Von Willebrand’s Disorder (VWD) is the most common inherited bleeding condition in which the blood does not clot properly.(1) Despite affecting an estimated 4,900 people in Ireland, only around one third of people living with VWD have received a diagnosis.(2)
In this video from the Finding Von Willebrand campaign, youth worker Shannon Carey speaks about the impact of von Willebrand’s disorder (VWD) on her life.
Shannon discusses her experience growing up with VWD, including complications with her menstrual cycle due to the hereditary bleeding disorder. She describes the assumption many women make that heavy prolonged periods are normal because their relatives’ periods are also heavy and prolonged.
Shannon outlines her concerns about undergoing medical procedures from dental work to having a baby. She emphasises the importance of knowing one’s health status and why public awareness of VWD is essential.
Symptoms of von Willebrand’s disorder include:(1)
✓ frequent nose bleeds
✓ easy bruising
✓ excessive bleeding from an injury or after dental work
✓ Or in women also heavy menstrual bleeding
Von Willebrand’s disorder is treatable once diagnosed. Speak to your GP if you are experiencing a combination of these symptoms or repeated bleeding issues.
Visit haemophilia.ie/finding-von-wi... for more information.
This campaign is sponsored and funded by Takeda and supported by the Irish Haemophilia Society.
References
1. Centers for Disease Control and Prevention, What is von Willebrand Disease? (2021) Available at: www.cdc.gov/ncbddd/vwd/facts.... [Accessed November 2022]
2. Clinical News. New global clinical guidelines launched for von Willebrand disorder, The Medical Independent (2021) Available at: www.medicalindependent.ie/cli... [Accessed November 2022]
Негізгі бет Finding von Willebrand Shannon’s story
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