Join us as we sit down with the incredible Keime Sisters, both survivors of hypertrophic cardiomyopathy (HCM). These brave women share their journey with us, from early symptoms to diagnosis, treatments, and the emotional impact of living with an invisible disability.
🩺 Medical Journey Insight: Dive into the specifics of HCM, medications like beta-blockers, and what it's like to have a defibrillator implanted.
❤️ Emotional Resilience: The sisters talk about coping with a diagnosis, lifestyle adjustments, and addressing the mental aspects of living with a chronic condition.
🏥 Advocacy: Discover the Keime Sisters' incredible advocacy work, from heart screenings in schools to "Flash the Boobs" campaigns, all aimed at raising awareness about heart health.
Don't miss this inspiring and informative episode! Tune
in now to learn, connect, and feel free to share your journey with us as well.
Show Notes
1:48 -Hanna’s initial symptoms of HCM and how it progressed
3:30 -Bethany explains how tachycardic episodes happen all throughout the day and night
4:36 - Hannah shares how she and Bethany, in teenage years, had a strong advocate as a mother
5:30 - receiving the diagnosis of hypertrophiccardiomyopathy
6:00 - the siblings and looking at genetics
7:16 - divine intervention on who should be evaluated first
8:04 - Hannah discusses pharmaceuticals given - beta blockers and tweaking dosages
10:55 - Bethany speaks on substantial lifestyle changes
12:30 Hannah speaks about having a non visible disability
13:17 - the mental aspect of being with a diagnosis
15:27 - the surgical process as explained by Bethany.
20:13 - Hannah adds discussion about the trauma caused by having a defibrillator implant
22:09 - Bethany discusses how she’s addressed the emotional component of this adjusted lifestyle
26:16 - advocacy work with Miami-Dade County school system to offer all students heart screenings
27:46 - the “Flash the Boobs” campaign to raise awareness that women are les l s likely to receive intervention in cardiac events
28:19 CPR classes offered to all age ranges
30:19 - Bethany shares heartfelt words of wisdom to anyone with chronic illness 30:40. Hanna’s invitation to connect regardless of your healing journey
Contact:
Website: www.getheartcharged.org/
IG: / heartcharged
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