I agree with Luke Beardon that we should move away from the term "diagnosis" which implies an illness or disorder and use a more neutral term such as "identification". Autism need not be a disability but it is certainly made so by society. Perhaps a more fitting term is disadvantage which we use referring to the barriers and discrimination faced due to factors such as class, gender or ethnicity. Disadvantage is constructed by society, it isn't inherent or caused by medical factors. However at the moment there is little alternative but to use the term "disability" as it is the only way in which autists can receive some support and legal protection (inadequate though that is); "disadvantage" is very real and while some efforts are made to tackle it there is no legal protection offered.
@welcome12ization
3 жыл бұрын
I like calling it identification too.
@strawsofftheneurodivergent4221
2 жыл бұрын
we are definitely NOT disordered. But I am a bit sceptical about using "identification" because, you get no support, when you "identify"" as. You only have a right to support if you have that piece of paper... It is so backwards in our society. Autism as a disability in the social model - being "disabled" through society that does not really want to make adjustments to our needs like they would for any wheelchair user or blind person.."Invisible" disabilities can be ignored easier and the full responsibility is put on the autistic to adapt their behaviour...
@gmlpc7132
2 жыл бұрын
@@strawsofftheneurodivergent4221 I agree that whatever terminology is used support is essential. I also agree that invisible disabilities are all too often ignored with groups such as employers "talking the talk" about offering support and in practice doing very little to do so. A lot of it is PR with little real interest in changing things.
@livenotbylies
4 ай бұрын
Confirmation. I got confirmed last week!
@garyfrancis5015
3 жыл бұрын
It has to be disorder just to be seen as medical program. Like going into hospital with a not fixed foot. Rather than a broken foot. Disorder is medical alignment name.
@dominicbarstow1450
3 жыл бұрын
I've just had Luke Beardon on my podcast and I loved talking to him
@welcome12ization
3 жыл бұрын
He seems a nice person.
@dominicbarstow1450
3 жыл бұрын
@@welcome12ization yeah he is
@garyfrancis5015
3 жыл бұрын
It's catch 22. If you before lock down rules. If you don't being around people then you can't mask in social situations. So that case you habe to feel a social idiot if your a autistic person. To then get practice is the social rules. Small talk, open question, learning non verbal communication all that social padding I recently called it in a email. Someone Purple Ella meets once Temple Grandin, she so to the point with what she says autistic no into just to the topic. Great quotes about the NAPS as you call them. "Socialising for the sake of socialising".
@strawsofftheneurodivergent4221
2 жыл бұрын
A diagnosis can actually then put you into a box, and you never get out of it. When diagnosis are being used to label one group of people as "less than" that is dehumanizing. However "identifying" as autistic, I am not sure, if that then will give you the support that some of us may need. And for so called "level3 non-speaking autistics, they may not 'identify" themselves as anything, they just ARE. So for parents to get support, they still need that diagnosis. But I agree, that diagnosing people, because it is STILL LABELED as MENTAL DISORDER, THE PROBLEM with that is, you are being constantly judged by your behaviour, and they try to "treat your behaviour" and make you "more neurotypical" how arrogant is THAT? Totally have an issue with the "disorder" narrative because you are degraded to your behaviour. And that is actually very discriminating and even racist so to speak, basically like a Nazi would judge a Jew for being "less than" just for being "jewish" or a slave owner would degrade black people just because of their colour, and then there is nothing you can do or say, to ever get out of this, all is judged through that lens. It is extremely narrowminded and then there you have an unnatural hierarchy where neurotypicals are "better than" just because they lack a diagnosis. It is just not right. And Kristy Forbes very much points this out. Flourishing with Acceptance by Kristy Forbes kzitem.info/news/bejne/rnh4sZaVoHyHY2U
@livenotbylies
4 ай бұрын
Redefine autism. Let go of the deficit based model. Autism is just a hyper connected nervous system
@strawsofftheneurodivergent4221
2 жыл бұрын
you talk of co=morbidities, which is not autism
@welcome12ization
2 жыл бұрын
Autism rarely goes without anything else, and for many anxiety is part of the autism as it definitely is for me - research backs this one up.
@strawsofftheneurodivergent4221
2 жыл бұрын
@@welcome12ization it is, but yes anxiety is seperate and it has a reason - which is a invalidating, non-accepting, judgemental (and sensory overwhelming) environment.
@welcome12ization
2 жыл бұрын
@@strawsofftheneurodivergent4221 In some cases maybe, but in my case it's part of my autism.
@strawsofftheneurodivergent4221
2 жыл бұрын
@@welcome12ization I can see where you are coming from. Yes. We as autistics have a very sensitive nervous system, and therefore I call the amygdala the fire alarm who reacts to water vapour in our case, which means, when the amygdala gets triggered from a perceived threat in the environment, one side of it is anxiety, the other side of it is rage. If you are familiar with Donna Williams great book on Autism and sensing? We SENSE our environment. And react to it. Since this is so interconnected, one might think, anxiety is part of autism. I believed that too. However, since I started working with entheogens, I found out, that, the fear response is separate from being autistic, because, if the amygdala does not get triggered, there is no fear response.
@welcome12ization
2 жыл бұрын
@@strawsofftheneurodivergent4221 Makes sense, I think it's different for different people though. In my case, anxiety is part of my autism.
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