Von Willebrand’s Disorder (VWD) is the most common inherited bleeding condition in which the blood does not clot properly.(1) Despite affecting an estimated 4,900 people in Ireland, only around one third of people living with VWD have received a diagnosis.(2)
In this video from the Finding Von Willebrand campaign, retired primary school teacher Breda Quealy speaks about the impact of von Willebrand’s disorder (VWD) on her life.
Recalling the years she lived without a diagnosis, Breda reflects on experiencing unmanaged symptoms and the mystery surrounding them.
Breda reveals it wasn’t until she was in her thirties that she was officially diagnosed with VWD and describes the difference diagnosis has made to her life as well as the lives of her relatives. She describes the need to advocate for your own health concerns and underlines the value of seeking medical assistance.
Symptoms of von Willebrand’s disorder include:(1)
✓ frequent nose bleeds
✓ easy bruising
✓ excessive bleeding from an injury or after dental work
✓ Or in women also heavy menstrual bleeding
Von Willebrand’s disorder is treatable once diagnosed. Speak to your GP if you are experiencing a combination of these symptoms or repeated bleeding issues.
Visit haemophilia.ie... for more information.
This campaign is sponsored and funded by Takeda and supported by the Irish Haemophilia Society.
References
1. Centers for Disease Control and Prevention, What is von Willebrand Disease? (2021) Available at: www.cdc.gov/nc... [Accessed November 2022]
2. Clinical News. New global clinical guidelines launched for von Willebrand disorder, The Medical Independent (2021) Available at: www.medicalind... [Accessed November 2022]
Негізгі бет Finding von Willebrand Breda’s story
Пікірлер: 2