car for some drives too, I was going mental and just got in and drove for the first time in a year! Real refreshing and definitely does me good to get out the house from time to time. I'm still half bed bound but definitely improving, its just real slow. I'll post another video soon.
@Coolgamer-ys7qt
4 жыл бұрын
That's brilliant, you drove too 😃 Ahh, yeah, sometimes I get the 'environmental fatigue', being stuck in, and so going out is actually helpful... but a hard one to gauge! Thanks, we went to Cornwall, we're only in Somerset, but still the furthest for me in a good while! Ahh, yeah, try to have a getaway if you can!
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