It was terrible for me, it took me about 5 years of suffering with terrible symptoms and probably 30 or so different Drs. I was accused of being a hypochondriac and treated badly by several Drs who thought it was all in my head just because they couldn't figure out what was wrong with me. I was diagnosed with Kearns -sayers and CPO in 2019 at Duke neuroscience center in Durham NC...
@wsmh20
13 жыл бұрын
I relate the most to you; being a Physical Therapist, administrator with seemingly unrelated symptoms for more than a year, I was misdiagnosed, treated improperly and patronized. Unfortunately for me at 37 y.o. I had catastrophic onset & losses including complete psychosis I was airlifted to Cleveland Clinic where they new better. My formal Mitochondrial Diagnosis didn't come for another 4 years. I have not been able to work since my initial onset. I now advocate for others groping for answe
@sallydavidcallumcaleigh
15 жыл бұрын
Thank you so much for posting this...I was accused of psychogenic illness and misdiagnosed with conditions that only accounted for specific symptoms. It led to 17 unecessary neurosurgeries which took me from a symptomatic patient to bedridden on oxygen. I am recovering more function now that I am being managed appropriately but my heart breaks for those that are still undiagnosed! Sally
@benjaminklose378
5 жыл бұрын
Thank you!!!! I had an old doctor tell me, in 1996, after I had a muscle biopsy and a confirmed diagnosis, " I could not have M.M. because he had never heard of it!".
@lotusfaisal
13 жыл бұрын
my 2 daughters died of mito... i was in third world... u have no clue what i have been through... i am so sad and lonly. no one no one is telling me anything .... i wish u loads of luck and love.... may u live a ful healthy life and inspire others.. may we find mito cure in our lives. i feel out of energy all the time , no one tests me or tells me if i cud be mito......... hard life
@lena5633
7 жыл бұрын
squidgymom I'm sorry..There is hope go to jw.org ❤
@loripav
11 жыл бұрын
Im being tested for this. I do have sarcoidosis of my lungs, liver and spleen, Ive been struggling all my life (learning dissablity) (developmental delays) (extreem tiredness all my life) and much more.
@kc7339
9 ай бұрын
Hello. I'm recently diagnosed. Symptomatic since 2008.
@jeffreysainio2572
Жыл бұрын
"It's all in your head" translates to "I don't know, but I gotta point somewhere." I had colitis for 33 years, KNEW it was an immune attack against the gut bacteria (which would get killed, and my symptoms disappear, every time I was treated with antibiotics for, say, bronchitis) but would be told "you're wrong, the cause is unknown!" Yes, your diagnosis with DATA is wrong, but our un-diagnosis is better."
@TicTacYo100
12 жыл бұрын
@lotusfaisal i have it as well, born with one hand in pain every day i can barely go to school because it kills my back , my joints are falling apart (not litteraly), I wish there was a cure, and i can also barely lose weight, so i just cry it away
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