Hi Claire, I very much appreciate your video. I was diagnosed in 1987 and have experienced all types of problems, including kidneys, lungs, eyes and many others including the antiphospholipid antibody and the Lupus anti-coagulant at the same time. My blood platelets don't clot and I've had a pulmonary embolism and other bleeding events. I'm 70 years old now and a lot more info is available now. I was finally able to go on Plaquenil and that has been a big help. Thanks again,Donna K.
@HippiesHealingCorner
9 жыл бұрын
Thank you for taking the time to make this. A lot of your symptoms before a flare up, I can relate to. Now that I have stopped and thought about it, I always have had the warning signs. Unfortunately in WV, we have a lot of doctors who like to play basketball with you, only you are the ball. You get bounced from this doctor to the next because none of them have any idea what is going on with. I have been to every doctor between a family care provider to a spine surgeon. Thank God for the doctors at UHC Spine/Pain Clinic. Dr. Russell Biundo and his PA Dr. Gary Barcinas narrowed down my problem in only 2 visits and I have been seeing a numerous amount of doctors over the last 4 years. I have bottles of various medications to treat a wide variety of symptoms and illnesses. My house almost feels like a pharmacy minus narcotics. I choose to stay away from the narcotics unless its a necessary form of medical treatment. I have been diagnosed with Fibromyalgia, Lupus, and Myeloproliferative Disorder (the beginning stages of Leukemia). I always contributed my pain, swelling, and the 4 little itchy spots on my legs, to be related to the Fibromyalgia. As of yesterday, I was diagnosed with Lupus. I had a positive ANA with teters 1:40. I also had a high sedimentation rate that meant high markers of inflammation. My life has been hell for the last 4 years. Some days I would rather die than be in so much pain and anguish. However, I'm too strong willed and stubborn for it to get the best of me. I have had many illnesses probably due to the combination of all 3 of my major illnesses. I can relate to you and what you go through! I wouldn't wish this on anyone! Much love to you and everyone suffering from this. If only those on the outside could see what we go through on the inside! They'll never understand unless they go through it themselves. Stay strong, find the humor in all of it, and stay positive. We are strong! We go through this almost every day of our lives. Tell me how many "normal" people could handle all of what we go through? Keep fighting and don't give up! There are great days even if they are few and far between and just try to make the best of the really bad ones. Love and Peace to All!
@niptodstan
6 жыл бұрын
I'm 59 and male. I've been ill for ten years now. My life is in tatters but now they've diagnosed me with Lupus. At least I can put a name to it. The constant fatigue and anxiety etc. My family call me idle. But I'm not. I get up of a morning and feel like I've not been to bed.
@tracyslayton8095
5 жыл бұрын
LarryUK I know how you feel
@stuwill
5 жыл бұрын
LarryUK I know that feeling. You are not alone Larry!
@andrearoberts9094
9 жыл бұрын
Thank you for your post. I have the same symptoms and skin rash that comes on my right arm. I am a nurse practitioner and have self diagnosed but have had the hardest time finding a doctor who will listen to me. I have am in my first flare now that has lasted 5 weeks now. I had 1 day on a Saturday I could not get up or walk. I have pain in my entire skeleton.i feel so fatigued but I keep going. Weekends I seem to crash and just take it easy after 5 days on the job. So much I wish I could say to you and so many questions I have. Doc has me on steroids....but it's just blowing me up more. Waiting on tests and results of full skeleton xrays. So appreciative to you for your wealth of info.
@clairekaiser6240
8 жыл бұрын
I hope you are doing better, please let us know! Talking or writing about it is a big help!
@nikkigarrett58
9 жыл бұрын
Thank you for this video! I am starting my lupus hell, and my last flare up almost killed me! It seemed to mess with my brain to where I could not think or recall what I was just doing, or even get the words out of my mouth of what I was talking about, also I went 24 hrs without going to the peeing! I don't know much about lupus and am trying to learn more because I thought my last flare up was going to kill me!
@traceymanzano
8 жыл бұрын
+nikkigarrett58 My daughter has lupus and you MUST make sure you receive the absolute best health care to at least control this awful disease!!!!!
@nikkigarrett58
8 жыл бұрын
+tracey marie I wish that I could get back to see my Dr, but I now have no Ins, and I am in this all alone, and I feel as if I am going to die. It has gotten so bad over the past months that my bones hurt all over, even hurts and wakes me up at night to lay down. My skin came up with blisters last week, and I could not even stand for my clothes to touch my body. I am trying to find ins so I can go back to my Dr's and kick Lupus in the ass, because I am sick of it kicking my ass! I hope that your daughter is doing well, best wishes for her and your family!
@TheeLifted-Bodhisattva
7 жыл бұрын
nikkigarrett58 💕 I hope that your insurance will pull through for you. And that it supports the best care possible for your greatest and highest good.
@ankitaanurag8487
6 жыл бұрын
@@traceymanzano if a person you are going to marry his mother had lupus, then what to do so our baby doesn't get lupus
@Midlife_Manical_Mayhem
5 жыл бұрын
@@ankitaanurag8487 there is nothing that can be done to prevent lupus as they don't know what causes it. it doesn't have to be hereditary. there is none on either side of my family. i have not been officially diagnosed yet, but my family dr and i are fairly certain i have it. seeing a rheumatologist next month. don't live your life in fear of diseases. there are too many and too many without known causes.
@eewaeewa
9 жыл бұрын
Thank you for this. With the exception of the pancreatic issues , our path sounds the same. Eyes, ears, skin, joints, seizures, headaches, blindness, heart damage , heart attack, kidney, spleen, liver, brain, stomach, intestines,lungs and yes, all the parts in between too. I am 67. I was diagnosed with S.L.E. at 24. Roller coaster. Websites that show a butterfly rash as S.L. E. need to be revised to differentiate. A person with S.L.E. may ALSO have Discoid, and vise versa, but they are not at all the same. You cannot imagine the number of Doctors I have been to over the years, that assumed Lupus = butterfly rash.
@koushikganjam5071
8 жыл бұрын
Was very helpful. Wishing you a full recovery
@clairekaiser6240
8 жыл бұрын
Thank you for all of the comments. I am sorry to see that so many people have lupus. Mine is behaving very badly right now, but I will be making more videos soon with lots of infos. Thank you all for watching my video, I feel less alone. :)
@galerogers2915
8 жыл бұрын
I received a call about three weeks ago informing me that my blood work showed a positive Lupus diagnosis. She said ANA test was positive. I had no idea he was even testing for Lupus. He had told me that he was almost positive that I had gout. He also tested for rheumatoid arthritis. Gout and rheumatoid were both negative. I was horrified and scared to death when I record that call. I knew nothing about Lupus, other than it could kill you. I knew that it attacks your organs. I also found out that an aunt and two cousins have it. So I guess it runs in the family. My primary care doctor put me on prednisone while I'm waiting to see a rheumatologist. Thanks for your videos. I have been pouring over all the info I can find.
@rhedydee2623
8 жыл бұрын
peace to this sister who posted this video
@robin3651
3 жыл бұрын
God Bless you Sis 🙏 praying for you. I also have Lupus.
@MrStinson1083
6 жыл бұрын
I still don't understand everything about this. I was just diagnosed with SLE Lupus 2 weeks ago. Only thing I know right now is I feel like im dying.
@patriciaspell2569
8 жыл бұрын
I just spent the past week in the hospital, because my lungs were not working good enough to get enough oxygen into my blood. I found low oxygen can cause all kinds of problems, like migraines rapid heart beat. My lupus meds dropped my magnesium so low I had to have IV injections. This is the first real flare I have had since I was diagnosed.
@destany9591
5 жыл бұрын
I'm 26. I have bad pain flares, chronic fatigue, numbness/tingling. I see a Rheumatologist. He hasn't diagnosed me yet. I seen this other regular medical doctor he thinks I should see a neurologist because my reflexes failed the neurological exam. I'm on medical leave from work. I have no source of income. This is stressing me out worse than actually just going to work everyday.
@863NightOwl
9 жыл бұрын
Hello...Do many people with lupus have enlarged lymph nodes?..Thanks.
@Gapeach2023
7 жыл бұрын
L W I was dx 4 months ago and a year I had fever and my lymph nodes swelled to where a cancer dr sees me . I got lymphnaohty can't spell right but it's where lymph nodes swell . I get kidney stones too . I'm just learning but I was told lupus caused swollen lymph nodes . I get petchaie too , idk it's a very complicated disease like your allergic to yourself ! I have gotten very depressed too ! I'm just now reaching out for others like me ! Good luck to you !
@karencameron464
6 жыл бұрын
I do, and I've had biopsies on them to determine what is the problem. Once I was diagnosed with Hodgkin's Lymphoma but it was a Lupus flate
@TheUltimateLauren
5 жыл бұрын
I do
@marlo9282
3 жыл бұрын
I do, they are large...never go down on my neck especially
@westfallvoice
9 жыл бұрын
I feel like I have a sunburn before a flair. I have small sores on my skin that don't heal, had 3 heart attacks without knowing when they happened. Many, many different attacks with major damage on different organs. Funny people say to me ...you don't look like you have Lupus??? I guess because I don't have the butterfly rash on my face.
@geraldinman5633
9 жыл бұрын
I am the same way but I have brown patches on my face and I feel like we are having a solar flare
@jaz041895
2 жыл бұрын
Thanks for the info, and for sharing ❤️🙏🏻🙏🏻🙏🏻
@daschundloverable
8 жыл бұрын
I've had all the symptoms of lupus since the age of 4 when I remember my parents taking me to a dermatologist for what they thought I was "allergic to the sun". Many years and many, many symptoms later, I did not test positive for the ana. I have other neuro and ortho problems also. I believe I am on of the 2-5% (every drs. opinion is subjective) who do not test positive for it. What's really interesting too, is that my mom's maiden name translates to LUPUS!!!! GO FIGURE.
@TheUltimateLauren
5 жыл бұрын
Anyone else get hives that rapidly appear and disappear in a few hrs? Drives me crazy
@bellade3971
5 жыл бұрын
LBD yes I get hives when I’m cold. Last a few hours and then disappear.
@mishamccrea5303
10 жыл бұрын
Hi, I'm hoping that everything would work out and get that condition under control. I was diagnosed with fibromalgia 3 years ago and I believe I have lupus in addition. I have pain every day in my collar bones, hands, wrist elbows, lower back and ankles, I feel as though my ankles will break. I have no strength walking up and down the stairs and I can't pull myself ip a chair. I get rashes on my legs and arms if im in the sun too long. I have many other issues, what do you think does it sound like fibromalgia or lupus or both? I appreciate your help, I going to another rhuemologist to get another opionion.
@heartbeatviews
4 жыл бұрын
Thank you. I am learning
@eileenbussey6926
8 ай бұрын
I get these sores on my hands. Kinda look like a pimple but they hurt n get crusted. It’s hard to explain. They come n go. I had a biopsy on them n they said it’s squamous cell carcinoma. Well cancer doesn’t come n go, so I don’t believe it. I have a lot of pain in my body, n I lost my sight in one eye. I’m 74 n I feel so lost. Drs look at me like I’m crazy. I was tested 10 times for lupus n all came back positive for it n positive ANA n RA. Any suggestions? Wish I could talk to you. Thanks for your in info.
@Astreyah
9 жыл бұрын
What was your first issue you had with lupus? I have been diagnosed now for 4 years and now I am going through some annoying painful eczema. I was curious if yours started out "simple" and gradually got worse attacking your organs and such. Thank you. Astreyah
@jeffb3267
10 жыл бұрын
Hi Claire.Thank you for the way you presented your information.It was clear and very helpful.I have had symptoms of what I think is Fibromyalgia for at least 10 years.I have had to go through all the hoops and tests to rule everything out.I have a lupus like rash on my face that hit me in my 20's with some occasional large filled blistery pimple type bumps on my chin.That finally stopped and in my late 30's started getting the Fibro type symptoms.Can you have Fibro and Lupus to where you can't tell them apart? I get the breathing issues you mentioned where my heart just seems to misfire then the feeling of breathlessness kicks in.I have had it tested so I know my heart is good.But the pain the hits the joints is pretty hard.Do yo get any redness in hands around the knuckles? I look forward to hearing from you.I have my rheumatologist appt in Nov and am trying to put all my symptoms in a package so we can figure out what is wrong.Thanks,Tory
@montrelouisebohon-harris7023
3 жыл бұрын
I have Lupus rheumatoid arthritis and fibromyalgia. Sometimes I think fibromyalgia is actually more painful because it feels like somebody beat the hell out of you with a baseball bat and I get the worst muscle nuggies ever.. it feels like somebody just beat me over and over again and this knowing pain into my muscles and nerves.. it's usually in my arm or my back and my legs but it doesn't affect your wrists and hands and feet like lupus or rheumatoid arthritis.. I'm 53 and when I was 33 I was put through every single test under the sun because my antinuclear antibodies was negative and my double-stranded dsdna was negative but the double-stranded test is only indicative for lupus nephritis which affects your kidneys only..anti Smith is a much better SLE lupus test but by far the best indicative test are signed symptoms blood work because they can tell by severe anemia and signs and symptoms was either weight loss and weight gain without trying.. the best blood test is an arthritis profile a CBC and a full blood protein complement test.. if you have Lupus and or arthritis your C3 and C4 will be low..LOW!! I am one of the 5% of the people who never ever had a positive in a nuclear antibody test ever in 20 years and yet my sedimentation rate would the extremely high and I got lupus before I got rheumatoid arthritis so they knew it wasn't RA in 2001... there are also other illnesses like the riot at the arthritis and if you have psoriasis you might get PSA which is a completely different but still a Rheumatology autoimmune disorder that affects the spine hand fingers feet./ Systemic lupus feels more similar to fibromyalgia because lupus symptoms hair loss headache and fatigue and two of those signs are fibromyalgia but fibromyalgia doesn't usually include hair loss.. I was on Plaquenil for eight and a half years and taking 400 mg and then I got and complete renal and organ failure in March 2018 and practically God since I didn't go to the hospital for 5 days.. for a couple days I thought I had a really bad GI bug and when I threw up or dry heaves so much I was so used to being an Agony that I just didn't pay any damned attention to it. I did start to pay attention when I literally couldn't take the pain anymore because my Percocet wasn't helping much and it's because I'd had a blood infection for a week and I didn't know.. when I was laying in the bed I can get fine but when I got up to even walk to the bathroom or take the dogs out on the leashes to go to the bathroom I would start gasping for breath due to pain and walking up three stairs!! I knew something wasn't right and finally by Friday morning I called Ian and I was tachycardic in the back of the vehicle and I thought that I probably had pancreatitis so I was shocked when I found out I had sepsis later that night but I wasn't overly shocked. My kidneys shut down Sunday because that's the day I have the dry heaves that night and I went five days without going to the hospital not knowing so my heart was starting to fail a couple days before I went to the ER and I had blood clots in my kidneys in my arteries and everywhere so they were pumping me full of Heparin IV antibiotics and I was hooked up to a heart machine and oxygen... The best thing is to eat healthy and stay away from sweets and alcohol. Sugar causes more pain unless you just have a craving for a candy bar every now and then but if you eat a piece of cake every day for you and your candy bar everyday your pain levels going to go up.. it did not ask me and my neighbor that got lupus when she was 28 but I find a very high sedimentation rate that like 50 to 60 or above plus a full-blood protein complement and a C-RP or C reactive protein. The ladder test checks inflammation but it also check the status of your heart and the full protein complement help because if you have Lupus and or rheumatoid arthritis your C3 and C4 will be low and it could be one or the other or both guaranteed . I wish you all the best and if you get to the point where you're in too much agony applying for disability and keep doing whatever you can even if it means changing rheumatologist because doctors get lazy
@montrelouisebohon-harris7023
3 жыл бұрын
I was just reading your comment and you mentioned something about blisters and I was wondering if you've ever had mouth sores or sores on your gum? They can be painful as crap or not painful but that is a really good sign of Lupus officially if you have it more than one
@sudilos1172
8 жыл бұрын
Admire the strength
@roseannpuckett8336
9 жыл бұрын
thank you
@montrelouisebohon-harris7023
3 жыл бұрын
I have systemic lupus and arthritis and fibromyalgia for twenty years or more it's just I've only been diagnosed 20 years and yet I was showing symptoms five years prior after a pregnancy that nearly killed me. I'd had two children and my first pregnancy was a miscarriage at 3 months but I've never been so tired in my life and so darned weak & it was because my heart wasn't functioning well./ my blood pressure was extremely low and it was 55 over 45 when I was 8 weeks and my pulse was awful and even though he was telling me that I should really consider a medically necessary abortion because she didn't know why I was having such problems but this could kill me if I continued the pregnancy. I told her I was going to try to hang on and see if it got better by the end of my first trimester.. she saw me every week because I was high risk and when I went in to my OB appointment at 11 and 1/2 weeks I Collapsed on the floor. The next thing I remember I was somewhere in a white room and I knew it was medical and I could see you soon a gram with my baby. It was heartbreaking because I was 11 weeks and 5 days pregnant in that baby's heartbeat was stronger than mine because my blood pressure had gotten to be 48 over 20 and it was just awful.. it happens to be Valentine's Day 1996. The irony of it all is that the next morning following the procedure except for being in a lot of pain following the procedure,_ and it was more painful than the DNC I had following my miscarriage in 1988.. the only thing I could think of that was so painful words from where I had the DNC because the miscarriage was excruciatingly painful 10 days after they had no fetal heartbeat on the monitor. It hurt like crazy when I was having the miscarriage and the doctor came in and gave me Tylenol 3 and then took me to the maternity ward of all places.. I had another mother in my room and she said she was praying for me all night long because I was in so much pain all night and she knew it was a miscarriage.. " the products of pregnancy",_ as to the way doctors refer it, just came out the following morning.. a lot of tissue and blood came out into this cup they have in the toilet and the nurse immediately took it from me.. that was rude because it was my baby and I wanted to see it but she's pulled it out too fast. The really sweet obstetrician that saved my life that night because I was in so much pain, gave me a D&C because part of the placenta was still in my uterus.. Nine or ten months later I went on to get pregnant with my oldest (girl)/and then three years later I had a boy../ there was something weird going on with that 4th pregnancy and so weird that Within 24-hours later my heartbeat was normal.. I don't know but I could have had lupus back then in December 1995 or January 1996. Either I had it then or I got it after that pregnancy because the month after the termination I had pink eye.. then the next month I had the worst case of strep throat and here I was 28 and had never had strep throat prior.. it was never just that case also and it wasn't going to go away with antibiotics so I had to end up giving penicillin shots. Strep throat was around April 20th 1996 and within a month later,_ my hair was falling out worse than it has been for the past year... sure I had some hair loss after my first born because of the C-section but I didn't have any hair loss after my second baby.. he was born bad and I think that made the different because it didn't have a blood transfusion with my daughter after the C-section.. it was 1989 and I was still weird about blood transfusions because of HIV and my husband was B positive blood and I'm A positive. That's why I thought I lost so much hair following my first childbirth.. honestly I had enough hair for four people and thank God so because I lost half of it when it started falling out in 1996.. now that I am menopausal I have enough hair for three or four people once again so far-----but Anything could happen at any time and it could start falling out again. Lupus and very very weird and it's very very very unpredictable and yet during the reproductive years I was constantly hilarious and I got about a two or three-week break in between and then it would start all over again..awful. sometimes I was fortunate and I would have a month without a flare-up but in the winter I was very lucky to go two months without a flare up and I would usually only get one if and when I got sick with a sinus infection. The infection always was followed by a flare-up about a week or two after my sinus infection went away.. I could be around my dad and if my dad had a really bad head cold my hair would fall out and I would be in so much pain a day or two later. What I do know is that my knees feet and back was hurting and I had a constant headache everyday or every other day and I was so tired I felt like I was in my first trimester of pregnancy. I can wake up feeling okay and 12 or 14 hours later I was ready to go to sleep.. it started out like that and then by September it was worse.. the hair loss headache,_ knee pain and leg and feet pain started May 1996. I didn't know what it was and thought it was marital stress and my mom came to visit December 1996 for Christmas and said I should get my thyroid checked because when she was cutting my hair she noticed how much was gone plus mom kept hearing me say how tired I was.. my thyroid was normal and I wasn't even anemic at that point so I could have been either coming down with lupus or that is when I did get lupus and it just hadn't affected my blood like it did by 2001. Blood work changes for me happen over several years but I lost 10 pounds in one month and my hair fell out plus I was having a fever in August and freezing when it was hot as Hades outside... what happened was I still continue to have back pain major headaches knee pain got worse and I got tired that I was also a paralegal & a single mom.. still better than being married because then I just got a third file to take care of and I made plenty of money I could save on my own without him blowing it!! . . .
@inkgoddess1966
9 жыл бұрын
Bless you.
@mandygarcia8146
5 жыл бұрын
I got a rheumatologist finally but my antibodies are not showing all the time yet so no diagnosis yet ? Did you struggle in the diagnosis process .
@jacquelinerowe420
7 жыл бұрын
I trust a dog Adamson has lupus I was diagnosed with it 2012 I am so sore some days and some days I'm not I had a baby in 2015 with my little bit she's a year old now she is so sweet her name is Jacqueline I love her so much and I hope it doesn't affect me to work I'm going to be hospitalized cuz I want to see her graduate and get married that is my dream but I know lupus can kill you so I'm just praying to God everyday that I can see my daughter and I love her lupus I have is not attack everything but it also hurts sometimes I just want everybody to know that take care and God bless all of you who have Lupus
@jacquelinerowe420
7 жыл бұрын
Tressa d Adamson
@kelsielavalette6693
9 жыл бұрын
I am 22 years old and I was diagnosed with lupus at 13 years of age. A few days ago I ended up with a very itchy rash on my arms, lips, and nose. Is that a sign of a lupus flair up?
@queenieluvbug11
8 жыл бұрын
Yes it is!
@clairekaiser6240
8 жыл бұрын
Yes it could be. Make an appointment with your doctor!
@lw1913
8 жыл бұрын
Thanks for sharing.
@Kparso01
5 жыл бұрын
I have Lupus... makes me feel like I'm going to get a cold but I dont right before a flare. Also makes my lymphnodes swell a ton. Sometimes during a flare up my feet will swell a bit and my hands when I wake up because sadly my kidneys are involved. 😢
@uiktul
8 жыл бұрын
my doctor said that my lupus is mild,is it always going to stay like that or will it get worse?
@clairekaiser6240
8 жыл бұрын
Lupus is different for everyone. Some cases stay mild while others are more severe. There is unfortunately no way to know in advance if it will get worse or not.
@mumjones1242
6 жыл бұрын
I was on plaquinal for 15 years and cruised through lupus.. but then my body rejected the meds and now I'm unwell and tied all the time.. it's a hard disease to fight.. good luck babe
@kvillarreal8719
8 жыл бұрын
Hi I have lupus and I'm trying to get disability are you in disability? Think it's going to be hard for me to get disability because my symptoms are not severe. Best regards thanks for the video
@zolushka4823
8 жыл бұрын
I am getting flares up for about 5 years now unforunately 99% of doctors I've been seeing are total morons. One made me drop my pants in her office and was looking in back of my legs because I told her that sometimes I get excruciating pain in my legs that I can barely walk.....then at another doctors I began describing all my symptoms and she told me "Time out". "You need to make a SEPARATE appointment for each symptom" I was like seriously? Now went to a new doctor who is actually doing something just had a blood test I hope it will reveal my illness. It's much worse now I have had it for 5 years at least. Last time my flare was that my fever went to 104.7 out of nowhere. I was saying my goodbyes. It went down after 8 hours. Just as sudden as it came up. And my very last flare was attack on my lungs. Heavy chest, painful beathing and oxygen at 87. Funny thing that my hubby got acared. Took me to ER we arrived there and a man in ER the admitting person measured my oxygent and it was 97 and he was dancing. I told him I had difficulty breathing 10 min ago he was dancing...not taking me serously. I was like "I don't need to be in this .... hospital" where I tell them I had pain in chest and difficulty breathing they told me "have a seat" I probably had a blood clot
@sandraperkins7335
8 жыл бұрын
+dev ochka I am also having a difficult time getting a diagnoses.all they do is take blood and tell me I am normal,while I sit there with radiating pain slicing thru me....have had 3 bad episodes since I was 14 years old....60 and still no answers.....
@zolushka4823
8 жыл бұрын
sandra perkins Have your doctor or ask if they checked you for Gout. Mine gave me pills for Gout and my symptoms are a lot better now not as severe as they were. Good luck and get well soon!
@rhedydee2623
8 жыл бұрын
Yes, there are many unqualified doctors!!!! Gotta get a caring team.
@goldseraph7051
8 жыл бұрын
when you get one of your *symptoms before your flare* do you go to your doctor for a blood test?
@clairekaiser6240
8 жыл бұрын
I get my blood taken every 8 weeks to keep track of what my Lupus is up to.
@giobasta6918
9 жыл бұрын
ehm... Sorry... do you mean flare?! I think so... You should correct the title of your video because 'flair' means 'talent' and 'flare' means what you would like to express. The pronunciation of these two words is the same though. www.oxfordlearnersdictionaries.com/definition/english/flair?q=flair www.oxfordlearnersdictionaries.com/definition/english/flare_1?q=flare .
@MoonPhaze5
6 жыл бұрын
Wow.... That rash you get on your arm sounds like shingles! 😦
@teresahoward6323
5 жыл бұрын
Shingles is said to be a symptom lupus can cause because of the lowering of the immune and I. Many case because the virus in already I. You body from chicken pops
@nazgulwraith2281
6 жыл бұрын
flare
@heathersinclair2279
8 жыл бұрын
You remind me of Dianne Wiest
@branny1420
8 жыл бұрын
RIP
@cc12yt
5 жыл бұрын
Hey you... It isn't lupus
@queenieluvbug11
8 жыл бұрын
Thank you for doing this video. It was very enlightening! My mother was diagnosed last yr. I thought I knew what lupus was. Lately she's been very tired and sick all the time. I was thinking maybe she just didn't want to get out or maybe she was depressed...I had no idea that lupus could make her so exhausted all the time. I will pray for you and all lupus sufferers.thanx again and God bless!
@dokaliatusa9401
8 жыл бұрын
thank you
@teNpac47
7 жыл бұрын
I think I may have been misdiagnosed with Sarcoidosis my symptoms sound like this.
@kimberlymcgrath7260
8 жыл бұрын
I really started getting sick in 2011. My ankle swelled very big and was red. It felt like it was broke when i walked. I went to the er and after numerous test the dr. Said to see a hematologist asap. My wbc was 2.7. After testing and 3 years of swollen ankles to the point of screaming when i walked and redness that i had to mark with a pen to make sure it didnt move up my leg. Rheumatologist said she thought i had lupus but until i was in a full blown bout they couldnt get a positive test. Ive had tendonitis so bad it felt like my tendon would snap in two. I ended up in the hospital in 2014 for 2 weeks. My hemoglobin was7.2. Got 5 pints blood. Had abscess on my thigh. Sepsis pneumonia. Water round my ❤ stage 3 nephritis. Spot on my lung. Went home with a plc line for 6 weeks. Im always fatigued. Dizzy. Forgetful. Achey. Just dont give up on getting a diagnosis. Maybe keep a journal.
@deborahstevens8033
8 жыл бұрын
I think I have lupus. My mom had it. Just recently, I have begun noticing how the change in weather affects me, causing a weight to settle upon me. There are so many symptoms that have suddenly appeared at an accelerated rate. The more I read everyone's stories, the more the more they sound like my own story. Thanks for posting your stories. Sure helps me out.
@montrelouisebohon-harris7023
3 жыл бұрын
Just be careful when doctors start testing you because I'm one of those people and 5% that did not test positive with an. ANA.. that is not a diagnostic test but actually an indicative test because a person with hepatitis can have a positive Auto antibody and so can people with multiple sclerosis and people with rheumatoid arthritis.. the best thing to do is if the doctor runs a full arthritis screening panel and even if you're a non-nuclear antibody came back negative they can still get a better look at what you have by looking at a sedimentation rate or a c reactive protein and definitely definitely the most important is a protein complement test. My primary doctor diagnosed me clinically because of my symptoms signs and blood work but I had a negative anti nuclear antibody and a negative anti dsdna.. here's the weird part because a positive dsdna will only occur if you have lupus nephritis affecting your kidney and I didn't know that then.. I was wondering why my auto antibodies and my dsdna were negative so I was thrilled I didn't have we put in my doctor kept saying oh yes I did- we will just watch and wait
@angela908051
9 жыл бұрын
Try for the info I just found out I might have lupus and think I do it really sucks sooo tired all the time and a lot of other stuff skin rashes two strokes etc so I'm trying to find out more try god bless
@Sammi2262
8 жыл бұрын
The Doctors in St. Louis when I was Visiting my Parents in November said I had an Auto~Immune Disease going on ... But my Doctor here won't Help me at Alll !!! And I'm Soo Frustrrated because I'm the one who's Kidneys keep Shutting Down not this Doctors ... I have actually been going through this for nearly two years now and I feel like giving up I'm in Soo much pain all the time ... I Will Pray for You 🙏🏽 You sure Helped Me Understand Soo Much More about Lupus ... Thank You Kindly and God Bless You 👼
@FarahFarah-pw5lx
4 жыл бұрын
Read Goodbye Lupus by dr Brooke Goldener
@tammyfofah7200
6 жыл бұрын
I'm 57 and l have lupus , it took my. doctor 4 years to diagnose me I think I had it. when I was 14 or 15. I had this severe rash from my hand to my elbow
@levistubs7084
5 жыл бұрын
Thanks so much for your video you actually talk about other symptoms that are very present in everyday life with lupus not saying that the rashes and light sensitivity aren't important they are other than the cosmetics that come along with lupus the fact that you touch base on the brain the lungs the heart the kidneys liver your eyes and the seizures etc.. I wish more people spoke about the toll lupus takes on your organs and life .hope to see more of your videos and thanks again
@BellalovesMarla1
8 жыл бұрын
im scared that i might have lupus but my friends and family tell me im just overreacting so im scared to seek help. cause when im really wrong about it they'll laugh at me.
@sweetislandgirl8071
6 жыл бұрын
Better to be safe than sorry, u should see dr
@carebea41906
6 жыл бұрын
I feel exactly like you do!
@Angelalivingsoberwithl4072
5 жыл бұрын
Praying I was diagnosed in 2004 kzitem.info/news/bejne/z5to2Zhps5ajlIo
@MsKCRN
7 жыл бұрын
My 1sr Major flare almost killed me, w/in this month. I can't afford hc so I used my knowledge of medicine & physiology to get through it alive. I took some free samples of Arthrotec my primary care had given me. I couldn't believe how much pressure came from my liver! it stuck out at 30 degree angle! Brutal pain, strokes, bleeding from my ears, every organ hurt. And pleurisy... Finally I started feeling better one day but 6 hours later I realized it was coming back. Can ANYONE tell me how to get hc? I cannot afford it. What do I do? I supposedly don't qualify for disability. What was I paying into all these years? please help mr w hc
@sandyazbill257
Жыл бұрын
I've had systemic Lupus over 30 years, it has almost destroyed my vascular system and heart. I've had a 45 pd weight loss and it's not looking too good for me. Please see a rheumatologist. Don't be like me.
@Lovinmybrownskin1978
10 жыл бұрын
Thank you for your video...it's very informative and very helpful!!!!👍👍👍👍👍👍
@deecee901
9 ай бұрын
I seem to get short of breath & increased fatigue & the never ending pain
@warmnekokitty
8 жыл бұрын
Are pains in your torso a sign of lupus? Because I've went to a rheumatologist and they said that just because i have a positive ana doesn't mean I have it. (I have hashimoto's and chronic hives.) but I've experienced pain so intense that I couldn't stand up. My legs literally collapsed from under me. I'm thinking of getting a different doctor...😞
@teresahoward6323
5 жыл бұрын
It dnt always show. It is vary hard to diagnose. It to along time and 2 week long hospital stat to get a diagnosis for me
@Anna77Bella
8 жыл бұрын
I too have lupus....
@FarahFarah-pw5lx
4 жыл бұрын
Read book Goodbye Lupus by dr Brooke Goldener
@Martin_Priesthood
Жыл бұрын
💯❤️
@sheliarossell3162
2 жыл бұрын
Wow thank you on describing what effects of lupus, and more info my neighbor has this she is 70 now 1 - 1/2 good years. Next heart issues, kidneys, stomach, and like you shared you don't know what area it will attack or several areas.
@jameswayne5391
4 жыл бұрын
If I did a blood test during a flare, would it be dramatically different than just a normal day?
Thank you for this video Claire; best wishes. Thank you again. :)
@deanawade5878
8 жыл бұрын
Informative. Thank you for making this.
@EsGur
8 жыл бұрын
Thank you for this video! my 22year old daughter was just diagnosed with this! we are just devastated! she has a one year old daughter that she has a hard time taking care of now! I'm very worried!
@deanawade5878
8 жыл бұрын
+Estella don't be devastated, find out how you can be supportive, I mean that with kindness
@nilsarodz5998
9 жыл бұрын
can anybody tell me if lupus atack women over 50
@gurlbooU
8 жыл бұрын
+Nilsa Rodz Lupus can attack your body at any age. YES!!!
@nilsarodz5998
8 жыл бұрын
Ok Thankyou
@dariahughes5564
6 жыл бұрын
Flair? Lolololol
@Midlife_Manical_Mayhem
5 жыл бұрын
so nice that you found this funny. did you know that lupus also causes cognitive issues and people who once were in spelling bees now have to use google to properly spell words? not so funny when it happens to you.
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